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NCC -- Totally bummed out

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Hi all --

I jsut got a phone call from the preschool that Nina was SUPPOSED to be

starting next Monday -- now it seems they might not let her actually attend

the school!!! They said it was because the nurse and the teacher had " some

concerns for her safety " while in school. Well, I'm sorry, but I think that

*I* am the best judge of whether it's " safe " for Nina to go to school!! They

said that now it's up to the school district supervisor as to whether Nina

goes the full time, part of the time (with home schooling making up the

difference) or fully home-schooled!

Well, the whole POINT of Nina GOING to school is to experience DIFFERENT

things, not be in " solitary confinement " by being kept at home for " school. "

Since this is PREschool the other point is SOCIALIZATION. Nina will get

NOWHERE if she isn't around other kids her age -- she needs to socialize. I

have seen when she IS around other kids and she does very well!

The other thing is my mental well-being (and financial!) -- I have been with

Nina pretty much 24/7 for 3 years (only recently getting respite, and not a

whole lot of that!), I was looking forward to getting a job (part time) while

she is in school. It will be nice to be able to meet people that have

nothing to do with Nina's problems.

I was supposed to go to Nina's IEP (Individual Education Plan) meeting

tomorrow, but got a call about 6 pm tonight changing it to Monday when the

la-di-da supervisor can make it! They suggested that I bring Nina's home

health nurse (who visits 2X/week for about 1/2 hour) and the friend (who is a

nurse) with me (the friend-nurse was with me when we toured the school).

What really gets me is that they have had Nina's registration packet for 2

weeks -- why do they wait until the night before (15 hours before to be

exact) the meeting to tell me this?? And WHY cna't this supervisor clear a

little time to maybe pop in or phone conference for the scheduled meeting??

Anyway, I am so totally BUMMED because I had been so jazzed about Nina going

to school (the day she was to start, the teacher was going to throw a b-day

party for her and then next Wed they are going to the zoo). I am going to

fight tooth and nail to get her going like all the other kids -- there is NO

reason why she shouldn't go. They are " nervous " or " scared " about her being

there -- well, they have dealt with disabled children for YEARS (probably

DECADES) and should have lots of experience at it -- I had it thrust upon me

3 years ago and have had NO formal training in the field!

Well, thanx for letting me vent -- since my hubby got tired of me slamming

doors.

TTYL

Kris

Nina's mom

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