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Well im up and out early this morning. Trevor and I were leaving the

house at 6:40am to go to my Dr's appt. Its close to downtown Dallas

and with traffic you better leave early. So we head out Im trying

really hard not to freak out cause I hate traffic. We get there safe

and sound. Luckily.

Dr. Z comes in and looks me over. I had to do a stat blood test and

Urine sample test. Turns out that i have another Bladder Infection.

Which means no chemo and no Humria. I just about cried. I dont know

how I can go on through the rest of my life in such pain. Im not

deforming yet, which is a blessing, but he seems really concerned.

He kept commenting on my swelling and feeling my joints. I know when

hes worried he has this look. Cause normally hes all smiles. He

said that I have to take the antibioitcs for 3 days and then on Sunay

I can start the Chemo and Monday I am to call them because after

looking me over real good. He checked my hips and I about came up

off the table and I yelled out. That really hurt. He said I have

brisitis in both of my hips and I have to try these pads that heat up

for 8 hours and then these ben gay pads, if that doesnt work I am to

call him and get a RX for a patch that might be better/stronger to

releive the pain. If all of those do work I may have to have hip

injections in both hips.

So Im sitting there listening to all of this and i start crying. Hes

said its gonna be ok. I said its not that. I am only 31 Dr Z and

when I think about a future filled with pain it breaks my heart. He

said Cortnee, It will get better. I said I hope so. I dont know how

much more I can do this. I held out for today because I thought I

was going to get my medicine, I never though I would look forward to

giving myself a shot or the chemo so badly. I worry about my quality

of life and if I will be able to walk or right or type. I have these

things on my feet that may or may not be nodules from the RA, he

keeps an eye on them too. His face today though, scared me, I know

he was trying hard not to show it because I was so fragile. I know

he doesnt like the idea of the injections and I can magine hes

thinking to himself, damn, I wanted to save her from that pain. See

I know what its like to get those injections. They are not fun. I

have had several in my wrists.

I sit and wonder why do I have to go through so much. All of my past

and my medical problems. Am I being punished for my wrong doings.

Like I said Im only 31 and I have been though abuse, physical and

mental, rape, abortion, losing people, watching death unfold. Ive

had neck surgery where I had a double fusion, ive had carpal tunnel

release in both hands. Whats next. I cant imagine needing a hip

replacement at 31, but at this point its possible. He said that I

may have to have some scans and tests if it continues, I was afraid

to ask what my future holds. I know he doesnt KNOW for sure, but I

can tell he has an idea, but he didnt discuss it with me.

have tried so hard not to feel sorry for myself. I know there are

so many others out there in more pain and or dying. Im not dying,

but the pain is so unbelieveably bad at times. It takes all i have

jus tto sit up and move over to my chair in the mornings. My

emotions are running wild and im quite terrified. I dont want to

live my life in pain. For lack of better statements...Its not

fair....Its not.

OK Ok, im done, i needed to vent!!!!

Cortnee

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((((((((((((cortnee)))))))))))))) my thoughts and prayers are with you. We seem

to have very similar lives and I think I can honestly say, I know what you are

feeling. I am only 28. I also have RA, carpal tunnel palsy, loose joint syndrome

and a compromised immune system because of " cat scratch fever " I had numerous

lymph glands removed and many other conditions, some major some minor. Pain can

be unbearable when it doesn't ever go away. I also have endured the abuse, too

much to even talk about it, and most I don't talk about anyway and sometimes I

do say, what did I do? what have I done? I don't deserve this, I really don't.

and neither do you. But we have it and we are stronger for it and I do truly

believe I go through so many things because I CAN handle it. Not everyone can

handle what we've gone through and what we go through. I'm proud of you that

you've come so far. Surviving abuse is a major accomplishment in itself and I'm

proud of you for that. I hope for you that tomorrow

is a better day and maybe god will bless you with a great day. You deserve

that, everyone does. take care.

kerri sue

Cortnee <cortnee_30@...> wrote:

Well im up and out early this morning. Trevor and I were leaving the

house at 6:40am to go to my Dr's appt. Its close to downtown Dallas

and with traffic you better leave early. So we head out Im trying

really hard not to freak out cause I hate traffic. We get there safe

and sound. Luckily.

Dr. Z comes in and looks me over. I had to do a stat blood test and

Urine sample test. Turns out that i have another Bladder Infection.

Which means no chemo and no Humria. I just about cried. I dont know

how I can go on through the rest of my life in such pain. Im not

deforming yet, which is a blessing, but he seems really concerned.

