Re: Mini-flares....how common are they? And a pain whine....

[Guest guest]

Dear , I am sorry you are going through this,

I too am experiencing this wierd cycle, only mine

seems to be going in shorter spurts, weekly even. If I

have two or three days during a week in past three

weeks of having any energy and being able to withstand

the pain, it is good. I may have one or two days Im

fairly good ( what we consider good here anyway) and

then Im totally wiped out and hurt so bad, have bad

pain. Sun nite I went to bed with headache and woke up

Monday I felt like my head would explode out the back.

I have had migraines before and this was different,

then I could not get up , I got dry heaves and later

diarriah, it was 2 in the afternoon before I could get

up and stay up. I am so sick and tired of feeling sick

and tired, lol. I guess we all go through this. I just

dont understand why the energy level has to be so low

all the time, I know my b/f doesnt understand and gets

frustrated because I dont want to do all I used to.

Hope and pray today is a good day for all of us .

in Missouri

__________________________________________________

[Guest guest]

Dear , I am sorry you are going through this,

I too am experiencing this wierd cycle, only mine

seems to be going in shorter spurts, weekly even. If I

have two or three days during a week in past three

weeks of having any energy and being able to withstand

the pain, it is good. I may have one or two days Im

fairly good ( what we consider good here anyway) and

then Im totally wiped out and hurt so bad, have bad

pain. Sun nite I went to bed with headache and woke up

Monday I felt like my head would explode out the back.

I have had migraines before and this was different,

then I could not get up , I got dry heaves and later

diarriah, it was 2 in the afternoon before I could get

up and stay up. I am so sick and tired of feeling sick

and tired, lol. I guess we all go through this. I just

dont understand why the energy level has to be so low

all the time, I know my b/f doesnt understand and gets

frustrated because I dont want to do all I used to.

Hope and pray today is a good day for all of us .

in Missouri

__________________________________________________

[Guest guest]

Poor baby! I don't know what a 40/40 shot would be but I am so glad

it made you a little better. having to work through a flare totally

sucks, and I hope you get some relief. I personally have a hard time

working without pain meds since I type and write on carbon copy forms

all day long, it can get tough. I hope they hit on the right

combination of routine meds to keep you pain free & comfy.

Thinking good thoughts for you.

Jane

> Since I began having problems, I have noticed that I have what I

> would consider " mini-flares " ...I will begin to experience pain,

> fatigue, or both in short bursts. Usually, it will begin with mild

> discomfort, or just general pain/fatigue, and slowly get worse over

> the next day or two. It will spike on the second or third day,

then

> the following day will be much better, and I will be fine, except

> maybe for some fatige, on the 3rd or 4th day. I'll be great for a

> week or two (longest has been a month), and it will start all over

> again. I'm also noticing that each time this happens, it gets a

> little worse, and my " remission " is just a little less " well " than

> the last, for the most part.

>

> This past week and a half have been the worst I've experienced, and

> the longest. I'm also getting some new symptoms...the pain is

> changing from just a generalized joint stiffness and ache to a

> combination of extremely sharp, prolonged pain, pins-and-needles in

> my joints (and sometimes my entire arm), and a burning sensation,

> sometimes combined with heat, especially in my shoulders. My right

> side has also gotten weak, and everything is followed by one killer

> of a headache (which could be from the massive amounts of codeine

> I've had to take ). It isn't a migraine ( get those more often

> than I'd like to admit), but it is really rotten, and is combined

> with nausea. I'm also noticing that my hairloss stops during

> the " remissions " , and starts about a day before I start to get sick

> again, and slows down when the pain begins to subside. I felt

> pretty good for a whole day, yesterday, but ended up going in to

the

> doctor for a steroid injection today when I felt the pins and

> needles and stinging in my hands this morning. I can't deal with

> another bout like the last one. I was taking 750 mg of vicodin

when

> I got home from work, went right to bed, and another at about 10pm,

> which would take just enough of the edge off to dose a bit. I'd

> then have to get up at 1am to take another. I was taking 500mg 1-2

> times a day AT WORK just so I could concentrate...and not cry as I

> tried to type. It has never been this bad, and my follow-up with

my

> new rheumy isn't until the 25th. He was nice enough to give this

> injection...dang...can't remember the drugs, but they called it a

> 40/40 injection..anyone know what that is...and it is helping,

> though not completely. I still have some stinging/pins-and-needles

> in my hands, and some pain in my hips, but it is tolerable. I know

> that it is a combination of a fast-acting, short term steroid and a

> longer-term steroid. The short term is wearing off, and the long

> term hasn't completely kicked in, but I AM better. He is reluctant

> to treat aggressively until he knows exactly what is going on, and

I

> understand that, but I'm afraid of getting hooked on codeine, and

he

> understands that, which is good.

