Guest guest Posted September 2, 1999 Report Share Posted September 2, 1999 Dear , The clindamycin will usually give a boost to the therapy. Personally, I would accept Dr. Brownstein's offer of doing the IV once a month for . The main objection you hear to the use of clindamycin is c difficile (have a look at www.rheumatic.org/cdiff.htm). While this is a realistic concern, no case of c diff has been reported at the doses used for this therapy, usually 300mg, 600mg or 900mg by IV. It's important to make sure is using plenty of acidophilus, especially if she's on both oral and IV antibiotics. Chris. Hi all, I have been checking in on this for the whole year and barely writing as I was in an intensive master's program. My 19 year old daughter, has RA and has been on the AP for 1 1/2 without a lot of change Well, actually, the pain is about the same but she used to be real thirsty and brain fuzzy and that seems better. We are lucky enough to live in the Detroit Metro area and have Dr. Brownstein as our doctor. He has on the anitibiotic--she can't seem to tolerate more thatn 50mg 3x a week. Tried doubling it and she was too achy to function well at college. The other day he tried climadycin IV for her. She actually felt a little more achy but more energetic. Does the climadycin have bad side affects? He is talking about doing it monthly. He said some people feel much better after a treatment. Any feedback for those on it would be appreciated. Take care everyone. Love, brenda --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Hi all. Today was my 5th Rheumy appointment since being diagnosed with RA, then Sjogren's Syndrome - earlier this year. My boyfriend has accompanied me to the first four meetings, but was unable to make it today. I have been having less severe flares since my initial diagnosis. When I do flare, there's less swelling and I have more mobility than when I first became sick. I do feel pain in my joints every single day....some days much worse than others. I find that I have 3 bad weeks out of each month where I spend more time in bed laying down. This does not mean I am restricted to bed....it does mean that I am limited to what I have to do and how much energy I have. My one good week will mean I am able to do something like a doctor's appointment and a quick stop at a store in the same day. Other than that, I never book two appointments in one day unless I have to. Overall, I have had some improvement. I am left with the lingering question if my quality of life is as good as it's going to get. I am only 34, and still feel as though there is so much I cannot do everyday. I left the Rheumy's office with a weird feeling today. She had little eye contact, and kept staring down at my file. She seemed defeated....and maybe a bit overwhelmed. Nothing she said.....it was just the body language and the way she was acting around me. I discussed this with my boyfriend tonight, and he said the EXACT same thing. He said he noticed a difference in how my Rheumy was reacting to me with each visit. The first visit she seemed so confident as to what to do for me. Each time I kept coming back, she seemed a little less self-assured. He said it was as though she is unsure of what to do with me now seeing as we've made several changes to my meds.....and I get little improvement when we do. He didn't mention it to me earlier, because he didn't want to worry or upset me. I want to go to my regular doc and ask to see another Rheumy....but I am worried of the consequences of doing that. My Rheumy I have now is wonderful, considerate and caring. I just feel like she doesn't know what to do with me. I am in Canada....so the system is a bit different here. Most of the specialists have contact with one another....and I don't want to offend my Rheumy and make her feel like she is inadequate when she's not. I don't want to be sent somewhere else only to be returned to her once she thinks I don't trust her as a professional. Sorry this is long, but I really don't know if I am just reading too much into this....or if it's something I should do. Deep down I know that it's my health on the line and I am entitled to a second opinion, but I don't want to burn any bridges. My care up until now has been very good from my existing Rheumy. I don't want to feel as though there is tension between us if I get sent back to her when all is said and done. Thanks for reading, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 , I think you should talk to your rheumy and let her know what you're feeling about her care. Give her a change to explain where she is at instead of speculating. Sounds like you like her, give her a chance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 , I think you should talk to your rheumy and let her know what you're feeling about her care. Give her a change to explain where she is at instead of speculating. Sounds like you like her, give her a chance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 I'm sorry you are having such a time with getting relief with the RA. My only suggestion would be to talk to your current Rheumy openly, write down what you want to say, so you don't get in her office and go blank ( been there done that ) . , and just tell her your concerns, that you dont know what to expect out of this, and you are frustrated at your progress. I believe in being up front and honest, if that upsets a doctor, then find a different doctor. Good luck and I hope today is a good day for you. in MO ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 I'm sorry you are having such a time