Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Speaking of vaccinations, I have NEVER had chicken pox. Do you think I should get that vaccination?? Thanks for any opinions. Robyn (AZ) --- & wrote: > I'm going to weigh in on this thread with some > OPINIONS based on personal > experience. In my position running a clinical lab, > I have had free and > easy access to comprehensive lab work for over 25 > years. I have had > complete lab workups done several times per year > over that period and can > precisely pinpoint the date of the appearance of my > symptoms. 14 days > after a routine tetanus vaccination, I had the > appearance of microscopic > blood in my urine followed by a short period of > fever and coffee colored > urine, followed by a couple of days of complete > cessation of urine output > and doubling of serum creatinine. I made a full > recovery within a week and > have been fine ever since. Based on the general > timing of an immune > response, I clearly feel that the tetanus booster > set off my immune > system...no question about it in my mind. > Since that date, I have refused vaccinations of any > type and have had no > recurrence. > > THIS IN NO WAY MEANS THAT I ADVOCATE THIS FOR ANYONE > ELSE, because > vaccinations provide clear immunologic protection > from many diseases. I > simply weigh the perceived risks in my own situation > and make this choice > based purely on the empirical evidence of my own > disease development. > > Please remember...this is purely personal opinion > based on my own > experience and most of my physician friends (as well > as those involved in > my care) are rather skeptical of the connection. > > > > At 06:30 PM 4/30/2001 +0000, you wrote: > >It is interesting you mention vaccinations because > I had a tetnus > >shot a month before I noticed the nephrotic > syndrome. I agree. I've > >always wondered about the vaccination. > > > > > > > > > You know, that makes me think of something.Since > nobody in the > >world knows > > > what causes IgA-type glomerulonephritis to > begin, we're all pretty > >much free > > > to speculate all we want : ) > > > > > > I still think some vaccinations might have had > something to do with > >mine - > > > trouble is, I'm the only one who thinks that, > and even if I were > >right, it > > > wouldn't make a bit of difference to my current > condition. The > >other thing > > > is that if I hadn't had the vaccinations, I > might have had any of > >the > > > diseases they are supposed to prevent. > > > > > > Oh well, what can you do. > > > > > > Pierre > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 My son had chicken pox at the age of 25 (we thought he had been exposed as a child and the vaccine wasn't available)....very frightening disease to get at that age. He was hideously ill. The test to see if you've ever had exposure (and thus immunity) is universally available in the US. Get the test to make sure you aren't already immune before you worry about it. PS....my feelings about immunization are linked pretty specifically to tetanus, not other vaccinations... At 09:48 PM 4/30/2001 -0700, you wrote: >Speaking of vaccinations, I have NEVER had chicken >pox. Do you think I should get that vaccination?? >Thanks for any opinions. >Robyn (AZ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 I had the exact same thing about 2 weeks after my tetanus shot. Thanks for posting. Now I know I'm not crazy. > > > You know, that makes me think of something.Since nobody in the > >world knows > > > what causes IgA-type glomerulonephritis to begin, we're all pretty > >much free > > > to speculate all we want : ) > > > > > > I still think some vaccinations might have had something to do with > >mine - > > > trouble is, I'm the only one who thinks that, and even if I were > >right, it > > > wouldn't make a bit of difference to my current condition. The > >other thing > > > is that if I hadn't had the vaccinations, I might have had any of > >the > > > diseases they are supposed to prevent. > > > > > > Oh well, what can you do. > > > > > > Pierre > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 I wrote a message a little while back about how my disease correlates pretty closely with vaccinations, first when I was in the navy, then stability until another series of vaccinations, followed by more stability until yet another series, and then the same thing with the flu shots. These things are hard to prove as anything other than coincidence, but, what I think may be happening is that the immune system reacts, and in some, it may take a few years to settle down, until the next vaccinations. In some people, there might be a more acute IgA reaction, and in others, milder symptoms of chronic IgAN which may or may not get worse with time. I didn't invent this idea though. It has been discussed and considered many, many times over the years. Pierre Vaccinations > I'm going to weigh in on this thread with some OPINIONS based on personal > experience. In my position running a clinical lab, I have had free and > easy access to comprehensive lab work for over 25 years. I have had > complete lab workups done several times per year over that period and can > precisely pinpoint the date of the appearance of my symptoms. 