Re: Editing last update on Jim

May 1, 2008

Jan,

That is such good news. And you don't have to apologize. It is only natural we

go through some of your emotions with you as you do for everyone else. And we

know you well enough from all you have done for Jim, if there were any way for

you to make him better, you would do it.

I am happy it is such that someone doesn't have a good vocabulary rather than

Jim being sick.. (Grin!)

Again glad to hear Jim's color is better, sores are getting care and he on the

mend.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Editing last update on Jim

OMG! everything took a turn for the better today and I will never come on again

and say a word, until Jim is actually, really, absolutely confirmed to be at the

end, because I am now begining toï¿½feel like the boy (girl)ï¿½that cried,

" Wolf " and when it really happens no one will listen or believe me, so I am

going to keep quiet about Jim's prognosis until the end.ï¿½

I was a basket case when the phone rang very late at night or very earlyï¿½in

the AM. The nurse said the fax results from the X-Ray showed aï¿½Collapsed Lung

and I repeated, " A Collapsed Lung? " Her accent is very thick and she said, " Yes,

something like that " ï¿½I asked, " Does Jim have Pneumonia? " and she said, " No " So

I assumed she did say, Collapsed Lung. Today, when I went to visit Jim thinking

the worst, I saw the DON in the hallway and she said, " How are you? " I said, " I

could be better,ï¿½since Iï¿½heard Jim has a Collapsed Lung. " She said, " What?! "

and ran for the medical chart. Jim does not have a Collapsed Lung, he has

Aspiration Pneumonia. BIG HUGE difference. He is only being treated for the UTI

withï¿½antibiotics, they said the Aspiration Pneumonia will go away on its own.

As for the wound in the private area, they are optimistic that it was caught

early and everything is going to clear up on that too. That is if Jim doesn't

play around, because he

is diaper free, they don't want to irritate the wound with a diaper rubbing

against it. I think I can deal with all this and Jim was doing fine when I went

into see him. I was expecting the worst. His coloring looked bad yesterday, he

was very ashen looking. I think the anitbiotics are already working. His good

nature was back today too. I apologize to everyone, I really overreacted from

that call. I wish these people could speak more clearly. The wound, the UTI and

then that call really sent me over theï¿½edge.ï¿½I am going to gain my composure

now and I will not speak a word about Jim until I am 100% sure of everything

double checked and checked again.

I am embarrassed that some cried along with me and all the emotions that I

caused, when there are really people losing their LOs. I thank you for being

here and all your support. I'm so sorry to everyone, ï¿½but I think Jim is going

to be ok from what I saw today with him, he is already feeling better.

Jan

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

May 1, 2008

Any of us esp when tired, worried, afraid etc will panic- its hard when

you don't know what is going on.

It's just you care so very much- I'm sure you'll help us when we have

our panic moments too.

Thankful its better than you were expecting :-)

Sharon

May 1, 2008

Don't be embarrassed at all -- that is GREAT news! A definite answer to

prayer

Blessings,

Kate

In a message dated 5/1/2008 2:29:51 A.M. Central Daylight Time,

janetcolello@... writes:

OMG! everything took a turn for the better today and I will never come on

again and say a word, until Jim is actually, really, absolutely confirmed to be

at the end, because I am now begining to feel like the boy (girl) that

cried, " Wolf " and when it really happens no one will listen or believe me, so I

am

going to keep quiet about Jim's prognosis until the end.

I was a basket case when the phone rang very late at night or very early in

the AM. The nurse said the fax results from the X-Ray showed a Collapsed Lung

and I repeated, " A Collapsed Lung? " Her accent is very thick and she said,

" Yes, something like that " I asked, " Does Jim have Pneumonia? " and she said,

" No " So I assumed she did say, Collapsed Lung. Today, when I went to visit Jim

thinking the worst, I saw the DON in the hallway and she said, " How are

you? " I said, " I could be better, since I heard Jim has a Collapsed Lung. " She

said, " What?! " and ran for the medical chart. Jim does not have a Collapsed

Lung, he has Aspiration Pneumonia. BIG HUGE difference. He is only being

treated

for the UTI with antibiotics, they said the Aspiration Pneumonia will go

away on its own. As for the wound in the private area, they are optimistic that

it was caught early and everything is going to clear up on that too. That is

if Jim doesn't play around, because he

is diaper free, they don't want to irritate the wound with a diaper rubbing

against it. I think I can deal with all this and Jim was doing fine when I

went into see him. I was expecting the worst. His coloring looked bad

yesterday, he was very ashen looking. I think the anitbiotics are already

working. His

good nature was back today too. I apologize to everyone, I really

overreacted from that call. I wish these people could speak more clearly. The

wound,

the UTI and then that call really sent me over the edge. I am going to gain my

composure now and I will not speak a word about Jim until I am 100% sure of

everything double checked and checked again.

