Re: Question for all.--- Help

[Guest guest]

,

your letter is so on target. I basically told the nurse at my PCP office

that if I was addicted I would not be going to them for the meds. DUH! Having

an

addict in my family, I know far too much on this subject and know that they

get their drugs from the streets. so yes, Sandie, 33, Mother, House wife,

lugging 3 kids with her is at the PCP office signing her life away to cover her

docs ass so she can get some stinky pain meds that dont work that great to begin

with! Lovely world we live in don't you think???

I for one can see how my status in society warrants them to watch me so

closely!

UGH UGH UGH

Thanks for understanding me and helping me see that I am not alone in this.

hugs

sandie

[Guest guest]

,

your letter is so on target. I basically told the nurse at my PCP office

that if I was addicted I would not be going to them for the meds. DUH! Having

an

addict in my family, I know far too much on this subject and know that they

get their drugs from the streets. so yes, Sandie, 33, Mother, House wife,

lugging 3 kids with her is at the PCP office signing her life away to cover her

docs ass so she can get some stinky pain meds that dont work that great to begin

with! Lovely world we live in don't you think???

I for one can see how my status in society warrants them to watch me so

closely!

UGH UGH UGH

Thanks for understanding me and helping me see that I am not alone in this.

hugs

sandie

[Guest guest]

Tawny,

Funny thing, when I was begging my PCP's nurse for help yesterday I said

" what about a Pain Management " doc and she said she would talk to the doc about

it

and get back to me. Well when I spoke with her again she said he would give

me the Lortabs and I had to sign that stupid paper but when I asked again about

the pain management she said the doc wanted me to try this way first. I think

my insurance would not be happy to pay for the pain management. I would love

to be drug free. before I got RA I barely even took aspirin. Go figure. I will

be going back to the Rheumy at least one more time, and I am going to ask him

if it is his practice to have his receptionists give out medical advice. That

should make for a lovely visit dont you think?? lol I am tired of being

stepped on. also , there is only one more rheumy in my medical plan(nice huh-

there

is only 3 in my plan and to think hubby pays our medical in FULL each month

to the tune of over 600.bucks out of our pocket) we get such substandard care.

this whole topic just makes me so angry. I wish for all of us to be pain free

but since we are not we are ENTITLED to the best care we can get.

hugs to all

sandie

[Guest guest]

Tawny,

Funny thing, when I was begging my PCP's nurse for help yesterday I said

" what about a Pain Management " doc and she said she would talk to the doc about

it

and get back to me. Well when I spoke with her again she said he would give

me the Lortabs and I had to sign that stupid paper but when I asked again about

the pain management she said the doc wanted me to try this way first. I think

my insurance would not be happy to pay for the pain management. I would love

to be drug free. before I got RA I barely even took aspirin. Go figure. I will

be going back to the Rheumy at least one more time, and I am going to ask him

if it is his practice to have his receptionists give out medical advice. That

should make for a lovely visit dont you think?? lol I am tired of being

stepped on. also , there is only one more rheumy in my medical plan(nice huh-

there

is only 3 in my plan and to think hubby pays our medical in FULL each month

to the tune of over 600.bucks out of our pocket) we get such substandard care.

this whole topic just makes me so angry. I wish for all of us to be pain free

but since we are not we are ENTITLED to the best care we can get.

hugs to all

sandie

[Guest guest]

Hell-OOOooo!

" Has anyone had an experience like this from their doctor? " (part of

a message from Sandie).

Sandie, unfortunately, this is an extremely common experience for

ANYONE with chronic pain... And BOY does it PISS ME OFF!

I wish there were some sort of Board, or Congressional Hearing, or

Rheumatalogical Symposium that I could address this very issue. I

would blast their asses! I am sorry for the language, but believe me

there really is not a word or words that are FOUL enough to describe

the foul situation that too many of us are in, because of THEM!

What about their " Hippocratic Oath " which states " ...and above

all, do no harm... "

Isn't it harmful to send a patient away " half " treated?

Or with the implication that they are wimpy, stupid, drug-seaking,

drug-selling, generally not trustworthy, and/or not valuable enough

to take the time to consider and discuss ALL of our options with?

(For you grammer buffs, I apologize for the dangling participle!)