with getting relief with the RA. My only suggestion would be to talk to your current Rheumy openly, write down what you want to say, so you don't get in her office and go blank ( been there done that ) . , and just tell her your concerns, that you dont know what to expect out of this, and you are frustrated at your progress. I believe in being up front and honest, if that upsets a doctor, then find a different doctor. Good luck and I hope today is a good day for you. in MO ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 , Just be honest with her, and just let her know how you feel. If you still feel the same, then you have the right for a second opinion. You have to be comfortable with your doctor, so just think about yourself, you need the best possible care. Take care, Tawny > Hi all. > > Today was my 5th Rheumy appointment since being diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My boyfriend has > accompanied me to the first four meetings, but was unable to make it > today. > > I have been having less severe flares since my initial diagnosis. When I > do flare, there's less swelling and I have more mobility than when I first > became sick. I do feel pain in my joints every single day....some days > much worse than others. I find that I have 3 bad weeks out of each month > where I spend more time in bed laying down. This does not mean I am > restricted to bed....it does mean that I am limited to what I have to do and > how much energy I have. My one good week will mean I am able to do > something like a doctor's appointment and a quick stop at a store in the > same day. Other than that, I never book two appointments in one day > unless I have to. > > Overall, I have had some improvement. I am left with the lingering > question if my quality of life is as good as it's going to get. I am only 34, > and still feel as though there is so much I cannot do everyday. > > I left the Rheumy's office with a weird feeling today. She had little eye > contact, and kept staring down at my file. She seemed defeated....and > maybe a bit overwhelmed. Nothing she said.....it was just the body > language and the way she was acting around me. I discussed this with > my boyfriend tonight, and he said the EXACT same thing. He said he > noticed a difference in how my Rheumy was reacting to me with each > visit. The first visit she seemed so confident as to what to do for me. > Each time I kept coming back, she seemed a little less self- assured. He > said it was as though she is unsure of what to do with me now seeing as > we've made several changes to my meds.....and I get little improvement > when we do. He didn't mention it to me earlier, because he didn't want to > worry or upset me. > > I want to go to my regular doc and ask to see another Rheumy....but I am > worried of the consequences of doing that. My Rheumy I have now is > wonderful, considerate and caring. I just feel like she doesn't know what to > do with me. I am in Canada....so the system is a bit different here. Most > of the specialists have contact with one another....and I don't want to > offend my Rheumy and make her feel like she is inadequate when she's > not. I don't want to be sent somewhere else only to be returned to her > once she thinks I don't trust her as a professional. > > Sorry this is long, but I really don't know if I am just reading too much into > this....or if it's something I should do. Deep down I know that it's my > health on the line and I am entitled to a second opinion, but I don't want to > burn any bridges. My care up until now has been very good from my > existing Rheumy. I don't want to feel as though there is tension between > us if I get sent back to her when all is said and done. > > Thanks for reading, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 , Just be honest with her, and just let her know how you feel. If you still feel the same, then you have the right for a second opinion. You have to be comfortable with your doctor, so just think about yourself, you need the best possible care. Take care, Tawny > Hi all. > > Today was my 5th Rheumy appointment since being diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My boyfriend has > accompanied me to the first four meetings, but was unable to make it > today. > > I have been having less severe flares since my initial diagnosis. When I > do flare, there's less swelling and I have more mobility than when I first > became sick. I do feel pain in my joints every single day....some days > much worse than others. I find that I have 3 bad weeks out of each month > where I spend more time in bed laying down. This does not mean I am > restricted to bed....it does mean that I am limited to what I have to do and > how much energy I have. My one good week will mean I am able to do > something like a doctor's appointment and a quick stop at a store in the > same day. Other than that, I never book two appointments in one day > unless I have to. > > Overall, I have had some improvement. I am left with the lingering > question if my quality of life is as good as it's going to get. I am only 34, > and still feel as though there is so much I cannot do everyday. > > I left the Rheumy's office with a weird feeling today. She had little eye > contact, and kept staring down at my file. She seemed defeated....and > maybe a bit overwhelmed. Nothing she said.....it was just the body > language and the way she was acting around me. I discussed this with > my boyfriend tonight, and he said the EXACT same thing. He said he > noticed a difference in how my Rheumy was