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Re: fribro flare?

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Tess, It sure does sound like you over did it. I know I find it

difficult to know my limits when I feel pretty good. I try to do so

much in such a little amount of time, then I pay for it later!!

I had one of those toppers. It was like 2inches thick or so. To

tell you the truth, unless you have a decent mattress to begin with,

the thinner topper won't be much good. The actuall bed,

Tempurpedic, I found difficult to get out of, especially when I am

flaring. I bought the sleep number bed. I got the adjustable frame

so it works similar to the craftmatic bed. The adjustable bed also

has built in massage!! So it's like putting a quarter in the

machine!! LOL. I have had it since April, and I have to say, I have

had a LOT LESS back pain. I have bone on bone from L1 down to S5

and it was killing me before I finally gave in and tested the

Tempurpedic and the Sleep Number. I went with the sleep number

because when I was trying to find my " sleep number " I felt my back

pain go away!! They both have in home trials. They also have them

at different shops, like Waterbed's N Stuff. I found shops in the

mall for both of them as well. WOW!! 80% of the time with no pain,

huh? That's fantastic!! Now, you just need to get some sleep!!

I hope you get to feeling better soon...Marina

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Tess, It sure does sound like you over did it. I know I find it

difficult to know my limits when I feel pretty good. I try to do so

much in such a little amount of time, then I pay for it later!!

I had one of those toppers. It was like 2inches thick or so. To

tell you the truth, unless you have a decent mattress to begin with,

the thinner topper won't be much good. The actuall bed,

Tempurpedic, I found difficult to get out of, especially when I am

flaring. I bought the sleep number bed. I got the adjustable frame

so it works similar to the craftmatic bed. The adjustable bed also

has built in massage!! So it's like putting a quarter in the

machine!! LOL. I have had it since April, and I have to say, I have

had a LOT LESS back pain. I have bone on bone from L1 down to S5

and it was killing me before I finally gave in and tested the

Tempurpedic and the Sleep Number. I went with the sleep number

because when I was trying to find my " sleep number " I felt my back

pain go away!! They both have in home trials. They also have them

at different shops, like Waterbed's N Stuff. I found shops in the

mall for both of them as well. WOW!! 80% of the time with no pain,

huh? That's fantastic!! Now, you just need to get some sleep!!

I hope you get to feeling better soon...Marina

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Sorry you're flaring Tess. It's great to be able to have fun, but not

so great that we have to pay such a price after.

I hope it doesn't last. I have a topper and I love it. I paid $79.99

for a king size and it's the best money I've spent.

When we moved, we bought a new pillow top mattress and I thought I

wouldn't need it, but I still put that topper on.

I'm looking for articles on Neurofibromas, but all I am finding is a

small mention of a case report of 2 woman with RA

that were diagnosed the a Neurofibroma. I'm still looking.

a

On Aug 16, 2005, at 2:01 PM, Grammi B wrote:

> Hi Friends...I had a very busy weekend...it was lovely, but I know I

> overdid it in some ways...a lot of driving, and then a 90th birthday

> party for my sweet Uncle...the house was crowded, so us " young'uns " :

> ) sat a couple hours on the floor.  Since that day, I have felt sick

> to my stomach, a lot of pain in my neck, shoulders and upper back, and

> my hips hurt so badly during the night I am rarely in a deep sleep,

> and when I do get to sleep I wake myself up moaning. My muscles are

> full of painful knots/bumps. I don't have a fever, which I usually get

> during a flare of RA, but there is some joint swelling, though not

> enough for me to think it is a RA flare.  So, I'm thinking this is a

> fibro flare.  I have felt so good for so long, so guess I can't

> complain.  I've been thinking this past weekend's activities really

> pushed into a full flare, though sleep has been not good with lots of

> discomfort and aches all over for the past couple weeks, so it was

> probably

> The hips are so stiff during the day and so dang painful during the

> night.  What helps with this?  I am considering getting the Nasa Foam

> bed topper...but for now, any ideas? 

>

> This past year has been such an eye opening experience, and having

> just minimal pain probably 80% of the time has been so wonderful.  I

> don't feel depressed right now, nor anxious...but pretty weary as the

> sleep has been MIA.

>

> I also had a biopsy on a bump and it turned out to be a

> neurofibroma.  Is there any relationship between fms/connective tissue

> diseases with that?

>

> Love & hugs to all...

>

> Tess

>

>

>

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Sorry you're flaring Tess. It's great to be able to have fun, but not

so great that we have to pay such a price after.

I hope it doesn't last. I have a topper and I love it. I paid $79.99

for a king size and it's the best money I've spent.

When we moved, we bought a new pillow top mattress and I thought I

wouldn't need it, but I still put that topper on.

