Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hi Gosh, I'm sorry for all your pain and problems. I certainly don't want to scare you but I hope your doctors checked you for a stoke or mini stroke. The not being able to speak and rubber legs are typical symptoms of that. I hope they will do a brain MRI. I also had similar symptoms (definitely not as severe) and the neurologist said I had classic vertigo which may be caused by the methotrexate. I've had it a few times and it really does feel like you are drunk (only worse and none of the benefits—ha). Take Care Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hi Gosh, I'm sorry for all your pain and problems. I certainly don't want to scare you but I hope your doctors checked you for a stoke or mini stroke. The not being able to speak and rubber legs are typical symptoms of that. I hope they will do a brain MRI. I also had similar symptoms (definitely not as severe) and the neurologist said I had classic vertigo which may be caused by the methotrexate. I've had it a few times and it really does feel like you are drunk (only worse and none of the benefits—ha). Take Care Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Oh ! I am so very sorry you are going through this horrible experience! It must be so confusing and frustrating. I have no great words of wisdom...but know that I am thinking of you and praying for some answers...and a sober walk! LOL tandarat <mflinder@...> wrote:Yesterday I had my regular follow-up with my gp. I told her some of the things going on, and she seemed concerned. My toe is numb, even with steroids, my right side is weak, I'm losing my hearing, especially in my left ear, and now I am having little spurts of blurry whitish vision, as if I'm looking through a fog bank. Also have strange lower back pain and migraine-like headaches with nausea. She tried to get a reflex response on both my legs and arms....nothing. You know you should probably worry when the doctor's hand starts to shake while writing on your chart. She asked how old Johanna was. I told her, 20 months, and she went pale. Lovely. She has ordered a cranial MRI with and without contrast for next Friday morning. That's cool...I see my rheumy on Thursday, and should have the test results by then. I was concerned, but figured what will happen will happen. I AM concerned that all this " stuff " is starting to progress more and more quickly...I'm getting the feeling that time may be running out for a good outcome, here. I was fine at work today. I was a little wobbly going in, but not bad, and not so out of the ordinary I took notice. My arms started getting weak at about 10 or 11, but, again, not severe enough to get my attention. At about 1, my hands began shaking, and I noticed I was having trouble typing. By 2, I could no longer type...my fingers didn't work right, and my arms and legs felt like over- filled water balloons....wiggly and very very heavy. By 2:15 my head was shaking, and I was having to enunciate my words carefully so people could understand. I had my boss drive me to the ER. By the time we got there, I could barely stand, had very little control over my arms, and my speech was pretty much gone. I was thinking " normally " , but as soon as I tried to talk, everything hit a brick wall, and did NOT want to come out. What did was kind of garbled and disorganized, and that scared the crap out of me. My boss (couldn't ask for a better one ) stayed with me until they brought me back, and called my husband to tell him where I was and that I was getting worse. I did have a slight fever, and had a lot of trouble communicating to the nurses and doctor, which was frustrating. The CT scan was clear (thank god), but my bloodwork is jacked up, as usual. For the first time, my platelets are low, WBC is high, and my ESR is slightly higher than my norm at 53. I think my globulin was high, as well, but I think that may have been the urine sample? I don't have the labs in front of me, but several things were off that have not been, before. I want to say SEG antibodies....those were quite high, and I have no idea what those are...will have to look. In any case, I'm still feeling the effects of this " adventure " - my fingers aren't quite willing to go where I tell them to, my head still shakes off and on, and I'm walking like one of the dogs in an early Disney cartoon...all rubber legs. I'm getting tired of having all these bizarre symptoms and nothing to call it...this certainly ain't RA! My gp, and I think my rheumatologist are leaning towards lupus, but don't know for sure. My gp also wants to rule out MS. I just want to be able to walk like I'm sober, again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Oh ! I am so very sorry you are going through this horrible experience! It must be so confusing and frustrating. I have no great words of wisdom...but know that I am thinking of you and praying for some answers...and a sober walk! LOL tandarat <mflinder@...