reacting to me with each > visit. The first visit she seemed so confident as to what to do for me. > Each time I kept coming back, she seemed a little less self- assured. He > said it was as though she is unsure of what to do with me now seeing as > we've made several changes to my meds.....and I get little improvement > when we do. He didn't mention it to me earlier, because he didn't want to > worry or upset me. > > I want to go to my regular doc and ask to see another Rheumy....but I am > worried of the consequences of doing that. My Rheumy I have now is > wonderful, considerate and caring. I just feel like she doesn't know what to > do with me. I am in Canada....so the system is a bit different here. Most > of the specialists have contact with one another....and I don't want to > offend my Rheumy and make her feel like she is inadequate when she's > not. I don't want to be sent somewhere else only to be returned to her > once she thinks I don't trust her as a professional. > > Sorry this is long, but I really don't know if I am just reading too much into > this....or if it's something I should do. Deep down I know that it's my > health on the line and I am entitled to a second opinion, but I don't want to > burn any bridges. My care up until now has been very good from my > existing Rheumy. I don't want to feel as though there is tension between > us if I get sent back to her when all is said and done. > > Thanks for reading, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 : I think you said it well in this post - you just have to say it now to your current rheumy. Let her hear that you know that she has your best interests at heart and you know she has been trying very hard to find the right medications for you, but, in spite of that, you are wondering if another opinion would be of help. Let her know that you think highly of her, and that she is compassionate and caring, and that it is nothing personal, she's a wonderful doctor, but you want a second opinion, want to explore other possible treatment options through a new doctor's eyes. This is not to say you are switching doctors, although you may do that if you like the second rheumy better, but looking out for your own interest and being your own best advocate in regards to your health and life. If she is as caring a doctor as you say, she should be fine with the second opinion, maybe she would even like to hear what another rheumy has to say, and this will be good for both of you. Doctors who deal with our illnesses, RA, Fibro, Lupus, MS, etc., I am sure at times get frustrated that they are unable to help us like they want to - I just started with a new rheumy myself to get another jump start on my treatment - I was like you, in a rut, and not experiencing much improvement. I really like the new doc - she immediately ordered x-rays of several joints and blood work, and will also be treating the Fibro - started me on another med for that - I think sometimes change is good. Best of luck - Kathe in CA --- ltlmisscrankypants <ltlmisscrankypants@...> wrote: > Hi all. > > Today was my 5th Rheumy appointment since being > diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My > boyfriend has > accompanied me to the first four meetings, but was > unable to make it > today. > > I have been having less severe flares since my > initial diagnosis. When I > do flare, there's less swelling and I have more > mobility than when I first > became sick. I do feel pain in my joints every > single day....some days > much worse than others. I find that I have 3 bad > weeks out of each month > where I spend more time in bed laying down. This > does not mean I am > restricted to bed....it does mean that I am limited > to what I have to do and > how much energy I have. My one good week will mean > I am able to do > something like a doctor's appointment and a quick > stop at a store in the > same day. Other than that, I never book two > appointments in one day > unless I have to. > > Overall, I have had some improvement. I am left > with the lingering > question if my quality of life is as good as it's > going to get. I am only 34, > and still feel as though there is so much I cannot > do everyday. > > I left the Rheumy's office with a weird feeling > today. She had little eye > contact, and kept staring down at my file. She > seemed defeated....and > maybe a bit overwhelmed. Nothing she said.....it > was just the body > language and the way she was acting around me. I > discussed this with > my boyfriend tonight, and he said the EXACT same > thing. He said he > noticed a difference in how my Rheumy was reacting > to me with each > visit. The first visit she seemed so confident as > to what to do for me. > Each time I kept coming back, she seemed a little > less self-assured. He > said it was as though she is unsure of what to do > with me now seeing as > we've made several changes to my meds.....and I get > little improvement > when we do. He didn't mention it to me earlier, > because he didn't want to > worry or upset me. > > I want to go to my regular doc and ask to see > another Rheumy....but I am > worried of the consequences of doing that. My > Rheumy I have now is > wonderful, considerate and caring. I just feel like > she doesn't know what to > do with me. I am in Canada....so the system is a > bit different here. Most > of the specialists have contact with one > another....and I don't want to > offend my Rheumy and make her feel like she is > inadequate when she's > not. I don't want to be sent somewhere else only to > be returned to her > once she