And supposedly there was some legislation somewhere that indicated

that many chronic-pain sufferers are being undertreated; and that

said undertreatment will be likened to patient " neglect! " So for a

while, every type of MD you went to (from PCP, to the ER, and even to

your eye doctor, for Heaven's sake!) asked " Do you have any pain

today; and if so, how would you rate it..blah blah blah? " AS IF they

were actually going to do something about it! You see, they were

simply following a mandate from the Supreme Court about ineffective

pain management- that basically said every patient has (had) the

right to adequate and compassionate pain relief.

But after the staff asked us that question - they didn't know what

to do with our answers! And the reality of a long-term committment

with us set in: You cannot treat an individual for CHRONIC pain

without routine follow-up!

To be fair to the soft-spined, comfortable-in-their-practice-and-

therefore-do-not-want-to-rock-the-boat MD's, they really were put

between the proverbial rock and a hard place. On the one hand, they

were mandated to address pain issues - and then treat them

accordingly; while on the other hand, the DEA (Drug Enforcement

Agency) was (and has been) " cracking down " on the " indiscriminate

prescribing of opiate narcotics for the management of NON-MALIGNANT

pain. " So the soft-spined, comfortable-in-their-practice-and-

therefore-do-not-want-to-rock-the-boat MD's decided it was safer to

go back to NOT addressing and treating chronic pain, than have the

DEA jeapordizing their practice.

Most " Pain Management " MD's are HEROES in their own right, as they

are constantly putting themselves at risk of losing their practice -

because they have a strong conviction that what they are doing

(helping their suffering patients) is RIGHT -and they will FIGHT to

do it! And believe me, any and every Pain Specialist MD who is worth

their salt, has the DEA nosing around in their business.

" WHY? " You may ask, does the DEA bother with " legitimate " drug use

as that when a physician prescribes a medication to his patient?

!!!!!!!!!!!!!!!GOOD QUESTION!!!!!!!!!!!!!

This is supposed to alleviate the rampant drug abuse crises in our

society!

Loving you, but hating this situation,

> Hello All,

>

> Had an interesting day with both my pcp and rheumetologists office.

> Called my rheumy today to find out if they would give me a pain med

that

> WORKS. He gave me darvocet that does actually nothing but make me

tired. The

> lovely receptionist pulled my file and told me point blank " Dr.

Kapil only treats

> the RA and does not give any pain meds but darvocet " I told her

that the

> darvocet does not work and she then had the gall to tell me " he then

prescribes

> tylenol arthritis 3 times a day " I was steaming mad and told her

that if that

> worked I would have never even gone to their office. I then hung up

on her. she

> then said I could see my PCP for any pain I had.

> Later this morning I recieved a call from PCP nurse saying he would

not write

> me any more pain med prescriptions I should go to my rheumy for

that since he

> was now treating me. I almost cried right there on the phone. I am

having

> such a bad flare right now I cannot walk on the ball or front of my

left foot at

> all. It hurts so much. so now that I am favoring that foot My back

is starting

> to hurt because I am walking funnny.

> so then I asked the nurse for a referral to see a pain management

sepcialist.

> I told her I would not like to take any pain meds at all I just

want to feel

> good. she said she would get back to me. Later I called back and

she said the

> doc said he would prescribe me Lortab 5/500 3 tiems a day but that

I had to

> sign a waiver of sorts for controlled substances. something about

being

> responsible with the meds not selling them etc. I said to her " oh so

that I take full

> responsibility if I becime addicted " that is basically it. she then

said my doc

> wants me to see this rheumy one more time and see how it goes and

then if i

> want to see a new one to let them know.

> I feel so let down, i am actually begging people to help me_ i am

in so much

> pain.

> My question- has anyone gone through this with their doc efore? I

do not have

> any good feelings for this new rheumy at all and really want to

switch. I go

> back to him on aug 7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

>

[Guest guest]

Hell-OOOooo!

" Has anyone had an experience like this from their doctor? " (part of

a message from Sandie).

Sandie, unfortunately, this is an extremely common experience for

ANYONE with chronic pain... And BOY does it PISS ME OFF!

I wish there were some sort of Board, or Congressional Hearing, or

Rheumatalogical Symposium that I could address this very issue. I

would blast their asses! I am sorry for the language, but believe me

there really is not a word or words that are FOUL enough to describe

the foul situation that too many of us are in, because of THEM!