I am embarrassed that some cried along with me and all the emotions that I

caused, when there are really people losing their LOs. I thank you for being

here and all your support. I'm so sorry to everyone, but I think Jim is going

to be ok from what I saw today with him, he is already feeling better.

Jan

Kate Deddens

" To be Queen within a definite area, deciding sales, banquets,

labors, and holidays; to be Whitely within a certain area, providing toys,

boots, cakes, and books; to be Aristotle within a certain area, teaching

morals,

manners, theology and hygiene; I can understand how this might exhaust the

mind, but I cannot imagine how it could narrow it. How can it be a large career

to tell other people's children about the Rule of Three, and a small career

to tell one's own children about the universe? How can it be broad to be the

same thing to everyone and narrow to be everything to someone? No, a woman's

function is laborious, but because it is gigantic, not because it is minute. "

-G.K. Chesterton, What's Wrong with the World

" The peace of God, which transcends all understanding, will guard your

hearts and your minds in Christ Jesus. " --Phil. 4:7

" When peace, like a river, attendeth my way, when sorrows like sea billows

roll; whatever my lot, thou hast taught me to say,

'It is well, it is well with my soul'. "

--Horatio G. Spafford, 1873

_Girl.fromPersia_ (http://360.yahoo.com/girl.frompersia)

U_nited Christian Home Schools_ (http://hometown.aol.com/cmided/uchs.html)

C_lassical Coffee_ (http://hometown.aol.com/cmided/uchs.html)

P_eace Lutheran Church - LCMS_ (http://hometown.aol.com/cmided/uchs.html)

w_ww.tedtoy.com_ (http://hometown.aol.com/cmided/uchs.html)

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

May 1, 2008

Hi, Jan,

This is fantastic news!! I am so relieved that Jim is doing better. As far

as " crying wolf " , there is no such thing with LBD. We are here to go

through the ups and downs with you. We sure don't want you going through all

this

alone. It seems like I went into panic mode on a daily basis in the later

stages of Dad's journey. The most important thing is that Jim is on the

upswing!

Love and hugs,

Piper

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

May 1, 2008

Jan,

I am so happy to hear that Jim is doing better. PLEASE, don't ever

apologize for anything on here. I think many of us of thought the end was

very near. It's so very hard to know, particularly with this disease. We

are here for you no matter what. I am feeling your relief and sending you

peace.

Janet Colello

<janetcolello@yah

oo.com> To

Sent by: LBDcaregivers

LBDcaregivers@yah cc

oogroups.com

Subject

Editing last update

05/01/2008 03:30 on Jim

AM

Please respond to

LBDcaregivers@yah

oogroups.com

OMG! everything took a turn for the better today and I will never come on

again and say a word, until Jim is actually, really, absolutely confirmed

to be at the end, because I am now begining to feel like the boy

(girl) that cried, " Wolf " and when it really happens no one will listen or

believe me, so I am going to keep quiet about Jim's prognosis until the

end.

I was a basket case when the phone rang very late at night or very early in

the AM. The nurse said the fax results from the X-Ray showed a Collapsed

Lung and I repeated, " A Collapsed Lung? " Her accent is very thick and she

said, " Yes, something like that " I asked, " Does Jim have Pneumonia? " and

she said, " No " So I assumed she did say, Collapsed Lung. Today, when I went

to visit Jim thinking the worst, I saw the DON in the hallway and she said,

" How are you? " I said, " I could be better, since I heard Jim has a

Collapsed Lung. " She said, " What?! " and ran for the medical chart. Jim does

not have a Collapsed Lung, he has Aspiration Pneumonia. BIG HUGE

difference. He is only being treated for the UTI with antibiotics, they

said the Aspiration Pneumonia will go away on its own. As for the wound in

the private area, they are optimistic that it was caught early and

everything is going to clear up on that too. That is if Jim doesn't play

around, because he

is diaper free, they don't want to irritate the wound with a diaper rubbing

against it. I think I can deal with all this and Jim was doing fine when I

went into see him. I was expecting the worst. His coloring looked bad

yesterday, he was very ashen looking. I think the anitbiotics are already

working. His good nature was back today too. I apologize to everyone, I

really overreacted from that call. I wish these people could speak more

clearly. The wound, the UTI and then that call really sent me over

the edge. I am going to gain my composure now and I will not speak a word

about Jim until I am 100% sure of everything double checked and checked

again.

