Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Well, I had the most wonderful doc visit. Very thorough. Gave me about 2 hours worth of her time! Not only is she a Neurologist - she is also a Psychiatrist. So, I was definitly at the right place. She has diagnosed me with Auto-immue Disorder (TBD), DDD, Spondylatrophy something so far. She had possible Lyme as well. Thinks that there is some diabetes vs. Hypoglycemia due to her eye evaul. on me. My left eye is fine! The right has no nerve damage, the blood vessels are all shot. That is what she thinks is causing my computer screen to look as if it curves inward to me. I have no tumors in my head - it is intracranial calcification most likely from when I was kidnapped and beaten nearly to death and my skull just simply healed itself and added a bit more for future injury. AR AR! She was leveled about how I have been (not) treated thus far. I told her that I was getting paranoid that they were trying to kill me and she replied, " probably because they were working on it. " She thinks that I have more than one thing going on and thinks she knows what it is but wants to cover all basis to make an accurate diagnosis to get me started on preventive meds.! She also has heard of how high a titer rheumatoid factor instead of just positive vs. negative. WOW!!! She said that I have nerve impingement in various areas of my spine and that the reason that I'm shrinking isn't due to the heat, it is due to the scoliosis. I probably am a good canidate for bracing at night. The reason I'm so dizzy when I lean my head forward or backwards is because my spinal cord is being pinched?(compromised) She used some other term and instructed me for now not to lean if at all possible until they get the labs back b4 decided on exactly how to proceed. I most likely do not have ALS, MS, or parkinson's and I'm definetly not crazy!!!!!!!!!! When I went I was under so much stress that my bp was 160/90 CRAZY!!! It has never ever been like that. Then after 8 vials of blood and near fainting it was back to normal. The blood tests are... Hep panel to be safe, anticitriline or something like that, ra titer, ana, ck, crp, sed rate,smooth muscle, ds, dna, rnp, hemoglobin - lyme, smith and some other common name test. I will know all the results in 2 weeks! Scary but, I feel like I'm actually being treated thus far. I have no idea what some of these are and need to check on it. Anyhow, just wanted to say hey, I love you guys and miss you. Oh, I almost forgot - I told her about the group and she said that if any of you have any suggestions to let me know and she will check into it! Thanks to all and for all your support and prayers!!!! XXX's Kim PS: I hope that today is a good day for each and everyone! Quote Link to comment Share on other sites More sharing options...
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