What about their " Hippocratic Oath " which states " ...and above

all, do no harm... "

Isn't it harmful to send a patient away " half " treated?

Or with the implication that they are wimpy, stupid, drug-seaking,

drug-selling, generally not trustworthy, and/or not valuable enough

to take the time to consider and discuss ALL of our options with?

(For you grammer buffs, I apologize for the dangling participle!)

And supposedly there was some legislation somewhere that indicated

that many chronic-pain sufferers are being undertreated; and that

said undertreatment will be likened to patient " neglect! " So for a

while, every type of MD you went to (from PCP, to the ER, and even to

your eye doctor, for Heaven's sake!) asked " Do you have any pain

today; and if so, how would you rate it..blah blah blah? " AS IF they

were actually going to do something about it! You see, they were

simply following a mandate from the Supreme Court about ineffective

pain management- that basically said every patient has (had) the

right to adequate and compassionate pain relief.

But after the staff asked us that question - they didn't know what

to do with our answers! And the reality of a long-term committment

with us set in: You cannot treat an individual for CHRONIC pain

without routine follow-up!

To be fair to the soft-spined, comfortable-in-their-practice-and-

therefore-do-not-want-to-rock-the-boat MD's, they really were put

between the proverbial rock and a hard place. On the one hand, they

were mandated to address pain issues - and then treat them

accordingly; while on the other hand, the DEA (Drug Enforcement

Agency) was (and has been) " cracking down " on the " indiscriminate

prescribing of opiate narcotics for the management of NON-MALIGNANT

pain. " So the soft-spined, comfortable-in-their-practice-and-

therefore-do-not-want-to-rock-the-boat MD's decided it was safer to

go back to NOT addressing and treating chronic pain, than have the

DEA jeapordizing their practice.

Most " Pain Management " MD's are HEROES in their own right, as they

are constantly putting themselves at risk of losing their practice -

because they have a strong conviction that what they are doing

(helping their suffering patients) is RIGHT -and they will FIGHT to

do it! And believe me, any and every Pain Specialist MD who is worth

their salt, has the DEA nosing around in their business.

" WHY? " You may ask, does the DEA bother with " legitimate " drug use

as that when a physician prescribes a medication to his patient?

!!!!!!!!!!!!!!!GOOD QUESTION!!!!!!!!!!!!!

This is supposed to alleviate the rampant drug abuse crises in our

society!

Loving you, but hating this situation,

> Hello All,

>

> Had an interesting day with both my pcp and rheumetologists office.

> Called my rheumy today to find out if they would give me a pain med

that

> WORKS. He gave me darvocet that does actually nothing but make me

tired. The

> lovely receptionist pulled my file and told me point blank " Dr.

Kapil only treats

> the RA and does not give any pain meds but darvocet " I told her

that the

> darvocet does not work and she then had the gall to tell me " he then

prescribes

> tylenol arthritis 3 times a day " I was steaming mad and told her

that if that

> worked I would have never even gone to their office. I then hung up

on her. she

> then said I could see my PCP for any pain I had.

> Later this morning I recieved a call from PCP nurse saying he would

not write

> me any more pain med prescriptions I should go to my rheumy for

that since he

> was now treating me. I almost cried right there on the phone. I am

having

> such a bad flare right now I cannot walk on the ball or front of my

left foot at

> all. It hurts so much. so now that I am favoring that foot My back

is starting

> to hurt because I am walking funnny.

> so then I asked the nurse for a referral to see a pain management

sepcialist.

> I told her I would not like to take any pain meds at all I just

want to feel

> good. she said she would get back to me. Later I called back and

she said the

> doc said he would prescribe me Lortab 5/500 3 tiems a day but that

I had to

> sign a waiver of sorts for controlled substances. something about

being

> responsible with the meds not selling them etc. I said to her " oh so

that I take full

> responsibility if I becime addicted " that is basically it. she then

said my doc

> wants me to see this rheumy one more time and see how it goes and

then if i

> want to see a new one to let them know.

> I feel so let down, i am actually begging people to help me_ i am

in so much

> pain.

