Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi To All! Welcome to all the new members! I have not written as I am still battling depression. I have not done anything but tried to maintain. By that I mean my sanity and my health. It is very depressing to have to deal with all that each and everyone of us here has had to deal with while in pain. Dr. visits,forms. referrals,prodding and probing and questions galore when all....well....speakng formelf I just want to go to sleep and stay asleep. I am so fatigued and seen to never have energy t deal with th drs. anymore. IN Ak. all was so much better than here on the east coast. Here there are so many rules and regulations and so on. Is is so freaking hard to deal with all this here for me. As for the meds....they themselves are frightening. It seems one day they are good and the nexy=t they are being pulled off the market. I hate going to the dr. and yet I feel as if I am at the mercy of the dr's as I have r/a and fibro and add 2 or more, which framkly I think Dr's aren't that great when it comes to these diseases. I think some do the best they can but I have not met a good one here. My r/a Dr. in Ak. that died in a plane crash was wonderful. I'd move back if he was still alive. I do not like it here. I am moving I just don't know where to yet. I have seen what these meds. do to people especially predinisone and I think I read it here that it should be pulled off the market. Something to that effect. MY friend and sister took it and it really hurt them over the years. I refused to take it except during flare-ups as the pain was unbearable. I wanted to be put back on enbrel when I moved her but the mew r/a only allowed celebreax and vioxx. Great,huh? AFter 10 months I found a new r/a Dr. and am still not happy. I am on plaqiunel and it kills my system. So she gives me prilosec. Great again! I hate this life. I am so tired. I think of what we are reading in the news and seeiing on the news and oh yes it makes me grateful thatI am not there and I guess I should not feel sorry for myself but Dear Lord have mercy. How much is one supposed to take. (not a question) I am one of those taking it one minute at a time as I am in alot of pain and realize that Dr's do not have all the answers. I have to be in charge and in control of my mind and body. Of what I will put in my mouth. OF th epositive affirmations I will recite to myself. This to me is a very lonely disabling life. My heart goes out to each and everyone of you as I know you also have your good days and your bad days. God bless you all. I am taking the less possible medication possible and even with the anti-depressants. I think it was the paxill that caused me to be able to attempt the suicide in June. I am living with this depressing afraid to take any anti-depressants as I know they are powerful medicines. I am at a loss with all this since I no longer have my daughter to help me with anything. She was my sunshine, my angel. SHe still is, I just don't see her anymore. WIth all that I have been reading on antibiotic traetment- I am going to see if th Dr. will let me try it again. I have had r/a for over 10 years. Maybe 15. Been on almost every pain drug and refuse totake oxtcontin even though it does help the pain. I was over medicated. 80 mg. several times a day with 15mg roxicodone and so on. Way to much. Also the 75 durasegic patch which I don't want also.Maybe I should consider a lower dosage since that was 5 years ago. I am on vicoprophen hoping it is not hurting my liver and kidneys. I don't fear death but I fear slow suffering and pain and drugs. I know I will always have pain. I just want to take the edge off of it so I can funtion somewhat. With out help I am bedridden as my knees are both sooooo bad and it hurts to walk or stand even. Enough of my ity party. I hope the best for all of you as you continue on this difficult path. May God give you wisdom and strenth and more pain free days. God bless you all again and thank you all for all that you post. Love to you ALL!!!!! Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi To All! Welcome to all the new members! I have not written as I am still battling depression. I have not done anything but tried to maintain. By that I mean my sanity and my health. It is very depressing to have to deal with all that each and everyone of us here has had to deal with while in pain. Dr. visits,forms. referrals,prodding and probing and questions galore when all....well....speakng formelf I just want to go to sleep and stay asleep. I am so fatigued and seen to never have energy t deal with th drs. anymore. IN Ak. all was so much better than here on the east coast. Here there are so many rules and regulations and so on. Is is so freaking hard to deal with all this here for me. As for the meds....they themselves are frightening. It seems one day they are good and the nexy=t they are being pulled off the market. I hate going to the dr. and yet I feel as if I am at the mercy of the dr's as I have r/a and fibro and add 2 or more, which framkly I think Dr's aren't that great when it comes to these diseases. I think some do the best they can but I have not met a good one here. My r/a Dr. in Ak. that died in a plane crash was wonderful. I'd move back if he was still alive. I do not like it here. I am moving I just don't know where to yet. I have seen what these meds. do to people especially predinisone and I think I read it here that it should be pulled off the market. Something to that effect. MY friend and sister took it and it really hurt them over the years. I refused to take it except during flare-ups as the pain was unbearable. I wanted to be put back on enbrel when I moved her but the mew r/a only allowed celebreax and vioxx. Great,huh? AFter 10 months I found a new r/a Dr. and am still not happy. I am on plaqiunel and it kills my system. So she gives me prilosec. Great again! I hate this life. I am so tired. I think of what we are reading in the news and seeiing on the news and oh yes it makes me grateful thatI am not there and I guess I should not feel sorry for myself but Dear Lord have mercy. How much is one supposed to take. (not a question) I am one of those taking it one minute at a time as I am in alot of pain and realize that Dr's do not have all the answers. I have to be in charge and in control of my mind and body. Of what I will put in my mouth. OF th epositive affirmations I will recite to myself. This to me is a very lonely disabling life. My heart goes out to each and everyone of you as I know you also have your good days and your bad days. God bless you all. I am taking the less possible medication possible and even with the anti-depressants. I think it was the paxill that caused me to be able to attempt the suicide in June. I am living with this depressing afraid to take any anti-depressants as I know they are powerful medicines. I am at a loss with all this since I no longer have my daughter to help me with anything. She was my sunshine, my angel. SHe still is, I just don't see her anymore. WIth all that I have been reading on antibiotic traetment- I am going to see if th Dr. will let me try it again. I have had r/a for over 10 years. Maybe 15. Been on almost every pain drug and refuse totake oxtcontin even though it does help the pain. I was over medicated. 80 mg. several times a day with 15mg roxicodone and so on. Way to much. Also the 75 durasegic patch which I don't want also.Maybe I should consider a lower dosage since that was 5 years ago. I am on vicoprophen hoping it is not hurting my liver and kidneys. I don't fear death but I fear slow suffering and pain and drugs. I know I will always have pain. I just want to take the edge off of it so I can funtion somewhat. With out help I am bedridden as my knees are both sooooo bad and it hurts to walk or stand even. Enough of my ity party. I hope the best for all of you as you continue on this difficult path. May God give you wisdom and strenth and more pain free days. God bless you all again and thank you all for all that you post. Love to you ALL!!!!! Marie Quote Link to comment Share on other sites More sharing options...
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