Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Prisicilla: Hang in there, girl! Being a Mom is the hardest job in the world. Now, add on having a job outside the home plus having an illness that causes you pain everyday. It's not easy by any stretch of the imagination. Join a local support group if you have one. Meet people who live close to you who suffer from the same disease. If you think it's helpful to use the online support, you'd be surprised how wonderful it is to go to a meeting where people you live nearby gather for support. Many of these groups have resources for people like yourself who are going through a rough time. I will pray that you start to feel better soon. I am crossing my fingers that the right combo of meds will be found that you can get some well deserved rest. Take care, PS - You're not whining.....it's just venting, and we all need to do it. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Prisicilla: Hang in there, girl! Being a Mom is the hardest job in the world. Now, add on having a job outside the home plus having an illness that causes you pain everyday. It's not easy by any stretch of the imagination. Join a local support group if you have one. Meet people who live close to you who suffer from the same disease. If you think it's helpful to use the online support, you'd be surprised how wonderful it is to go to a meeting where people you live nearby gather for support. Many of these groups have resources for people like yourself who are going through a rough time. I will pray that you start to feel better soon. I am crossing my fingers that the right combo of meds will be found that you can get some well deserved rest. Take care, PS - You're not whining.....it's just venting, and we all need to do it. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you for responding . My GP finally told me that she feels I've been battling this for at least the past 2 years. It was just not diagnosed. Only after I joined this group 2 mths ago did I convince her to refer me to the rheumatologist. Until then, she just told me that I should take ibuprofen and occasionally Vicoden. She didn't feel I was " bad enough " to go to the rheumotologist yet. Now in the past 6 mths I've become so bad that I question my abilities as a parent, partner, and worker (I've already used all my sick/vacation time within 5 mths of receiving it). I've waited 2 mths for this appointment because this " rheumy " is so busy. Financially we are already sinking and I just cry because to stand/sit/lay/move/bend...etc etc takes all I can do in the world. I'm just totally feeling worthless. I'm just praying that the doctor can help...because if he can't I have nowhere to turn. Thank you again and God Bless, Prisicilla <Matsumura_Clan@...> wrote: Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you for responding . My GP finally told me that she feels I've been battling this for at least the past 2 years. It was just not diagnosed. Only after I joined this group 2 mths ago did I convince her to refer me to the rheumatologist. Until then, she just told me that I should take ibuprofen and occasionally Vicoden. She didn't feel I was " bad enough " to go to the rheumotologist yet. Now in the past 6 mths I've become so bad that I question my abilities as a parent, partner, and worker (I've already used all my sick/vacation time within 5 mths of receiving it). I've waited 2 mths for this appointment because this " rheumy " is so busy. Financially we are already sinking and I just cry because to stand/sit/lay/move/bend...etc etc takes all I can do in the world. I'm just totally feeling worthless. I'm just praying that the doctor can help...because if he can't I have nowhere to turn. Thank you again and God Bless, Prisicilla <Matsumura_Clan@...> wrote: Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you for the encouragement. And thank you so much for the prayers. Maybe the rheumatologist can suggest a support group locally? ltlmisscrankypants <ltlmisscrankypants@...> wrote:Prisicilla: Hang in there, girl! Being a Mom is the hardest job in the world. Now, add on having a job outside the home plus having an illness that causes you pain everyday. It's not easy by any stretch of the imagination. Join a local support group if you have one. Meet people who live close to you who suffer from the same disease. If you think it's helpful to use the online support, you'd be surprised how wonderful it is to go to a meeting where people you live nearby gather for support. Many of these groups have resources for people like yourself who are going through a rough time. I will pray that you start to feel better soon. I am crossing my fingers that the right combo of meds will be found that you can get some well deserved rest. Take care, PS - You're not whining.....it's just venting, and we all need to do it. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you for the encouragement. And thank you so much for the prayers. Maybe the rheumatologist can suggest a support group locally? ltlmisscrankypants <ltlmisscrankypants@...