Re: Re: Hurts to be touched

[Guest guest]

I think, perhaps, that pain may be a part of the illness. Towards the last few

months of my husband's ordeal, he moaned and obviously hurt when being moved.

He was on a Tylenol regimen, too, but it apparently didn't do the job. He also

was on a Fentynal patch until he broke out from it or the adhesive. Perhaps

they have fibromyalgia, too, as that makes you hurt all over; however, massage

does help that.

June C.

>

> Subject: Re: Hurts to be touched

> To: LBDcaregivers

> Date: Tuesday, June 3, 2008, 7:54 AM

> Kathy,

>

> My Mother used to love massages, but once the LBD had

> advanced she

> didn't want any massages. Also massaging didn't

> seem to help the stiff

> muscles. She often complained of hurting all over. She was

> taking

> Tylenol round the clock for arthritis, but that didn't

> seem to help.

>

> They say that depression causes aches and pains, so I

> wonder if part

> of it is the depression that comes with LBD.

>

> Sorry, I have no good answers.

>

> in Dallas

>

>

> >

> > My husband has a new symptom. He complains of pain

> when he is touched.

> > Since he won't use a walker or wheelchair and is

> in danger of falling

> > when he walks, we sometimes need to take hold of him.

> He complains of

> > even gentle touches though.

> >

> > Kathy

> > 60 your old spouse of 83 year old with

> Parkinsonism w LBDD,

> > recovering from C1 & C2 fracture; now with UTI

> resistant to oral

> > antibiotics - treating with IV Zosyn via PICC line

> administered by me

> > at home using a portable infusion pump.

> >

>

>

>

> ------------------------------------

>

> Welcome to LBDcaregivers.

>

>