Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 if what you have written here reflects accurately what your doctor has told you then I’d say the sooner you get someone who knows what they are talking about the better. #1. It is not possible to make any decision treatment based on a single PSA reading of 11.8 ng/ml. Because PSA is NOT prostate cancer specific a reading at this level can be from any number of things, none of which are going to cause your death in two years. PSA at this level MIGHT have some prognostic value if it is the last in a series of rapidly increasing numbers that might point to an aggressive disease. So if your doctor truly said <snip> …. the only number that matters is the psa. <snip> then he is also saying “I don’t know enough about this disease to give you good advice. Go to another doctor.” #2. The ONLY way that it is possible to make a reasonable assessment of the aggressiveness of any tumour is to know what grade it is. The system used for prostate cancer is the Gleason system and tumours are scored by the total of two grades identified by a pathologist. The process is subjective and therefore has a degree of inaccuracy. ALL Gleason Scores should be checked by a competent pathology laboratory. You are entitled by law to a copy of your pathology report (you may have to pay a small fee for the cost of copying it) and if you are to be involved in making any decision abou your future you should get hold of a copy of this as soon as possible. In refusing to give you this information the doctor is underlining the fact that you should go to someone else. #3 Once you have the information about your Gleason Score and if you can tell us what your PSA numbers have been doing for the past year, we might be able to suggest to you a plan of action for discussion with a competent medical advisor. That is when you need to decide if Lupron is what you need. #4 Unless your Gleason Score is 8 or above, delaying any action for some time (up to two years suggests one study) is NOT going to make any difference to the outcome of your disease or the appropriate treatment. You have time to make a sensible decision. use the time well to get the data you need. #4 It is ESSENTIAL to remember that there is only one Person who knows when you are going to die, and He ain’t telling – and although many doctors tend to confuse themselves with gods, they aren’t. All the best, Terry Herbert in Melbourne, Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. August '06 PSA 27.4 My site is at www.yananow.net As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data: Dr “Snuffy” Myers. From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of CHARLES DAVID CRAYCRAFT Sent: 18 September 2006 12:02 AM To: ProstateCancerSupport Subject: lupron shot hi, i was diagnosed with prostate cancer aug 21 from biopsy. i passed the ct scans and bone scan. so the cancer is in the lower right third of the prostate.i'm 59 , psa is 11.8 . i asked for the t counts and other numbers ,but the dr says that those the only number that matters is the psa. we currently live in florida and planning on moving back to ohio to retire in two years because of the increased living expenses. the dr wants to take out the prostate, but there are some issues: 1. i have no insurance to pay for this (estimated from hospital 45,000+) 2. i have heart disease, so the issue of my ability to survive treatment is in question. 3. at our last meeting with my uriologist, he said i have to leave florida now (sept 06) for ohio and get into the welfare system with the chance of treating this before it spreads. 4. my prognoses is 2 years or sooner and maybe a year after that before i'm dead. 5. so he wants to give me a shot(lupron) to put me in to remission for 3 months at a cost 2500.00 so that i can have some time to find help in ohio. 6. columbus ohio has an excellent cancer center, its just finding the funding to pay for it. 7. i choose to get treatment in ohio,because we have family there for support. my question is about this shot. 1. are the side effects going to impair my ability to move or should i wait till after i move delaying the shot to mid nov 06. he wants to give me the shot sept 26. any ideas or thoughts would be a great help. thanks davecraycraft Quote Link to comment Share on other sites More sharing options...
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