New to the group

[Guest guest]

Hello everyone-I am new to the group also new to computers so forgive

my ediquette. I have a two year old son who was born very premature

at 29 weeks, 2.4 pounds. He had a dimple abouve his buttocks when he

was born. When he came home I asked the doctor about it. He said it

was normal. After a few months my sons gross motor skills were not

developing very well. They suggested he may have Cerebralpalsy and

needed an MRI. The MRI suggested he may have a TSC. We went to see a

pediatricneurologist. This doctor rubbed me the wrong way. My son has

some symptoms the dimple, not walking, no reflexes in his legs. He

is not potty trained yet. We were all scheduled for surgery but

something inside said I needed a second opinion, due to my feelings

about the doctor I couldn't let him operate on my son. We went to

Stanford, we live in California. I saw another doctor and he said no

way does this kid have TSC. I was very confused. We got a third

opinion the Director of Pediatricneurosurgery at Stanford and he said

the same. No TSC. Of course we were very relieved. Well 2 years

later my son runs (with caution) and is very bright. The tethered

cord issue came up again because he still has no reflexes and his

feet are turned in slightly. They want to do another MRI. I am

feeling guilty for not doing the surgery.But what other decision

could be made at the time. Any advice? My biggest worry is the

surgery and the recovery! Thanks Everyone