Taking husband to doctor's appt

[Guest guest]

Hi everyone,

Sorry I have been so bad about writing, not been feeling that well,

no pain meds:o( Trying to get by withuot, but sneaking ibuprofen

here and there. My husband has decided to come with me to my rheumy

appt on the 30th. I am just to sick and tired to speak up for

myself, does that make sense to anyone? I just have lost all my

fight. I truly don't care anymore about it. If they don't want to

treat my pain, fine, I will just sit here and suffer, not check the

board, not do anything. My kids are home for summer vacation (all

three, ages 5, 11, and 14) so that is hard enough. Is there any

specific questions he should ask or she would just fire him or

what? It is actually my primary care doctor that we don't like at

all, she has no bedside manner and is just out of school and

probably is only here in Maine to pay off her student loans and then

will leave anyway. I just seem to be drifting and not knowing what

to do, kinda stuck in limbo with the whole process. I am taking my

Humira and that does seem to help the fatigue some, but I still have

pain but I have only had three shots. I am still on 15 mg a day of

Prednisone and absolutely cannot get by without it. I have been on

it for seven months now and they just did a bone density study to

see how that is. I would not be able to function at all without

it. My sed rate goes back up through the roof when they try to wean

me, etc. Still on the MTX, but the pills not the shots and folic

acid as well as my Nexium for my esophageal spasms and reflux.

I am sorry if I am whining, really I am. I just have not had the

energy to even read the posts. I hope I have not missed any that I

should have answered. If I have, please do not take it personally I

just was not up to it. I think on this board when people get quiet

and you don't hear from them for long periods it is because they are

not doing to well huh?

Well, email me if you really want me to get it or post and I will

try to read it ASAP, but before the appt on the 30th. Possibly a

list of questions would be in order? I don't understand why I

cannot go to a pain management clinic, but with my HMO I cannot do

anything unless my primary care doctor okays it and she says no. By

the way, I did not have any withdrawal symptoms or anything coming

off the pain med. I only had two scripts and I did not over take

them or anything, geez. It seems like they are paranoid or

something. Of course, my sleep is suffering so I am going to have

to try some of that tea!

Thanks for listening!

Tracie in Maine