Re: hi everyone i'm new here

October 28, 2003

,

I think it's great that you are so concerned, there aren't too many

husbands like you out there. Niki is very lucky to have you. My

daughter is the one who has the seizures and she's only 13yo and has had

the seizures since she turned 12yo and she's on Trileptal. I'm sorry that

I can't help with any info about Keppra, but I just wanted to say how

sorry I am that you and Nikki have had such a rough time. God Bless you

both!

Grace

On Tue, 28 Oct 2003 23:39:55 -0000 " " <boomerang2u2@...>

writes:

> Realy pleased too have found this group.

> I have been a carer for someone with epilepsy (my wife)for 11 years

> and i have been increasingly losing faith in modern medicine.

> Though i realise that for the lucky 80%, siezure control by

> pharmacological means should be considered pretty good; i wonder

> what percentage of the 80% have no side effects or adverse

> complications ; ie.. with mood, psycological, nervous or any other

> kind of imbalance.

> Niki, my wife, has had sporadic epileptic grand-mal siezures for 23

> years. She unfortunately has been in Hospital for the last 4 weeks.

>

> She had a realy good spell of 5 months we went on holiday and on our

>

> return they came back with a vengance. She'll be out soon and if i

>

> know Niki she'll have plenty to say but she's a bit of a

> technophobe. So whatever she wants to say i'll relay it. Zoe thanks

> for posts relating to drugs and control, would be interested if you

>

> have any info on Keppra as they are trying this on Niki ....she

> seems to be losing her appetite for food on it....and more

> worryingly she seems to have lost a little bit of her appettite for

>

> life as well as feeling more than a little odd on it.

> May the light shine from you all

> kind wishes and regards

> .

>

October 28, 2003

HI GARY,MY NAME IS MARK AND YOU NEED TO GET YOUR WIFE ON SUNRIDER CHINESE HERBAL

FOODS IF YOU E-MAIL ME YOUR ADDRESS I'LL SEND YOU A CD ON THE PRODUCT.IT FLUSHES

OUT TOXINS OUT OF YOUR BODY THAT CAUSE ILLNESSES THANK YOU,MARK HOGUE

<boomerang2u2@...> wrote:Realy pleased too have found this group.

I have been a carer for someone with epilepsy (my wife)for 11 years

and i have been increasingly losing faith in modern medicine.

Though i realise that for the lucky 80%, siezure control by

pharmacological means should be considered pretty good; i wonder

what percentage of the 80% have no side effects or adverse

complications ; ie.. with mood, psycological, nervous or any other

kind of imbalance.

Niki, my wife, has had sporadic epileptic grand-mal siezures for 23

years. She unfortunately has been in Hospital for the last 4 weeks.

She had a realy good spell of 5 months we went on holiday and on our

return they came back with a vengance. She'll be out soon and if i

know Niki she'll have plenty to say but she's a bit of a

technophobe. So whatever she wants to say i'll relay it. Zoe thanks

for posts relating to drugs and control, would be interested if you

have any info on Keppra as they are trying this on Niki ....she

seems to be losing her appetite for food on it....and more

worryingly she seems to have lost a little bit of her appettite for

life as well as feeling more than a little odd on it.

May the light shine from you all

kind wishes and regards

.

October 28, 2003

GARY I'D SUGGEST THAT YOU DON'T USE KEPPRA,IT LEADS TO DEPRESSION,SUICIDE,

MEMORY LOSS, JUST TO NAME A FEW I WAS ON IT AND IT MADE ME HAVE MORE SEIZURES

THAN I EVRER HAD IN 3 MONTHS TIME I HAD 605 SEIZURES DOES THAT TELL YOU

ANYTHING,MARK HOGUE

<boomerang2u2@...> wrote:Realy pleased too have found this group.

I have been a carer for someone with epilepsy (my wife)for 11 years

and i have been increasingly losing faith in modern medicine.

Though i realise that for the lucky 80%, siezure control by

pharmacological means should be considered pretty good; i wonder

what percentage of the 80% have no side effects or adverse

complications ; ie.. with mood, psycological, nervous or any other

kind of imbalance.

Niki, my wife, has had sporadic epileptic grand-mal siezures for 23

years. She unfortunately has been in Hospital for the last 4 weeks.

She had a realy good spell of 5 months we went on holiday and on our

return they came back with a vengance. She'll be out soon and if i

know Niki she'll have plenty to say but she's a bit of a

technophobe. So whatever she wants to say i'll relay it. Zoe thanks

for posts relating to drugs and control, would be interested if you

have any info on Keppra as they are trying this on Niki ....she

seems to be losing her appetite for food on it....and more

worryingly she seems to have lost a little bit of her appettite for

life as well as feeling more than a little odd on it.