> My question- has anyone gone through this with their doc efore? I

do not have

> any good feelings for this new rheumy at all and really want to

switch. I go

> back to him on aug 7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

>

[Guest guest]

OK, what if these docs had straight pins stuck all the way in- both

shoulders, both elbows, hips, knees, ankles, feet, and neck- sort of

like a human voodoo doll. Then tell them they have to work like that-

take care of their family, and have a social life, but they can't

take the pins out, EVER, and all they can take is tylenol because

LORD KNOWS we wouldn't want them to become a bunch of wild dope

fiends, right???? And by the way, they have to be pleasant, never

complain about their situation or their pain, and be all happy and

smiling so hard they practically have rainbows coming out their

butts!

I hate to tell our beloved government this, but we're not the ones

they need to worry about abusing drugs. We're all either still

working, or worked until we absolutely had no other option, we are

tax paying productive members of society, even though we don't get

treated that way too often. We can barely afford to pay for our meds

as it is, much less having money to blow on recreational drugs. Some

weeks it's, " do we buy groceries or do we pay for our meds? " Even

with insurance, if you're on 15 meds, the co-pays alone will kick

your butt. The political and medical powers that be, seem to be

totally clueless about chronic pain disorders.

Pisses me off too, .

Hugs from incredibly hot Dallas

Jane

> ,

>

> your letter is so on target. I basically told the nurse at my PCP

office

> that if I was addicted I would not be going to them for the meds.

DUH! Having an

> addict in my family, I know far too much on this subject and know

that they

> get their drugs from the streets. so yes, Sandie, 33, Mother, House

wife,

> lugging 3 kids with her is at the PCP office signing her life away

to cover her

> docs ass so she can get some stinky pain meds that dont work that

great to begin

> with! Lovely world we live in don't you think???

> I for one can see how my status in society warrants them to watch

me so

> closely!

> UGH UGH UGH

> Thanks for understanding me and helping me see that I am not alone

in this.

> hugs

> sandie

>

>

>

[Guest guest]

OK, what if these docs had straight pins stuck all the way in- both

shoulders, both elbows, hips, knees, ankles, feet, and neck- sort of

like a human voodoo doll. Then tell them they have to work like that-

take care of their family, and have a social life, but they can't

take the pins out, EVER, and all they can take is tylenol because

LORD KNOWS we wouldn't want them to become a bunch of wild dope

fiends, right???? And by the way, they have to be pleasant, never

complain about their situation or their pain, and be all happy and

smiling so hard they practically have rainbows coming out their

butts!

I hate to tell our beloved government this, but we're not the ones

they need to worry about abusing drugs. We're all either still

working, or worked until we absolutely had no other option, we are

tax paying productive members of society, even though we don't get

treated that way too often. We can barely afford to pay for our meds

as it is, much less having money to blow on recreational drugs. Some

weeks it's, " do we buy groceries or do we pay for our meds? " Even

with insurance, if you're on 15 meds, the co-pays alone will kick

your butt. The political and medical powers that be, seem to be

totally clueless about chronic pain disorders.

Pisses me off too, .

Hugs from incredibly hot Dallas

Jane

> ,

>

> your letter is so on target. I basically told the nurse at my PCP

office

> that if I was addicted I would not be going to them for the meds.

DUH! Having an

> addict in my family, I know far too much on this subject and know

that they

> get their drugs from the streets. so yes, Sandie, 33, Mother, House

wife,

> lugging 3 kids with her is at the PCP office signing her life away

to cover her

> docs ass so she can get some stinky pain meds that dont work that

great to begin

> with! Lovely world we live in don't you think???

> I for one can see how my status in society warrants them to watch

me so

> closely!

> UGH UGH UGH

> Thanks for understanding me and helping me see that I am not alone

in this.

> hugs

> sandie

>

>

>

[Guest guest]

Hi Sandie,

This is a nightmare! Have you thought about a pain clinic? I have

never been, but have heard many finding help there. Some doctors I

think are so scared to give their patients meds, they just let them

suffer. People with chronic pain have so many difficulties.

I have had two rheumys since being diagnosed with RA. They both are

great docs when helping their patients out with medications. They

can't do much for us, but give us meds to stop the progression of the

RA, and to help the pain. I do fear with all the stories I've heard

on the news lately, it's just going to get harder on us.

We all have pain, no matter what type of disease we have. There are

so many that suffer today. Don't give up Sandie, there is a doctor

out there to help you. I would not go back to your current doctor,

he's not really helping you, just keeping your body in pain, and

stressed out.

