Re: WOW!!!!!!!! Read to believe

[Guest guest]

Well, I don't know where to start...seen the doc Monday and got my

blood results faxed and they all came back negative. (so I was lead

to believe) After a couple of days passed - I decided to go get a copy

of the fax from the Wyoming doc to see for myself and to have for my

records. Upon first glance it does seem as if they are all okay.

However, upon further examination - I noticed that there were values

posted in lines across the page. Looked further and seen Sjorgens SSB

POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my hep b

vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

through the lines as they must be from where she highlighted the

page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95, C-

reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with the

doc here and called the hospital in Wyoming to inform my mom's doc.

It most likely is too late for her. My SSA is negative. Any

suggestions or clues as to all of this would be greatly

appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

[Guest guest]

Well, I don't know where to start...seen the doc Monday and got my

blood results faxed and they all came back negative. (so I was lead

to believe) After a couple of days passed - I decided to go get a copy

of the fax from the Wyoming doc to see for myself and to have for my

records. Upon first glance it does seem as if they are all okay.

However, upon further examination - I noticed that there were values

posted in lines across the page. Looked further and seen Sjorgens SSB

POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my hep b

vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

through the lines as they must be from where she highlighted the

page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95, C-

reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with the

doc here and called the hospital in Wyoming to inform my mom's doc.

It most likely is too late for her. My SSA is negative. Any

suggestions or clues as to all of this would be greatly

appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

[Guest guest]

Hi Kim,

What a time you have, so sorry for that. I don't know that much about

tests results, sorry I can't help you there. I pray that you will

find a good doctor, and figure out your diagnose soon.

Hugs, Tawny

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was

lead

> to believe) After a couple of days passed - I decided to go get a

copy

> of the fax from the Wyoming doc to see for myself and to have for

my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were

values

> posted in lines across the page. Looked further and seen Sjorgens

SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my

hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95,

C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with

the

> doc here and called the hospital in Wyoming to inform my mom's

doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

[Guest guest]

Hi Kim,

What a time you have, so sorry for that. I don't know that much about

tests results, sorry I can't help you there. I pray that you will

find a good doctor, and figure out your diagnose soon.

Hugs, Tawny

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was

lead

> to believe) After a couple of days passed - I decided to go get a

copy

> of the fax from the Wyoming doc to see for myself and to have for

my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were

values

> posted in lines across the page. Looked further and seen Sjorgens

SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my

hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95,

C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with

the

> doc here and called the hospital in Wyoming to inform my mom's

doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

[Guest guest]

Kim,

If you have no symptoms of Sjogren's, I wouldn't be to concerned

about it. You can get a positive SS-B for other conditions besides

Sjogren's.

Positive (percentage refers to sensitivity

Sjogren's Syndrome (40%)

Associated with Sjogren's of secondary cause

Systemic Lupus Erythematosus (15%)

Associated with late onset Systemic Lupus

Associated with neonatal lupus syndrome

Rheumatoid Arthritis (5%)

Keratoconjunctivitis Sicca Syndrome

Systemic Sclerosis (1%)

Mixed Connective Tissue Disease (<5%)

http://www.fpnotebook.com/RHE60.htm

The normal reference range varies among labs, so you have to look at

what is considered normal for your lab to see if something is elevated.

a

On Aug 26, 2005, at 8:01 PM, ksamedifference wrote:

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was lead

> to believe) After a couple of days passed - I decided to go get a copy

> of the fax from the Wyoming doc to see for myself and to have for my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were values

> posted in lines across the page. Looked further and seen Sjorgens SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95, C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with the

> doc here and called the hospital in Wyoming to inform my mom's doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

>

>

>

>

>

[Guest guest]

Kim,

If you have no symptoms of Sjogren's, I wouldn't be to concerned

about it. You can get a positive SS-B for other conditions besides

Sjogren's.

Positive (percentage refers to sensitivity

Sjogren's Syndrome (40%)

Associated with Sjogren's of secondary cause

Systemic Lupus Erythematosus (15%)

Associated with late onset Systemic Lupus

Associated with neonatal lupus syndrome

Rheumatoid Arthritis (5%)

Keratoconjunctivitis Sicca Syndrome

Systemic Sclerosis (1%)

Mixed Connective Tissue Disease (<5%)

http://www.fpnotebook.com/RHE60.htm

The normal reference range varies among labs, so you have to look at

what is considered normal for your lab to see if something is elevated.

a

On Aug 26, 2005, at 8:01 PM, ksamedifference wrote:

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was lead

> to believe) After a couple of days passed - I decided to go get a copy

> of the fax from the Wyoming doc to see for myself and to have for my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were values

> posted in lines across the page. Looked further and seen Sjorgens SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95, C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with the

> doc here and called the hospital in Wyoming to inform my mom's doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

>

>

>

>

>

[Guest guest]

Kim,

I am not nearly as educated on medical stuff as many people on this list,

but I can share the little I know. On the ESR (sed rate), I suspect your

doctor probably told you that normal was 25 because it is. I don't think there

is

anything " wrong " with having a low sed rate of 10. The ESR measures the

inflammation in the body (inflammation is what causes much of our pain) so

anything ABOVE 25 would be considered abnormal. My guess is that having a low

ESR

(sed rate) is a very good thing. The first time I went to a rheumatolgist,

my ESR was 80 and I thought I would jump out of my skin. Now it hovers

around 35-40 most months. I hope this at least puts your mind at ease on this

one

issue -- I cannot comment on the others. Take good care of yourself as you

figure it all out.

