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Re: OT/ Shirley rocks!!! Got referral!

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I am so glad that you had Shirley in your corner, and that her

persistence won out over the doctor's....doctor-ness. I have

this " Joan of Arc " in armour picture in my mind, that is so cool.

Now maybe they can get to the bottom of what is going on and help you.

keep us posted, OK?

Blessings

jane

> Hello! I had my arthritis appointment and follow up for the CT

Scans

> today. The Doc's Office did not receive my reports. I only had a

> copy of the cervical. I picked it up this morning along with the

ER

> x-rays. The other 2 CT Scans were not done at that time. The

> hospitals computer was down (imagine that) and they were to fax it

> over a.s.a.p.. I gave the doc a look at it. It really didn't say

> much so that was good. He replied that " why do they always say

> that - why do they always put follow up with MRI? " He said that he

> could send me for an epidural. I told him I would but, not here.

I

> told him where and he agreed as the process here or the facility

> rather is not what I deem safe! The only concern really was what in

> the sam heck was the other CT Scans going to possibly reveal? He

> didn't think much. I thought Shirley was gonna lose her mind!!!

She

> stood up and walked toward him and said, " ah - no, we need to get

to

> the bottom of this. I want to know what in the hell is going on

with

> her! " She told him that we tried to get information on the

> intracranial calcification and only came up with ALS, SLE, or a

> tumor. He said that he didn't know until he got the report and

then

> agreed to call me with the results to ease my mind as thinking

about

> a tumor could worry me senseless!!! He was ready to call it a day

and

> then Shirley became Advocate Warrior Woman again! She was bound and

> determined to get answers b4 we ventured out his door. He then

blew

> our minds by saying - " I believe that something is going on with you

> and that I am unable to help you and that I believe it is time to

> send you to a specialist who is familiar with these types of things

> because I don't know (R U believing this?) it is over my head. I'm

> going to refer you to a Neurologist if that is okay with you " I

> think I lost conciousness at that point!!! LOL Shirley can fill

in

> the blanks - she was on it! I told him that I would do anything at

> this point! B4 walking out the door I remembered that he was going

> to check my hips. He did and they are way out of alignment. He

> popped them for now. I've seen the Neurologist here and like him!

He

> seems very thorough and I was referred to him by my Gynecologist

back

> when I couldn't get a referral from Dr. Celebrex! He said that

> outside the call he would have Dr. Siddicui look over all the tests

> these past years since I seen him last. A lot has changed. The

> closest rheumy is 100 miles away and I would imagine that the

> Neurologist could figure out if it is a neurological vs. rheumatic

> disease or something entirely different. Anyhow, I'm anxiously

> awaiting the visit! Hopefully it will be relatively soon! Well -

> thats the update so far you guys - the saga continues! Take care

and

> I hope that today is a good day for you!!! XXX's Kim

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I am so glad that you had Shirley in your corner, and that her

persistence won out over the doctor's....doctor-ness. I have

this " Joan of Arc " in armour picture in my mind, that is so cool.

Now maybe they can get to the bottom of what is going on and help you.

keep us posted, OK?

Blessings

jane

> Hello! I had my arthritis appointment and follow up for the CT

Scans

> today. The Doc's Office did not receive my reports. I only had a

> copy of the cervical. I picked it up this morning along with the

ER

> x-rays. The other 2 CT Scans were not done at that time. The

> hospitals computer was down (imagine that) and they were to fax it

> over a.s.a.p.. I gave the doc a look at it. It really didn't say

> much so that was good. He replied that " why do they always say

> that - why do they always put follow up with MRI? " He said that he

> could send me for an epidural. I told him I would but, not here.

I

> told him where and he agreed as the process here or the facility

> rather is not what I deem safe! The only concern really was what in

> the sam heck was the other CT Scans going to possibly reveal? He

> didn't think much. I thought Shirley was gonna lose her mind!!!

She

> stood up and walked toward him and said, " ah - no, we need to get

to

> the bottom of this. I want to know what in the hell is going on

with

> her! " She told him that we tried to get information on the

> intracranial calcification and only came up with ALS, SLE, or a

> tumor. He said that he didn't know until he got the report and

then

> agreed to call me with the results to ease my mind as thinking

about

> a tumor could worry me senseless!!! He was ready to call it a day

and

> then Shirley became Advocate Warrior Woman again! She was bound and

> determined to get answers b4 we ventured out his door. He then

blew

> our minds by saying - " I believe that something is going on with you

> and that I am unable to help you and that I believe it is time to

> send you to a specialist who is familiar with these types of things

> because I don't know (R U believing this?) it is over my head. I'm

> going to refer you to a Neurologist if that is okay with you " I

> think I lost conciousness at that point!!! LOL Shirley can fill

in

> the blanks - she was on it! I told him that I would do anything at

> this point! B4 walking out the door I remembered that he was going

> to check my hips. He did and they are way out of alignment. He

> popped them for now. I've seen the Neurologist here and like him!