> wrote:Prisicilla: Hang in there, girl! Being a Mom is the hardest job in the world. Now, add on having a job outside the home plus having an illness that causes you pain everyday. It's not easy by any stretch of the imagination. Join a local support group if you have one. Meet people who live close to you who suffer from the same disease. If you think it's helpful to use the online support, you'd be surprised how wonderful it is to go to a meeting where people you live nearby gather for support. Many of these groups have resources for people like yourself who are going through a rough time. I will pray that you start to feel better soon. I am crossing my fingers that the right combo of meds will be found that you can get some well deserved rest. Take care, PS - You're not whining.....it's just venting, and we all need to do it. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I completely understand and can relate. I have a 20 month old, and developed " whatever I have " since her birth. I have a new rheumatologist who is wonderful, and he seems to think that there is a good chance that my pregnancy, which was difficult and ended in acute kidney failure, triggered an autoimmune response. So, before I had my daughter I was normal, and now that I have a child, and all the responsibilities that go with that, I am practially an invalid, which makes me frustrated, angry, depressed, and feeling horribly guilty that I can't take care of my daughter (husband, house, pets) the way I should. My husband, too, has no idea that the pain meds *may* take enough of the edge off so I don't lie in bed crying all night, or so I am not crying in pain while I type at work. His response has been, " Well, I hope the doctor finds out what is wrong this time, so you get better. " No matter how I try to explain, he just doesn't get it that this is a CHRONIC disease...that there is no " better " as in just like I was before this happened. The doctor will be able to treat me...to relieve the symptoms (hopefully), to slow the progression of the disease, and hopefully prolong the times of remission and keep the flares from getting as bad. He's been having a hard time accepting the fact that I'm SICK, and it isn't going to go away. I think these last few days have been a real eye-oener for him. He can see the shaking and weakness in my arms and legs. When I told him about my appointment with my gp, he got really scared, and when he saw me at the hospital, I think he now knows this is very serious, and if it is either lupus or ms, which is where all the clues are pointing to at this point, there are going to be some serious ups and downs. I've had to change my outlook on life. There are days that it is very hard....Thursday was one of them - I cried in the car on the way home from the doctor. I can't change what is. However, if I look at my life today, and in the future, with acceptance, an open mind, and more than a little bit of humor, I don't have to let this disease take over my life, much less take it. I'm not ready to die, yet...I've got too much to live for right now. It is what it is. I hope to use this disease to teach my daughter to be strong in the face of adversity, but to be humble enough to ask for help when she needs it. That's a hard one for me . I guess what I'm saying is that I feel your pain, and your frustration others not understanding. I hope your rheumatologist can get you on a pain management program as soon as possible. I finally found a good rheumy, and the pain that had me close to addicted to pain pills just to take enough of the edge off to be bearable is SO much better in just a month. I have found that steroid shots have helped me....work with your doctor. And don't do like I did...if you don't like your rheumatologist, find another one immediately. I stuck with mine for 6 months, and I probably have some permanent nerve damage because of it. Bad BAD move on my part. Sorry if I'm rambling, but I'll be thinking of you. --- In , " casterramom " <casterramom@y...> wrote: > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I completely understand and can relate. I have a 20 month old, and developed " whatever I have " since her birth. I have a new rheumatologist who is wonderful, and he seems to think that there is a good chance that my pregnancy, which was difficult and ended in acute kidney failure, triggered an autoimmune response. So, before I had my daughter I was normal, and now that I have a child, and all the responsibilities that go with that, I am practially an invalid, which makes me frustrated, angry, depressed, and feeling horribly guilty that I can't take care of my daughter (husband, house, pets) the way I should. My husband, too, has no idea that the pain meds *may* take enough of the edge off so I don't lie in bed crying all night, or so I am not crying in pain while I type at work. His response has been, " Well, I hope the doctor finds out what is wrong this time, so you get better. " No matter how I try to explain, he just doesn't get it that this is a CHRONIC disease...that there is no " better " as in just like I was before this happened. The doctor will be able to treat me...to relieve the symptoms (hopefully), to slow the progression of the disease, and hopefully prolong the times of remission and keep the flares from getting as bad. He's been having a hard time accepting the fact that I'm SICK, and it isn't going to go away. I think these last few days have been a real eye-oener for him. He can see the shaking and weakness in my arms and legs. When I told him about my appointment with my gp, he got really scared, and when he saw me at the hospital, I think he now knows this is very serious, and if it is either lupus or ms, which is where all the clues are pointing to at this point, there are going to be some