Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Well im up and out early this morning. Trevor and I were leaving the house at 6:40am to go to my Dr's appt. Its close to downtown Dallas and with traffic you better leave early. So we head out Im trying really hard not to freak out cause I hate traffic. We get there safe and sound. Luckily. Dr. Z comes in and looks me over. I had to do a stat blood test and Urine sample test. Turns out that i have another Bladder Infection. Which means no chemo and no Humria. I just about cried. I dont know how I can go on through the rest of my life in such pain. Im not deforming yet, which is a blessing, but he seems really concerned. He kept commenting on my swelling and feeling my joints. I know when hes worried he has this look. Cause normally hes all smiles. He said that I have to take the antibioitcs for 3 days and then on Sunay I can start the Chemo and Monday I am to call them because after looking me over real good. He checked my hips and I about came up off the table and I yelled out. That really hurt. He said I have brisitis in both of my hips and I have to try these pads that heat up for 8 hours and then these ben gay pads, if that doesnt work I am to call him and get a RX for a patch that might be better/stronger to releive the pain. If all of those do work I may have to have hip injections in both hips. So Im sitting there listening to all of this and i start crying. Hes said its gonna be ok. I said its not that. I am only 31 Dr Z and when I think about a future filled with pain it breaks my heart. He said Cortnee, It will get better. I said I hope so. I dont know how much more I can do this. I held out for today because I thought I was going to get my medicine, I never though I would look forward to giving myself a shot or the chemo so badly. I worry about my quality of life and if I will be able to walk or right or type. I have these things on my feet that may or may not be nodules from the RA, he keeps an eye on them too. His face today though, scared me, I know he was trying hard not to show it because I was so fragile. I know he doesnt like the idea of the injections and I can magine hes thinking to himself, damn, I wanted to save her from that pain. See I know what its like to get those injections. They are not fun. I have had several in my wrists. I sit and wonder why do I have to go through so much. All of my past and my medical problems. Am I being punished for my wrong doings. Like I said Im only 31 and I have been though abuse, physical and mental, rape, abortion, losing people, watching death unfold. Ive had neck surgery where I had a double fusion, ive had carpal tunnel release in both hands. Whats next. I cant imagine needing a hip replacement at 31, but at this point its possible. He said that I may have to have some scans and tests if it continues, I was afraid to ask what my future holds. I know he doesnt KNOW for sure, but I can tell he has an idea, but he didnt discuss it with me. have tried so hard not to feel sorry for myself. I know there are so many others out there in more pain and or dying. Im not dying, but the pain is so unbelieveably bad at times. It takes all i have jus tto sit up and move over to my chair in the mornings. My emotions are running wild and im quite terrified. I dont want to live my life in pain. For lack of better statements...Its not fair....Its not. OK Ok, im done, i needed to vent!!!! Cortnee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 ((((((((((((cortnee)))))))))))))) my thoughts and prayers are with you. We seem to have very similar lives and I think I can honestly say, I know what you are feeling. I am only 28. I also have RA, carpal tunnel palsy, loose joint syndrome and a compromised immune system because of " cat scratch fever " I had numerous lymph glands removed and many other conditions, some major some minor. Pain can be unbearable when it doesn't ever go away. I also have endured the abuse, too much to even talk about it, and most I don't talk about anyway and sometimes I do say, what did I do? what have I done? I don't deserve this, I really don't. and neither do you. But we have it and we are stronger for it and I do truly believe I go through so many things because I CAN handle it. Not everyone can handle what we've gone through and what we go through. I'm proud of you that you've come so far. Surviving abuse is a major accomplishment in itself and I'm proud of you for that. I hope for you that tomorrow is a better day and maybe god will bless you with a great day. You deserve that, everyone does. take care. kerri sue Cortnee <cortnee_30@...