Sorry, for all your pain,

Tawny

> Hello All,

>

> Had an interesting day with both my pcp and rheumetologists office.

> Called my rheumy today to find out if they would give me a pain med

that

> WORKS. He gave me darvocet that does actually nothing but make me

tired. The

> lovely receptionist pulled my file and told me point blank " Dr.

Kapil only treats

> the RA and does not give any pain meds but darvocet " I told her

that the

> darvocet does not work and she then had the gall to tell me " he then

prescribes

> tylenol arthritis 3 times a day " I was steaming mad and told her

that if that

> worked I would have never even gone to their office. I then hung up

on her. she

> then said I could see my PCP for any pain I had.

> Later this morning I recieved a call from PCP nurse saying he would

not write

> me any more pain med prescriptions I should go to my rheumy for

that since he

> was now treating me. I almost cried right there on the phone. I am

having

> such a bad flare right now I cannot walk on the ball or front of my

left foot at

> all. It hurts so much. so now that I am favoring that foot My back

is starting

> to hurt because I am walking funnny.

> so then I asked the nurse for a referral to see a pain management

sepcialist.

> I told her I would not like to take any pain meds at all I just

want to feel

> good. she said she would get back to me. Later I called back and

she said the

> doc said he would prescribe me Lortab 5/500 3 tiems a day but that

I had to

> sign a waiver of sorts for controlled substances. something about

being

> responsible with the meds not selling them etc. I said to her " oh so

that I take full

> responsibility if I becime addicted " that is basically it. she then

said my doc

> wants me to see this rheumy one more time and see how it goes and

then if i

> want to see a new one to let them know.

> I feel so let down, i am actually begging people to help me_ i am

in so much

> pain.

> My question- has anyone gone through this with their doc efore? I

do not have

> any good feelings for this new rheumy at all and really want to

switch. I go

> back to him on aug 7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

>

[Guest guest]

Hi Sandie,

This is a nightmare! Have you thought about a pain clinic? I have

never been, but have heard many finding help there. Some doctors I

think are so scared to give their patients meds, they just let them

suffer. People with chronic pain have so many difficulties.

I have had two rheumys since being diagnosed with RA. They both are

great docs when helping their patients out with medications. They

can't do much for us, but give us meds to stop the progression of the

RA, and to help the pain. I do fear with all the stories I've heard

on the news lately, it's just going to get harder on us.

We all have pain, no matter what type of disease we have. There are

so many that suffer today. Don't give up Sandie, there is a doctor

out there to help you. I would not go back to your current doctor,

he's not really helping you, just keeping your body in pain, and

stressed out.

Sorry, for all your pain,

Tawny

> Hello All,

>

> Had an interesting day with both my pcp and rheumetologists office.

> Called my rheumy today to find out if they would give me a pain med

that

> WORKS. He gave me darvocet that does actually nothing but make me

tired. The

> lovely receptionist pulled my file and told me point blank " Dr.

Kapil only treats

> the RA and does not give any pain meds but darvocet " I told her

that the

> darvocet does not work and she then had the gall to tell me " he then

prescribes

> tylenol arthritis 3 times a day " I was steaming mad and told her

that if that

> worked I would have never even gone to their office. I then hung up

on her. she

> then said I could see my PCP for any pain I had.

> Later this morning I recieved a call from PCP nurse saying he would

not write

> me any more pain med prescriptions I should go to my rheumy for

that since he

> was now treating me. I almost cried right there on the phone. I am

having

> such a bad flare right now I cannot walk on the ball or front of my

left foot at

> all. It hurts so much. so now that I am favoring that foot My back

is starting

> to hurt because I am walking funnny.

> so then I asked the nurse for a referral to see a pain management

sepcialist.

> I told her I would not like to take any pain meds at all I just

want to feel

> good. she said she would get back to me. Later I called back and

she said the

> doc said he would prescribe me Lortab 5/500 3 tiems a day but that

I had to

> sign a waiver of sorts for controlled substances. something about

being

> responsible with the meds not selling them etc. I said to her " oh so

that I take full

> responsibility if I becime addicted " that is basically it. she then

said my doc

> wants me to see this rheumy one more time and see how it goes and

then if i

> want to see a new one to let them know.

