Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 HI Tom, Is the LDN expensive? I don't have any insurance and as of yet no medicare or medicaid since I am still waiting on the hearing for my disability. Regards, Bonnie > > > Date: 2003/09/25 Thu PM 01:49:08 EDT > To: MSersLife > Subject: Re: LDN > > Tom, I'm so curious about LDN. I have visited the website. I'm wondering how many members of this group are on it. Maybe I'm just looking for anything that will get me off the interferons because I believe they contribute to the fatigue that has impacted me so heavily. I know everyone is different but fatigue has seriously changed my life. I'm not working which some may see as a good oppty to pursue other things but I don't have ANY energy to pursue other things. Can anyone take this med? Is it considered experimental? If so, insurance won't cover. Thanks for any feedback. -- Jackie > Hi Bonnie, > No, I do not take any other meds. The only meds that would conflict with LDN are opium derivative drugs. > Regards, > Tom > LDN > > > > > > Dear Tom, > > > > You may recall that I belong to the yahoo chat group....trying to keep posted on what is working for MS for a friend. > > > > I have followed your situation with LDN, and I wonder if you would kindly post an update. How are you doing today? How long has it been? Have you done anything else significant, the effects of which might also be contributing to your status. > > > > I would so much appreciate this...and thank you kindly for your caring and sharing. > > > > Best regards, > > > > Grayce Stratton > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Andreia, Maybe one of us could have it shipped or mailed to you. Would that cause you any trouble with the local authorities ? Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 oh tom! there´s no problem with the Govern! wud u do it 4me? it wud be great! how can I pay 4it? I don´t know about these stuffs! but I can learn if u teach me! oh plz! he disappeared b4 starting it to me! Regards, Andreia XXXXX visit my web page and sign my guest book: http://msmemoriesandthoughts.bravehost.com/ Re: LDN Andreia, Maybe one of us could have it shipped or mailed to you. Would that cause you any trouble with the local authorities ? Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Hi Andreia, Try to contact one of the doc's on the following list. If he prescribes it you could have the pharmacy send it to you. Regards, Tom Dr. Bernard Bihari New York, NY Dr. Sidney, NY Dr. Carole Saratoga Springs, NY Dr. Stafford Colorado Springs, CO Dr. Bruce Sharpnack Hickory, PA Dr. Jeff Esper Erie, PA Sullivan Mechanicsburg, PA Dr. Patti Townely Dwight, IL Dr. Myers Skokie, IL Dr. Alan Buchman Chicago, IL Dr. Bernard s Vernon Hills, Illinois Dr. Stanley Knep (Neuro) Clifton, NJ Dr. Wisconsin Dr. ph Wezensky, MD, GP Dr. Rick Jensen, ND Kokopelli Health & Wellness Grand Junction, CO http://www.acam.org/dr_search/ Dr. search www.lef.org search of innovative DR. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 ty Tom. I will try to contact ACAM(the site) and email it cos I really can´t speak up English but I can write! I do hope it works! fingers crossed! Regards, Andreia XXXXX visit my web page and sign my guest book: http://msmemoriesandthoughts.bravehost.com/ Re: LDN Hi Andreia, Try to contact one of the doc's on the following list. If he prescribes it you could have the pharmacy send it to you. Regards, Tom Dr. Bernard Bihari New York, NY Dr. Sidney, NY Dr. Carole Saratoga Springs, NY Dr. Stafford Colorado Springs, CO Dr. Bruce Sharpnack Hickory, PA Dr. Jeff Esper Erie, PA Sullivan Mechanicsburg, PA Dr. Patti Townely Dwight, IL Dr. Myers Skokie, IL Dr. Alan Buchman Chicago, IL Dr. Bernard s Vernon Hills, Illinois Dr. Stanley Knep (Neuro) Clifton, NJ Dr. Wisconsin Dr. ph Wezensky, MD, GP Dr. Rick Jensen, ND Kokopelli Health & Wellness Grand Junction, CO http://www.acam.org/dr_search/ Dr. search www.lef.org search of innovative DR. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 what is LDN? i was diagnosed with ms 13 years ago but lately i've been having more symptoms and have had to quit working. thanks, debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2005 Report Share Posted January 19, 2005 In a message dated 1/19/2005 3:33:36 AM Central Standard Time, Ive been on it 4 months, Karin, and saw improved energy the first day--also less " tight " feeling in my R Leg the first morning--has continued ever since and I'm one of the lucky ones who also am having some symptoms reverse--lots of the numbness in my feet and legs is gone. I have had very few side effects--some interrupted sleep at first, and some really vivid dreams (not nightmares, though) for a few weeks. I was on Copaxone for a year and though I didn't have to (you can do Copaxone and LDN at the same time) I was getting side effects from Copaxone so decided to just get off it. I really recommend it and there are lots and lots of others doing it for MS as well as other autoimmune diseases and even Cancer at the LDN group: _lowdosenaltrexone _ (mailto:lowdosenaltrexone ) You sign up for that group the same way you did this one. I don't understand why anyone would start with the very low dose of 1.5 mg when 3.0 or 4.5 is the amount recommended by the doc who started the whole thing. Unless a person is extremely drug sensitive, I'd start at either 3.0 or 4.5mg You take it between 9 pm and 3 am whether you're sleeping or working the nite shift--pretty darned easy & cheap. Daphne mscured writes: Please, those of you that are on it tell me very specifically what it has done for you? How are you taking it? have you heard that " slow release " LDN is not good? What side effects have you had? Any medical problems as a result from LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Interesting stuff. Keep in mind this won't force the FDA or MSS to do anything, but imagine the egg on the MSS's face if trials prove it to be effective. It takes the Vermont HR to point out to the MSS that LDN warrants more research. Perhaps I should my donations to them. ....... > > > -------------------------------------------------------------------------------- > RESOLUTION AS INTRODUCED 2005-2006 > > State of Vermont > House of Representatives > > Montpelier, Vermont > Joint House Resolution > > J.R.H. 6 > > Joint resolution urging the Food and Drug Administration and the Multiple Sclerosis Society to study the efficacy of low dose naltrexone as a multiple sclerosis medication <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 I just got off the phone with Skip, from Skip's Pharmacy in Florida. We had a long discussion about LDN. He said that in some cases it's very helpful for reglating the cells around lesions, keeping them from attacking the myelin sheath on the edges of an existing scar. He said that exacerbations of MS happen when there is new activity there (around the edges) and that if the center of a lesion is scar tissue, it can't be reactivated. The lesions can spread from free-radical activity (when the cells attack good tissue instead of bad) and LDN regulates this actvity. LDN won't bring activity back from a scarred area, but will prevent further spreading of the scar in some cases. It doesn't help with bladder control unless a lesion in that area of the brain is flaring-up. The same is true with mobility. It does nothing for muscle cramping. My question to you is, what effects have YOU seen with LDN? According to Skip, he sells over 100,000 prescriptions per month. He doesn't always get feedback from his customers to know all their results. Quote Link to comment Share on other sites More sharing options...
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