Kerri

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In a message dated 6/10/2003 10:18:41 PM Eastern Daylight Time, wolfekm@... writes:

I spent most of Sunday evening feeling sorry for myself

:-O so now I'm just resigned to be patient and see what happens!

Sorry to hear that! I hope just as with plagio, you can attack it full throttle with education and patience (ug! right?!), but hopefully this will pass and will be nothing but a distant memory! I know how you feel on the why me deal, I got shingles at 32 yo, I thought only old ppl got that! Turns out, a lot of ppl do- even Letterman! Good luck and wishing you a speedy recovery!

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In a message dated 6/20/2003 2:28:53 PM Eastern Daylight Time, wolfekm@... writes:

I REALLY

appreciate all of your tort advice with !

Kerri-

Thanks so much for saying that- really made my heart smile Having walked a few miles in those shoes, it makes me feel good to come full circle from desperately seeking answers/help/support, to being able to give it out just the same. I used to want that crystal ball to tell me, what will his future be? Hearing from other parents further down the road and seeing kids as severe as mine looking straight as can be, certainly helped ease my mind. That's one of the reasons I stick around, to allow parents to see that light at the end of the tort tunnel- takes awhile, but when you get there, its all worth it!!!!! Good luck to you and if I can ever lend a hand to you, please let me know Best wishes to you and !

nicholas'mom

[Guest guest]

shannon152000 <wolfekm@...> wrote:

>>>I have to say, this group is great, and definitely the most active plagio group I was able to find <<<

Thank you for your kind words Kerri!! Very much appreciated as usual

Debbie Abby's mom

DOCGrad MI

[Guest guest]

In a message dated 8/21/2003 9:19:09 PM Eastern Daylight Time, wolfekm@... writes:

Is 4 the light at the end of the tunnel?!?!? (my older

daughter) is 3 yr 8 mos, so maybe we're almost there LOL. We've at

least taught her to tell us "I'm mad at you right now, but I still

love you!" (most of the time anyway...)

Kerri-

Oh no don't say that!!!! I thought that was really stretching it far enough that it would be a distant memory by 4! We've taught that too- so he'll say, 'I'm angry, or I'm upset" - but that's on a good day!!!! LOL!

[Guest guest]

In a message dated 9/9/2003 12:52:52 PM Eastern Daylight Time, wolfekm@... writes:

That's funny that you said that - I sent him a cookie basket as a

thank you!

Kerri

LOLOLOL! Chocolate, the universal thank you! Good job!

[Guest guest]

Kerri

Hi! I to am a starband mom and i'm very pleased with our decision. My son MAtthew has had some very ood correction over the last two months. We were so concerned that this would'nt happen due to his age. (9months almost 10) His ortho has been fantastic. I'm sure you will be very pleased with your results. We have the starscanner and it is neat but my ortho says it is a very rare machine. But either way I would have gone to them with or with out the machine because I really like the ortho I talked to and was also very pleased with her experiance. I hope all goes well with your molding. And you will soon see a rounded little head!!

and L

Covington GA

Starband sd302001 <thedodds@...> wrote:

We are getting the Starband in Gainesville florida (about 1hr 45 minutes from home). The orthotists name is rob kirstenberg and he has 15 years of experience. No, he does not have a starscanner. He seems to be very qualified and spent a lot of time with us on our visit. He has done over 1000 cranial molds (not necessarily Starbands) and has had much success and seems very optomistic about Emma.> > , wow, you really took some words out of my head. I do > feel as > > you, not being a DOC band parent, are almost looked down apon, when > at > > which, we made the right choice for our child. I congratulate you > in > > everything that you have done for this group. Best of luck to you > and > > Vivian. Please do pop in, Best wishes, Heidi, mom to Jeffry, local > helmet > > grad, MN> > > > > > > > Hugs & Drool,> > Jeffry, Heidi

& Brett> > Zimmerman> > > > > > > > > > > > >From: "xtinaherp" <xtinaherp@y...>> > >Reply-Plagiocephaly > > >Plagiocephaly > > >Subject: Stepping down as Moderator...> > >Date: Wed, 01 Oct 2003 18:54:06 -0000> > >> > >Hi all!> > >> > >It has come time for me to hang up my hat as a group moderator. It> > >has been a year since Vivian received her band and I feel that it > is> > >time to begin moving on. I would also not be truthful if I did not> > >say that my

stepping down did not have something to do with group> > >dynamics and the way we non doc-band parents feel at times but I> > >suppose at this point that is neither here nor there.> > >> > >Special thanks to people like Debbie, , and for all of> > >the great support and information they have offered to me in the> > >past. Without them to spur me on I would have probably not gotten> > >Vivian the help she needed. Also everyone should thank Kendra for> > >starting this group and really wanting to help our little plagio> > >kiddos. I hope that future members will help to keep the group> > >positive and continue to help plagio parents to get the help they> >

>need.> > >> > >I'll still be around here for a while to get the good word about> > >plagio out and to help people as best as I can. If anyone needs > any> > >assistance with star bands or help in the MI area, please let me> > >know and feel free to e-mail me directly.> > >> > >> > >mom to Vivian star grad> > >> > >> > >> > >For more plagio info

[Guest guest]

Kerri,

Did you have Cigna????