He

> seems very thorough and I was referred to him by my Gynecologist

back

> when I couldn't get a referral from Dr. Celebrex! He said that

> outside the call he would have Dr. Siddicui look over all the tests

> these past years since I seen him last. A lot has changed. The

> closest rheumy is 100 miles away and I would imagine that the

> Neurologist could figure out if it is a neurological vs. rheumatic

> disease or something entirely different. Anyhow, I'm anxiously

> awaiting the visit! Hopefully it will be relatively soon! Well -

> thats the update so far you guys - the saga continues! Take care

and

> I hope that today is a good day for you!!! XXX's Kim

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Kim,

It sounds like your going to get some help. I'm so sorry that you

have went through so much suffering. I will keep you in my prayers,

hang in there, Tawny

> Hello! I had my arthritis appointment and follow up for the CT

Scans

> today. The Doc's Office did not receive my reports. I only had a

> copy of the cervical. I picked it up this morning along with the

ER

> x-rays. The other 2 CT Scans were not done at that time. The

> hospitals computer was down (imagine that) and they were to fax it

> over a.s.a.p.. I gave the doc a look at it. It really didn't say

> much so that was good. He replied that " why do they always say

> that - why do they always put follow up with MRI? " He said that he

> could send me for an epidural. I told him I would but, not here.

I

> told him where and he agreed as the process here or the facility

> rather is not what I deem safe! The only concern really was what in

> the sam heck was the other CT Scans going to possibly reveal? He

> didn't think much. I thought Shirley was gonna lose her mind!!!

She

> stood up and walked toward him and said, " ah - no, we need to get

to

> the bottom of this. I want to know what in the hell is going on

with

> her! " She told him that we tried to get information on the

> intracranial calcification and only came up with ALS, SLE, or a

> tumor. He said that he didn't know until he got the report and

then

> agreed to call me with the results to ease my mind as thinking

about

> a tumor could worry me senseless!!! He was ready to call it a day

and

> then Shirley became Advocate Warrior Woman again! She was bound and

> determined to get answers b4 we ventured out his door. He then

blew

> our minds by saying - " I believe that something is going on with you

> and that I am unable to help you and that I believe it is time to

> send you to a specialist who is familiar with these types of things

> because I don't know (R U believing this?) it is over my head. I'm

> going to refer you to a Neurologist if that is okay with you " I

> think I lost conciousness at that point!!! LOL Shirley can fill

in

> the blanks - she was on it! I told him that I would do anything at

> this point! B4 walking out the door I remembered that he was going

> to check my hips. He did and they are way out of alignment. He

> popped them for now. I've seen the Neurologist here and like him!

He

> seems very thorough and I was referred to him by my Gynecologist

back

> when I couldn't get a referral from Dr. Celebrex! He said that

> outside the call he would have Dr. Siddicui look over all the tests

> these past years since I seen him last. A lot has changed. The

> closest rheumy is 100 miles away and I would imagine that the

> Neurologist could figure out if it is a neurological vs. rheumatic

> disease or something entirely different. Anyhow, I'm anxiously

> awaiting the visit! Hopefully it will be relatively soon! Well -

> thats the update so far you guys - the saga continues! Take care

and

> I hope that today is a good day for you!!! XXX's Kim

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Guest guest

Kim,

It sounds like your going to get some help. I'm so sorry that you

have went through so much suffering. I will keep you in my prayers,

hang in there, Tawny

> Hello! I had my arthritis appointment and follow up for the CT

Scans

> today. The Doc's Office did not receive my reports. I only had a

> copy of the cervical. I picked it up this morning along with the

ER

> x-rays. The other 2 CT Scans were not done at that time. The

> hospitals computer was down (imagine that) and they were to fax it

> over a.s.a.p.. I gave the doc a look at it. It really didn't say

> much so that was good. He replied that " why do they always say

> that - why do they always put follow up with MRI? " He said that he

> could send me for an epidural. I told him I would but, not here.

I

> told him where and he agreed as the process here or the facility

> rather is not what I deem safe! The only concern really was what in

> the sam heck was the other CT Scans going to possibly reveal? He

> didn't think much. I thought Shirley was gonna lose her mind!!!

She

> stood up and walked toward him and said, " ah - no, we need to get

to

> the bottom of this. I want to know what in the hell is going on

with

> her! " She told him that we tried to get information on the

> intracranial calcification and only came up with ALS, SLE, or a

> tumor. He said that he didn't know until he got the report and

then

> agreed to call me with the results to ease my mind as thinking

about

> a tumor could worry me senseless!!! He was ready to call it a day

and

> then Shirley became Advocate Warrior Woman again! She was bound and

> determined to get answers b4 we ventured out his door. He then

blew

> our minds by saying - " I believe that something is going on with you

> and that I am unable to help you and that I believe it is time to

> send you to a specialist who is familiar with these types of things

> because I don't know (R U believing this?) it is over my head. I'm

> going to refer you to a Neurologist if that is okay with you " I

> think I lost conciousness at that point!!! LOL Shirley can fill

in

> the blanks - she was on it! I told him that I would do anything at

> this point! B4 walking out the door I remembered that he was going

> to check my hips. He did and they are way out of alignment. He

> popped them for now. I've seen the Neurologist here and like him!

He

> seems very thorough and I was referred to him by my Gynecologist

back

> when I couldn't get a referral from Dr. Celebrex! He said that

> outside the call he would have Dr. Siddicui look over all the tests

> these past years since I seen him last. A lot has changed. The

> closest rheumy is 100 miles away and I would imagine that the

> Neurologist could figure out if it is a neurological vs. rheumatic

> disease or something entirely different. Anyhow, I'm anxiously

> awaiting the visit! Hopefully it will be relatively soon! Well -

> thats the update so far you guys - the saga continues! Take care

and

> I hope that today is a good day for you!!! XXX's Kim

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