He kept commenting on my swelling and feeling my joints. I know when

hes worried he has this look. Cause normally hes all smiles. He

said that I have to take the antibioitcs for 3 days and then on Sunay

I can start the Chemo and Monday I am to call them because after

looking me over real good. He checked my hips and I about came up

off the table and I yelled out. That really hurt. He said I have

brisitis in both of my hips and I have to try these pads that heat up

for 8 hours and then these ben gay pads, if that doesnt work I am to

call him and get a RX for a patch that might be better/stronger to

releive the pain. If all of those do work I may have to have hip

injections in both hips.

So Im sitting there listening to all of this and i start crying. Hes

said its gonna be ok. I said its not that. I am only 31 Dr Z and

when I think about a future filled with pain it breaks my heart. He

said Cortnee, It will get better. I said I hope so. I dont know how

much more I can do this. I held out for today because I thought I

was going to get my medicine, I never though I would look forward to

giving myself a shot or the chemo so badly. I worry about my quality

of life and if I will be able to walk or right or type. I have these

things on my feet that may or may not be nodules from the RA, he

keeps an eye on them too. His face today though, scared me, I know

he was trying hard not to show it because I was so fragile. I know

he doesnt like the idea of the injections and I can magine hes

thinking to himself, damn, I wanted to save her from that pain. See

I know what its like to get those injections. They are not fun. I

have had several in my wrists.

I sit and wonder why do I have to go through so much. All of my past

and my medical problems. Am I being punished for my wrong doings.

Like I said Im only 31 and I have been though abuse, physical and

mental, rape, abortion, losing people, watching death unfold. Ive

had neck surgery where I had a double fusion, ive had carpal tunnel

release in both hands. Whats next. I cant imagine needing a hip

replacement at 31, but at this point its possible. He said that I

may have to have some scans and tests if it continues, I was afraid

to ask what my future holds. I know he doesnt KNOW for sure, but I

can tell he has an idea, but he didnt discuss it with me.

have tried so hard not to feel sorry for myself. I know there are

so many others out there in more pain and or dying. Im not dying,

but the pain is so unbelieveably bad at times. It takes all i have

jus tto sit up and move over to my chair in the mornings. My

emotions are running wild and im quite terrified. I dont want to

live my life in pain. For lack of better statements...Its not

fair....Its not.

OK Ok, im done, i needed to vent!!!!

Cortnee

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Good job!, vent away. It does help, and since we all

do at sometime its ok. It does sound like you have an

attenative and caring doctor , so that is a plus. He

is limited to what he is given medically to try out on

you until you work as a team to pinpoint what works

and what doesnt. Dont wait months to let him know if

something isnt helping you. We have to do our own

part, as much as we may put it off and say it is not

fair, which of course is true, but the fact is,, if we

dont move, dont try to stretch and keep the joints

moving, they will freeze up on us and then it is very

very hard to get around at all. I just went off of

therapy, and have to do several types of exercises

twice a day. I catch myself putting it off or saying I

can skip a day, but if I do,,, I am stiff and less

likely to get back at it as a regular routing. And tht

is what it has to be, not a quick fix, but a lifestyle

change, I understand I will have to do this for rest

of my life, but it is totally in my control to do it

or not. After all I am the one that either suffers or

gains the benefits by my choice. All sounds good,

simple, logically, then why is it so hard to dig in

and keep at it.. Take care, hoping for better days

ahead.. JEnny in Missouri

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

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Well, I am glad you vented Cortnee :) My Hubby came up with something

he calls " The Salvage Theory " . If all I am able to do one day is put

away one clean spoon from the dishwasher, then I have " Salvaged the

Day " by doing something. Then I do not feel that olde guilt of getting

myself into just the most comfy position possible (emphasis on

possible) in my recliner and spending the rest of the day there, with

the TV on and either the Basenji or the Beagle on my lap. You are

Blessed to have a Doc who is concerned and acts concerned. I am in

search of yet another Doc because my current Doc is just not taking me

seriously.

Don't worry about how you are going to make it thru the rest of your

life in such pain. I take it one day at a time. Sometimes I can only

think one minute at a time!

" Whew, made it thru that minute.... " LOL

Seriously tho, lots of healing thoughts and prayers are coming your way,

Alice in Alaska http://maryals.blogspot.com/

On Thursday, August 18, 2005, at 05:54 PM, Cortnee wrote:

>

> Well im up and out early this morning.  Trevor and I were leaving the

> house at 6:40am to go to my Dr's appt.  Its close to downtown Dallas

> and with traffic you better leave early.  So we head out Im trying

> really hard not to freak out cause I hate traffic.  We get there safe

> and sound.  Luckily.