> wrote:Yesterday I had my regular follow-up with my gp. I told her some of the things going on, and she seemed concerned. My toe is numb, even with steroids, my right side is weak, I'm losing my hearing, especially in my left ear, and now I am having little spurts of blurry whitish vision, as if I'm looking through a fog bank. Also have strange lower back pain and migraine-like headaches with nausea. She tried to get a reflex response on both my legs and arms....nothing. You know you should probably worry when the doctor's hand starts to shake while writing on your chart. She asked how old Johanna was. I told her, 20 months, and she went pale. Lovely. She has ordered a cranial MRI with and without contrast for next Friday morning. That's cool...I see my rheumy on Thursday, and should have the test results by then. I was concerned, but figured what will happen will happen. I AM concerned that all this " stuff " is starting to progress more and more quickly...I'm getting the feeling that time may be running out for a good outcome, here. I was fine at work today. I was a little wobbly going in, but not bad, and not so out of the ordinary I took notice. My arms started getting weak at about 10 or 11, but, again, not severe enough to get my attention. At about 1, my hands began shaking, and I noticed I was having trouble typing. By 2, I could no longer type...my fingers didn't work right, and my arms and legs felt like over- filled water balloons....wiggly and very very heavy. By 2:15 my head was shaking, and I was having to enunciate my words carefully so people could understand. I had my boss drive me to the ER. By the time we got there, I could barely stand, had very little control over my arms, and my speech was pretty much gone. I was thinking " normally " , but as soon as I tried to talk, everything hit a brick wall, and did NOT want to come out. What did was kind of garbled and disorganized, and that scared the crap out of me. My boss (couldn't ask for a better one ) stayed with me until they brought me back, and called my husband to tell him where I was and that I was getting worse. I did have a slight fever, and had a lot of trouble communicating to the nurses and doctor, which was frustrating. The CT scan was clear (thank god), but my bloodwork is jacked up, as usual. For the first time, my platelets are low, WBC is high, and my ESR is slightly higher than my norm at 53. I think my globulin was high, as well, but I think that may have been the urine sample? I don't have the labs in front of me, but several things were off that have not been, before. I want to say SEG antibodies....those were quite high, and I have no idea what those are...will have to look. In any case, I'm still feeling the effects of this " adventure " - my fingers aren't quite willing to go where I tell them to, my head still shakes off and on, and I'm walking like one of the dogs in an early Disney cartoon...all rubber legs. I'm getting tired of having all these bizarre symptoms and nothing to call it...this certainly ain't RA! My gp, and I think my rheumatologist are leaning towards lupus, but don't know for sure. My gp also wants to rule out MS. I just want to be able to walk like I'm sober, again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 , I hope that you can get a dx soon. Will keep you in my prayers, T > Yesterday I had my regular follow-up with my gp. I told her some of > the things going on, and she seemed concerned. My toe is numb, even > with steroids, my right side is weak, I'm losing my hearing, > especially in my left ear, and now I am having little spurts of > blurry whitish vision, as if I'm looking through a fog bank. Also > have strange lower back pain and migraine-like headaches with > nausea. She tried to get a reflex response on both my legs and > arms....nothing. You know you should probably worry when the > doctor's hand starts to shake while writing on your chart. She > asked how old Johanna was. I told her, 20 months, and she went > pale. Lovely. She has ordered a cranial MRI with and without > contrast for next Friday morning. That's cool...I see my rheumy on > Thursday, and should have the test results by then. I was > concerned, but figured what will happen will happen. I AM concerned > that all this " stuff " is starting to progress more and more > quickly...I'm getting the feeling that time may be running out for a > good outcome, here. > > I was fine at work today. I was a little wobbly going in, but not > bad, and not so out of the ordinary I took notice. My arms started > getting weak at about 10 or 11, but, again, not severe enough to get > my attention. At about 1, my hands began shaking, and I noticed I > was having trouble typing. By 2, I could no longer type...my > fingers didn't work right, and my arms and