Re: Hey Sandie,

[Guest guest]

Ebony,

Thank you so much for your nice words. They are a welcome change to what I

have been experiencing lately. Even hubby surprised me last night when I was

telling him what his mom said about me being too demanding and he kind of agreed

with her- looking at it from a business perspective(as he does with

everything ) It was very upsetting to me for him to say that as well but he did

also

say it isnt right. Today I went hobbling into the docs office to sign that

rediculous paper and the nurse actually noticed me limping. she didnt say

anything

but I almost felt I had to validate my pain which is rediculous. It is true

noone understands the pain we are in and to look at me I appear " fine " but most

of my days are spent trying not to cry from the pain and not take it out on my

innocent children. Pain causes you to be soooo short tempered.

How I feel now is that I am not going to explain myself to anyone. Saying I

am in pain should be enough for anyone to understand. that is that.

hope you are feeling well, take care.

sandie

[Guest guest]

Sandie,

Sounds like your experiences are a lot like mine were. I am

indifferent now 10 years later and don't waste my time trying to

explain myself anymore. I decided that I needed to put all of my

energy into solving the mystery of pain relief myself, and not look

to the doctors to do that for me and not look to family to understand

what the pain was like or how my life had drastically changed. At

the time, I had a special needs child I was worried for (how was I

going to care for her, what happens to her when I passed away, etc.)

so as a result a lot of people knew I had RA. I was told the same as

your MIL said by many. Not just my in-laws but also family to just

take whatever is given. Even when I was not treated for the pain,

everyone in my circle (I didn't pick them.) felt well if the doctor

isn't treating the pain, then the pain must not be that bad.

Everyone kept saying well you don't look sick. That was 5 years ago.

They can't say that now of course. The codition is really showing

now after 10 years. But years and years of that type of support does

take a toll on you, the physical and the emotional self. The good

thing is you have your immediate family AND you have found this web

site early. I know it isn't like being in person, but we are just a

mouse click away. take care.

love/peace,

Ebony

[Guest guest]

Sandie,

Sounds like your experiences are a lot like mine were. I am

indifferent now 10 years later and don't waste my time trying to

explain myself anymore. I decided that I needed to put all of my

energy into solving the mystery of pain relief myself, and not look

to the doctors to do that for me and not look to family to understand

what the pain was like or how my life had drastically changed. At

the time, I had a special needs child I was worried for (how was I

going to care for her, what happens to her when I passed away, etc.)

so as a result a lot of people knew I had RA. I was told the same as

your MIL said by many. Not just my in-laws but also family to just

take whatever is given. Even when I was not treated for the pain,

everyone in my circle (I didn't pick them.) felt well if the doctor

isn't treating the pain, then the pain must not be that bad.

Everyone kept saying well you don't look sick. That was 5 years ago.

They can't say that now of course. The codition is really showing

now after 10 years. But years and years of that type of support does

take a toll on you, the physical and the emotional self. The good

thing is you have your immediate family AND you have found this web

site early. I know it isn't like being in person, but we are just a

mouse click away. take care.

love/peace,

Ebony