serious ups and downs. I've had to change my outlook on life. There are days that it is very hard....Thursday was one of them - I cried in the car on the way home from the doctor. I can't change what is. However, if I look at my life today, and in the future, with acceptance, an open mind, and more than a little bit of humor, I don't have to let this disease take over my life, much less take it. I'm not ready to die, yet...I've got too much to live for right now. It is what it is. I hope to use this disease to teach my daughter to be strong in the face of adversity, but to be humble enough to ask for help when she needs it. That's a hard one for me . I guess what I'm saying is that I feel your pain, and your frustration others not understanding. I hope your rheumatologist can get you on a pain management program as soon as possible. I finally found a good rheumy, and the pain that had me close to addicted to pain pills just to take enough of the edge off to be bearable is SO much better in just a month. I have found that steroid shots have helped me....work with your doctor. And don't do like I did...if you don't like your rheumatologist, find another one immediately. I stuck with mine for 6 months, and I probably have some permanent nerve damage because of it. Bad BAD move on my part. Sorry if I'm rambling, but I'll be thinking of you. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I am so sorry that your going through such a bad time. I will keep you in my prayers. I hope that when you go for your visit, they can help you. Hugs, Tawny --- In , " casterramom " <casterramom@y...> wrote: > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I am so sorry that your going through such a bad time. I will keep you in my prayers. I hope that when you go for your visit, they can help you. Hugs, Tawny > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you SO MUCH for understanding and thank you for the thoughts and prayers. tandarat <mflinder@...> wrote: Prisicilla, I completely understand and can relate. I have a 20 month old, and developed " whatever I have " since her birth. I have a new rheumatologist who is wonderful, and he seems to think that there is a good chance that my pregnancy, which was difficult and ended in acute kidney failure, triggered an autoimmune response. So, before I had my daughter I was normal, and now that I have a child, and all the responsibilities that go with that, I am practially an invalid, which makes me frustrated, angry, depressed, and feeling horribly guilty that I can't take care of my daughter (husband, house, pets) the way I should. My husband, too, has no idea that the pain meds *may* take enough of the edge off so I don't lie in bed crying all night, or so I am not crying in pain while I type at work. His response has been, " Well, I hope the doctor finds out what is wrong this time, so you get better. " No matter how I try to explain, he just doesn't get it that this is a CHRONIC disease...that there is no " better " as in just like I was before this happened. The doctor will be able to treat me...to relieve the symptoms (hopefully), to slow the progression of the disease, and hopefully prolong the times of remission and keep the flares from getting as bad. He's been having a hard time accepting the fact that I'm SICK, and it isn't going to go away. I think these last few days have been a real eye-oener for him. He can see the shaking and weakness in my arms and legs. When I told him about my appointment with my gp, he got really scared, and when he saw me at the hospital, I think he now knows this is very serious, and if it is either lupus or ms, which is where all the clues are pointing to at this point, there are going to be some serious ups and downs. I've had to change my outlook on life. There are days that it is very hard....Thursday was one of them - I cried in the car on the way home from the doctor. I can't change what is. However, if I look at my life today, and in the future, with acceptance, an open mind, and more than a little bit of humor, I don't have to let this disease take over my life, much less take it. I'm not ready to die, yet...I've got too much to live for right now. It is what it is. I hope to use this disease to teach my daughter to be strong in the face of adversity, but to be humble enough to ask for help when she needs it. That's a hard one for me . I guess what I'm saying is that I feel your pain, and your frustration others not understanding. I hope your rheumatologist can get you on a pain management program as soon as possible. I finally found a good rheumy, and the pain that had me close to addicted to pain pills just to take enough of the edge off to be bearable is SO much better in just a month. I have found that steroid shots have helped me....work with your doctor. And don't do like I did...if you don't like your rheumatologist, find another one immediately. I stuck with mine for 6 months, and I probably have some permanent nerve damage because of it. Bad BAD move on my part. Sorry if I'm rambling, but I'll be thinking of you. --- In , " casterramom " <casterramom@y...> wrote: > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Thank you SO MUCH for understanding and thank you for the thoughts and prayers. tandarat <mflinder@...