legs felt like over- > filled water balloons....wiggly and very very heavy. By 2:15 my > head was shaking, and I was having to enunciate my words carefully > so people could understand. I had my boss drive me to the ER. By > the time we got there, I could barely stand, had very little control > over my arms, and my speech was pretty much gone. I was > thinking " normally " , but as soon as I tried to talk, everything hit > a brick wall, and did NOT want to come out. What did was kind of > garbled and disorganized, and that scared the crap out of me. My > boss (couldn't ask for a better one ) stayed with me until they > brought me back, and called my husband to tell him where I was and > that I was getting worse. I did have a slight fever, and had a lot > of trouble communicating to the nurses and doctor, which was > frustrating. The CT scan was clear (thank god), but my bloodwork is > jacked up, as usual. For the first time, my platelets are low, WBC > is high, and my ESR is slightly higher than my norm at 53. I think > my globulin was high, as well, but I think that may have been the > urine sample? I don't have the labs in front of me, but several > things were off that have not been, before. I want to say SEG > antibodies....those were quite high, and I have no idea what those > are...will have to look. > > In any case, I'm still feeling the effects of this " adventure " - my > fingers aren't quite willing to go where I tell them to, my head > still shakes off and on, and I'm walking like one of the dogs in an > early Disney cartoon...all rubber legs. > > I'm getting tired of having all these bizarre symptoms and nothing > to call it...this certainly ain't RA! My gp, and I think my > rheumatologist are leaning towards lupus, but don't know for sure. > My gp also wants to rule out MS. I just want to be able to walk > like I'm sober, again. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 , I hope that you can get a dx soon. Will keep you in my prayers, T > Yesterday I had my regular follow-up with my gp. I told her some of > the things going on, and she seemed concerned. My toe is numb, even > with steroids, my right side is weak, I'm losing my hearing, > especially in my left ear, and now I am having little spurts of > blurry whitish vision, as if I'm looking through a fog bank. Also > have strange lower back pain and migraine-like headaches with > nausea. She tried to get a reflex response on both my legs and > arms....nothing. You know you should probably worry when the > doctor's hand starts to shake while writing on your chart. She > asked how old Johanna was. I told her, 20 months, and she went > pale. Lovely. She has ordered a cranial MRI with and without > contrast for next Friday morning. That's cool...I see my rheumy on > Thursday, and should have the test results by then. I was > concerned, but figured what will happen will happen. I AM concerned > that all this " stuff " is starting to progress more and more > quickly...I'm getting the feeling that time may be running out for a > good outcome, here. > > I was fine at work today. I was a little wobbly going in, but not > bad, and not so out of the ordinary I took notice. My arms started > getting weak at about 10 or 11, but, again, not severe enough to get > my attention. At about 1, my hands began shaking, and I noticed I > was having trouble typing. By 2, I could no longer type...my > fingers didn't work right, and my arms and legs felt like over- > filled water balloons....wiggly and very very heavy. By 2:15 my > head was shaking, and I was having to enunciate my words carefully > so people could understand. I had my boss drive me to the ER. By > the time we got there, I could barely stand, had very little control > over my arms, and my speech was pretty much gone. I was > thinking " normally " , but as soon as I tried to talk, everything hit > a brick wall, and did NOT want to come out. What did was kind of > garbled and disorganized, and that scared the crap out of me. My > boss (couldn't ask for a better one ) stayed with me until they > brought me back, and called my husband to tell him where I was and > that I was getting worse. I did have a slight fever, and had a lot > of trouble communicating to the nurses and doctor, which was > frustrating. The CT scan was clear (thank god), but my bloodwork is > jacked up, as usual. For the first time, my platelets are low, WBC > is high, and my ESR is slightly higher than my norm at 53. I think > my globulin was high, as well, but I think that may have been the > urine sample? I don't have the labs in front of me, but several > things were off that have not been, before. I want to say SEG > antibodies....those were quite high, and I have no idea what those > are...will have to look. > > In any case, I'm still feeling the effects of this " adventure " - my > fingers aren't quite willing to go where I tell them to, my head > still shakes off and on, and I'm walking like one of the dogs in an > early Disney cartoon...all rubber legs. > > I'm getting tired of having all these bizarre symptoms and nothing > to call it...this certainly ain't RA! My gp, and I think my > rheumatologist are leaning towards lupus, but don't know for sure. > My gp also wants to rule out MS. I just want to be able to walk > like I'm sober, again. