Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 ((((((((((((((((((((((Judi))))))))))))))))))))) ... I'm so sorry you are having a difficult time and additional problems. You sure have been through the mill, my big sis. I have a lot of smaller lumps in my legs and arms, a couple in my back, none others that I know of. Please be extra sweet to you. Always... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 ((((Tess)))) right back at you. Please mention Dercum's Disease to your doctor--you might want to go to www.dercumshope.org and print out some information, as the location of your lumps sure sounds like DD to me. May it not be so... Love, Judi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 Hi Judi: That is wonderful, my friend. I am so glad that you are obtaining such immediate relief, and are able to do things that were unthinkable just days ago. I, too, have FM which has really been working its evil ways on me lately. I am making note of this medication and at my next appointment will be asking my doctor if it would be helpful to me. Thanks for the heads-up. Kathe in CA --- nonny46 <nonny46@...> wrote: > Hi all, > > I just started taking a new medication, Lyrica > (pregabalin) that I > first heard about when I saw something posted here > (probably from > or a.) It is by Pfizer, and they said it > " shows great > promise in treating Fibromyalgia. " > > Since Dercum's Disease is so similar to FM, my > doctor agreed to my > trying it, especially after such a dismal reaction > to the Pimozide I > did try. I have taken 2 doses, one Thursday night > and one last > night, not even near the dosage I'm supposed to > take. So far I have > had 2 very good nights' sleep, and my pain level has > gone from about > 20 down to a 2 (on a scale of 1-10.) The only > negative has been some > dizziness, but that usually goes away after > breakfast and coffee. > Yesterday I worked 3 hours cleaning one Sunday > School room, and did > not have the grinding pain in my hips that usually > comes from being > on my feet. Today I did 2 loads of laundry, cut > grass, and baked 2 > different kinds of cookies for church tomorrow, and > it's only 2:45! > > I just wanted to share this with you in case any of > you who are not > satisfied with your FM meds might want to ask your > doctor if you can > try this. It is in the same general category as > Neurontin, but I > took Neurontin and believe me, this doesn't act at > all the same! > > Hoping you're having a good weekend, > > Judi in Indiana--enjoying sunny and 70's > > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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