> wrote: Well im up and out early this morning. Trevor and I were leaving the house at 6:40am to go to my Dr's appt. Its close to downtown Dallas and with traffic you better leave early. So we head out Im trying really hard not to freak out cause I hate traffic. We get there safe and sound. Luckily. Dr. Z comes in and looks me over. I had to do a stat blood test and Urine sample test. Turns out that i have another Bladder Infection. Which means no chemo and no Humria. I just about cried. I dont know how I can go on through the rest of my life in such pain. Im not deforming yet, which is a blessing, but he seems really concerned. He kept commenting on my swelling and feeling my joints. I know when hes worried he has this look. Cause normally hes all smiles. He said that I have to take the antibioitcs for 3 days and then on Sunay I can start the Chemo and Monday I am to call them because after looking me over real good. He checked my hips and I about came up off the table and I yelled out. That really hurt. He said I have brisitis in both of my hips and I have to try these pads that heat up for 8 hours and then these ben gay pads, if that doesnt work I am to call him and get a RX for a patch that might be better/stronger to releive the pain. If all of those do work I may have to have hip injections in both hips. So Im sitting there listening to all of this and i start crying. Hes said its gonna be ok. I said its not that. I am only 31 Dr Z and when I think about a future filled with pain it breaks my heart. He said Cortnee, It will get better. I said I hope so. I dont know how much more I can do this. I held out for today because I thought I was going to get my medicine, I never though I would look forward to giving myself a shot or the chemo so badly. I worry about my quality of life and if I will be able to walk or right or type. I have these things on my feet that may or may not be nodules from the RA, he keeps an eye on them too. His face today though, scared me, I know he was trying hard not to show it because I was so fragile. I know he doesnt like the idea of the injections and I can magine hes thinking to himself, damn, I wanted to save her from that pain. See I know what its like to get those injections. They are not fun. I have had several in my wrists. I sit and wonder why do I have to go through so much. All of my past and my medical problems. Am I being punished for my wrong doings. Like I said Im only 31 and I have been though abuse, physical and mental, rape, abortion, losing people, watching death unfold. Ive had neck surgery where I had a double fusion, ive had carpal tunnel release in both hands. Whats next. I cant imagine needing a hip replacement at 31, but at this point its possible. He said that I may have to have some scans and tests if it continues, I was afraid to ask what my future holds. I know he doesnt KNOW for sure, but I can tell he has an idea, but he didnt discuss it with me. have tried so hard not to feel sorry for myself. I know there are so many others out there in more pain and or dying. Im not dying, but the pain is so unbelieveably bad at times. It takes all i have jus tto sit up and move over to my chair in the mornings. My emotions are running wild and im quite terrified. I dont want to live my life in pain. For lack of better statements...Its not fair....Its not. OK Ok, im done, i needed to vent!!!! Cortnee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Good job!, vent away. It does help, and since we all do at sometime its ok. It does sound like you have an attenative and caring doctor , so that is a plus. He is limited to what he is given medically to try out on you until you work as a team to pinpoint what works and what doesnt. Dont wait months to let him know if something isnt helping you. We have to do our own part, as much as we may put it off and say it is not fair, which of course is true, but the fact is,, if we dont move, dont try to stretch and keep the joints moving, they will freeze up on us and then it is very very hard to get around at all. I just went off of therapy, and have to do several types of exercises twice a day. I catch myself putting it off or saying I can skip a day, but if I do,,, I am stiff and less likely to get back at it as a regular routing. And tht is what it has to be, not a quick fix, but a lifestyle change, I understand I will have to do this for rest of my life, but it is totally in my control to do it or not. After all I am the one that either suffers or gains the benefits by my choice. All sounds good, simple, logically, then why is it so hard to dig in and keep at it.. Take care, hoping for better days ahead.. JEnny in Missouri ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Well, I am glad you vented Cortnee My Hubby came up with something he calls " The Salvage Theory " . If all I am able to do one day is put away one clean spoon from the dishwasher, then I have " Salvaged the Day " by doing something. Then I do not feel that olde guilt of getting myself into just the most comfy position possible (emphasis on possible) in my recliner and spending the rest of the day there, with the TV on and either the Basenji or the Beagle on my lap. You are Blessed to have a Doc who is concerned and acts concerned. I am in search of yet another Doc because my current Doc is just not taking me seriously. Don't worry about how you are going to make it thru the rest of your life in such pain. I take it one day at a time. Sometimes I can only think one minute at a time! " Whew, made it thru that minute.... " LOL Seriously tho, lots of healing thoughts and prayers are coming your way, Alice in Alaska