I'm looking for articles on Neurofibromas, but all I am finding is a

small mention of a case report of 2 woman with RA

that were diagnosed the a Neurofibroma. I'm still looking.

a

On Aug 16, 2005, at 2:01 PM, Grammi B wrote:

> Hi Friends...I had a very busy weekend...it was lovely, but I know I

> overdid it in some ways...a lot of driving, and then a 90th birthday

> party for my sweet Uncle...the house was crowded, so us " young'uns " :

> ) sat a couple hours on the floor.  Since that day, I have felt sick

> to my stomach, a lot of pain in my neck, shoulders and upper back, and

> my hips hurt so badly during the night I am rarely in a deep sleep,

> and when I do get to sleep I wake myself up moaning. My muscles are

> full of painful knots/bumps. I don't have a fever, which I usually get

> during a flare of RA, but there is some joint swelling, though not

> enough for me to think it is a RA flare.  So, I'm thinking this is a

> fibro flare.  I have felt so good for so long, so guess I can't

> complain.  I've been thinking this past weekend's activities really

> pushed into a full flare, though sleep has been not good with lots of

> discomfort and aches all over for the past couple weeks, so it was

> probably

> The hips are so stiff during the day and so dang painful during the

> night.  What helps with this?  I am considering getting the Nasa Foam

> bed topper...but for now, any ideas? 

>

> This past year has been such an eye opening experience, and having

> just minimal pain probably 80% of the time has been so wonderful.  I

> don't feel depressed right now, nor anxious...but pretty weary as the

> sleep has been MIA.

>

> I also had a biopsy on a bump and it turned out to be a

> neurofibroma.  Is there any relationship between fms/connective tissue

> diseases with that?

>

> Love & hugs to all...

>

> Tess

>

>

>

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Tess,

I hope you will be feeling better soon. You are in my

prayers.

Beth(AR)

--- Grammi B <grammi_love@...> wrote:

> Hi Friends...I had a very busy weekend...it was

> lovely, but I know I overdid it in some ways...a lot

> of driving, and then a 90th birthday party for my

> sweet Uncle...the house was crowded, so us

> " young'uns " : ) sat a couple hours on the floor.

> Since that day, I have felt sick to my stomach, a

> lot of pain in my neck, shoulders and upper back,

> and my hips hurt so badly during the night I am

> rarely in a deep sleep, and when I do get to sleep I

> wake myself up moaning. My muscles are full of

> painful knots/bumps. I don't have a fever, which I

> usually get during a flare of RA, but there is some

> joint swelling, though not enough for me to think it

> is a RA flare. So, I'm thinking this is a fibro

> flare. I have felt so good for so long, so guess I

> can't complain. I've been thinking this past

> weekend's activities really pushed into a full

> flare, though sleep has been not good with lots of

> discomfort and aches all over for the past couple

> weeks, so it was probably just lying low for awhile

> I guess.

>

> The hips are so stiff during the day and so dang

> painful during the night. What helps with this? I

> am considering getting the Nasa Foam bed

> topper...but for now, any ideas?

>

> This past year has been such an eye opening

> experience, and having just minimal pain probably

> 80% of the time has been so wonderful. I don't feel

> depressed right now, nor anxious...but pretty weary

> as the sleep has been MIA.

>

> I also had a biopsy on a bump and it turned out to

> be a neurofibroma. Is there any relationship

> between fms/connective tissue diseases with that?

>

> Love & hugs to all...

>

> Tess

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

Stay connected, organized, and protected. Take the tour:

http://tour.mail./mailtour.html

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Tess,

I hope you will be feeling better soon. You are in my

prayers.

Beth(AR)

--- Grammi B <grammi_love@...> wrote:

> Hi Friends...I had a very busy weekend...it was

> lovely, but I know I overdid it in some ways...a lot

> of driving, and then a 90th birthday party for my

> sweet Uncle...the house was crowded, so us

> " young'uns " : ) sat a couple hours on the floor.

> Since that day, I have felt sick to my stomach, a

> lot of pain in my neck, shoulders and upper back,

> and my hips hurt so badly during the night I am

> rarely in a deep sleep, and when I do get to sleep I

> wake myself up moaning. My muscles are full of

> painful knots/bumps. I don't have a fever, which I

> usually get during a flare of RA, but there is some

> joint swelling, though not enough for me to think it

> is a RA flare. So, I'm thinking this is a fibro

> flare. I have felt so good for so long, so guess I

> can't complain. I've been thinking this past

> weekend's activities really pushed into a full

> flare, though sleep has been not good with lots of

> discomfort and aches all over for the past couple

> weeks, so it was probably just lying low for awhile

> I guess.

>

> The hips are so stiff during the day and so dang

> painful during the night. What helps with this? I

> am considering getting the Nasa Foam bed

> topper...but for now, any ideas?

>

> This past year has been such an eye opening

> experience, and having just minimal pain probably

> 80% of the time has been so wonderful. I don't feel

> depressed right now, nor anxious...but pretty weary

> as the sleep has been MIA.

>

> I also had a biopsy on a bump and it turned out to

> be a neurofibroma. Is there any relationship

> between fms/connective tissue diseases with that?

>

> Love & hugs to all...

>

> Tess

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

Stay connected, organized, and protected. Take the tour:

http://tour.mail./mailtour.html

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