> wrote: Prisicilla, I completely understand and can relate. I have a 20 month old, and developed " whatever I have " since her birth. I have a new rheumatologist who is wonderful, and he seems to think that there is a good chance that my pregnancy, which was difficult and ended in acute kidney failure, triggered an autoimmune response. So, before I had my daughter I was normal, and now that I have a child, and all the responsibilities that go with that, I am practially an invalid, which makes me frustrated, angry, depressed, and feeling horribly guilty that I can't take care of my daughter (husband, house, pets) the way I should. My husband, too, has no idea that the pain meds *may* take enough of the edge off so I don't lie in bed crying all night, or so I am not crying in pain while I type at work. His response has been, " Well, I hope the doctor finds out what is wrong this time, so you get better. " No matter how I try to explain, he just doesn't get it that this is a CHRONIC disease...that there is no " better " as in just like I was before this happened. The doctor will be able to treat me...to relieve the symptoms (hopefully), to slow the progression of the disease, and hopefully prolong the times of remission and keep the flares from getting as bad. He's been having a hard time accepting the fact that I'm SICK, and it isn't going to go away. I think these last few days have been a real eye-oener for him. He can see the shaking and weakness in my arms and legs. When I told him about my appointment with my gp, he got really scared, and when he saw me at the hospital, I think he now knows this is very serious, and if it is either lupus or ms, which is where all the clues are pointing to at this point, there are going to be some serious ups and downs. I've had to change my outlook on life. There are days that it is very hard....Thursday was one of them - I cried in the car on the way home from the doctor. I can't change what is. However, if I look at my life today, and in the future, with acceptance, an open mind, and more than a little bit of humor, I don't have to let this disease take over my life, much less take it. I'm not ready to die, yet...I've got too much to live for right now. It is what it is. I hope to use this disease to teach my daughter to be strong in the face of adversity, but to be humble enough to ask for help when she needs it. That's a hard one for me . I guess what I'm saying is that I feel your pain, and your frustration others not understanding. I hope your rheumatologist can get you on a pain management program as soon as possible. I finally found a good rheumy, and the pain that had me close to addicted to pain pills just to take enough of the edge off to be bearable is SO much better in just a month. I have found that steroid shots have helped me....work with your doctor. And don't do like I did...if you don't like your rheumatologist, find another one immediately. I stuck with mine for 6 months, and I probably have some permanent nerve damage because of it. Bad BAD move on my part. Sorry if I'm rambling, but I'll be thinking of you. > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Its so hard to explain our pain to those that dont live it. My shoulders and hips have been my real killers lately and I just wanna cry, i do inside, but to the world I put on that pretend happy face. Im happy usually, but is hard to enjoy when you hurt. Even my little ones, I have a 3 yr old and 11 yr old(almost 9-1). I do hope you get ti feeling better soon!! Cortnee casterramom <casterramom@...> wrote: I'll try to be brief, but I am so tired of this. This being fibro and RA. I try to stay out of the way, but I read all your posts and my prayers are with everyone. Cortnee, I understand so completely your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). I've been off work for a week because my 5 year old had surgery. I'm scheduled to go back in 3 days. I honestly felt that being home would give me some rest...of course that didn't happen. My " baby " had her tonsils and adenoids out and has had a rough recovery. I guess that the RA has moved to my right leg. It is very swollen and I can hardly bend it. Of course most of it radiates down from my back and buttocks. But I just don't know. I'm crying all the time! I'm so frustrated and nothing seems to help the pain go away. The pain medication takes the edge off, but I am so tired of hurting all the time! I would just like 1 day of no pain...of being ME again. I am crying again and my " baby " doesn't understand. I don't think I can do this guys. I'm begging you all...please pray for a little relief for me. I know I'm being selfish, but I have dishes and laundry to do. My fiance and I have moved in together, but as he says it " I don't understand, but I'll be supportive " ...but he just called and as I sat here crying his response is " did you take a pain pill?...Good then, you'll be fine " But I won't be fine. I don't even know what that is anymore. I see the rheumatologist finally on Aug. 30th (IF my work will still let me off since I missed this last week)...PLEASE pray that he can help...I honestly can't take much more. THANK YOU ALL AND GOD BLESS...please don't take me as too whiny...I'm actually a very strong person. Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Its so hard to explain our pain to those that dont live it. My shoulders and hips have been my real killers lately and I just wanna cry, i do inside, but to the world I put on that pretend happy face. Im happy usually, but is hard to enjoy when you hurt. Even my little ones, I have a 3 yr old and 11 yr old(almost 9-1). I do hope you get ti feeling better soon!! Cortnee casterramom <casterramom@...