Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I'm very glad to hear that you finally are seeing a doctor that is taking you seriously and trying to help you, rather than making you feel like you're a nut and it's all in your head. I'll be curious to see what her diagnosis is. It sounds like you have found a good doctor. Why are you labeling your posts OT? This post isn't off topic. Off topic posts are those that have nothing to do with our health problems, such as jokes, recipes etc. a On Aug 10, 2005, at 2:17 AM, ksamedifference wrote: > Well, I had the most wonderful doc visit. Very thorough. Gave me > about 2 hours worth of her time! Not only is she a Neurologist - she > is also a Psychiatrist. So, I was definitly at the right place. She > has diagnosed me with Auto-immue Disorder (TBD), DDD, Spondylatrophy > something so far. She had possible Lyme as well. Thinks that there > is some diabetes vs. Hypoglycemia due to her eye evaul. on me. My > left eye is fine! The right has no nerve damage, the blood vessels > are all shot. That is what she thinks is causing my computer screen > to look as if it curves inward to me. I have no tumors in my head - > it is intracranial calcification most likely from when I was > kidnapped and beaten nearly to death and my skull just simply healed > itself and added a bit more for future injury. AR AR! She was leveled > about how I have been (not) treated thus far. I told her that I was > getting paranoid that they were trying to kill me and she > replied, " probably because they were working on it. " She thinks that > I have more than one thing going on and thinks she knows what it is > but wants to cover all basis to make an accurate diagnosis to get me > started on preventive meds.! She also has heard of how high a titer > rheumatoid factor instead of just positive vs. negative. WOW!!! She > said that I have nerve impingement in various areas of my spine and > that the reason that I'm shrinking isn't due to the heat, it is due > to the scoliosis. I probably am a good canidate for bracing at > night. The reason I'm so dizzy when I lean my head forward or > backwards is because my spinal cord is being pinched?(compromised) > She used some other term and instructed me for now not to lean if at > all possible until they get the labs back b4 decided on exactly how > to proceed. I most likely do not have ALS, MS, or parkinson's and > I'm definetly not crazy!!!!!!!!!! When I went I was under so much > stress that my bp was 160/90 CRAZY!!! It has never ever been like > that. Then after 8 vials of blood and near fainting it was back to > normal. The blood tests are... Hep panel to be safe, anticitriline > or something like that, ra titer, ana, ck, crp, sed rate,smooth > muscle, ds, dna, rnp, hemoglobin - lyme, smith and some other common > name test. I will know all the results in 2 weeks! Scary but, I feel > like I'm actually being treated thus far. I have no idea what some > of these are and need to check on it. Anyhow, just wanted to say > hey, I love you guys and miss you. Oh, I almost forgot - I told her > about the group and she said that if any of you have any suggestions > to let me know and she will check into it! Thanks to all and for all > your support and prayers!!!!  XXX's  Kim  PS: I hope that today is > a good day for each and everyone! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I'm very glad to hear that you finally are seeing a doctor that is taking you seriously and trying to help you, rather than making you feel like you're a nut and it's all in your head. I'll be curious to see what her diagnosis is. It sounds like you have found a good doctor. Why are you labeling your posts OT? This post isn't off topic. Off topic posts are those that have nothing to do with our health problems, such as jokes, recipes etc. a On Aug 10, 2005, at 2:17 AM, ksamedifference wrote: > Well, I had the most wonderful doc visit. Very thorough. Gave me > about 2 hours worth of her time! Not only is she a Neurologist - she > is also a Psychiatrist. So, I was definitly at the right place. She > has diagnosed me with Auto-immue Disorder (TBD), DDD, Spondylatrophy > something so far. She had possible Lyme as well. Thinks that there > is some diabetes vs. Hypoglycemia due to her eye evaul. on me. My > left eye is fine! The right has no nerve damage, the blood vessels > are all shot. That is what she thinks is causing my computer screen > to look as if it curves inward to me. I have no tumors in my head - > it is intracranial calcification most likely from when I was > kidnapped and beaten nearly to death and my skull just simply healed > itself and added a bit more for future injury. AR AR! She was leveled > about how I have been (not) treated thus far. I told her that I was > getting paranoid that they were trying to kill me and she > replied, " probably because they were working on it. " She thinks that > I have more than one thing going on and thinks she knows what it is > but wants to cover all basis to make an accurate diagnosis to get me > started on preventive meds.! She also has heard of how high a titer > rheumatoid factor instead of just positive vs. negative. WOW!!! She > said that I have nerve impingement in various areas of my spine and > that the reason that I'm shrinking isn't due to the heat, it is due > to the scoliosis. I probably am a good canidate for bracing at > night. The reason I'm so dizzy when I lean my head forward or > backwards is because my spinal cord is being pinched?(compromised) > She used some other term and instructed me for now not to lean if at > all possible until they get the labs back b4 decided on exactly how > to proceed. I most likely do not have ALS, MS, or parkinson's and > I'm definetly not crazy!!!!!!!!!! When I went I was under so much > stress that my bp was 160/90 CRAZY!!! It has never ever been like > that. Then after 8 vials of blood and near fainting it was back to > normal. The blood tests are... Hep panel to be safe, anticitriline > or something like that, ra titer, ana, ck, crp, sed rate,smooth > muscle, ds, dna, rnp, hemoglobin - lyme, smith and some other common > name test. I will know all the results in 2 weeks! Scary but, I feel > like I'm actually being treated thus far. I have no idea what some > of these are and need to check on it. Anyhow, just wanted to say > hey, I love you guys and miss you. Oh, I almost forgot - I told her > about the group and she said that if any of you have any suggestions > to let me know and she will check into it! Thanks to all and for all > your support and prayers!!!!  