I am embarrassed that some cried along with me and all the emotions that I

caused, when there are really people losing their LOs. I thank you for

being here and all your support. I'm so sorry to everyone, but I think Jim

is going to be ok from what I saw today with him, he is already feeling

better.

Jan

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

May 1, 2008

Praise God!

Oh, and Jan, do not EVER be embarrassed. There is NOTHING to be embarrassed

about. The Lewy Rollercoaster is one scary and extremely unpredictable

ride!

(((HUGS)))

Gladys

-- Editing last update on Jim

OMG! everything took a turn for the better today and I will never come on

again and say a word, until Jim is actually, really, absolutely confirmed to

be at the end, because I am now begining to feel like the boy (girl) that

cried, " Wolf " and when it really happens no one will listen or believe me,

so I am going to keep quiet about Jim's prognosis until the end.

I was a basket case when the phone rang very late at night or very early in

the AM. The nurse said the fax results from the X-Ray showed a Collapsed

Lung and I repeated, " A Collapsed Lung? " Her accent is very thick and she

said, " Yes, something like that " I asked, " Does Jim have Pneumonia? " and she

said, " No " So I assumed she did say, Collapsed Lung. Today, when I went to

visit Jim thinking the worst, I saw the DON in the hallway and she said,

How are you? " I said, " I could be better, since I heard Jim has a Collapsed

Lung. " She said, " What?! " and ran for the medical chart. Jim does not have a

Collapsed Lung, he has Aspiration Pneumonia. BIG HUGE difference. He is only

being treated for the UTI with antibiotics, they said the Aspiration

Pneumonia will go away on its own. As for the wound in the private area,

they are optimistic that it was caught early and everything is going to

clear up on that too. That is if Jim doesn't play around, because he

is diaper free, they don't want to irritate the wound with a diaper

rubbing against it. I think I can deal with all this and Jim was doing fine

when I went into see him. I was expecting the worst. His coloring looked bad

yesterday, he was very ashen looking. I think the anitbiotics are already

working. His good nature was back today too. I apologize to everyone, I

really overreacted from that call. I wish these people could speak more

clearly. The wound, the UTI and then that call really sent me over the edge.

I am going to gain my composure now and I will not speak a word about Jim

until I am 100% sure of everything double checked and checked again.

I am embarrassed that some cried along with me and all the emotions that I

caused, when there are really people losing their LOs. I thank you for being

here and all your support. I'm so sorry to everyone, but I think Jim is

going to be ok from what I saw today with him, he is already feeling better.

Jan

_____________________________________________________________________________

______

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/

_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

May 1, 2008

Jan: I'm so glad to hear your worst fears were not true. I hope the aspiration

pneumonia doesn't continue and am surprised that it goes away on its own. As

you know, Darrell had that, but I believe they did give him antibiotics for it.

Don't apologize for getting upset. Sounds as if you have some of the problems

we do, not being able to understand some of the accents.

Take care. June

>

> Subject: Editing last update on Jim

> To: LBDcaregivers

> Date: Thursday, May 1, 2008, 2:29 AM

> OMG! everything took a turn for the better today and I will

> never come on again and say a word, until Jim is actually,

> really, absolutely confirmed to be at the end, because I am

> now begining to feel like the boy (girl) that cried,

> " Wolf " and when it really happens no one will

> listen or believe me, so I am going to keep quiet about

> Jim's prognosis until the end.

> I was a basket case when the phone rang very late at night

> or very early in the AM. The nurse said the fax results

> from the X-Ray showed a Collapsed Lung and I repeated,

> " A Collapsed Lung? " Her accent is very thick and

> she said, " Yes, something like that " I asked,

> " Does Jim have Pneumonia? " and she said,

> " No " So I assumed she did say, Collapsed Lung.