14 days > after a routine tetanus vaccination, I had the appearance of microscopic > blood in my urine followed by a short period of fever and coffee colored > urine, followed by a couple of days of complete cessation of urine output > and doubling of serum creatinine. I made a full recovery within a week and > have been fine ever since. Based on the general timing of an immune > response, I clearly feel that the tetanus booster set off my immune > system...no question about it in my mind. > Since that date, I have refused vaccinations of any type and have had no > recurrence. > > THIS IN NO WAY MEANS THAT I ADVOCATE THIS FOR ANYONE ELSE, because > vaccinations provide clear immunologic protection from many diseases. I > simply weigh the perceived risks in my own situation and make this choice > based purely on the empirical evidence of my own disease development. > > Please remember...this is purely personal opinion based on my own > experience and most of my physician friends (as well as those involved in > my care) are rather skeptical of the connection. > > > > At 06:30 PM 4/30/2001 +0000, you wrote: > >It is interesting you mention vaccinations because I had a tetnus > >shot a month before I noticed the nephrotic syndrome. I agree. I've > >always wondered about the vaccination. > > > > > > > > > You know, that makes me think of something.Since nobody in the > >world knows > > > what causes IgA-type glomerulonephritis to begin, we're all pretty > >much free > > > to speculate all we want : ) > > > > > > I still think some vaccinations might have had something to do with > >mine - > > > trouble is, I'm the only one who thinks that, and even if I were > >right, it > > > wouldn't make a bit of difference to my current condition. The > >other thing > > > is that if I hadn't had the vaccinations, I might have had any of > >the > > > diseases they are supposed to prevent. > > > > > > Oh well, what can you do. > > > > > > Pierre > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 Interesting that a number of you have had problems with vaccinations. I'm not sure it's a specific vaccination so much as the manner of administration, although there may be a greater sensitivity on the part of certain people to certain kinds of vaccinations. Some years ago there was an " outbreak " of IgAN in a platoon of Marine recruits at Parris Island right after vaccination against meningococcal meningitis. The vaccine did not appear to be the problem so much as the laxity of doctors there in vaccinating recruits who were already ill (with flu or colds). FYI, it is recommended that anyone who has to get shots avoid multivalent vaccines (combinations of different vaccines put too much stress on the immune system), space their shots at least one or two weeks apart, and take plenty of vitamin C after each shot. And of course, never, ever get a vaccination when you're not feeling well or think you're coming down with something! I used to think homeopaths were nuts for being against massive vaccination, but now that I am one myself, I understand the reasoning behind their opposition. There is a reason for childhood diseases, which is to challenge the immune system and help it mature. When I was a kid, there were relatively few vaccines, and they were for fairly serious stuff, like polio. Now children under two are given somewhere on the order of 22 shots, which is a massive overload. It's no wonder autism and asthma are becoming such problems! This is not to say that a childhood disease like chickenpox is not serious in an adult. But there are other, gentler ways of protecting against such potential problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Hi All, Just one more comment re: vaccinations. Last year my son (now 14 1/2 years old) had the flu shot, pneumovax and hep B, yet he still seemed to be progressing kidney wise in the right direction and in June 2001 his results were the best in 2 1/2 years. He does seem to have the kind of igan that presented with gross hematuria and protein and cycles rather than getting slowly and progressively worse. His igan was diagnosed after a bout with strep throat at age 8. I wonder if the effect of immunizations is different depending on the 'type' of igan one seems to have: e.g. slowly progressing vs cycling? Erna T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hi, Marty. Thanks for researching that. There seems to be alot of speculation on whether IgAN is autoimmune or not. I don't feel quite so guilty about passing on a bad gene now. Pam > >One of my daughters has multiple schlerosis (another autoimmune disease) >which became active after a pregnancy. > > > I did some reading about autoimmune diseases. Women have a greater chance of having them and they often appear during the child- bearing age. > > In all the reading I have done on IgAN, none of the researchers, MD's, etc. have ever mentioned that IgAN is an autoimmune disease. > > Marty Quote Link to comment Share on other sites More sharing options...
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