Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Hi to all I was wondering if any of you snow or water ski? The last time I went water skiing, I had the gross hemuteria and very horrible flank pains. I was sick for a couple of days. Is this part of the IgAN? Now, it is snow skiing season and I really want to go, but I don;t want to feel like that again I hope that I will still be able to ski. Thanks to everyone for sharing their stories, it really is helpful. Health & Happiness Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Dear Robyn Ummmmm difficult one to answer this.....I horse ride, well I did, as I have my own horse. However as you can imagine like most sports, it was a very vigourous and strenous hobby, particularly as I used to Cross Country, and I have to admit to suffering rotten flank pain after a ride. On the advice of my medics they asked me to give this up, particularly given the risk of severe injury should I fall......and my Nephrologist has advised against all contact sports, or activity that would result in strain on the kidney region.....however I stress this was advice, not a request. My angle on it is, whilst you know you have to be sensible, you can't live life wrapped in cotton wool, and your body soon tells you when you have overdone things. Sking from what little I know of it, looks like a strenous sport, and of course the risk of falling must be high, albeit onto soft snow!!! If I were you I would probably continue, but do be guided by your medics. Sorry to sound as if it is all bad news.....but on the positive side, exercise certainly can't make the condition any worse, but maybe new gentle pursuits may one day be necessary. For instance, I swim, and do light aerobic exercise. This of course is just my own personal view to your question, I respect anyone else's comments of course, and at the end of the day, the decision has to be yours. Best wishes exercise Hi to all I was wondering if any of you snow or water ski? The last time I went water skiing, I had the gross hemuteria and very horrible flank pains. I was sick for a couple of days. Is this part of the IgAN? Now, it is snow skiing season and I really want to go, but I don;t want to feel like that again I hope that I will still be able to ski. Thanks to everyone for sharing their stories, it really is helpful. Health & Happiness Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Robyn, I wholeheartedly agree with 's reply. Aerobic exercise is very much encouraged, but sports that can really jarr the body (and the kidneys) may not be advisable. It's advice, and therefore an individual choice we have to make, and there are degrees of risk that we may decide is acceptable. For example, if every time you ski you end up with gross hematuria, or go into nephrotic syndrome or something, then you might decide to take up something else. On the other hand, if you ski and nothing happens, and you're not sick for a week afterwards, then you can decide that it's worth it for the exercice, fresh air and just for the pleasure of it. If you're a 16 year old guy for example, nobody will stop you from playing tackle football, but you may decide to play touch football instead, or you may decide that baseball presents an acceptable risk of injury or trauma to the kidneys. There is no list I know of that lists specific prohibited sports. It's just a matter of common sense and personal decision. Here's another good example: Some years back, I decided it would be fun to play broom ball on weekends with the guys. I thought, hey, broomball is pretty mild, just running around chasing an inflated ball and hitting it around with a hardened broom. Well, when frozen in cold weather, that ball is hard as a rock (it's like a basketball only smaller). One night, we we're playing on an outside rink in in freezing weather. It just happened that time that some guy really hit the ball hard somewhere close behind me, and the ball it me square in the middle of the back and really, really hard. I had flank pain for many days, and while it wasn't visible hematuria, my blood in urine lab result went way high compared to normal. So I decided that broomball was no longer an acceptable sport for me, and never played it again. But I continue to ride my bike. Pierre exercise > > > Hi to all > > I was wondering if any of you snow or water ski? The last time I went > water skiing, I had the gross hemuteria and very horrible flank > pains. > I was sick for a couple of days. Is this part of the IgAN? Now, it is > snow skiing season and I really want to go, but I don;t want to feel > like that again I hope that I will still be able to ski. Thanks to > everyone for sharing their stories, it really is helpful. > > Health & Happiness > Robyn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Pierre, what is your feeling about steroids. is on 80mg every day for a week, then every other day for three months and then 40mg every other day for maybe up to a year. What is his doctor trying to do? I have to say, though, it has dramatically improved his condition. His creatinine is now 1.2 and only trace blood. I know there are many long-term side