> wrote: I'll try to be brief, but I am so tired of this. This being fibro and RA. I try to stay out of the way, but I read all your posts and my prayers are with everyone. Cortnee, I understand so completely your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). I've been off work for a week because my 5 year old had surgery. I'm scheduled to go back in 3 days. I honestly felt that being home would give me some rest...of course that didn't happen. My " baby " had her tonsils and adenoids out and has had a rough recovery. I guess that the RA has moved to my right leg. It is very swollen and I can hardly bend it. Of course most of it radiates down from my back and buttocks. But I just don't know. I'm crying all the time! I'm so frustrated and nothing seems to help the pain go away. The pain medication takes the edge off, but I am so tired of hurting all the time! I would just like 1 day of no pain...of being ME again. I am crying again and my " baby " doesn't understand. I don't think I can do this guys. I'm begging you all...please pray for a little relief for me. I know I'm being selfish, but I have dishes and laundry to do. My fiance and I have moved in together, but as he says it " I don't understand, but I'll be supportive " ...but he just called and as I sat here crying his response is " did you take a pain pill?...Good then, you'll be fine " But I won't be fine. I don't even know what that is anymore. I see the rheumatologist finally on Aug. 30th (IF my work will still let me off since I missed this last week)...PLEASE pray that he can help...I honestly can't take much more. THANK YOU ALL AND GOD BLESS...please don't take me as too whiny...I'm actually a very strong person. Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I know how you feel hun, hang in there ok, I hope the tides change for you soon!! Cortnee Dalena Chandler <casterramom@...> wrote: Thank you for responding . My GP finally told me that she feels I've been battling this for at least the past 2 years. It was just not diagnosed. Only after I joined this group 2 mths ago did I convince her to refer me to the rheumatologist. Until then, she just told me that I should take ibuprofen and occasionally Vicoden. She didn't feel I was " bad enough " to go to the rheumotologist yet. Now in the past 6 mths I've become so bad that I question my abilities as a parent, partner, and worker (I've already used all my sick/vacation time within 5 mths of receiving it). I've waited 2 mths for this appointment because this " rheumy " is so busy. Financially we are already sinking and I just cry because to stand/sit/lay/move/bend...etc etc takes all I can do in the world. I'm just totally feeling worthless. I'm just praying that the doctor can help...because if he can't I have nowhere to turn. Thank you again and God Bless, Prisicilla <Matsumura_Clan@...> wrote: Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Prisicilla, I know how you feel hun, hang in there ok, I hope the tides change for you soon!! Cortnee Dalena Chandler <casterramom@...> wrote: Thank you for responding . My GP finally told me that she feels I've been battling this for at least the past 2 years. It was just not diagnosed. Only after I joined this group 2 mths ago did I convince her to refer me to the rheumatologist. Until then, she just told me that I should take ibuprofen and occasionally Vicoden. She didn't feel I was " bad enough " to go to the rheumotologist yet. Now in the past 6 mths I've become so bad that I question my abilities as a parent, partner, and worker (I've already used all my sick/vacation time within 5 mths of receiving it). I've waited 2 mths for this appointment because this " rheumy " is so busy. Financially we are already sinking and I just cry because to stand/sit/lay/move/bend...etc etc takes all I can do in the world. I'm just totally feeling worthless. I'm just praying that the doctor can help...because if he can't I have nowhere to turn. Thank you again and God Bless, Prisicilla <Matsumura_Clan@...> wrote: Prisicilla, I'm so sorry that you are having such a terrible time and that your fiancé doesn't understand. Sorry too about your daughter's difficult recovery. Please tell your rheumatologist how the pain is interfering with your life. He should be working actively to relieve your suffering. Maybe you could call his office for help before the 30th? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Please understand > I'll try to be brief, but I am so tired of this. This being fibro > and RA. I try to stay out of the way, but I read all your posts and > my prayers are with everyone. Cortnee, I understand so completely > your frustration. I am 34, and a mother of 3 (5, 6 & 7 year olds). > I've been off work for a week because my 5 year old had surgery. > I'm scheduled to go back in 3 days. I honestly felt that being home > would give me some rest...of course that didn't happen. My " baby " > had her tonsils and adenoids out and has had a rough recovery. > > I guess that the RA has moved to my right leg. It is very swollen > and I can hardly bend it. Of course most of it radiates down from > my back and buttocks. But I just don't know. I'm crying all the > time! I'm so frustrated and nothing seems to help the pain go > away. The pain medication takes the edge off, but I am so tired of > hurting all the