thinks I don't trust her as a professional. > > Sorry this is long, but I really don't know if I am > just reading too much into > this....or if it's something I should do. Deep down > I know that it's my > health on the line and I am entitled to a second > opinion, but I don't want to > burn any bridges. My care up until now has been > very good from my > existing Rheumy. I don't want to feel as though > there is tension between > us if I get sent back to her when all is said and > done. > > Thanks for reading, > > > > > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 : I think you said it well in this post - you just have to say it now to your current rheumy. Let her hear that you know that she has your best interests at heart and you know she has been trying very hard to find the right medications for you, but, in spite of that, you are wondering if another opinion would be of help. Let her know that you think highly of her, and that she is compassionate and caring, and that it is nothing personal, she's a wonderful doctor, but you want a second opinion, want to explore other possible treatment options through a new doctor's eyes. This is not to say you are switching doctors, although you may do that if you like the second rheumy better, but looking out for your own interest and being your own best advocate in regards to your health and life. If she is as caring a doctor as you say, she should be fine with the second opinion, maybe she would even like to hear what another rheumy has to say, and this will be good for both of you. Doctors who deal with our illnesses, RA, Fibro, Lupus, MS, etc., I am sure at times get frustrated that they are unable to help us like they want to - I just started with a new rheumy myself to get another jump start on my treatment - I was like you, in a rut, and not experiencing much improvement. I really like the new doc - she immediately ordered x-rays of several joints and blood work, and will also be treating the Fibro - started me on another med for that - I think sometimes change is good. Best of luck - Kathe in CA --- ltlmisscrankypants <ltlmisscrankypants@...> wrote: > Hi all. > > Today was my 5th Rheumy appointment since being > diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My > boyfriend has > accompanied me to the first four meetings, but was > unable to make it > today. > > I have been having less severe flares since my > initial diagnosis. When I > do flare, there's less swelling and I have more > mobility than when I first > became sick. I do feel pain in my joints every > single day....some days > much worse than others. I find that I have 3 bad > weeks out of each month > where I spend more time in bed laying down. This > does not mean I am > restricted to bed....it does mean that I am limited > to what I have to do and > how much energy I have. My one good week will mean > I am able to do > something like a doctor's appointment and a quick > stop at a store in the > same day. Other than that, I never book two > appointments in one day > unless I have to. > > Overall, I have had some improvement. I am left > with the lingering > question if my quality of life is as good as it's > going to get. I am only 34, > and still feel as though there is so much I cannot > do everyday. > > I left the Rheumy's office with a weird feeling > today. She had little eye > contact, and kept staring down at my file. She > seemed defeated....and > maybe a bit overwhelmed. Nothing she said.....it > was just the body > language and the way she was acting around me. I > discussed this with > my boyfriend tonight, and he said the EXACT same > thing. He said he > noticed a difference in how my Rheumy was reacting > to me with each > visit. The first visit she seemed so confident as > to what to do for me. > Each time I kept coming back, she seemed a little > less self-assured. He > said it was as though she is unsure of what to do > with me now seeing as > we've made several changes to my meds.....and I get > little improvement > when we do. He didn't mention it to me earlier, > because he didn't want to > worry or upset me. > > I want to go to my regular doc and ask to see > another Rheumy....but I am > worried of the consequences of doing that. My > Rheumy I have now is > wonderful, considerate and caring. I just feel like > she doesn't know what to > do with me. I am in Canada....so the system is a > bit different here. Most > of the specialists have contact with one > another....and I don't want to > offend my Rheumy and make her feel like she is > inadequate when she's > not. I don't want to be sent somewhere else only to > be returned to her > once she thinks I don't trust her as a professional. > > Sorry this is long, but I really don't know if I am > just reading too much into > this....or if it's something I should do. Deep down > I know that it's my > health on the line and I am entitled to a second > opinion, but I don't want to > burn any bridges. My care up until now has been > very good from my > existing Rheumy. I don't want to feel as though > there is tension between > us if I get sent back to her when all is said and > done. > > Thanks for reading, > > > > > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Hi , Tawny seems to have some good advice there. I am happy for you that you feel you have a good relationship with your Rheumy. Having a good and caring and trusting relationship with your Doc is so important. So talk to yours. Even the Geniuses know very little about RH and Lupus and all the auto immune diseases in this category. If you do not