Re: waiting game

[Guest guest]

Kaitee also has to take the synthoid, she also has the weight issues but

exercise and healthy eating is the solution there.

The waiting is hard, I know, but either way she is still the same child.

Debbi

mom to kaitee 13 mds

________________________________

To: MosaicDS

Sent: Tue, June 8, 2010 9:24:30 AM

Subject: Re: waiting game

Hello Millie's Mom -

Thyroid I am an expert on - you are lucky to catch it early if you are

catching it. We did not know until was 3 (I think - it all blurs

together). slept all the time as a baby. She was such a wonderful

baby. She was not fussy, very happy and content to sit in her chair, or

your arms and be with everyone. 's thyroid does not work at all - so

she was put on synthroid - not a big deal, a small pill that she has to take

every morning. The only thing that it inconveniences me is that I have to

give her a vitamin at night since you can not take the two together.

was always small - and she is still one of the shortest in her class - but

she grew 4 inches last year! Hypothyroidism is not that big of a deal - you

do have to do annual (or every 6 month) blood tests to make sure the dosage

is right - but simple (as long as I sit her on my lap and get a bear hug on

her arms and wrap my legs around her legs). ;-) I make sure she exercises

(gymnastics) so that it helps with her weight issues. She has tenancy to be

short and fat - like her mother ;-(

Darlene - Mom to (13) and (11)

>

>

> Hi,

> I am having such a hard time today...it's been 1 week since the genetic

> testing and I just can't seem to keep myself calm....I feel like it's been

> an eternity since we had the testing and it could be another 3 weeks until

> we get the results! I know no matter what happens I am one of the luckiest

> women in the world just to have such an amazing daughter, so why does it

> matter what the tests say? Why am I in such a state of anxiety? I go through

> so many emotions it seems irrational.

>

> We spent 3 hours in the dr.s office yesterday because all Millie has done

> since the testing is sleep (which is extremely unlike her). The blood they

> took yesterday (another screaming match) all came back normal and they are

> going to send some away to see about thyroid. Does anyone know about

> thyroid? This seems to be something stereotypical of little ones with Downs

> apparently?

>

> I feel like I just need answers....

>

>

>

--

“Knowing is not enough, we must apply. Willing is not enough, we must do.â€

Johann Wolfgang von Goethe