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hugs Michell, I hope you get the help you need, hang in there and keep your head up!!! Cortnee tandarat <mflinder@...> wrote: Yesterday I had my regular follow-up with my gp. I told her some of the things going on, and she seemed concerned. My toe is numb, even with steroids, my right side is weak, I'm losing my hearing, especially in my left ear, and now I am having little spurts of blurry whitish vision, as if I'm looking through a fog bank. Also have strange lower back pain and migraine-like headaches with nausea. She tried to get a reflex response on both my legs and arms....nothing. You know you should probably worry when the doctor's hand starts to shake while writing on your chart. She asked how old Johanna was. I told her, 20 months, and she went pale. Lovely. She has ordered a cranial MRI with and without contrast for next Friday morning. That's cool...I see my rheumy on Thursday, and should have the test results by then. I was concerned, but figured what will happen will happen. I AM concerned that all this " stuff " is starting to progress more and more quickly...I'm getting the feeling that time may be running out for a good outcome, here. I was fine at work today. I was a little wobbly going in, but not bad, and not so out of the ordinary I took notice. My arms started getting weak at about 10 or 11, but, again, not severe enough to get my attention. At about 1, my hands began shaking, and I noticed I was having trouble typing. By 2, I could no longer type...my fingers didn't work right, and my arms and legs felt like over- filled water balloons....wiggly and very very heavy. By 2:15 my head was shaking, and I was having to enunciate my words carefully so people could understand. I had my boss drive me to the ER. By the time we got there, I could barely stand, had very little control over my arms, and my speech was pretty much gone. I was thinking " normally " , but as soon as I tried to talk, everything hit a brick wall, and did NOT want to come out. What did was kind of garbled and disorganized, and that scared the crap out of me. My boss (couldn't ask for a better one ) stayed with me until they brought me back, and called my husband to tell him where I was and that I was getting worse. I did have a slight fever, and had a lot of trouble communicating to the nurses and doctor, which was frustrating. The CT scan was clear (thank god), but my bloodwork is jacked up, as usual. For the first time, my platelets are low, WBC is high, and my ESR is slightly higher than my norm at 53. I think my globulin was high, as well, but I think that may have been the urine sample? I don't have the labs in front of me, but several things were off that have not been, before. I want to say SEG antibodies....those were quite high, and I have no idea what those are...will have to look. In any case, I'm still feeling the effects of this " adventure " - my fingers aren't quite willing to go where I tell them to, my head still shakes off and on, and I'm walking like one of the dogs in an early Disney cartoon...all rubber legs. I'm getting tired of having all these bizarre symptoms and nothing to call it...this certainly ain't RA! My gp, and I think my rheumatologist are leaning towards lupus, but don't know for sure. My gp also wants to rule out MS. I just want to be able to walk like I'm sober, again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hugs Michell, I hope you get the help you need, hang in there and keep your head up!!! Cortnee tandarat <mflinder@...> wrote: Yesterday I had my regular follow-up with my gp. I told her some of the things going on, and she seemed concerned. My toe is numb, even with steroids, my right side is weak, I'm losing my hearing, especially in my left ear, and now I am having little spurts of blurry whitish vision, as if I'm looking through a fog bank. Also have strange lower back pain and migraine-like headaches with nausea. She tried to get a reflex response on both my legs and arms....nothing. You know you should probably worry when the doctor's hand starts to shake while writing on your chart. She asked how old Johanna was. I told her, 20 months, and she went pale. Lovely. She has ordered a cranial MRI with and without contrast for next Friday morning. That's cool...I see my rheumy on Thursday, and should have the test results by then. I was concerned, but figured what will happen will happen. I AM concerned that