effects. I respect and trust his doctor. > >Reply-To: iga-nephropathyegroups >To: <iga-nephropathyegroups> >Subject: Re: exercise >Date: Wed, 3 Jan 2001 16:32:22 -0500 > >Robyn, I wholeheartedly agree with 's reply. Aerobic exercise is very >much encouraged, but sports that can really jarr the body (and the kidneys) >may not be advisable. It's advice, and therefore an individual choice we >have to make, and there are degrees of risk that we may decide is >acceptable. For example, if every time you ski you end up with gross >hematuria, or go into nephrotic syndrome or something, then you might >decide >to take up something else. On the other hand, if you ski and nothing >happens, and you're not sick for a week afterwards, then you can decide >that >it's worth it for the exercice, fresh air and just for the pleasure of it. >If you're a 16 year old guy for example, nobody will stop you from playing >tackle football, but you may decide to play touch football instead, or you >may decide that baseball presents an acceptable risk of injury or trauma to >the kidneys. There is no list I know of that lists specific prohibited >sports. It's just a matter of common sense and personal decision. > >Here's another good example: >Some years back, I decided it would be fun to play broom ball on weekends >with the guys. I thought, hey, broomball is pretty mild, just running >around >chasing an inflated ball and hitting it around with a hardened broom. Well, >when frozen in cold weather, that ball is hard as a rock (it's like a >basketball only smaller). One night, we we're playing on an outside rink in >in freezing weather. It just happened that time that some guy really hit >the >ball hard somewhere close behind me, and the ball it me square in the >middle >of the back and really, really hard. I had flank pain for many days, and >while it wasn't visible hematuria, my blood in urine lab result went way >high compared to normal. So I decided that broomball was no longer an >acceptable sport for me, and never played it again. But I continue to ride >my bike. > >Pierre > > > exercise > > > > > > Hi to all > > > > I was wondering if any of you snow or water ski? The last time I went > > water skiing, I had the gross hemuteria and very horrible flank > > pains. > > I was sick for a couple of days. Is this part of the IgAN? Now, it is > > snow skiing season and I really want to go, but I don;t want to feel > > like that again I hope that I will still be able to ski. Thanks to > > everyone for sharing their stories, it really is helpful. > > > > Health & Happiness > > Robyn > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 I'm an avid skiier also. I usually go at least a couple sundays a year when I go from Boston to San Francisco on travel, stopping in Salt Lake City. Then I usually go for a few days in April with my family to Lake Tahoe. This is the first year I'll be doing it with IgA, so it should be an experience. It's the one thing that I really love to do, and I can do it with my kids, who love it also. At least I ski reasonably, and don't really fall down... Walt > Hi to all > > I was wondering if any of you snow or water ski? The last time I went > water skiing, I had the gross hemuteria and very horrible flank > pains. > I was sick for a couple of days. Is this part of the IgAN? Now, it is > snow skiing season and I really want to go, but I don;t want to feel > like that again I hope that I will still be able to ski. Thanks to > everyone for sharing their stories, it really is helpful. > > Health & Happiness > Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Pamela: I'm on 80mg every day. I find the steroids to be helpful also, although I did seem to have some kind of reaction to another drug (probably lasix). I've been advised to drop my Lasix and my Fish Oil pills until the rash goes away, and then see which one causes it again... From what I can see, the prednisone is what really does the trick in reducing these conditions. Walt > Pierre, what is your feeling about steroids. is on 80mg every day for > a week, then every other day for three months and then 40mg every other day > for maybe up to a year. What is his doctor trying to do? I have to say, > though, it has dramatically improved his condition. His creatinine is now > 1.2 and only trace blood. I know there are many long-term side effects. I > respect and trust his doctor. > > > >From: " Pierre L " <pierre.lachaine@s...