Re: Re: Hi! Iam a new member. Love to all!

[Guest guest]

Hi Everyone,

One thing these babies and children do is to teach us what Love is all

about! Don't worry about things like retardation, just help them grow and

learn like what we should do with any child. The doctors don't know much

about DS or MDS any more than they know about any child. Each one is

different, each one is to be treasured, nurtured, loved and respected.

Worry will only get you more worry; but Love will only get you more LOVE!

Barbara,

mom of Charlie, age 16

Plymouth, NH

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> Good afternoon Amrin,

> after reading your post i realized just how many people have the same

> questions as i do, my baby Ava 2 1/2 months now is doing the same exact

> things that your baby is doing, she is so alart and active, she loves to

> talk to my husband and smiles everytime he comes into the room. I think that

> some doctors are wrong when they say that our babies will be slower then the

> average babies because Ava has been doing these things for the last month or

> so, i don't think that the doctors know, and that is why they warn us rather

> then tell us what we can expect. Now that i have a baby with DS i find

> myself always questionig everything that she does, and i ask my mom

> constantly is that normal? Do you remember ALison (my 4 year old)doing that?

> Having a child with DS makes you constantly question everything, and i think

> it keeps us on high alert. The thing that i find special about having a baby

> with DS is we are learning to appreciate every little accomplishment that

> she has made. When she was first diagnosed i told myself wow now i will

> really have to slow down and take my time in doing things, and that is true

> but in a good way, she has made me watch her every growth and appreciate her

> more every day. Amrin if you concentrate more on your babys milestones

> rather then his mental disabilty i think you will enjoy him rather then face

> the journey with worried thoughts.

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> CJ Alveno Mom of Ava 2 1/2 months DS / Alison 4yrs.

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> > Subject: Hi! Iam a new member.

> > To: mosaicds

> > Date: Tuesday, April 12, 2011, 12:26 AM

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> > Hi,

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> > My name is Amrin i live in India. My son who is 3 months old was

> diagnosed with MDS when he was born. He looks very active he recognizes

> me,my husband and my daughter who is 5 yrs old. He also moves his eyes when

> we move any object and also likes to see diff colours.He has also started to

> smile at us ,initially he used to smile only in sleep.he also plays alot

> .ie.moves his hands and legs continously.

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> >  Can anyone pls help me:  how can i find out whether he is fully

> mentally retarded Or how much % is he retarded? This question really

> kills me all the time i dont know what to do.

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> > pls help me to find out the ans of this.

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> > Regards,

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> > Amrin.

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