> I feel so let down, i am actually begging people to help me_ i am

in so much

> pain.

> My question- has anyone gone through this with their doc efore? I

do not have

> any good feelings for this new rheumy at all and really want to

switch. I go

> back to him on aug 7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

>

[Guest guest]

Sandie,

Don't give up girl, will be praying for you, Tawny

> Tawny,

> Funny thing, when I was begging my PCP's nurse for help yesterday I

said

> " what about a Pain Management " doc and she said she would talk to

the doc about it

> and get back to me. Well when I spoke with her again she said he

would give

> me the Lortabs and I had to sign that stupid paper but when I asked

again about

> the pain management she said the doc wanted me to try this way

first. I think

> my insurance would not be happy to pay for the pain management. I

would love

> to be drug free. before I got RA I barely even took aspirin. Go

figure. I will

> be going back to the Rheumy at least one more time, and I am going

to ask him

> if it is his practice to have his receptionists give out medical

advice. That

> should make for a lovely visit dont you think?? lol I am tired of

being

> stepped on. also , there is only one more rheumy in my medical plan

(nice huh- there

> is only 3 in my plan and to think hubby pays our medical in FULL

each month

> to the tune of over 600.bucks out of our pocket) we get such

substandard care.

>

> this whole topic just makes me so angry. I wish for all of us to be

pain free

> but since we are not we are ENTITLED to the best care we can get.

>

> hugs to all

> sandie

>

>

>

[Guest guest]

Sandie,

Don't give up girl, will be praying for you, Tawny

> Tawny,

> Funny thing, when I was begging my PCP's nurse for help yesterday I

said

> " what about a Pain Management " doc and she said she would talk to

the doc about it

> and get back to me. Well when I spoke with her again she said he

would give

> me the Lortabs and I had to sign that stupid paper but when I asked

again about

> the pain management she said the doc wanted me to try this way

first. I think

> my insurance would not be happy to pay for the pain management. I

would love

> to be drug free. before I got RA I barely even took aspirin. Go

figure. I will

> be going back to the Rheumy at least one more time, and I am going

to ask him

> if it is his practice to have his receptionists give out medical

advice. That

> should make for a lovely visit dont you think?? lol I am tired of

being

> stepped on. also , there is only one more rheumy in my medical plan

(nice huh- there

> is only 3 in my plan and to think hubby pays our medical in FULL

each month

> to the tune of over 600.bucks out of our pocket) we get such

substandard care.

>

> this whole topic just makes me so angry. I wish for all of us to be

pain free

> but since we are not we are ENTITLED to the best care we can get.

>

> hugs to all

> sandie

>

>

>

[Guest guest]

Hey Jane,

I like your idea " human voodoo doll!!!! T

> > ,

> >

> > your letter is so on target. I basically told the nurse at my

PCP

> office

> > that if I was addicted I would not be going to them for the meds.

> DUH! Having an

> > addict in my family, I know far too much on this subject and know

> that they

> > get their drugs from the streets. so yes, Sandie, 33, Mother,

House

> wife,

> > lugging 3 kids with her is at the PCP office signing her life

away

> to cover her

> > docs ass so she can get some stinky pain meds that dont work that

> great to begin

> > with! Lovely world we live in don't you think???

> > I for one can see how my status in society warrants them to watch

> me so

> > closely!

> > UGH UGH UGH

> > Thanks for understanding me and helping me see that I am not

alone

> in this.

> > hugs

> > sandie

> >

> >

> >

[Guest guest]

Hey Jane,

I like your idea " human voodoo doll!!!! T

> > ,

> >

> > your letter is so on target. I basically told the nurse at my

PCP

> office

> > that if I was addicted I would not be going to them for the meds.

> DUH! Having an

> > addict in my family, I know far too much on this subject and know

> that they

> > get their drugs from the streets. so yes, Sandie, 33, Mother,

House

> wife,

> > lugging 3 kids with her is at the PCP office signing her life

away

> to cover her

> > docs ass so she can get some stinky pain meds that dont work that

> great to begin

> > with! Lovely world we live in don't you think???

> > I for one can see how my status in society warrants them to watch

> me so

> > closely!

> > UGH UGH UGH

> > Thanks for understanding me and helping me see that I am not

alone

> in this.

