Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 , Oh my goodness- you poor thing! I am sending you a bunch of cyber hugs (((((HUG)))). You sound as if you have been through the ringer! Is there a way to put in a complaint to your insurance company about these so called " doctors " ? I would do that immediately. I cannot even comprehend these docs and how flippant they are to us. Maybe you could go to the pharmacy and see what the pharmacist recommends for your hair. hang in there sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 So sorry you've had to go through all that you have, . Hair loss is frightening, but try to stay calm; you'll get through this. If you have to, you can vaguely explain to co-workers at the new job. People go to work all the time with different health conditions, some of them visible. I agree that it's not an ideal way to start a job, but the bottom line is, you're still you, and you bring valuable skills that are needed there. Courage! Sierra > ARRRGH! > > I got in to see my rheumatologist (and I use this term loosely) > yesterday regarding my hair loss. By then I had a swath about 1 1/2 > inches wide and 4 inches long of exposed scalp, with little 3-inch > frizzies stuck in here and there. Things will get better for > awhile, and I think I'm over the worst, then a bunch falls out, > again. He comes in, cocky as ever, and says that I wasn't on the > prednisone long enough or high enough dose to cause any hair loss. > He then asks ME if plaquenil has hair loss as a side effect. I > start to try to tell him that I understand it is very rare, from > what you guys pointed me to , but he cuts me off and excuses > himself. He's gone for about 5-10 minutes, and comes back, and says > that plaquenil *might* be the problem. He then says he's taking me > off all my arthritis meds, and to come back in two months and let > him know how I feel. EXCUSE ME? I start a new job in a week! I > can pretty much tell him how I will feel. He then tells me to put > some rogaine on my bald spot, and that " most of the hair usually > comes back " . Gee, thanks for the advise. > > So, I go home, hoping to have a message from my REAL doctor, but > nothing. I had called again in the morning to try to get in, but > she was booked (just got back from vacation). I had a wad of hair > on the seat of my car about the size of a soccer ball just form the > drive to and from the rheumy. I call again, and tell the nurse I'm > getting desperate. I had to pick up husband from work (his year old > car broke down, just to make things even MORE exciting), so gave my > cell phone number. She finally calls at about 5:30, apologizes for > the delay, and tells me to call the dermatologist in her building. > She also says to call her nurse tomorrow if I have any problems > getting in. OK, no prob...I feel better, now. I'd like to get into > her medical group, since they have all the charts computerized, and > they will see my entire history with her and Dr. Jerk. I want to > look into this further, because if it ISN'T the meds, waiting a week > to see if it gets better isn't gonna cut it, and my doctor agrees. > > So, this morning I get up (bald spot is now about 2x5 inches, and > getting awfully close to my front hairline, which is the only thing > that is hiding everything right now, since I can pull it back into a > ponytail over my offending scalp). Please remember that I am now > over 24 hours without prednisone (stopped cold turkey, but it was > only 5mg so not too bad) PLUS I've got PMS. Woohoo! I call the > dermatologist, and she says that they are double-booked, the doctors > will both be gone the rest of July, and she can squeeze me in > sometime in August. Ummmm....I really DON'T want to look like > Sinead O'Connor, so that won't work. I beg her to get me in today > or tomorrow. Nope, no-go. I call my doctor's office, but no one > knows where her nurse is, so I leave a message. I hang up and burst > into tears (remember, no pred and PMS, here, combined with stress > about my new job and not much support here at home). > > I also call my husband's doctor, whom I left because they are really > bad about answering messages, renewing prescriptions (including > heart meds), etc. I leave a message, whatever good that will do. > > My husband gets snotty about all this, prints out all the > dermatologists in our health plan, and gives it to me with a very > condenscending comment. And THEN he doesn't understand why I'm > pissed at him. GRRRRR! > > Anyway, I had to vent to someone, and you guys will understand my > frustration. Sorry to rant, but otherwise I think my head would > explode. > > Quote Link to comment Share on other sites More sharing options...
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