on practicing mold avoidance and PTSS

June 27, 2001

erikj@... wrote:

" Don't you just love acronyms? I meant to write Perpetual Toxic Shock

Disorder. I've watched so many people develop this reactivity and go

through the same discovery process that it boggles my mind that

doctors don't see the pattern. Sooner or later you've got to ask how

it is that you got so damn sick and others with the same exposure did

not. Lifestyle? Stress? Most of us never had a dissipated lifestyle

that would warrant this. Stress, BAH! - "

I think " Perpetual Toxic Shock Disorder " just about nails it. Too often I

have found that people experiencing health problems run to a support group

with a symptomology that most matches theirs and then searches for answers

within the context of this specific " disease " or " syndrome. " But come to

find out (thanks to people like Albert Donnay and others with eyes wide

open) these are not separate syndromes but overlap. For instance, many of

us have experienced symptoms of multiple chemical sensitivity (MCS) as part

of our mold exposure - but so do people overwhelmed by pesticides or

chemicals like new carpets give off. Many people talk about the pain

associated with toxic mold exposure but others - like those with

fibromyalgia and EMS (Eosinophilia-Myalgia Syndrome) etc. also experience

great pain. Take off the labels and what you see are millions of people -

mostly in their 40's and 50's walking around with virtually the same

problem - PTSD. Stress didn't put us on the " Group W " bench and neither did

our lifestyles. Like Mulder, I think the truth is out there and it's a

biggie - else why would the CDC strike such a deliberate pose of nonchalance

as they use millions of dollars of money earmarked for CFIDS for other

projects. The same goes for Gulf War syndrome and the misuse of research

money. Is it only given to researchers whose projects will lead us away

from the truth - rather than people like Garth Nicholson who seem to be on

to something important? There is a lot that needs to be pondered...and

re-pondered.

Barbara

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