> > hugs

> > sandie

> >

> >

> >

[Guest guest]

Thanks Jane,

I laughed so loud with that one. I hope I didn't wake the neighbors.

Funnny!! LOL:, especially the part about the rainbows. I thought that

was hilarious for some reason.

I shouldn't think this way but like the boy in the movie " powder " you

just want to touch them to convey what the pain feels like. I think

they will figure out really fast that tylenol doesn't cut AND neither

does the other stuff they give. It will probably send them to the labs

themselves researching a medication to really help us.

Because I think now they leave everything up to the pharmaceuticals to

tell them what works and what's addictive. I personally can't see how

someone in excruciating pain will become addicted. In most severe

cases it just keeps the flares at bay but doesn't remove the daily pain.

But what do I know, I haven't taken anything stronger than Motrin and

they feel like I am taking a water pill. They don't even touch the

pain.

I really just wanted to say I agree and thanks for making me laugh.

Now I can start my day. Have a good day!

love/peace,

Ebony

[Guest guest]

Thanks Jane,

I laughed so loud with that one. I hope I didn't wake the neighbors.

Funnny!! LOL:, especially the part about the rainbows. I thought that

was hilarious for some reason.

I shouldn't think this way but like the boy in the movie " powder " you

just want to touch them to convey what the pain feels like. I think

they will figure out really fast that tylenol doesn't cut AND neither

does the other stuff they give. It will probably send them to the labs

themselves researching a medication to really help us.

Because I think now they leave everything up to the pharmaceuticals to

tell them what works and what's addictive. I personally can't see how

someone in excruciating pain will become addicted. In most severe

cases it just keeps the flares at bay but doesn't remove the daily pain.

But what do I know, I haven't taken anything stronger than Motrin and

they feel like I am taking a water pill. They don't even touch the

pain.

I really just wanted to say I agree and thanks for making me laugh.

Now I can start my day. Have a good day!

love/peace,

Ebony

[Guest guest]

7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

Hi Sandie,

I received your response from my last message, but I just found the

original message and my heart goes out to you. And yes a lot of us

have been there. Some say they don't have that problem, but keep in

mind RA can be mild, moderate, or severe, and obviously in our

case " off the charts! " The remedy is always the same for each level

of intensity. It is like if you have a small cut, they give you a

band-aid, and if you have a medium cut they give you the same band-

aid, and if you have a huge gaping wound,... you guessed it, you get

the exact same band-aid that didn't work adequately for when the cut

was small. RA cannot be treated and rare go into remission because

of the treatments available. If they did we would all be lining up

at that doctor's door from all around the world.. So if the

receptionist said he was only going to treat the RA and not the pain,

then he is treating half the problem. He needs to treat the whole

problem.. I am surprised they didn't just put you on 100 mg (I'm

exaggerating) of prednisone a day! They pass that stuff out like

candy and it is more addictive than any drug on the market and more

damaging to the entire body, not just the system, than anything under

the sun, diabetes, glaucoma, osteoporosis, just to name a few of the

things it can cause.

I guess we are all pretty worked up for you, Sandie. lol

You have my love, prayers, and support.

love/peace,

Ebony

[Guest guest]

7th and I want to tell him off.

> what would you all do in this situation?

>

> any and all help is greatly appreciated.

> hugs to all

> sandie

>

>

Hi Sandie,

I received your response from my last message, but I just found the

original message and my heart goes out to you. And yes a lot of us

have been there. Some say they don't have that problem, but keep in

mind RA can be mild, moderate, or severe, and obviously in our

case " off the charts! " The remedy is always the same for each level

of intensity. It is like if you have a small cut, they give you a

band-aid, and if you have a medium cut they give you the same band-

aid, and if you have a huge gaping wound,... you guessed it, you get

the exact same band-aid that didn't work adequately for when the cut

was small. RA cannot be treated and rare go into remission because

of the treatments available. If they did we would all be lining up

at that doctor's door from all around the world.. So if the

receptionist said he was only going to treat the RA and not the pain,

then he is treating half the problem. He needs to treat the whole

problem.. I am surprised they didn't just put you on 100 mg (I'm

exaggerating) of prednisone a day! They pass that stuff out like

candy and it is more addictive than any drug on the market and more

damaging to the entire body, not just the system, than anything under

the sun, diabetes, glaucoma, osteoporosis, just to name a few of the

things it can cause.