http://maryals.blogspot.com/ On Thursday, August 18, 2005, at 05:54 PM, Cortnee wrote: > > Well im up and out early this morning. Trevor and I were leaving the > house at 6:40am to go to my Dr's appt. Its close to downtown Dallas > and with traffic you better leave early. So we head out Im trying > really hard not to freak out cause I hate traffic. We get there safe > and sound. Luckily. > > Dr. Z comes in and looks me over. I had to do a stat blood test and > Urine sample test. Turns out that i have another Bladder > Infection. Which means no chemo and no Humria. I just about cried. I > dont know how I can go on through the rest of my life in such pain. > Im not deforming yet, which is a blessing, but he seems really > concerned. He kept commenting on my swelling and feeling my joints. I > know when he's worried he has this look. Cause normally hes all > smiles. He said that I have to take the antibioitcs for 3 days and > then on Sunay I can start the Chemo and Monday I am to call them > because after looking me over real good. He checked my hips and I > about came up off the table and I yelled out. That really hurt. He > said I have brisitis in both of my hips and I have to try these pads > that heat up for 8 hours and then these ben gay pads, if that doesnt > work I am to call him and get a RX for a patch that might be > better/stronger to releive the pain. If all of those do work I may > have to have hip injections in both hips. > > So Im sitting there listening to all of this and i start crying. He's > said its gonna be ok. I said its not that. I am only 31 Dr Z and > when I think about a future filled with pain it breaks my heart. He > said Cortnee, It will get better. I said I hope so. I dont know how > much more I can do this. I held out for today because I thought I was > going to get my medicine, I never though I would look forward to > giving myself a shot or the chemo so badly. I worry about my quality > of life and if I will be able to walk or right or type. I have these > things on my feet that may or may not be nodules from the RA, he keeps > an eye on them too. His face today though, scared me, I know he was > trying hard not to show it because I was so fragile. I know > he doesnt like the idea of the injections and I can magine he's > thinking to himself, damn, I wanted to save her from that pain. See I > know what its like to get those injections. They are not fun. I have > had several in my wrists. > > I sit and wonder why do I have to go through so much. All of my past > and my medical problems. Am I being punished for my wrong doings. > Like I said Im only 31 and I have been though abuse, physical and > mental, rape, abortion, losing people, watching death unfold. I've > had neck surgery where I had a double fusion, ive had carpal tunnel > release in both hands. Whats next. I cant imagine needing a hip > replacement at 31, but at this point its possible. He said that I > may have to have some scans and tests if it continues, I was afraid to > ask what my future holds. I know he doesnt KNOW for sure, but I can > tell he has an idea, but he didnt discuss it with me. > > have tried so hard not to feel sorry for myself. I know there are so > many others out there in more pain and or dying. Im not dying, but > the pain is so unbelieveably bad at times. It takes all i have jus > tto sit up and move over to my chair in the mornings. My emotions are > running wild and im quite terrified. I dont want to live my life in > pain. For lack of better statements...Its not fair....Its not. > > OK Ok, im done, i needed to vent!!!! > Cortnee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Everyone, thanks so much for the kind words I can tell I am going to like it here, you all are so nice and have great information, my Dr was impressed when I took in some of the articles I recieved form this site. He loves that I am so active in my own healing and illness and that I ask as many questions as I can to insure that I am getting excatly what is best for me, Thanks agian, CortneeTHANK YOU FOR BEING SUCH A GREAT TEAM! Davenport <jennay43334@...> wrote: Good job!, vent away. It does help, and since we all do at sometime its ok. It does sound like you have an attenative and caring doctor , so that is a plus. He is limited to what he is given medically to try out on you until you work as a team to pinpoint what works and what doesnt. Dont wait months to let him know if something isnt helping you. We have to do our own part, as much as we may put it off and say it is not fair, which of course is true, but the fact is,, if we dont move, dont try to stretch and keep the joints moving, they will freeze up on us and then it is very very hard to get around at all. I just went off of therapy, and have to do several types of exercises twice a day. I catch myself putting it off or saying I can skip a day, but if I do,,, I am stiff and less likely to get back at it as a regular routing. And tht is what it has to be, not a quick fix, but a lifestyle change, I understand I will have to do this for rest of my life, but it is totally in my control to do it or not. After all I am