XXX's  Kim  PS: I hope that today is > a good day for each and everyone! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I am Sooooooooooooo awesomely happy for you , this has made my day Im so happy I have tears in my eyes:). God bless you, you sure deserve to have a good, caring doctor. Shoot! we all do , lol. Please keep us posted on how things go ok ? Im very interested in your progress Hugs, ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I am Sooooooooooooo awesomely happy for you , this has made my day Im so happy I have tears in my eyes:). God bless you, you sure deserve to have a good, caring doctor. Shoot! we all do , lol. Please keep us posted on how things go ok ? Im very interested in your progress Hugs, ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I am so glad that you have found a doctor, Tawny > Well, I had the most wonderful doc visit. Very thorough. Gave me > about 2 hours worth of her time! Not only is she a Neurologist - she > is also a Psychiatrist. So, I was definitly at the right place. She > has diagnosed me with Auto-immue Disorder (TBD), DDD, Spondylatrophy > something so far. She had possible Lyme as well. Thinks that there > is some diabetes vs. Hypoglycemia due to her eye evaul. on me. My > left eye is fine! The right has no nerve damage, the blood vessels > are all shot. That is what she thinks is causing my computer screen > to look as if it curves inward to me. I have no tumors in my head - > it is intracranial calcification most likely from when I was > kidnapped and beaten nearly to death and my skull just simply healed > itself and added a bit more for future injury. AR AR! She was leveled > about how I have been (not) treated thus far. I told her that I was > getting paranoid that they were trying to kill me and she > replied, " probably because they were working on it. " She thinks that > I have more than one thing going on and thinks she knows what it is > but wants to cover all basis to make an accurate diagnosis to get me > started on preventive meds.! She also has heard of how high a titer > rheumatoid factor instead of just positive vs. negative. WOW!!! She > said that I have nerve impingement in various areas of my spine and > that the reason that I'm shrinking isn't due to the heat, it is due > to the scoliosis. I probably am a good canidate for bracing at > night. The reason I'm so dizzy when I lean my head forward or > backwards is because my spinal cord is being pinched?(compromised) > She used some other term and instructed me for now not to lean if at > all possible until they get the labs back b4 decided on exactly how > to proceed. I most likely do not have ALS, MS, or parkinson's and > I'm definetly not crazy!!!!!!!!!! When I went I was under so much > stress that my bp was 160/90 CRAZY!!! It has never ever been like > that. Then after 8 vials of blood and near fainting it was back to > normal. The blood tests are... Hep panel to be safe, anticitriline > or something like that, ra titer, ana, ck, crp, sed rate,smooth > muscle, ds, dna, rnp, hemoglobin - lyme, smith and some other common > name test. I will know all the results in 2 weeks! Scary but, I feel > like I'm actually being treated thus far. I have no idea what some > of these are and need to check on it. Anyhow, just wanted to say > hey, I love you guys and miss you. Oh, I almost forgot - I told her > about the group and she said that if any of you have any suggestions > to let me know and she will check into it! Thanks to all and for all > your support and prayers!!!! XXX's Kim PS: I hope that today is > a good day for each and everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 I am so glad that you have found a doctor, Tawny > Well, I had the most wonderful doc visit. Very thorough. Gave me > about 2 hours worth of her time! Not only is she a Neurologist - she > is also a Psychiatrist. So, I was definitly at the right place. She > has diagnosed me with Auto-immue Disorder (TBD), DDD, Spondylatrophy > something so far. She had possible Lyme as well. Thinks that there > is some diabetes vs. Hypoglycemia due to her eye evaul. on me. My > left eye is fine! The right has no nerve damage, the blood vessels > are all shot. That is what she thinks is causing my computer screen > to look as if it curves inward to me. I have no tumors in my head - > it is intracranial calcification most likely from when I was > kidnapped and beaten nearly to death and my skull just simply healed > itself and added a bit more for future injury. AR AR! She was leveled > about how I have been (not) treated thus far. I told her that I was > getting paranoid that they were trying to kill me and she > replied, " probably because they were working on it. " She thinks that > I have more than one thing going on and thinks she knows what it is > but wants to cover all basis to make an accurate diagnosis to get me > started on preventive meds.! She also has heard of how high a titer > rheumatoid factor instead of just positive vs. negative. WOW!!! She > said that I have nerve impingement in various areas of my spine and > that the reason that I'm shrinking isn't due to the heat, it is due > to the scoliosis. I probably am a good canidate for bracing at > night. The reason I'm so dizzy when I lean my head forward or > backwards is because my spinal cord is being pinched?(compromised) > She used some other term and instructed me for now not to lean if at > all possible until they get the labs back b4 decided on exactly how > to proceed. I most likely do not have ALS, MS, or parkinson's and > I'm definetly not crazy!!!!!!!!!! When I went I was under so much > stress that my bp was 160/90 CRAZY!!! It has never ever been like > that. Then after 8 vials of blood and near fainting it was back to > normal. The blood tests are... Hep panel to be safe, anticitriline > or something like that, ra titer, ana, ck, crp, sed rate,smooth > muscle, ds, dna, rnp, hemoglobin - lyme, smith and some other common > name test. I will know all the results in 2 weeks! Scary but, I feel > like I'm actually being treated thus far. I have no idea what some > of these are and need to check on it. Anyhow, just wanted to say > hey, I love you guys and miss you. Oh, I almost forgot - I told her > about the group and she said that if any of you have any suggestions > to let me know and she will check into it! Thanks to all and for all > your support and prayers!!!! XXX's Kim PS: I hope that today is > a good day for each and everyone! Quote Link to comment Share on other sites More sharing options...
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