May the light shine from you all

kind wishes and regards

.

October 28, 2003

OH GARY,STAY AWAY FROM GRAPEFRUITS & GRAPEFRUIT JUICE AS WELL.IT LOWERS THE

LEVEL OF MEDICATION,MARK

<boomerang2u2@...> wrote:Realy pleased too have found this group.

I have been a carer for someone with epilepsy (my wife)for 11 years

and i have been increasingly losing faith in modern medicine.

Though i realise that for the lucky 80%, siezure control by

pharmacological means should be considered pretty good; i wonder

what percentage of the 80% have no side effects or adverse

complications ; ie.. with mood, psycological, nervous or any other

kind of imbalance.

Niki, my wife, has had sporadic epileptic grand-mal siezures for 23

years. She unfortunately has been in Hospital for the last 4 weeks.

She had a realy good spell of 5 months we went on holiday and on our

return they came back with a vengance. She'll be out soon and if i

know Niki she'll have plenty to say but she's a bit of a

technophobe. So whatever she wants to say i'll relay it. Zoe thanks

for posts relating to drugs and control, would be interested if you

have any info on Keppra as they are trying this on Niki ....she

seems to be losing her appetite for food on it....and more

worryingly she seems to have lost a little bit of her appettite for

life as well as feeling more than a little odd on it.

May the light shine from you all

kind wishes and regards

.

October 28, 2003

Hi :

Welcome to the group!! Your wife is lucky to have you and I hope she does

well.

I have an adult friend that takes Keppra and she is doing very well on it -

no seizures at all - and she is a person that has had seizures since a young

age. She's a mother of two, a beautiful girl, and can work full time with

Keppra!

I know each of us react differently to medications.

I'm still looking for someone to discuss the one I take - Tegretol - from

this group!

> GARY I'D SUGGEST THAT YOU DON'T USE KEPPRA,IT LEADS TO DEPRESSION,SUICIDE,

> MEMORY LOSS, JUST TO NAME A FEW I WAS ON IT AND IT MADE ME HAVE MORE SEIZURES

> THAN I EVRER HAD IN 3 MONTHS TIME I HAD 605 SEIZURES DOES THAT TELL YOU

> ANYTHING,MARK HOGUE

>

> <boomerang2u2@...> wrote:Realy pleased too have found this group.

> I have been a carer for someone with epilepsy (my wife)for 11 years

> and i have been increasingly losing faith in modern medicine.

> Though i realise that for the lucky 80%, siezure control by

> pharmacological means should be considered pretty good; i wonder

> what percentage of the 80% have no side effects or adverse

> complications ; ie.. with mood, psycological, nervous or any other

> kind of imbalance.

> Niki, my wife, has had sporadic epileptic grand-mal siezures for 23

> years. She unfortunately has been in Hospital for the last 4 weeks.

> She had a realy good spell of 5 months we went on holiday and on our

> return they came back with a vengance. She'll be out soon and if i

> know Niki she'll have plenty to say but she's a bit of a

> technophobe. So whatever she wants to say i'll relay it. Zoe thanks

> for posts relating to drugs and control, would be interested if you

> have any info on Keppra as they are trying this on Niki ....she

> seems to be losing her appetite for food on it....and more

> worryingly she seems to have lost a little bit of her appettite for

> life as well as feeling more than a little odd on it.

> May the light shine from you all

> kind wishes and regards

> .

>

August 31, 2005

I'm sorry you're hurting so bad . As for who to help with pain relief,

depends on your doctor. The first Rheumy didn't believe in pain meds, but my

new one does. So I'd say ask both and see what happens?

Have a good day!

melissa <mvd12720@...> wrote:

hi everyone well i am 34 and i have ra i was told i had it 4 years ago

but i think that i have had it longer then that i have had pain and

swelling sence i was a teenager. but i finally got a dr. that tested

me for it and then i'm with my second rumy now the first one said that

i was fine and to go home after months of injections and then he

retired so know i have a new one and he is doing testing to see if he

can put me on mtx and it is scarry for me because i have 2 kids 11 and

7 years and 3 step kids 13,12,11 years and well i also work st a vets

office i'm the holder for treatments and shots but the sideaffects

scare me about this but i'm willing to give it a try as long as

everything is good in my blood. well i'm sorry that i'm going on and

on but i'm in so much pain right now i cann't stand it. i go to my

regular dr today and i'm going to see if he can get me any pain relef

or should i talk to my rumy????

melissa

August 31, 2005