>

> ANYWAY, this is the first time I could actually get on the computer

> to type in the past week or so, so I thought I'd whine a bit, and

> see if what I'm experiencing is familiar to any of you.

>

>

[Guest guest]

Poor baby! I don't know what a 40/40 shot would be but I am so glad

it made you a little better. having to work through a flare totally

sucks, and I hope you get some relief. I personally have a hard time

working without pain meds since I type and write on carbon copy forms

all day long, it can get tough. I hope they hit on the right

combination of routine meds to keep you pain free & comfy.

Thinking good thoughts for you.

Jane

> Since I began having problems, I have noticed that I have what I

> would consider " mini-flares " ...I will begin to experience pain,

> fatigue, or both in short bursts. Usually, it will begin with mild

> discomfort, or just general pain/fatigue, and slowly get worse over

> the next day or two. It will spike on the second or third day,

then

> the following day will be much better, and I will be fine, except

> maybe for some fatige, on the 3rd or 4th day. I'll be great for a

> week or two (longest has been a month), and it will start all over

> again. I'm also noticing that each time this happens, it gets a

> little worse, and my " remission " is just a little less " well " than

> the last, for the most part.

>

> This past week and a half have been the worst I've experienced, and

> the longest. I'm also getting some new symptoms...the pain is

> changing from just a generalized joint stiffness and ache to a

> combination of extremely sharp, prolonged pain, pins-and-needles in

> my joints (and sometimes my entire arm), and a burning sensation,

> sometimes combined with heat, especially in my shoulders. My right

> side has also gotten weak, and everything is followed by one killer

> of a headache (which could be from the massive amounts of codeine

> I've had to take ). It isn't a migraine ( get those more often

> than I'd like to admit), but it is really rotten, and is combined

> with nausea. I'm also noticing that my hairloss stops during

> the " remissions " , and starts about a day before I start to get sick

> again, and slows down when the pain begins to subside. I felt

> pretty good for a whole day, yesterday, but ended up going in to

the

> doctor for a steroid injection today when I felt the pins and

> needles and stinging in my hands this morning. I can't deal with

> another bout like the last one. I was taking 750 mg of vicodin

when

> I got home from work, went right to bed, and another at about 10pm,

> which would take just enough of the edge off to dose a bit. I'd

> then have to get up at 1am to take another. I was taking 500mg 1-2

> times a day AT WORK just so I could concentrate...and not cry as I

> tried to type. It has never been this bad, and my follow-up with

my

> new rheumy isn't until the 25th. He was nice enough to give this

> injection...dang...can't remember the drugs, but they called it a

> 40/40 injection..anyone know what that is...and it is helping,

> though not completely. I still have some stinging/pins-and-needles

> in my hands, and some pain in my hips, but it is tolerable. I know

> that it is a combination of a fast-acting, short term steroid and a

> longer-term steroid. The short term is wearing off, and the long

> term hasn't completely kicked in, but I AM better. He is reluctant

> to treat aggressively until he knows exactly what is going on, and

I

> understand that, but I'm afraid of getting hooked on codeine, and

he

> understands that, which is good.

>

> ANYWAY, this is the first time I could actually get on the computer

> to type in the past week or so, so I thought I'd whine a bit, and

> see if what I'm experiencing is familiar to any of you.

>

>

[Guest guest]

,

I am sorry that your in so much pain right now. I will keep you in my

prayers, Tawny

> Since I began having problems, I have noticed that I have what I

> would consider " mini-flares " ...I will begin to experience pain,

> fatigue, or both in short bursts. Usually, it will begin with mild

> discomfort, or just general pain/fatigue, and slowly get worse over

> the next day or two. It will spike on the second or third day,

then

> the following day will be much better, and I will be fine, except

> maybe for some fatige, on the 3rd or 4th day. I'll be great for a

> week or two (longest has been a month), and it will start all over

> again. I'm also noticing that each time this happens, it gets a

> little worse, and my " remission " is just a little less " well " than

> the last, for the most part.