>

> Dr. Z comes in and looks me over. I had to do a stat blood test and

> Urine sample test.  Turns out that i have another Bladder

> Infection. Which means no chemo and no Humria.  I just about cried. I

> dont know how I can go on through the rest of my life in such pain. 

> Im not deforming yet, which is a blessing, but he seems really

> concerned. He kept commenting on my swelling and feeling my joints. I

> know when he's worried he has this look.  Cause normally hes all

> smiles.  He said that I have to take the antibioitcs for 3 days and

> then on Sunay I can start the Chemo and Monday I am to call them

> because after looking me over real good.  He checked my hips and I

> about came up off the table and I yelled out.  That really hurt.  He

> said I have brisitis in both of my hips and I have to try these pads

> that heat up for 8 hours and then these ben gay pads, if that doesnt

> work I am to call him and get a RX for a patch that might be

> better/stronger to releive the pain.  If all of those do work I may

> have to have hip injections in both hips.

>

> So Im sitting there listening to all of this and i start crying.  He's

> said its gonna be ok.  I said its not that.  I am only 31 Dr Z and

> when I think about a future filled with pain it breaks my heart. He

> said Cortnee, It will get better.  I said I hope so.  I dont know how

> much more I can do this. I held out for today because I thought I was

> going to get my medicine, I never though I would look forward to

> giving myself a shot or the chemo so badly.  I worry about my quality

> of life and if I will be able to walk or right or type.  I have these

> things on my feet that may or may not be nodules from the RA, he keeps

> an eye on them too.  His face today though, scared me, I know he was

> trying hard not to show it because I was so fragile.  I know

> he doesnt like the idea of the injections and I can magine he's

> thinking to himself, damn, I wanted to save her from that pain. See I

> know what its like to get those injections.  They are not fun.  I have

> had several in my wrists.

>

> I sit and wonder why do I have to go through so much.  All of my past

> and my medical problems.  Am I being punished for my wrong doings.

> Like I said Im only 31 and I have been though abuse, physical and

> mental, rape, abortion, losing people, watching death unfold.  I've

> had neck surgery where I had a double fusion, ive had carpal tunnel

> release in both hands.  Whats next.  I cant imagine needing a hip

> replacement at 31, but at this point its possible.  He said that I

> may have to have some scans and tests if it continues, I was afraid to

> ask what my future holds.  I know he doesnt KNOW for sure, but I can

> tell he has an idea, but he didnt discuss it with me. 

>

> have tried so hard not to feel sorry for myself.  I know there are so

> many others out there in  more pain and or dying.  Im not dying, but

> the pain is so unbelieveably bad at times.  It takes all i have jus

> tto sit up and move over to my chair in the mornings. My emotions are

> running wild and im quite terrified. I dont want to live my life in

> pain.  For lack of better statements...Its not fair....Its not.

>

> OK Ok, im done, i needed to vent!!!!

> Cortnee

>

>

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Everyone, thanks so much for the kind words I can tell I am going to like it

here, you all are so nice and have great information, my Dr was impressed when I

took in some of the articles I recieved form this site. He loves that I am so

active in my own healing and illness and that I ask as many questions as I can

to insure that I am getting excatly what is best for me, Thanks agian,

CortneeTHANK YOU FOR BEING SUCH A GREAT TEAM!

Davenport <jennay43334@...> wrote:

Good job!, vent away. It does help, and since we all

do at sometime its ok. It does sound like you have an

attenative and caring doctor , so that is a plus. He

is limited to what he is given medically to try out on

you until you work as a team to pinpoint what works

and what doesnt. Dont wait months to let him know if

something isnt helping you. We have to do our own

part, as much as we may put it off and say it is not

fair, which of course is true, but the fact is,, if we

dont move, dont try to stretch and keep the joints

moving, they will freeze up on us and then it is very

very hard to get around at all. I just went off of

therapy, and have to do several types of exercises

twice a day. I catch myself putting it off or saying I

can skip a day, but if I do,,, I am stiff and less

likely to get back at it as a regular routing. And tht

is what it has to be, not a quick fix, but a lifestyle

change, I understand I will have to do this for rest

of my life, but it is totally in my control to do it

or not. After all I am the one that either suffers or

gains the benefits by my choice. All sounds good,

simple, logically, then why is it so hard to dig in

and keep at it.. Take care, hoping for better days

ahead.. JEnny in Missouri

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

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Cortnee,

Just know we always got your back here:) Tawny

> Good job!, vent away. It does help, and since we all

> do at sometime its ok. It does sound like you have an

> attenative and caring doctor , so that is a plus. He

> is limited to what he is given medically to try out on

> you until you work as a team to pinpoint what works

> and what doesnt. Dont wait months to let him know if

> something isnt helping you. We have to do our own

> part, as much as we may put it off and say it is not

> fair, which of course is true, but the fact is,, if we

> dont move, dont try to stretch and keep the joints

> moving, they will freeze up on us and then it is very

> very hard to get around at all. I just went off of

> therapy, and have to do several types of exercises

> twice a day. I catch myself putting it off or saying I

> can skip a day, but if I do,,, I am stiff and less

> likely to get back at it as a regular routing. And tht

> is what it has to be, not a quick fix, but a lifestyle

> change, I understand I will have to do this for rest

> of my life, but it is totally in my control to do it

> or not. After all I am the one that either suffers or

> gains the benefits by my choice. All sounds good,

> simple, logically, then why is it so hard to dig in

> and keep at it.. Take care, hoping for better days

> ahead.. JEnny in Missouri

>

>

>

>

> ____________________________________________________

> Start your day with - make it your home page

> http://www./r/hs

>

>

>

>

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Alice,

Oh yes, one day at a time! That is the best advice, we can only do

what we can, and it sure will wait for us to do later.

Have a great day,Tawny

> >

> > Well im up and out early this morning.  Trevor and I were leaving

the

> > house at 6:40am to go to my Dr's appt.  Its close to downtown

Dallas

> > and with traffic you better leave early.  So we head out Im

trying

> > really hard not to freak out cause I hate traffic.  We get there

safe

> > and sound.  Luckily.

> >

> > Dr. Z comes in and looks me over. I had to do a stat blood test

and

> > Urine sample test.  Turns out that i have another Bladder

> > Infection. Which means no chemo and no Humria.  I just about

cried. I

> > dont know how I can go on through the rest of my life in such

pain. 

> > Im not deforming yet, which is a blessing, but he seems really

> > concerned. He kept commenting on my swelling and feeling my

joints. I

> > know when he's worried he has this look.  Cause normally hes all

> > smiles.  He said that I have to take the antibioitcs for 3 days

and

> > then on Sunay I can start the Chemo and Monday I am to call them

> > because after looking me over real good.  He checked my hips and

I

> > about came up off the table and I yelled out.  That really hurt. 

He

> > said I have brisitis in both of my hips and I have to try these

pads

> > that heat up for 8 hours and then these ben gay pads, if that

doesnt

> > work I am to call him and get a RX for a patch that might be

> > better/stronger to releive the pain.  If all of those do work I

may

> > have to have hip injections in both hips.

> >

> > So Im sitting there listening to all of this and i start crying. 

He's

> > said its gonna be ok.  I said its not that.  I am only 31 Dr Z

and

> > when I think about a future filled with pain it breaks my

heart. He

> > said Cortnee, It will get better.  I said I hope so.  I dont know

how

> > much more I can do this. I held out for today because I thought I

was

> > going to get my medicine, I never though I would look forward to

> > giving myself a shot or the chemo so badly.  I worry about my

quality

> > of life and if I will be able to walk or right or type.  I have

these

> > things on my feet that may or may not be nodules from the RA, he

keeps

> > an eye on them too.  His face today though, scared me, I know he

was

> > trying hard not to show it because I was so fragile.  I know

> > he doesnt like the idea of the injections and I can magine he's

> > thinking to himself, damn, I wanted to save her from that

pain. See I

> > know what its like to get those injections.  They are not fun.  I

have

> > had several in my wrists.

> >

> > I sit and wonder why do I have to go through so much.  All of my

past

> > and my medical problems.  Am I being punished for my wrong

doings.

> > Like I said Im only 31 and I have been though abuse, physical and

> > mental, rape, abortion, losing people, watching death unfold. 

I've

> > had neck surgery where I had a double fusion, ive had carpal

tunnel

> > release in both hands.  Whats next.  I cant imagine needing a hip

> > replacement at 31, but at this point its possible.  He said that I

> > may have to have some scans and tests if it continues, I was

afraid to

> > ask what my future holds.  I know he doesnt KNOW for sure, but I

can

> > tell he has an idea, but he didnt discuss it with me. 