I guess we are all pretty worked up for you, Sandie. lol

You have my love, prayers, and support.

love/peace,

Ebony

[Guest guest]

SAndie,

You are lucky that you have THREE rheummies on the list. I have TWO

rheummies in the area total and one that was a total quack moved away....so ALL

the

patients in this area have no choice but to go to the ONE rhemmy.

There is a critical shortage of doctors in the subspecialty of rheumatology.

According to what my doctor has told me is that is is only going to get

worst. Many of the remaining docs have gotten VERY demanding because they KNOW

they can take advantage of the situation.

There is one other rheummy about 60 miles away from me. He accepts NO

insurance except for the local hospital's HMO plan. Everyone else pays cash

and

files on there own for reimbursement from there ins company. Talk about a

financial strain. Most of the visits with him are at least $200-600 a visit.

He

is an excellent doc......but his practice is booming so someone is paying it.

Toni

In a message dated 7/12/05 6:07:15 P.M. Central Daylight Time,

writes:

Date: Tue, 12 Jul 2005 18:56:00 EDT

From: slmcc93@...

Subject: Re: Re: Question for all.--- Help

Tawny,

Funny thing, when I was begging my PCP's nurse for help yesterday I said

" what about a Pain Management " doc and she said she would talk to the doc

about it

and get back to me. Well when I spoke with her again she said he would give

me the Lortabs and I had to sign that stupid paper but when I asked again

about

the pain management she said the doc wanted me to try this way first. I

think

my insurance would not be happy to pay for the pain management. I would love

to be drug free. before I got RA I barely even took aspirin. Go figure. I

will

be going back to the Rheumy at least one more time, and I am going to ask

him

if it is his practice to have his receptionists give out medical advice.

That

should make for a lovely visit dont you think?? lol I am tired of being

stepped on. also , there is only one more rheumy in my medical plan(nice

huh- there

is only 3 in my plan and to think hubby pays our medical in FULL each month

to the tune of over 600.bucks out of our pocket) we get such substandard

care.

this whole topic just makes me so angry. I wish for all of us to be pain

free

but since we are not we are ENTITLED to the best care we can get.

hugs to all

sandie

[Guest guest]

SAndie,

You are lucky that you have THREE rheummies on the list. I have TWO

rheummies in the area total and one that was a total quack moved away....so ALL

the

patients in this area have no choice but to go to the ONE rhemmy.

There is a critical shortage of doctors in the subspecialty of rheumatology.

According to what my doctor has told me is that is is only going to get

worst. Many of the remaining docs have gotten VERY demanding because they KNOW

they can take advantage of the situation.

There is one other rheummy about 60 miles away from me. He accepts NO

insurance except for the local hospital's HMO plan. Everyone else pays cash

and

files on there own for reimbursement from there ins company. Talk about a

financial strain. Most of the visits with him are at least $200-600 a visit.

He

is an excellent doc......but his practice is booming so someone is paying it.

Toni

In a message dated 7/12/05 6:07:15 P.M. Central Daylight Time,

writes:

Date: Tue, 12 Jul 2005 18:56:00 EDT

From: slmcc93@...

Subject: Re: Re: Question for all.--- Help

Tawny,

Funny thing, when I was begging my PCP's nurse for help yesterday I said

" what about a Pain Management " doc and she said she would talk to the doc

about it

and get back to me. Well when I spoke with her again she said he would give

me the Lortabs and I had to sign that stupid paper but when I asked again

about

the pain management she said the doc wanted me to try this way first. I

think

my insurance would not be happy to pay for the pain management. I would love

to be drug free. before I got RA I barely even took aspirin. Go figure. I

will

be going back to the Rheumy at least one more time, and I am going to ask

him

if it is his practice to have his receptionists give out medical advice.

That

should make for a lovely visit dont you think?? lol I am tired of being

stepped on. also , there is only one more rheumy in my medical plan(nice

huh- there

is only 3 in my plan and to think hubby pays our medical in FULL each month

to the tune of over 600.bucks out of our pocket) we get such substandard

care.

this whole topic just makes me so angry. I wish for all of us to be pain

free

but since we are not we are ENTITLED to the best care we can get.

hugs to all

sandie