>

> This past week and a half have been the worst I've experienced, and

> the longest. I'm also getting some new symptoms...the pain is

> changing from just a generalized joint stiffness and ache to a

> combination of extremely sharp, prolonged pain, pins-and-needles in

> my joints (and sometimes my entire arm), and a burning sensation,

> sometimes combined with heat, especially in my shoulders. My right

> side has also gotten weak, and everything is followed by one killer

> of a headache (which could be from the massive amounts of codeine

> I've had to take ). It isn't a migraine ( get those more often

> than I'd like to admit), but it is really rotten, and is combined

> with nausea. I'm also noticing that my hairloss stops during

> the " remissions " , and starts about a day before I start to get sick

> again, and slows down when the pain begins to subside. I felt

> pretty good for a whole day, yesterday, but ended up going in to

the

> doctor for a steroid injection today when I felt the pins and

> needles and stinging in my hands this morning. I can't deal with

> another bout like the last one. I was taking 750 mg of vicodin

when

> I got home from work, went right to bed, and another at about 10pm,

> which would take just enough of the edge off to dose a bit. I'd

> then have to get up at 1am to take another. I was taking 500mg 1-2

> times a day AT WORK just so I could concentrate...and not cry as I

> tried to type. It has never been this bad, and my follow-up with

my

> new rheumy isn't until the 25th. He was nice enough to give this

> injection...dang...can't remember the drugs, but they called it a

> 40/40 injection..anyone know what that is...and it is helping,

> though not completely. I still have some stinging/pins-and-needles

> in my hands, and some pain in my hips, but it is tolerable. I know

> that it is a combination of a fast-acting, short term steroid and a

> longer-term steroid. The short term is wearing off, and the long

> term hasn't completely kicked in, but I AM better. He is reluctant

> to treat aggressively until he knows exactly what is going on, and

I

> understand that, but I'm afraid of getting hooked on codeine, and

he

> understands that, which is good.

>

> ANYWAY, this is the first time I could actually get on the computer

> to type in the past week or so, so I thought I'd whine a bit, and

> see if what I'm experiencing is familiar to any of you.

>

>

[Guest guest]

,

I am sorry that your in so much pain right now. I will keep you in my

prayers, Tawny

> Since I began having problems, I have noticed that I have what I

> would consider " mini-flares " ...I will begin to experience pain,

> fatigue, or both in short bursts. Usually, it will begin with mild

> discomfort, or just general pain/fatigue, and slowly get worse over

> the next day or two. It will spike on the second or third day,

then

> the following day will be much better, and I will be fine, except

> maybe for some fatige, on the 3rd or 4th day. I'll be great for a

> week or two (longest has been a month), and it will start all over

> again. I'm also noticing that each time this happens, it gets a

> little worse, and my " remission " is just a little less " well " than

> the last, for the most part.

>

> This past week and a half have been the worst I've experienced, and

> the longest. I'm also getting some new symptoms...the pain is

> changing from just a generalized joint stiffness and ache to a

> combination of extremely sharp, prolonged pain, pins-and-needles in

> my joints (and sometimes my entire arm), and a burning sensation,

> sometimes combined with heat, especially in my shoulders. My right

> side has also gotten weak, and everything is followed by one killer

> of a headache (which could be from the massive amounts of codeine

> I've had to take ). It isn't a migraine ( get those more often

> than I'd like to admit), but it is really rotten, and is combined

> with nausea. I'm also noticing that my hairloss stops during

> the " remissions " , and starts about a day before I start to get sick

> again, and slows down when the pain begins to subside. I felt

> pretty good for a whole day, yesterday, but ended up going in to

the

> doctor for a steroid injection today when I felt the pins and

> needles and stinging in my hands this morning. I can't deal with

> another bout like the last one. I was taking 750 mg of vicodin

when

> I got home from work, went right to bed, and another at about 10pm,

> which would take just enough of the edge off to dose a bit. I'd

> then have to get up at 1am to take another. I was taking 500mg 1-2

> times a day AT WORK just so I could concentrate...and not cry as I

> tried to type. It has never been this bad, and my follow-up with

my

> new rheumy isn't until the 25th. He was nice enough to give this

> injection...dang...can't remember the drugs, but they called it a

> 40/40 injection..anyone know what that is...and it is helping,

> though not completely. I still have some stinging/pins-and-needles

> in my hands, and some pain in my hips, but it is tolerable. I know

> that it is a combination of a fast-acting, short term steroid and a

> longer-term steroid. The short term is wearing off, and the long

> term hasn't completely kicked in, but I AM better. He is reluctant

> to treat aggressively until he knows exactly what is going on, and

I

> understand that, but I'm afraid of getting hooked on codeine, and

he

> understands that, which is good.

>

> ANYWAY, this is the first time I could actually get on the computer

> to type in the past week or so, so I thought I'd whine a bit, and

> see if what I'm experiencing is familiar to any of you.

>

>