Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Priscilla.. my wrists are too sore t'day to type much but honey -- YOU ARE a strong person. I tried not to " whine " for so long.... " Whine " is a male word... or something society made up or something..... I've had periods when I cried several times a day; do you think if your boyfriend read a few of our posts he might understand how brave you are? I know that people Not understanding is so --disheartening? that is such a minor word :-( I liked where someone explained-- it's only called " arthritis " because it hits the joints (among other things) -- it is an immune system disease/malfunction that can destroy every joint in your body. We work for remission and to slow it to a grinding halt. I'm saying this for something for You to say, not to scare you. You already know these things. Because you're young, remission and slowing it down are possible... it's just a very " inexact " science as my rheumy says.... the first try isn't going to get it right all the time. I've had such bad pain that I've spent whole nights up with icey towels on my shoulders and back almost screaming from pain... that was 2 years ago but -- well I'm mentioning it because I hope he'll understand that " taking a pill " ain't going to cut it. That said --- there is light at the end of the tunnel dear! I will pray that you'll see some soon. gentle huggs, Carla B. in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Carla, Until about 6 weeks ago, I felt bad because of the pain you all felt, and though I hurt, and hurt like crazy, it was nothing like what some of you go through on a daily basis. My first " serious " flare started right before I began a new job, and I so completely understand what these autoimmune diseases are, and what I have to look forward to. I also understand how no one who does not have this could even FATHOM what it is like. I no longer tell people that I am tired when I have the bone-numbing fatigue that I've had for the past two years. I don't even use " exhausted " . I now tell them that I am sick. It seems to make more of an impact, and they back off instead of telling me to just get up and work it off. --- In , " Sage Benoist " <Mom2Harley@c...> wrote: > Priscilla.. my wrists are too sore t'day to type much but honey -- YOU ARE > a strong person. I tried not to " whine " for so long.... " Whine " is a male > word... or something society made up or something..... > > I've had periods when I cried several times a day; do you think if your > boyfriend read a few of our posts he might understand how brave you are? I > know that people Not understanding is so --disheartening? that is such a > minor word :-( > > I liked where someone explained-- it's only called " arthritis " because it > hits the joints (among other things) -- it is an immune system > disease/malfunction that can destroy every joint in your body. We work for > remission and to slow it to a grinding halt. I'm saying this for something > for You to say, not to scare you. You already know these things. Because > you're young, remission and slowing it down are possible... it's just a very > " inexact " science as my rheumy says.... the first try isn't going to get it > right all the time. > > I've had such bad pain that I've spent whole nights up with icey towels on > my shoulders and back almost screaming from pain... that was 2 years ago > but -- well I'm mentioning it because I hope he'll understand that " taking a > pill " ain't going to cut it. That said --- there is light at the end of > the tunnel dear! I will pray that you'll see some soon. > > gentle huggs, Carla B. in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Carla, Until about 6 weeks ago, I felt bad because of the pain you all felt, and though I hurt, and hurt like crazy, it was nothing like what some of you go through on a daily basis. My first " serious " flare started right before I began a new job, and I so completely understand what these autoimmune diseases are, and what I have to look forward to. I also understand how no one who does not have this could even FATHOM what it is like. I no longer tell people that I am tired when I have the bone-numbing fatigue that I've had for the past two years. I don't even use " exhausted " . I now tell them that I am sick. It seems to make more of an impact, and they back off instead of telling me to just get up and work it off. > Priscilla.. my wrists are too sore t'day to type much but honey -- YOU ARE > a strong person. I tried not to " whine " for so long.... " Whine " is a male > word... or something society made up or something..... > > I've had periods when I cried several times a day; do you think if your > boyfriend read a few of our posts he might understand how brave you are? I > know that people Not understanding is so --disheartening? that is such a > minor word :-( > > I liked where someone explained-- it's only called " arthritis " because it > hits the joints (among other things) -- it is an immune system > disease/malfunction that can destroy every joint in your body. We work for > remission and to slow it to a grinding halt. I'm saying this for something > for You to say, not to scare you. You already know these things. Because > you're young, remission and slowing it down are possible... it's just a very > " inexact " science as my rheumy says.... the first try isn't going to get it > right all the time. > > I've had such bad pain that I've spent whole nights up with icey towels on > my shoulders and back almost screaming from pain... that was 2 years ago > but -- well I'm mentioning it because I hope he'll understand that " taking a > pill " ain't going to cut it. That said --- there is light at the end of > the tunnel dear! I will pray that you'll see some soon. > > gentle huggs, Carla B. in RI Quote Link to comment Share on other sites More sharing options...
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