feel that your Rheumy is letting you down, well, sometimes, odd as it sounds, we the Patient has to re-assure our Doctors! The very best doctor I ever had was killed in a white water rafting accident many years ago. I am still in mourning over that and still searching for someone who at least comes close to being like him. Oh dear, now I am the one going on and on....... Like Tawny said, just buck up and find the courage to have an honest chat with your Rheumy. Or, write your feelings in a letter and hand it to your Rheumy and wait while she reads it. Huggggs and Healing thoughts your way from Alice in Alaska On Thursday, August 18, 2005, at 08:55 AM, tdianaok wrote: > , > Just be honest with her, and just let her know how you feel. If you > still feel the same, then you have the right for a second opinion. > You have to be comfortable with your doctor, so just think about > yourself, you need the best possible care. > Take care, Tawny > > > > Hi all. > Today was my 5th Rheumy appointment since being diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My boyfriend has > accompanied me to the first four meetings, but was unable to make it > today. > > I left the Rheumy's office with a weird feeling today. She had little > eye contact, and kept staring down at my file. She seemed > defeated....and maybe a bit overwhelmed. Nothing she said.....it was > just the body language and the way she was acting around me. I > discussed this > with my boyfriend tonight, and he said the EXACT same thing. Each time > I kept coming back, she seemed a little less self- > assured. He said it was as though she is unsure of what to do with > me now seeing as > we've made several changes to my meds.....and I get little improvement > when we do. He didn't mention it to me earlier, because he didn't > want to worry or upset me. > > I want to go to my regular doc and ask to see another Rheumy....but I > am worried of the consequences of doing that. My Rheumy I have now is > wonderful, considerate and caring. I just feel like she doesn't know > what to do with me. I am in Canada....so the system is a bit > different here. Most of the specialists have contact with one > another....and I don't > want to offend my Rheumy and make her feel like she is inadequate when > she's not. I don't want to be sent somewhere else only to be returned > to > her once she thinks I don't trust her as a professional. > > > Thanks for reading, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Hi , Tawny seems to have some good advice there. I am happy for you that you feel you have a good relationship with your Rheumy. Having a good and caring and trusting relationship with your Doc is so important. So talk to yours. Even the Geniuses know very little about RH and Lupus and all the auto immune diseases in this category. If you do not feel that your Rheumy is letting you down, well, sometimes, odd as it sounds, we the Patient has to re-assure our Doctors! The very best doctor I ever had was killed in a white water rafting accident many years ago. I am still in mourning over that and still searching for someone who at least comes close to being like him. Oh dear, now I am the one going on and on....... Like Tawny said, just buck up and find the courage to have an honest chat with your Rheumy. Or, write your feelings in a letter and hand it to your Rheumy and wait while she reads it. Huggggs and Healing thoughts your way from Alice in Alaska On Thursday, August 18, 2005, at 08:55 AM, tdianaok wrote: > , > Just be honest with her, and just let her know how you feel. If you > still feel the same, then you have the right for a second opinion. > You have to be comfortable with your doctor, so just think about > yourself, you need the best possible care. > Take care, Tawny > > > > Hi all. > Today was my 5th Rheumy appointment since being diagnosed with RA, > then Sjogren's Syndrome - earlier this year. My boyfriend has > accompanied me to the first four meetings, but was unable to make it > today. > > I left the Rheumy's office with a weird feeling today. She had little > eye contact, and kept staring down at my file. She seemed > defeated....and maybe a bit overwhelmed. Nothing she said.....it was > just the body language and the way she was acting around me. I > discussed this > with my boyfriend tonight, and he said the EXACT same thing. Each time > I kept coming back, she seemed a little less self- > assured. He said it was as though she is unsure of what to do with > me now seeing as > we've made several changes to my meds.....and I get little improvement > when we do. He didn't mention it to me earlier, because he didn't > want to worry or upset me. > > I want to go to my regular doc and ask to see another Rheumy....but I > am worried of the consequences of doing that. My Rheumy I have now is > wonderful, considerate and caring. I just feel like she doesn't know > what to do with me. I am in Canada....so the system is a bit > different here. Most of the specialists have contact with one > another....and I don't > want to offend my Rheumy and make her feel like she is inadequate when > she's not. I don't want to be sent somewhere else only to be returned > to > her once she thinks I don't trust her as a professional. > > > Thanks for reading, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 This is my guess, dehydration, lack of drinking enough fluids, can create both high hemotocrit levels and low blood pressure at the same time. An old army trip to pass physicals. My CBC's reflect high red blood cells,mine are maxed out at 18, because I