It really does not matter to me what they pay it under as long as they pay!!!!!! My appeal states that I want it paid under DME but the rep told my mother-in-law it is disposible medical equipment either way the initials are the same.. thanks for the info.

(DOCband grads mom)shannon152000 <wolfekm@...> wrote:

Ours was paid as *durable* not *disposable* medical equipment (DME)Kerrikristen's mom> > > HI! new to the group. I have identical twin boys who are now 8 > > > months old. We just had their pictures taken and Cranial Tech in > > > Charlotte, NC. and casts done. > > > > > > We have been denied coverage after a months long wait, what was > > >

supposed to take 15 business days. HA!> > > > > > Does anyone have experience with appeals that won or know of a > > group > > > that can help you fight, FREE of charge?> > > > > > Seeing Red in Charlotte :-)> > > > > > > > >

[Guest guest]

Kerri,

In our insurance policy it states that we have 100% coverage under durable medical equipment, they originally billed it under external prosthetic appliance (EPA). When my mother called the rep told her that DME was something that could be reused by others, and that disposible medical equipment was what the band could be considered because once the child is done with it it was no longer usable her example was such as a cast for an arm or leg they would have to keep replacing that cast untill the bone was healed as the child grew (same as children who need multiple bands). I find it funny that insurance company's never mention all they tiny ways they get around paying for things..... all I know is the longer I have to wait for an anwser the more pissed I get. I will will fight till the very end!!!!!!!!!!!!!!!!!!

Thank you for your help.

(DOCband grads mom)shannon152000 <wolfekm@...> wrote:

,No, I have UHC, I always thought the initials DME *always* meant Durable Medical Equipment (someone chime in if I'm wrong!!) - just thought I'd mention it so you can reference the right thing. Somehow I don't think of the bands as "disposable" since the kids use them for up to several months, not just one day and toss it... As long as they pay, doesn't matter what they call it!Kerri's mom (DOCgrad)> > > > HI! new to the

group. I have identical twin boys who are now 8 > > > > months old. We just had their pictures taken and Cranial Tech > in > > > > Charlotte, NC. and casts done. > > > > > > > > We have been denied coverage after a months long wait, what > was > > > > supposed to take 15 business days. HA!> > > > > > > > Does anyone have experience with appeals that won or know of a > > > group > > > > that can help you fight, FREE of charge?> > > > > > > > Seeing Red in Charlotte :-)> > > > > > > > > > > >

[Guest guest]

Kerri,

Your email made me cry! Thank goodness you had me laughing at the end of it! I know all to well the crying that your talking about at pt, it was such an emotional time for me, and I think only the parents that have witnessed the intensity of this, can understand how much anguish one can feel all at once. Thank you for being there for everyone to support them through this process. I know you will continue to offer your wonderful information and support as I've seen you do countless times. My family and friends are still clueless about why this place was so important to me, I guess its because only my "imaginary friends" understand where I've been and how important this is. Thank God I had this group to "hold my hand", and I'm so glad you have felt this way too! Thanks for the good cry

'mom

[Guest guest]

I'm glad you have shared that. I thought i was the only one who looked at her swirly cowlick. My husband is awesome with the kids but doesn't think about combing their hair in the morning or anything. My MIL is definitely a member of the plagio police now too.

Angie

Re: Angie

Angie,My husband thinks I'm crazy - yesterday her hair was not only swirling, but puffing a bit at either edge of that teeny flatness - making it look really wide and flat... I kept trying to wet it down. He just doesn't even look at that stuff. I dropped the girls at daycare this morning (dh usually does), and she commented that dh doesn't usually comb 's hair in the morning LOL. I think she's a member of the plagio police now too LOL!Kerri> > > > Kerri,> > > > Just curious about why you requested to have it poured. Do > you > > > > think she is showing signs of regression at all? > > > > , mom to Hannah, DOCbanded 5/12 and 8/12> > > > Cape Cod, Ma> > > > > > > > > > > > > > > >

[Guest guest]

Hi Kerri,

Hannah has been taking a few steps and walking short distances since

the first week of October. It's weird though b/c the most I've

counted I think so far is about 15 or so steps, but she still

prefers to crawl usually. It does amaze me how someone with such

little legs can move so quickly though! Hannah graduates tomorrow!

Did you ever get s CT before/after pics? I looked in her

folder the other day, but only saw the ones you took.

--- In Plagiocephaly , " shannon152000 " <wolfekm@h...>

wrote:

> ,

> Wow, Hannah's walking too? In some ways it's easier, but she sure

is

> fast... How much longer in the second band? I'm sure it does

help

> with those spills!