all this " stuff " is starting to progress more and more quickly...I'm getting the feeling that time may be running out for a good outcome, here. I was fine at work today. I was a little wobbly going in, but not bad, and not so out of the ordinary I took notice. My arms started getting weak at about 10 or 11, but, again, not severe enough to get my attention. At about 1, my hands began shaking, and I noticed I was having trouble typing. By 2, I could no longer type...my fingers didn't work right, and my arms and legs felt like over- filled water balloons....wiggly and very very heavy. By 2:15 my head was shaking, and I was having to enunciate my words carefully so people could understand. I had my boss drive me to the ER. By the time we got there, I could barely stand, had very little control over my arms, and my speech was pretty much gone. I was thinking " normally " , but as soon as I tried to talk, everything hit a brick wall, and did NOT want to come out. What did was kind of garbled and disorganized, and that scared the crap out of me. My boss (couldn't ask for a better one ) stayed with me until they brought me back, and called my husband to tell him where I was and that I was getting worse. I did have a slight fever, and had a lot of trouble communicating to the nurses and doctor, which was frustrating. The CT scan was clear (thank god), but my bloodwork is jacked up, as usual. For the first time, my platelets are low, WBC is high, and my ESR is slightly higher than my norm at 53. I think my globulin was high, as well, but I think that may have been the urine sample? I don't have the labs in front of me, but several things were off that have not been, before. I want to say SEG antibodies....those were quite high, and I have no idea what those are...will have to look. In any case, I'm still feeling the effects of this " adventure " - my fingers aren't quite willing to go where I tell them to, my head still shakes off and on, and I'm walking like one of the dogs in an early Disney cartoon...all rubber legs. I'm getting tired of having all these bizarre symptoms and nothing to call it...this certainly ain't RA! My gp, and I think my rheumatologist are leaning towards lupus, but don't know for sure. My gp also wants to rule out MS. I just want to be able to walk like I'm sober, again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 , You've been having such a hard time for so long and have experienced quite serious symptoms. I'm so sorry. I hope you get the answers you need very soon. Please keep us posted. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] What a day (or, the continuation of the soCal ER tour...) > Yesterday I had my regular follow-up with my gp. I told her some of > the things going on, and she seemed concerned. My toe is numb, even > with steroids, my right side is weak, I'm losing my hearing, > especially in my left ear, and now I am having little spurts of > blurry whitish vision, as if I'm looking through a fog bank. Also > have strange lower back pain and migraine-like headaches with > nausea. She tried to get a reflex response on both my legs and > arms....nothing. You know you should probably worry when the > doctor's hand starts to shake while writing on your chart. She > asked how old Johanna was. I told her, 20 months, and she went > pale. Lovely. She has ordered a cranial MRI with and without > contrast for next Friday morning. That's cool...I see my rheumy on > Thursday, and should have the test results by then. I was > concerned, but figured what will happen will happen. I AM concerned > that all this " stuff " is starting to progress more and more > quickly...I'm getting the feeling that time may be running out for a > good outcome, here. > > I was fine at work today. I was a little wobbly going in, but not > bad, and not so out of the ordinary I took notice. My arms started > getting weak at about 10 or 11, but, again, not severe enough to get > my attention. At about 1, my hands began shaking, and I noticed I > was having trouble typing. By 2, I could no longer type...my > fingers didn't work right, and my arms and legs felt like over- > filled water balloons....wiggly and very very heavy. By 2:15 my > head was shaking, and I was having to enunciate my words carefully > so people could understand. I had my boss drive me to the ER. By > the time we got there, I could barely stand, had very little control > over my arms, and my speech was pretty much gone. I was > thinking " normally " , but as soon as I tried to talk, everything hit > a brick wall, and did NOT want to come out. What did was kind of > garbled and disorganized, and that scared the crap out of me. My > boss (couldn't ask for a better one ) stayed with me until they > brought me back, and called my husband to tell him where I was and > that I was getting worse. I did have a slight fever, and had a lot > of