FW: Digest Number 1495

December 31, 2006

Carer/ Consumer Representative

Central Area, Mental Health Clinical network.

" Sec/ Co -ord HBCAG & GEMS.

Consumer/ carer rep to FCIMHS

Community Consultant on Mental Health /Fraser Coast.

Sandy R .

" Nothing about us without us "

HBCAG " Promoting Excellence in Mental Health "

----------------------------------------

> From: sillysandy82@...

> To: bronchiectasis

> Subject: RE: Digest Number 1495

> Date: Sun, 31 Dec 2006 19:43:24 +1000

>

> I too have been the squeeky wheel.

> But just to add a few lines here.

>

> Karin, the atypical pneumonias, TB's and many others, are well renowned for

many returns sadly.

>

> I too have been exposed to MRSA, HIV aids, TB.

> And several others and I have no immunity.

> I did get atypical TB and also the Pneumonia, and have had 3 rebouts of the TB

and 2 of the pneumonia, however thats a long time ago.

> I have stuck to my all naturals for over 10 years now, and fish oils etc.

> Thank god some things do work, for those of us who can no longer take any form

of AB's etc.

>

> Many people do become laxadaisy when they begin to get well, feel well etc,

and stop taking good care of themselves.

> However I have kept the same regime for almost 12 years now, and been

infection free for over 11 years.

>

> To the mum, of the young boy, I have 3 kiddies in my immediate care who, are

aged from 9 to 16.

> All but one is still with their peadiatician pulmonogists.

> That other is 16, and very much a man, so was unable to stay with his doctor.

> However they work very closely with us all.

> I go into any and every appt with him as his advocate and as his recognised

carer.

>

> We don,t have the vest here in Australia, however we do pretty well with

getting most things, I a=have been involved in

> 2 appeals, and we won both.

> However I am sure if we hadn,t done our homework, and got lots of letters of

support,

> things may have been different, we really had to push and persevere with an

awful lot I can tell you.

>

> There are lots of good things out there to loosen thick muccous, and there are

lots of good techs you can learn to assist too.

>

> Karin I am 60 next birthday, and I can tell you some days I,m 100, but most

days still feel 38.

> No 40 was a bad year for me, lol.

> But because I take no nonsence and because I make sure all docs know my

experience and the fact that I leave no stone unturned,

> I have only ever had 2-3 doctors who were too BLAZEE

>

> Becky, there are 3-4 young people who joined up early in 2006, so they also

may see your post.

>

> Hugs to all, and happy healthy 2007 wishes to all from Australia.

> Sandy

>

> Carer/ Consumer Representative

> Central Area, Mental Health Clinical network.

> " Sec/ Co -ord HBCAG & GEMS.

> Consumer/ carer rep to FCIMHS

> Community Consultant on Mental Health /Fraser Coast.

> Sandy R .

>

> " Nothing about us without us "

> HBCAG " Promoting Excellence in Mental Health "

>

> ________________________________

> > Date: Sun, 31 Dec 2006 09:02:30 +0000

> > From: bronchiectasis

> > To: bronchiectasis

> > Subject: Digest Number 1495

> >

> > Bronchiectasis Support Group

<http://groups.yahoo.com/group/bronchiectasis;_ylc=X3oDMTJkMzBudWNoBF9TAzk3MzU5N\

zE1BGdycElkAzQwNTY4MTcEZ3Jwc3BJZAMxNzA1MDYxNTg5BHNlYwNoZHIEc2xrA2hwaARzdGltZQMxM\

TY3NTU1NzUw>

> > Messages In This Digest (16 Messages)

> > 1a.

> > Any Young Adults? Like under 40 but ESP in their 20's? Im 28yo. From: Becki

Snyder

> > 1b.