the one that either suffers or gains the benefits by my choice. All sounds good, simple, logically, then why is it so hard to dig in and keep at it.. Take care, hoping for better days ahead.. JEnny in Missouri ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Cortnee, Just know we always got your back here:) Tawny > Good job!, vent away. It does help, and since we all > do at sometime its ok. It does sound like you have an > attenative and caring doctor , so that is a plus. He > is limited to what he is given medically to try out on > you until you work as a team to pinpoint what works > and what doesnt. Dont wait months to let him know if > something isnt helping you. We have to do our own > part, as much as we may put it off and say it is not > fair, which of course is true, but the fact is,, if we > dont move, dont try to stretch and keep the joints > moving, they will freeze up on us and then it is very > very hard to get around at all. I just went off of > therapy, and have to do several types of exercises > twice a day. I catch myself putting it off or saying I > can skip a day, but if I do,,, I am stiff and less > likely to get back at it as a regular routing. And tht > is what it has to be, not a quick fix, but a lifestyle > change, I understand I will have to do this for rest > of my life, but it is totally in my control to do it > or not. After all I am the one that either suffers or > gains the benefits by my choice. All sounds good, > simple, logically, then why is it so hard to dig in > and keep at it.. Take care, hoping for better days > ahead.. JEnny in Missouri > > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Alice, Oh yes, one day at a time! That is the best advice, we can only do what we can, and it sure will wait for us to do later. Have a great day,Tawny > > > > Well im up and out early this morning. Trevor and I were leaving the > > house at 6:40am to go to my Dr's appt. Its close to downtown Dallas > > and with traffic you better leave early. So we head out Im trying > > really hard not to freak out cause I hate traffic. We get there safe > > and sound. Luckily. > > > > Dr. Z comes in and looks me over. I had to do a stat blood test and > > Urine sample test. Turns out that i have another Bladder > > Infection. Which means no chemo and no Humria. I just about cried. I > > dont know how I can go on through the rest of my life in such pain. > > Im not deforming yet, which is a blessing, but he seems really > > concerned. He kept commenting on my swelling and feeling my joints. I > > know when he's worried he has this look. Cause normally hes all > > smiles. He said that I have to take the antibioitcs for 3 days and > > then on Sunay I can start the Chemo and Monday I am to call them > > because after looking me over real good. He checked my hips and I > > about came up off the table and I yelled out. That really hurt. He > > said I have brisitis in both of my hips and I have to try these pads > > that heat up for 8 hours and then these ben gay pads, if that doesnt > > work I am to call him and get a RX for a patch that might be > > better/stronger to releive the pain. If all of those do work I may > > have to have hip injections in both hips. > > > > So Im sitting there listening to all of this and i start crying. He's > > said its gonna be ok. I said its not that. I am only 31 Dr Z and > > when I think about a future filled with pain it breaks my heart. He > > said Cortnee, It will get better. I said I hope so. I dont know how > > much more I can do this. I held out for today because I thought I was > > going to get my medicine, I never though I would look forward to > > giving myself a shot or the chemo so badly. I worry about my quality > > of life and if I will be able to walk or right or type. I have these > > things on my feet that may or may not be nodules from the RA, he keeps > > an eye on them too. His face today though, scared me, I know he was > > trying hard not to show it because I was so fragile. I know > > he doesnt like the idea of the injections and I can magine he's > > thinking to himself, damn, I wanted to save her from that pain. See I > > know what its like to get those injections. They are not fun. I have > > had several in my wrists. > > > > I sit and wonder why do I have to go through so much. All of my past > > and my medical problems. Am I being punished for my wrong doings. > > Like I said Im only 31 and I have been though abuse, physical and > > mental, rape, abortion, losing people, watching death unfold. I've > > had neck surgery where I had a double fusion, ive had carpal tunnel > > release in both hands. Whats next. I cant imagine needing a hip > > replacement at 31, but at this point its possible. He said that I > > may have to have some scans and tests if it continues, I was afraid to > > ask what my future holds. I know he doesnt KNOW for sure, but I can > > tell he has an idea, but he didnt discuss it with me. > > > > have tried so hard not to feel sorry for myself. I know there are so > > many others out there in more pain and or dying. Im not dying, but > > the pain is so unbelieveably bad at