> > >Reply-To: iga-nephropathyegroups > >To: <iga-nephropathyegroups> > >Subject: Re: exercise > >Date: Wed, 3 Jan 2001 16:32:22 -0500 > > > >Robyn, I wholeheartedly agree with 's reply. Aerobic exercise is very > >much encouraged, but sports that can really jarr the body (and the kidneys) > >may not be advisable. It's advice, and therefore an individual choice we > >have to make, and there are degrees of risk that we may decide is > >acceptable. For example, if every time you ski you end up with gross > >hematuria, or go into nephrotic syndrome or something, then you might > >decide > >to take up something else. On the other hand, if you ski and nothing > >happens, and you're not sick for a week afterwards, then you can decide > >that > >it's worth it for the exercice, fresh air and just for the pleasure of it. > >If you're a 16 year old guy for example, nobody will stop you from playing > >tackle football, but you may decide to play touch football instead, or you > >may decide that baseball presents an acceptable risk of injury or trauma to > >the kidneys. There is no list I know of that lists specific prohibited > >sports. It's just a matter of common sense and personal decision. > > > >Here's another good example: > >Some years back, I decided it would be fun to play broom ball on weekends > >with the guys. I thought, hey, broomball is pretty mild, just running > >around > >chasing an inflated ball and hitting it around with a hardened broom. Well, > >when frozen in cold weather, that ball is hard as a rock (it's like a > >basketball only smaller). One night, we we're playing on an outside rink in > >in freezing weather. It just happened that time that some guy really hit > >the > >ball hard somewhere close behind me, and the ball it me square in the > >middle > >of the back and really, really hard. I had flank pain for many days, and > >while it wasn't visible hematuria, my blood in urine lab result went way > >high compared to normal. So I decided that broomball was no longer an > >acceptable sport for me, and never played it again. But I continue to ride > >my bike. > > > >Pierre > > > > > > exercise > > > > > > > > > Hi to all > > > > > > I was wondering if any of you snow or water ski? The last time I went > > > water skiing, I had the gross hemuteria and very horrible flank > > > pains. > > > I was sick for a couple of days. Is this part of the IgAN? Now, it is > > > snow skiing season and I really want to go, but I don;t want to feel > > > like that again I hope that I will still be able to ski. Thanks to > > > everyone for sharing their stories, it really is helpful. > > > > > > Health & Happiness > > > Robyn > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 I'm wary to give actual medical advice, since I'm not qualified to do that, but it seems that steroids make sense when a patient like your son has had an acute glomerulonephritis. It certainly seems to have worked so far. When he goes into the alternate day 40 mg regimen, from what I've heard, this minimises the side effects, and it's a fairly common practise. It sounds like his doctor is trying to really beat back the proteinuria and the inflammation so that it doesn't flare-up again or become rapidly-progressive. Nephrologists don't usually prescribe steroids lightly, so I'm sure he has his reasons. I'm not too enthusiastic about prednisone when it's just a mild case of chronic IgAN, where it's used to " delay " progression. I think in that scenario, the harm may outweigh the benefits. But in a case like your son's, it's probably appropriate at this time. He may not need a whole year of it though, but I expect the doctor will make that judgement as he goes along. Just make sure that never decides to stop it suddenly on his own. Prednisone has to be tapered off gradually when stopped, or else adrenal gland failure can result. Pierre exercise > > > > > > > > > > > > Hi to all > > > > > > > > I was wondering if any of you snow or water ski? The last time > I went > > > > water skiing, I had the gross hemuteria and very horrible flank > > > > pains. > > > > I was sick for a couple of days. Is this part of the IgAN? Now, > it is > > > > snow skiing season and I really want to go, but I don;t want to > feel > > > > like that again I hope that I will still be able to ski. > Thanks to > > > > everyone for sharing their stories, it really is helpful. > > > > > > > > Health & Happiness > > > > Robyn > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 I'm glad to hear that skiing is OK. We are going for spring break in March to Park City, Utah. It really hasn't dawned on me that may not be able to do the things he is used to doing. > >Reply-To: iga-nephropathyegroups >To: iga-nephropathyegroups >Subject: Re: exercise >Date: Thu, 04 Jan 2001 01:17:38 -0000 > >I'm an avid skiier also. I usually go at least a couple sundays a >year when I go from Boston to San Francisco on travel, stopping in >Salt Lake City. > >Then I usually go for a few days in April with my family to Lake >Tahoe. > >This is the first year I'll be doing it with IgA, so it should be an >experience. > >It's the one thing that I really love to do, and I can do it with my >kids, who love it also. > >At least I ski reasonably, and don't really fall down... > >Walt > > > > Hi to all > > > > I was wondering if any of you snow or water ski? The last time I >went > > water skiing, I had the gross hemuteria and very horrible flank > > pains. > > I was sick for a couple of days. Is this part of the IgAN? Now, it >is > > snow skiing season and I really want to go, but I don;t want to >feel > > like that again I hope that I will still be able to ski. Thanks >to > > everyone for sharing their stories, it really is helpful. > > > > Health & Happiness > > Robyn > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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