smoke and take HCG, but that only accounts for about twenty percentile increase. Mine stayed about fifteen, until I began smoking and taking HCG, which increases my testosterone level. Polycythemia vera (PV) is associated with elevated hematocrit. PV is a myeloproliferative disorder in which the bone marrow produces excessive numbers of red cells, and reflects excessive numbers of RBC precursors in the bone marrow, as well as some abnormal forms. This condition is called erythroid hyperplasia. If you are experiencing shortnesss of breath, Chronic obstructive pulmonary disease (COPD) and other pulmonary conditions associated with hypoxia may elicit an increased production of red blood cells. This increase is mediated by the increased levels of erythropoyetin by the kidneys in response to hypoxia. " Hypoxia is a lack of oxygen. " My suggestion would be to disregard the dehydration possibility, since you have had the high hemo levels for some time. I would ask my docter for a COPD test, it is performed with a breathing apparatus and computer to measure you lung capacity. Simple twenty minute test. COPD, I believe is a forerunner to emphasema, and since you are having pain in your lower chest. This may be your problem, especially look at this angle, if you suffer " shortness of breath. " PV, is the bone marrow screwing up, and can get us, at our age. A bone marrow sample would be needed, from a hemotologist. But understand, I only have experience as a medic in the military, and do not have much expertise. But hope this helps, kind regards david > > HI everyone > > I have been having a high hematocrit around 55 % for some time now and > its been high when my T levels were low and its the same now that my T > levels are in the right range. > > I am being told by my doctor that T is causing this but I am thinking > if T was causing this wouldn't it be going even higher with my T > levels in the upper third of the reference range? > > Also I have been having this pain in my left side underneath my rib > cage....... Has anyone else had this or know what it could possibly be > because I don't believe my doc knows as he gave me an acid reducer and > sent me on my way. > > last but not least I have ben having dizzy spells and my heart rate > has been jumping up and down but my blood pressure has been stable. > > Any thoughts would be appreciated > Thank you > > Manraj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 On Mon, 19 Mar 2007 05:24:32 -0000, you wrote: >HI everyone > >I have been having a high hematocrit around 55 % for some time now and >its been high when my T levels were low and its the same now that my T >levels are in the right range. Look into http://en.wikipedia.org/wiki/Polycythemia_vera T therapy frequently does increase red blood cell volume, etc. Are you sure you had high levels before TRT? > >I am being told by my doctor that T is causing this but I am thinking >if T was causing this wouldn't it be going even higher with my T >levels in the upper third of the reference range? Not necessarily. > >Also I have been having this pain in my left side underneath my rib >cage....... Has anyone else had this or know what it could possibly be >because I don't believe my doc knows as he gave me an acid reducer and >sent me on my way. Um that would be where your spleen is. And tied to your high hematorcit would indicate some swelling of the spleen. Have you ever had a ferritn test also? > >last but not least I have ben having dizzy spells and my heart rate >has been jumping up and down but my blood pressure has been stable. > >Any thoughts would be appreciated >Thank you > >Manraj > > > > ----- " Anyone who has the power to make you believe absurdities has the power to make you commit atrocities. " - Voltaire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Hey Manraj, Goo dnews! for your high hematocrit which is a high level of red cells correct? you must go to a blood bank and get rid of 1 Unit of blood every 3 or 4 month. That takes care of the prblm. manraj2005 <no_reply > wrote: HI everyone I have been having a high hematocrit around 55 % for some time now and its been high when my T levels were low and its the same now that my T levels are in the right range. I am being told by my doctor that T is causing this but I am thinking if T was causing this wouldn't it be going even higher with my T levels in the upper third of the reference range? Also I have been having this pain in my left side underneath my rib cage....... Has anyone else had this or know what it could possibly be because I don't believe my doc knows as he gave me an acid reducer and sent me on my way. last but not least I have ben having dizzy spells and my heart rate has been jumping up and down but my blood pressure has been stable. Any thoughts would be appreciated Thank you Manraj --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 HI I have had my ferritin checked and it is within the range. MY reproductive endo has ruled out hemachromatosis. He is the one that found that I had this from a while back and freaked because he got my old file from my GP who had been treating me for low T and knowing that he didn't do anything about it. He has scheduled me for a stress test to see if anything is wrong with the heart. I think you are right when you say the spleen is swollen because I can't lay on my left side. Thank you for all the feedback this has been helpful. Manraj > > >HI everyone > > > >I have been having a high hematocrit around 55 % for some time now and > >its been high when my T levels were low and its the same now