Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 > i just join this group,my name is lisa > the meds is helping now,but what about in the day time,the pain just don't go away,some morning when i get out of bed i cant even walk the pain is so bad. > i was wondering if any of you are on the med called Amitriptyline? > Thanks > > Hi , As I have experienced this it is a supply and demand in the daily living and pain levels. I personally do not take many meds as my 'subset' of Fibro <MCS> causes more harm to me than helping me,but mostly tylenol helps without side effects. I am " fortunate " <I use the word with a sigh> that I do not have to work because I was put on disability 20 years ago. Today I am pretending I have nothing to do but pamper myself, no chores this day. Welcome, ~Shocking Blue~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Genesiac for I believe it was 3.89 and Salonpas is 3.46 you get 40 patches in a box. Hiya all.. what are these??? sorry have not been up to date on any meds... my doc didnt give me any and just surviving... rather painfully on my own with nothing... excedrin when i can afford and Ibuprofen when i can afford as well.... anti-depressants ouch so expensive those are the last i consider.......and they help the most with the mood swings and things... thanks for the help on this huggles Hugs and Waves ;)Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 , Hi, and welcome to the group! I'm so sorry that you were diagnosed with Fibro...it's not an easy dx to accept. Wow, your doctor didn't seem to be of much help, but we come across that a lot. A lot of docs will shove some scripts in your hand, and say " You just have to live with it " . The med you were prescribed, Amitryptiline, is actually an anti-depressant that is one of the first meds usually prescribed to Fibromites. It's supposed to help with pain and insomnia. I know how frustrated and lost you must feel by your doctor just giving you a script and sending you on your way without any of the vital information you need. However, there are a lot of excellent books about Fibro...you could probably find them at your local library. My 2 favorites are " Inside Fibromyalgia " by Dr. Mark Pellegrino, who is not only a physical med doctor that specializes in treating Fibromyalgia, he also has it himself, and " Fibromyalgia for Dummies " . Check out your local library or bookstore, and start reading. Educating yourself is the most important thing you can do! If you have an Arthritis Foundation chapter in your area, they can also provide you with a lot of good info. I know that they have published several booklets on Fibro. Some things that you can do to help yourself are eat right, exercise, and try to get plenty of sleep (easier said than done, I know!). In my research, I've read numerous times that a high protein, low carb diet is best for Fibromites. The carbs you eat should be complex ones, such as whole grains and veggies, with fruit in moderation. Fruit has natural sugar, so it's not as bad for you as others, but it's still sugar. Lean proteins should make up the bulk of your diet though. You should also cut out things like caffeine (or at least reduce it as much as possible), MSG, artificial sweeteners and additives, processed foods, and simple carbs, such as sugars. You should also take a good multivitamin every day. Since a lot of us have malabsorbtion problems, this betters your chances of getting the proper amount of nutrients. I take a high energy formula, which helps some to combat fatigue. Exercise is very important....probably one of the most important things you can do for yourself. I know the idea of exercising when your body hurts sounds impossible, but the less active you are, the more pain you will have. A lack of physical activity allows the muscles to stiffen up, and it just compounds the pain. Low or non impact exercise is best, such as walking or water aerobics. If you can't do that, even stretching every day is better than nothing. You just need to be doing something to keep the muscles from getting tight. Sleep....the root of all evil...LOL! This is one of the biggest challenges for Fibromites. According to studies, we have difficulties getting to stage 4 sleep, which is where the body does it's " repair work " . This is when the body produces the chemicals and hormones that our bodies need to repair an replenish themselves, such as the human growth hormone. A lack of this level of sleep causes, yup, you guessed it, PAIN! You said the Elavil is helping you sleep, which is good. It never worked at all for me...I have very severe insomnia, and have to take a strong med called Seroquel to get to sleep. Another thing that you might want to consider is supplements of magnesium and malic acid. A lot of people with Fibro are deficient in magnesium, which can cause muscle pain/spasms, muscle weakness, irritability, fatigue, disturbances in nerve impulses, and a whole lot of other things. Supplementing with magnesium/malic acid can really help. There are a lot of products that have them in combo form. However, it's important not to take more than the recommended daily allowance of magnesium, as too much can deplete potassium levels. No more than 500mg a day should be taken. About 1200- 1500mg of malic acid is a good dosage. This is just a suggestion though, and you should talk to your doctor about it! I have rx'ed meds that I take, but a lot of people on here swear by Genasec and Salonpas patches. Genasec is an OTC pain med that you can get at Walmart, and Salonpas patches are pain relief patches that you can stick on the sore spots...they are at Walmart as well. The best thing is that they are both very inexpensive. You might want to consider trying those to treat your pain. Again, welcome to the group, and if you need anything, please feel free to let me know. I'll be happy to help you in any way I can. Jen-Site moderator " A smile speaks a universal language " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Some things that you can do to help yourself are eat right, exercise, and try to get plenty of sleep (easier said than done, I know!). Wow your letter to will help me also.. i was diagnosed but never knew what to do to help with the symptoms.. thanks Jen hugs Huggles, Sophia Quote Link to comment Share on other sites More sharing options...
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