Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Simeon just had an abnormal growth of cells removed; it came back as a Mast Cell Tumor. They believe the mast cells are also on his inside and this to be the reason for his severe growth failure and vitamin d deficiency (in spite of abnormally high intake of vitamin d daily). He has been put on antihistamines 3 times a day and we are to carry an epipen with us everywhere. He will have to have a bone marrow biopsy and either an ultrasound of his liver and spleen or a CT Scan of his liver and spleen as well. We are very worried about him, especially since I have been complaining to doctors since he was 4-6 months old when he fell off the growth chart. He will be three April 1st and he is still in 12 month old clothes. I guess persistence does pay off, but I am the one who has been pursuing the doctors to find out what is wrong. None of them have seemed to care much nor have given me the referrals I asked for. Please say a special prayer for him because we want him to grow and live and not have any more problems with this like mast cell leukemia, etc.... Thanks. Quote Link to comment Share on other sites More sharing options...
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