that my T > >levels are in the right range. > > Look into http://en.wikipedia.org/wiki/Polycythemia_vera > > T therapy frequently does increase red blood cell volume, etc. Are you > sure you had high levels before TRT? > > > >I am being told by my doctor that T is causing this but I am thinking > >if T was causing this wouldn't it be going even higher with my T > >levels in the upper third of the reference range? > > Not necessarily. > > > >Also I have been having this pain in my left side underneath my rib > >cage....... Has anyone else had this or know what it could possibly be > >because I don't believe my doc knows as he gave me an acid reducer and > >sent me on my way. > > Um that would be where your spleen is. And tied to your high > hematorcit would indicate some swelling of the spleen. > > Have you ever had a ferritn test also? > > > >last but not least I have ben having dizzy spells and my heart rate > >has been jumping up and down but my blood pressure has been stable. > > > >Any thoughts would be appreciated > >Thank you > > > >Manraj > > > > > > > > > > ----- > " Anyone who has the power to make you believe absurdities has the > power to make you commit atrocities. " - Voltaire > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 --- Thanks Your feedback has shed more light on this for me. I have been scheduled for a sress test to see if the heart is causing these high RBCs but I will ask for the COPD as well. Thank you Manraj In , " dhallgar " <dhallgar@...> wrote: > > This is my guess, dehydration, lack of drinking enough fluids, can > create both high hemotocrit levels and low blood pressure at the same > time. An old army trip to pass physicals. My CBC's reflect high red > blood cells,mine are maxed out at 18, because I smoke and take HCG, > but that only accounts for about twenty percentile increase. Mine > stayed about fifteen, until I began smoking and taking HCG, which > increases my testosterone level. > > Polycythemia vera (PV) is associated with elevated hematocrit. PV is a > myeloproliferative disorder in which the bone marrow produces > excessive numbers of red cells, and reflects excessive numbers of RBC > precursors in the bone marrow, as well as some abnormal forms. This > condition is called erythroid hyperplasia. > > If you are experiencing shortnesss of breath, Chronic obstructive > pulmonary disease (COPD) and other pulmonary conditions associated > with hypoxia may elicit an increased production of red blood cells. > This increase is mediated by the increased levels of erythropoyetin by > the kidneys in response to hypoxia. " Hypoxia is a lack of oxygen. " > > My suggestion would be to disregard the dehydration possibility, since > you have had the high hemo levels for some time. > > I would ask my docter for a COPD test, it is performed with a > breathing apparatus and computer to measure you lung capacity. Simple > twenty minute test. > COPD, I believe is a forerunner to emphasema, and since you are having > pain in your lower chest. This may be your problem, especially look > at this angle, if you suffer " shortness of breath. " > > PV, is the bone marrow screwing up, and can get us, at our age. A bone > marrow sample would be needed, from a hemotologist. > > But understand, I only have experience as a medic in the military, and > do not have much expertise. > > But hope this helps, kind regards david > > > > > > > > > > HI everyone > > > > I have been having a high hematocrit around 55 % for some time now and > > its been high when my T levels were low and its the same now that my T > > levels are in the right range. > > > > I am being told by my doctor that T is causing this but I am thinking > > if T was causing this wouldn't it be going even higher with my T > > levels in the upper third of the reference range? > > > > Also I have been having this pain in my left side underneath my rib > > cage....... Has anyone else had this or know what it could possibly be > > because I don't believe my doc knows as he gave me an acid reducer and > > sent me on my way. > > > > last but not least I have ben having dizzy spells and my heart rate > > has been jumping up and down but my blood pressure has been stable. > > > > Any thoughts would be appreciated > > Thank you > > > > Manraj > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 Thank you for the heads up !!! I will actually suggest that next time I see my specialist. I just hope he gets to the bottom of why my RBCs are high as well. Thanks again Manraj > HI everyone > > I have been having a high hematocrit around 55 % for some time now and > its been high when my T levels were low and its the same now that my T > levels are in the right range. > > I am being told by my doctor that T is causing this but I am thinking > if T was causing this wouldn't it be going even higher with my T > levels in the upper third of the reference range? > > Also I have been having this pain in my left side underneath my rib > cage....... Has anyone else had this or know what it could possibly be > because I don't believe my doc knows as he gave me an acid reducer and > sent me on my way. > > last but not least I have ben having dizzy spells and my heart rate > has been jumping up and down but my blood pressure has been stable. > > Any thoughts would be appreciated > Thank you > > Manraj > > > > > > > --------------------------------- > Expecting? Get great news right away with email Auto-Check. > Try the Beta. > > Quote Link to comment Share on other sites More sharing options...
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