trouble communicating to the nurses and doctor, which was > frustrating. The CT scan was clear (thank god), but my bloodwork is > jacked up, as usual. For the first time, my platelets are low, WBC > is high, and my ESR is slightly higher than my norm at 53. I think > my globulin was high, as well, but I think that may have been the > urine sample? I don't have the labs in front of me, but several > things were off that have not been, before. I want to say SEG > antibodies....those were quite high, and I have no idea what those > are...will have to look. > > In any case, I'm still feeling the effects of this " adventure " - my > fingers aren't quite willing to go where I tell them to, my head > still shakes off and on, and I'm walking like one of the dogs in an > early Disney cartoon...all rubber legs. > > I'm getting tired of having all these bizarre symptoms and nothing > to call it...this certainly ain't RA! My gp, and I think my > rheumatologist are leaning towards lupus, but don't know for sure. > My gp also wants to rule out MS. I just want to be able to walk > like I'm sober, again. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 , You've been having such a hard time for so long and have experienced quite serious symptoms. I'm so sorry. I hope you get the answers you need very soon. Please keep us posted. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] What a day (or, the continuation of the soCal ER tour...) > Yesterday I had my regular follow-up with my gp. I told her some of > the things going on, and she seemed concerned. My toe is numb, even > with steroids, my right side is weak, I'm losing my hearing, > especially in my left ear, and now I am having little spurts of > blurry whitish vision, as if I'm looking through a fog bank. Also > have strange lower back pain and migraine-like headaches with > nausea. She tried to get a reflex response on both my legs and > arms....nothing. You know you should probably worry when the > doctor's hand starts to shake while writing on your chart. She > asked how old Johanna was. I told her, 20 months, and she went > pale. Lovely. She has ordered a cranial MRI with and without > contrast for next Friday morning. That's cool...I see my rheumy on > Thursday, and should have the test results by then. I was > concerned, but figured what will happen will happen. I AM concerned > that all this " stuff " is starting to progress more and more > quickly...I'm getting the feeling that time may be running out for a > good outcome, here. > > I was fine at work today. I was a little wobbly going in, but not > bad, and not so out of the ordinary I took notice. My arms started > getting weak at about 10 or 11, but, again, not severe enough to get > my attention. At about 1, my hands began shaking, and I noticed I > was having trouble typing. By 2, I could no longer type...my > fingers didn't work right, and my arms and legs felt like over- > filled water balloons....wiggly and very very heavy. By 2:15 my > head was shaking, and I was having to enunciate my words carefully > so people could understand. I had my boss drive me to the ER. By > the time we got there, I could barely stand, had very little control > over my arms, and my speech was pretty much gone. I was > thinking " normally " , but as soon as I tried to talk, everything hit > a brick wall, and did NOT want to come out. What did was kind of > garbled and disorganized, and that scared the crap out of me. My > boss (couldn't ask for a better one ) stayed with me until they > brought me back, and called my husband to tell him where I was and > that I was getting worse. I did have a slight fever, and had a lot > of trouble communicating to the nurses and doctor, which was > frustrating. The CT scan was clear (thank god), but my bloodwork is > jacked up, as usual. For the first time, my platelets are low, WBC > is high, and my ESR is slightly higher than my norm at 53. I think > my globulin was high, as well, but I think that may have been the > urine sample? I don't have the labs in front of me, but several > things were off that have not been, before. I want to say SEG > antibodies....those were quite high, and I have no idea what those > are...will have to look. > > In any case, I'm still feeling the effects of this " adventure " - my > fingers aren't quite willing to go where I tell them to, my head > still shakes off and on, and I'm walking like one of the dogs in an > early Disney cartoon...all rubber legs. > > I'm getting tired of having all these bizarre symptoms and nothing > to call it...this certainly ain't RA! My gp, and I think my > rheumatologist are leaning towards lupus, but don't know for sure. > My gp also wants to rule out MS. I just want to be able to walk > like I'm sober, again. > > Quote Link to comment Share on other sites More sharing options...
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