> >

> > have tried so hard not to feel sorry for myself.  I know there

are so

> > many others out there in  more pain and or dying.  Im not dying,

but

> > the pain is so unbelieveably bad at times.  It takes all i have

jus

> > tto sit up and move over to my chair in the mornings. My emotions

are

> > running wild and im quite terrified. I dont want to live my life

in

> > pain.  For lack of better statements...Its not fair....Its not.

> >

> > OK Ok, im done, i needed to vent!!!!

> > Cortnee

> >

> >

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Honey, you are not being punished for anything, God doesn't work like

that. I know it seems like it sometimes, but I promise you He loves

you.Your sensitivity and sweet spirit come across so clearly, it's

obvious that you are a good person. I believe that someday you will

be able to use what you have gone through to help other people

because you are a survivor, and you have claimed victory over so many

things in your life. You have not let the bad things turn your heart

hard. I have faith that things will get better, that brighter days

are ahead for you. Take one day at a time, or one hour at a time, or

whatever you can do. Personally if it wasn't for Jesus I don't know

where I would be or how I would have handled the stuff I have gone

through in my life. E me if you need to vent or rant or whatever.

I'll be praying for comfort and peace for you. Hang in there.

Jane

>

> Well im up and out early this morning. Trevor and I were leaving

the

> house at 6:40am to go to my Dr's appt. Its close to downtown

Dallas

> and with traffic you better leave early. So we head out Im trying

> really hard not to freak out cause I hate traffic. We get there

safe

> and sound. Luckily.

>

> Dr. Z comes in and looks me over. I had to do a stat blood test

and

> Urine sample test. Turns out that i have another Bladder

Infection.

> Which means no chemo and no Humria. I just about cried. I dont

know

> how I can go on through the rest of my life in such pain. Im not

> deforming yet, which is a blessing, but he seems really concerned.

> He kept commenting on my swelling and feeling my joints. I know

when

> hes worried he has this look. Cause normally hes all smiles. He

> said that I have to take the antibioitcs for 3 days and then on

Sunay

> I can start the Chemo and Monday I am to call them because after

> looking me over real good. He checked my hips and I about came up

> off the table and I yelled out. That really hurt. He said I have

> brisitis in both of my hips and I have to try these pads that heat

up

> for 8 hours and then these ben gay pads, if that doesnt work I am

to

> call him and get a RX for a patch that might be better/stronger to

> releive the pain. If all of those do work I may have to have hip

> injections in both hips.

>

> So Im sitting there listening to all of this and i start crying.

Hes

> said its gonna be ok. I said its not that. I am only 31 Dr Z and

> when I think about a future filled with pain it breaks my heart.

He

> said Cortnee, It will get better. I said I hope so. I dont know

how

> much more I can do this. I held out for today because I thought I

> was going to get my medicine, I never though I would look forward

to

> giving myself a shot or the chemo so badly. I worry about my

quality

> of life and if I will be able to walk or right or type. I have

these

> things on my feet that may or may not be nodules from the RA, he

> keeps an eye on them too. His face today though, scared me, I know

> he was trying hard not to show it because I was so fragile. I know

> he doesnt like the idea of the injections and I can magine hes

> thinking to himself, damn, I wanted to save her from that pain.

See

> I know what its like to get those injections. They are not fun. I

> have had several in my wrists.

>

> I sit and wonder why do I have to go through so much. All of my

past

> and my medical problems. Am I being punished for my wrong doings.

> Like I said Im only 31 and I have been though abuse, physical and

> mental, rape, abortion, losing people, watching death unfold. Ive

> had neck surgery where I had a double fusion, ive had carpal tunnel

> release in both hands. Whats next. I cant imagine needing a hip

> replacement at 31, but at this point its possible. He said that I

> may have to have some scans and tests if it continues, I was afraid

> to ask what my future holds. I know he doesnt KNOW for sure, but I

> can tell he has an idea, but he didnt discuss it with me.

>

> have tried so hard not to feel sorry for myself. I know there are

> so many others out there in more pain and or dying. Im not dying,

> but the pain is so unbelieveably bad at times. It takes all i have

> jus tto sit up and move over to my chair in the mornings. My

> emotions are running wild and im quite terrified. I dont want to

> live my life in pain. For lack of better statements...Its not

> fair....Its not.

>

> OK Ok, im done, i needed to vent!!!!

> Cortnee

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  • 11 months later...
Guest guest

Hello, Rough day today. My joints hurt. My grandson is being a handful

today. I can't seem to get this Bronchitis gone. Never a dull moment.

The Methotrexate makes me so tired. But, we have to keep on going.

Like the energizer bunny......

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