times. It takes all i have jus > > tto sit up and move over to my chair in the mornings. My emotions are > > running wild and im quite terrified. I dont want to live my life in > > pain. For lack of better statements...Its not fair....Its not. > > > > OK Ok, im done, i needed to vent!!!! > > Cortnee > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Honey, you are not being punished for anything, God doesn't work like that. I know it seems like it sometimes, but I promise you He loves you.Your sensitivity and sweet spirit come across so clearly, it's obvious that you are a good person. I believe that someday you will be able to use what you have gone through to help other people because you are a survivor, and you have claimed victory over so many things in your life. You have not let the bad things turn your heart hard. I have faith that things will get better, that brighter days are ahead for you. Take one day at a time, or one hour at a time, or whatever you can do. Personally if it wasn't for Jesus I don't know where I would be or how I would have handled the stuff I have gone through in my life. E me if you need to vent or rant or whatever. I'll be praying for comfort and peace for you. Hang in there. Jane > > Well im up and out early this morning. Trevor and I were leaving the > house at 6:40am to go to my Dr's appt. Its close to downtown Dallas > and with traffic you better leave early. So we head out Im trying > really hard not to freak out cause I hate traffic. We get there safe > and sound. Luckily. > > Dr. Z comes in and looks me over. I had to do a stat blood test and > Urine sample test. Turns out that i have another Bladder Infection. > Which means no chemo and no Humria. I just about cried. I dont know > how I can go on through the rest of my life in such pain. Im not > deforming yet, which is a blessing, but he seems really concerned. > He kept commenting on my swelling and feeling my joints. I know when > hes worried he has this look. Cause normally hes all smiles. He > said that I have to take the antibioitcs for 3 days and then on Sunay > I can start the Chemo and Monday I am to call them because after > looking me over real good. He checked my hips and I about came up > off the table and I yelled out. That really hurt. He said I have > brisitis in both of my hips and I have to try these pads that heat up > for 8 hours and then these ben gay pads, if that doesnt work I am to > call him and get a RX for a patch that might be better/stronger to > releive the pain. If all of those do work I may have to have hip > injections in both hips. > > So Im sitting there listening to all of this and i start crying. Hes > said its gonna be ok. I said its not that. I am only 31 Dr Z and > when I think about a future filled with pain it breaks my heart. He > said Cortnee, It will get better. I said I hope so. I dont know how > much more I can do this. I held out for today because I thought I > was going to get my medicine, I never though I would look forward to > giving myself a shot or the chemo so badly. I worry about my quality > of life and if I will be able to walk or right or type. I have these > things on my feet that may or may not be nodules from the RA, he > keeps an eye on them too. His face today though, scared me, I know > he was trying hard not to show it because I was so fragile. I know > he doesnt like the idea of the injections and I can magine hes > thinking to himself, damn, I wanted to save her from that pain. See > I know what its like to get those injections. They are not fun. I > have had several in my wrists. > > I sit and wonder why do I have to go through so much. All of my past > and my medical problems. Am I being punished for my wrong doings. > Like I said Im only 31 and I have been though abuse, physical and > mental, rape, abortion, losing people, watching death unfold. Ive > had neck surgery where I had a double fusion, ive had carpal tunnel > release in both hands. Whats next. I cant imagine needing a hip > replacement at 31, but at this point its possible. He said that I > may have to have some scans and tests if it continues, I was afraid > to ask what my future holds. I know he doesnt KNOW for sure, but I > can tell he has an idea, but he didnt discuss it with me. > > have tried so hard not to feel sorry for myself. I know there are > so many others out there in more pain and or dying. Im not dying, > but the pain is so unbelieveably bad at times. It takes all i have > jus tto sit up and move over to my chair in the mornings. My > emotions are running wild and im quite terrified. I dont want to > live my life in pain. For lack of better statements...Its not > fair....Its not. > > OK Ok, im done, i needed to vent!!!! > Cortnee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Hello, Rough day today. My joints hurt. My grandson is being a handful today. I can't seem to get this Bronchitis gone. Never a dull moment. The Methotrexate makes me so tired. But, we have to keep on going. Like the energizer bunny...... Quote Link to comment Share on other sites More sharing options...
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