> Today, when I went to visit Jim thinking the worst, I saw

> the DON in the hallway and she said, " How are

> you? " I said, " I could be better, since I heard

> Jim has a Collapsed Lung. " She said, " What?! "

> and ran for the medical chart. Jim does not have a Collapsed

> Lung, he has Aspiration Pneumonia. BIG HUGE difference. He

> is only being treated for the UTI with antibiotics, they

> said the Aspiration Pneumonia will go away on its own. As

> for the wound in the private area, they are optimistic that

> it was caught early and everything is going to clear up on

> that too. That is if Jim doesn't play around, because

> he

> is diaper free, they don't want to irritate the wound

> with a diaper rubbing against it. I think I can deal with

> all this and Jim was doing fine when I went into see him. I

> was expecting the worst. His coloring looked bad yesterday,

> he was very ashen looking. I think the anitbiotics are

> already working. His good nature was back today too. I

> apologize to everyone, I really overreacted from that call.

> I wish these people could speak more clearly. The wound, the

> UTI and then that call really sent me over the edge. I am

> going to gain my composure now and I will not speak a word

> about Jim until I am 100% sure of everything double checked

> and checked again.

> I am embarrassed that some cried along with me and all the

> emotions that I caused, when there are really people losing

> their LOs. I thank you for being here and all your support.

> I'm so sorry to everyone, but I think Jim is going to

> be ok from what I saw today with him, he is already feeling

> better.

> Jan

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

May 1, 2008

Jan,

Please don't hold back and wait for certainty. We are a support group and we

are here to

support, so if you think it's really bad let us know so we can support you. If

it turns out

that it's not as bad then we'll rejoice with you. We are along for the ride how

ever long that

takes and whatever turns it takes.

I know what you mean about some of the nurses and english as a second language.

My

Father couldn't understand some of the nurses when they would call from the NH,

so he

usually gave me the phone to find out what was happening with my Mother.

I'm glad Jim is better.

in Dallas

>

> OMG! everything took a turn for the better today and I will never come on

again and say

a word, until Jim is actually, really, absolutely confirmed to be at the end,

because I am

now begining to feel like the boy (girl) that cried, " Wolf " and when it really

happens no one

will listen or believe me, so I am going to keep quiet about Jim's prognosis

until the end.

> I was a basket case when the phone rang very late at night or very early in

the AM. The

nurse said the fax results from the X-Ray showed a Collapsed Lung and I

repeated, " A

Collapsed Lung? " Her accent is very thick and she said, " Yes, something like

that " I asked,

" Does Jim have Pneumonia? " and she said, " No " So I assumed she did say,

Collapsed Lung.

Today, when I went to visit Jim thinking the worst, I saw the DON in the hallway

and she

said, " How are you? " I said, " I could be better, since I heard Jim has a

Collapsed Lung. " She

said, " What?! " and ran for the medical chart. Jim does not have a Collapsed

Lung, he has

Aspiration Pneumonia. BIG HUGE difference. He is only being treated for the UTI

with antibiotics, they said the Aspiration Pneumonia will go away on its own. As

for the

wound in the private area, they are optimistic that it was caught early and

everything is

going to clear up on that too. That is if Jim doesn't play around, because he

> is diaper free, they don't want to irritate the wound with a diaper rubbing

against it. I

think I can deal with all this and Jim was doing fine when I went into see him.

I was

expecting the worst. His coloring looked bad yesterday, he was very ashen

looking. I think

the anitbiotics are already working. His good nature was back today too. I

apologize to

everyone, I really overreacted from that call. I wish these people could speak

more clearly.

The wound, the UTI and then that call really sent me over the edge. I am going

to gain my

composure now and I will not speak a word about Jim until I am 100% sure of

everything

double checked and checked again.

> I am embarrassed that some cried along with me and all the emotions that I

caused,

when there are really people losing their LOs. I thank you for being here and

all your

support. I'm so sorry to everyone, but I think Jim is going to be ok from what

I saw today

with him, he is already feeling better.

> Jan

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

May 1, 2008

Hi June,

It is of great relief to see Jim doing so well yesterday and that it wasn't the

worst that I had thought.

I asked the floor nurse yesterday if Jim was on two separate antibiotics for the

UTI and Aspiration Pneumonia and she said no, he is on only one for the UTI and

that nothing is given for Aspiration Pneumonia, that it goes away on it's on. It

has been sunny here, so I took him outside to breathe in some fresh air and get

some sun and maybe the air and sun will dry out some of the aspiration in his

lungs. That is my thought anyway. I know walking and some deep breathing would

help, but he can't walk and he doesn't understand to breathe deep breaths. I

sure hope they know what they are doing by not giving Jim medication for the

Aspiration Pneumonia. I hope they are doing the right thing. I don't know if

antibiotics go to that one general area that they are supposed to help or maybe

the one he is taking for the UTI could help the Pneumonia a little bit too.