time! I would just like 1 day of no pain...of being > ME again. I am crying again and my " baby " doesn't understand. > > I don't think I can do this guys. I'm begging you all...please pray > for a little relief for me. I know I'm being selfish, but I have > dishes and laundry to do. My fiance and I have moved in together, > but as he says it " I don't understand, but I'll be supportive " ...but > he just called and as I sat here crying his response is " did you > take a pain pill?...Good then, you'll be fine " But I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my work will still > let me off since I missed this last week)...PLEASE pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me as too > whiny...I'm actually a very strong person. > > Prisicilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Prisicilla, I am sorry that you haven't been feeling very well. As you can tell I am behind on my e-mails. I hope that you are feeling better. I hope that you do not have to cancel your appt. for tomorrow. Maybe we will run into each other, my appt. is at 9:45. I remember you telling me that yours is at 9:00. You can't miss me I am very short. I have brown hair and wear glasses. You are in my prayers. Beth(AR) --- casterramom <casterramom@...> wrote: > I'll try to be brief, but I am so tired of this. > This being fibro > and RA. I try to stay out of the way, but I read > all your posts and > my prayers are with everyone. Cortnee, I understand > so completely > your frustration. I am 34, and a mother of 3 (5, 6 > & 7 year olds). > I've been off work for a week because my 5 year old > had surgery. > I'm scheduled to go back in 3 days. I honestly felt > that being home > would give me some rest...of course that didn't > happen. My " baby " > had her tonsils and adenoids out and has had a rough > recovery. > > I guess that the RA has moved to my right leg. It > is very swollen > and I can hardly bend it. Of course most of it > radiates down from > my back and buttocks. But I just don't know. I'm > crying all the > time! I'm so frustrated and nothing seems to help > the pain go > away. The pain medication takes the edge off, but I > am so tired of > hurting all the time! I would just like 1 day of no > pain...of being > ME again. I am crying again and my " baby " doesn't > understand. > > I don't think I can do this guys. I'm begging you > all...please pray > for a little relief for me. I know I'm being > selfish, but I have > dishes and laundry to do. My fiance and I have > moved in together, > but as he says it " I don't understand, but I'll be > supportive " ...but > he just called and as I sat here crying his response > is " did you > take a pain pill?...Good then, you'll be fine " But > I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my > work will still > let me off since I missed this last week)...PLEASE > pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me > as too > whiny...I'm actually a very strong person. > > Prisicilla > > > > > > ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Prisicilla, I am sorry that you haven't been feeling very well. As you can tell I am behind on my e-mails. I hope that you are feeling better. I hope that you do not have to cancel your appt. for tomorrow. Maybe we will run into each other, my appt. is at 9:45. I remember you telling me that yours is at 9:00. You can't miss me I am very short. I have brown hair and wear glasses. You are in my prayers. Beth(AR) --- casterramom <casterramom@...> wrote: > I'll try to be brief, but I am so tired of this. > This being fibro > and RA. I try to stay out of the way, but I read > all your posts and > my prayers are with everyone. Cortnee, I understand > so completely > your frustration. I am 34, and a mother of 3 (5, 6 > & 7 year olds). > I've been off work for a week because my 5 year old > had surgery. > I'm scheduled to go back in 3 days. I honestly felt > that being home > would give me some rest...of course that didn't > happen. My " baby " > had her tonsils and adenoids out and has had a rough > recovery. > > I guess that the RA has moved to my right leg. It > is very swollen > and I can hardly bend it. Of course most of it > radiates down from > my back and buttocks. But I just don't know. I'm > crying all the > time! I'm so frustrated and nothing seems to help > the pain go > away. The pain medication takes the edge off, but I > am so tired of > hurting all the time! I would just like 1 day of no > pain...of being > ME again. I am crying again and my " baby " doesn't > understand. > > I don't think I can do this guys. I'm begging you > all...please pray > for a little relief for me. I know I'm being > selfish, but I have > dishes and laundry to do. My fiance and I have > moved in together, > but as he says it " I don't understand, but I'll be > supportive " ...but > he just called and as I sat here crying his response > is " did you > take a pain pill?...Good then, you'll be fine " But > I won't be > fine. I don't even know what that is anymore. > > I see the rheumatologist finally on Aug. 30th (IF my > work will still > let me off since I missed this last week)...PLEASE > pray that he can > help...I honestly can't take much more. > > THANK YOU ALL AND GOD BLESS...please don't take me > as too > whiny...I'm actually a very strong person. > > Prisicilla > > > > > > ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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