Love and Prayers,

Beth

[Guest guest]

Kim,

I am not nearly as educated on medical stuff as many people on this list,

but I can share the little I know. On the ESR (sed rate), I suspect your

doctor probably told you that normal was 25 because it is. I don't think there

is

anything " wrong " with having a low sed rate of 10. The ESR measures the

inflammation in the body (inflammation is what causes much of our pain) so

anything ABOVE 25 would be considered abnormal. My guess is that having a low

ESR

(sed rate) is a very good thing. The first time I went to a rheumatolgist,

my ESR was 80 and I thought I would jump out of my skin. Now it hovers

around 35-40 most months. I hope this at least puts your mind at ease on this

one

issue -- I cannot comment on the others. Take good care of yourself as you

figure it all out.

Love and Prayers,

Beth

[Guest guest]

I don't necessarily think you're doctor is an idiot...I do think that

he did a poor job of explaining it.I do think that most of those

values are normal or better than normal!!! Most of us would kill for

an ESR of 10. I've never heard an RF reported like that, but it

doesn't 1:80 is a very low dilution...the higher the second number,

the more positive it is. CRP <9.0 isnormal...therefore 0.5 is

practically nothing! Obviously with those two values which are

indicators of inflammation, you don't have much.

I'm not familiar with US hgb values...but that is lower than the

reference range I found and anemia could be responsible for a lot of

your symptoms. CPK of 95, also means you don't have the inflammatory

muscle conditions that are so awful (normal is less than 130)...With

the exception of the hgb...it seems your doctor was right...your

tests are all normal. HE just should've explained how to interpret

them if he was going to provide you with the fax.

This is a GOOD thing. Except it doesn't get you closer to the

diagnosis.

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was

lead

> to believe) After a couple of days passed - I decided to go get a

copy

> of the fax from the Wyoming doc to see for myself and to have for

my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were

values

> posted in lines across the page. Looked further and seen Sjorgens

SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my

hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95,

C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with

the

> doc here and called the hospital in Wyoming to inform my mom's

doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM

[Guest guest]

I don't necessarily think you're doctor is an idiot...I do think that

he did a poor job of explaining it.I do think that most of those

values are normal or better than normal!!! Most of us would kill for

an ESR of 10. I've never heard an RF reported like that, but it

doesn't 1:80 is a very low dilution...the higher the second number,

the more positive it is. CRP <9.0 isnormal...therefore 0.5 is

practically nothing! Obviously with those two values which are

indicators of inflammation, you don't have much.

I'm not familiar with US hgb values...but that is lower than the

reference range I found and anemia could be responsible for a lot of

your symptoms. CPK of 95, also means you don't have the inflammatory

muscle conditions that are so awful (normal is less than 130)...With

the exception of the hgb...it seems your doctor was right...your

tests are all normal. HE just should've explained how to interpret

them if he was going to provide you with the fax.

This is a GOOD thing. Except it doesn't get you closer to the

diagnosis.

> Well, I don't know where to start...seen the doc Monday and got my

> blood results faxed and they all came back negative. (so I was

lead

> to believe) After a couple of days passed - I decided to go get a

copy

> of the fax from the Wyoming doc to see for myself and to have for

my

> records. Upon first glance it does seem as if they are all okay.

> However, upon further examination - I noticed that there were

values

> posted in lines across the page. Looked further and seen Sjorgens

SSB

> POSITIVE and Hep B S AB Quant 61 POSITIVE. The hep b is from my

hep b

> vaccine!!!!! Sjorgens SSB is @ a value of 1.11 or 111 hard to read

> through the lines as they must be from where she highlighted the

> page!!!!!!!!!!!!!!!!!!!!! My doc is an idiot!!!!!!!!!!! My RF is

> 1:80 my sed rate is 10, not the 25 that he says is normal!! CPK 95,

C-

> reactive protein<0.5 and hemoglobin is @ 5.00. I am furious with

the

> doc here and called the hospital in Wyoming to inform my mom's

doc.

> It most likely is too late for her. My SSA is negative. Any

> suggestions or clues as to all of this would be greatly

> appreciated!!!!!!!!!1 Thank you so much. I love all of you! KIM