My only fear now is all the antibiotics he has been on in the last three weeks.

I am making sure he gets a lot of cultured bacteria in milk on cereal. He will

not eat Yogurt or drink a straight glass of milk, but he likes it on cereal, so

I bring a box of cereal to the nh and make sure he gets it when I am there. The

nurses keep the milk in their frig. at the nurse's station.

It is very hard to understand the nurses on the phone. In person, I can get a

better idea of what they are saying.

I'm glad you all understand this emotional roller coaster of not knowing if you

are up or down. My ride lately is a wild one of ups and downs. I can say we are

going up again.

Thanks for your understanding, Jan

Editing last update on Jim

> To: LBDcaregivers

> Date: Thursday, May 1, 2008, 2:29 AM

> OMG! everything took a turn for the better today and I will

> never come on again and say a word, until Jim is actually,

> really, absolutely confirmed to be at the end, because I am

> now begining to feel like the boy (girl) that cried,

> " Wolf " and when it really happens no one will

> listen or believe me, so I am going to keep quiet about

> Jim's prognosis until the end.

> I was a basket case when the phone rang very late at night

> or very early in the AM. The nurse said the fax results

> from the X-Ray showed a Collapsed Lung and I repeated,

> " A Collapsed Lung? " Her accent is very thick and

> she said, " Yes, something like that " I asked,

> " Does Jim have Pneumonia? " and she said,

> " No " So I assumed she did say, Collapsed Lung.

> Today, when I went to visit Jim thinking the worst, I saw

> the DON in the hallway and she said, " How are

> you? " I said, " I could be better, since I heard

> Jim has a Collapsed Lung. " She said, " What?! "

> and ran for the medical chart. Jim does not have a Collapsed

> Lung, he has Aspiration Pneumonia. BIG HUGE difference. He

> is only being treated for the UTI with antibiotics, they

> said the Aspiration Pneumonia will go away on its own. As

> for the wound in the private area, they are optimistic that

> it was caught early and everything is going to clear up on

> that too. That is if Jim doesn't play around, because

> he

> is diaper free, they don't want to irritate the wound

> with a diaper rubbing against it. I think I can deal with

> all this and Jim was doing fine when I went into see him. I

> was expecting the worst. His coloring looked bad yesterday,

> he was very ashen looking. I think the anitbiotics are

> already working. His good nature was back today too. I

> apologize to everyone, I really overreacted from that call.

> I wish these people could speak more clearly. The wound, the

> UTI and then that call really sent me over the edge. I am

> going to gain my composure now and I will not speak a word

> about Jim until I am 100% sure of everything double checked

> and checked again.

> I am embarrassed that some cried along with me and all the

> emotions that I caused, when there are really people losing

> their LOs. I thank you for being here and all your support.

> I'm so sorry to everyone, but I think Jim is going to

> be ok from what I saw today with him, he is already feeling

> better.

> Jan

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

May 1, 2008

, it did feel good to have a good cry. I was having my own Pity Party

and it did release a lot of pent in stressful emotions. But at the same time, I

had a huge Pit in my stomach. I am sure glad to get rid of that Pit!

Jan

Re: Editing last update on Jim

Jan- YAY! No apologies necessary! We're just happy that Jim is OK.

It's hard to be mad at the lady w/ the accent when it turns out to be

better for Jim. But it is frustrating that you wasted so much energy

with the release of emotions and it wasn't necessary. Although a good

cry tends to make you feel good too - so maybe it was good for you. I

bet you slept well last night. Take care and as we know you will, take

care of Jim. :)

------------------------------------

Welcome to LBDcaregivers.

May 1, 2008

Thanks Donna,

The nurse that called used the latin medical term for Aspiration Pneumonia and

there was something in the way she said the word that I interpreted to mean

Collapsed and when I questioned it, I didn't understand her reply with the

accent and I don't think she was understanding me either when I asked if Jim has

Pneumonia and she said, " No " I was trying to go another angle to see if I was

right about interpreting the word to mean Collapsed and she said, " It is

something like that " so, I came to the conclusion she meant Collapsed. If she

had just said, " Aspiration Pneumonia " I would have probably understood that. I

think she was reading it straight off the fax. So, in my all ready state of

turmoil about Jim's health in the last three weeks, I made myself even more

stressed out emotionally.

Thanks for your concern and support..................Hugs, Jan