> Kerri from NY

> 's mom, DOCgrad

>

>

>

[Guest guest]

Wow Kerri, that is so neat that she has rounded more post

graduation. What neat keepsakes the before and after headsicles

will be. I can just picture her at show and tell in kindergarten

with her " heads, " lol! It is so neat to see Hannah's before

headsicle near her head now too b/c she really was so severe. It's

amazing really! The pix cranial tech took really show her ear

improvement too. Do you have a big party planned for 's

bday? I'm just starting to plan Hannah's party. I can't believe

she's that old though! I also am looking forward to turning her

carseat around. She actually still fits in her infant seat she's

such a peanut! We aren't doing a graduation celebration, but are

having one big party for her birthday which we figure will be

birthday/graduation/housewarming! Happy early birthday to !

> > > ,

> > > Wow, Hannah's walking too? In some ways it's easier, but she

> sure

> > is

> > > fast... How much longer in the second band? I'm sure it does

> > help

> > > with those spills!

> > > Kerri from NY

> > > 's mom, DOCgrad

> > >

> > >

> > >

[Guest guest]

Kerri,

I hope that you will be feeling better soon. You are

in my prayers.

Beth(AR)

__________________________________________________

[Guest guest]

I haven't been online a whole lot lately and I'm trying to catch up!

I hope that the new med helps and is just the ticket! Hang in there

and God Bless and know that we are all wishing and praying for you!

Sending well wishes your way! Take care! XXX's Kim

[Guest guest]

You are 3/4 done, way to go! I am facing a year, but you all are sure encouraging, I'll make it, and so will you, hang in! Hugs, SheenaKerri Landress <kerrilandress@...> wrote: I did shot 16 last night... 8 more to go! I drink a lot of a water called Fruit 2-0, It has hardly any sodium (less than 10 mg per bottle) no calories and a splash of flavor... cherry and peach are my favorites. I drink plenty of plain water, too. Like I said, I ALWAYS have a

water bottle with me. Spend plenty of time peeing (lol) but I am ALWAYS thirsty!!!!Jackie on <redjaxjm > wrote: ps,, YES,, is my husband. his blood glucose was only 132 but anything above 120 is now considered diabetes.. so its not REALLY high, thank God!Sheena <mom4possums2002 > wrote: I never did finish my thought on that last e-mail.. Thanks, we are on the same wave length, I bought 2 bottles of smart water, then my daughter brought me 10 more from Trader Joe's. (less expensive) I already keep Pedialyte in the house for my orphaned wildlife. So, I am ready to roll. I

just want to use that in-between. My glucose was on the high side last test, so I am trying to keep the sugar down, will drink my 67.6 ounces of bottled water then the rest in either smart water or something with little to no sugar. I talked to the nurse again at Schering, and she said again to divide body weight in half and drink at least that many ounces in fluids.. Is your hubby, Jax? Yikes, diabetes, not a happy diet.. I hope he is soon in control of that.. Kerri, how many weeks do you have in now? Sheena Jackie on <redjaxjm > wrote: Sheena JUST

YESTERDAY I bought a bottle of water called "smart water" and it has electrolytes in it,, you might want to do that... I also spoke with doc because yesterday he was diagnosed with diabetes and the doc said absolutely NO "gatoraide" because of the large sugar molecules which will pull water OUT of your system. We were just discussing the foods that he could eat and what he couldnt eat.. poor guy no fruit at all, only protein and veggies.. no pasta, no rice (except whole kernal brown),no corn, no cereal, no bread unless its WHOLE wheat (not wheat flavored which most grocery store brands are)... Get some Pedialyte for the electrolytes.. or low oz. All the sports drinks have too much sugar in them and are not good for electrolytes, even tho they say they are. I always run low in the sodium dept too,, Im always on the very bottom number or one below it.. but I did alright on tx drinking a gallon of water every day. I think

that as you start tx, you will figure out what is the 'right' amount for you based on how you feel.. I did a full gallon every day or I felt awful.. well MORE awful if that is possible..lolSheena <mom4possums2002 > wrote: My Doc and others are disputing over how much water since my sodium tends to run low already with 4 16.9 bottle, so Kerri Landress <kerrilandress > wrote: tons.... at least 6 bottles (12 oz) per day... if not more. I constantly have a watter bottle. I am always thirsty. My lips are always dry...Sheena <mom4possums2002 > wrote: How much water are you drinking, Kerri? Kerri Landress <kerrilandress > wrote: I take my shot Wed. night, and Thursday night and Friday is when I feel the worst. Mostly low fever, chills, muscle aches... tylenol helps. The fatigue is the hardest for me to deal with, but I manage. I have a full time job and two young kids (5 and 3) and I am exhausted a lot... Getting enough sleep at night (at least 9 hours) and drinking LOTS of water helps. elizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: For me the sides showed up with the

first shot and got worse as treatment progressed but each person responds differently to treatment . So you may not have more side effects than the hot flash . Waiting for sides. It's Monday. When do the sides show up?I just took my first pegintron today about six hours ago and all i got

was a hot flash. (I hope I don't sound disappointed.) I just took a couple advil. I have small work throughout the week on and off and a big weekend job so i'm just wondering. Thanks and the drug company picked up my tab. Woo hoo!Beej Get your own web address.Have a HUGE year through Small Business. Need Mail bonding?Go to the

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