Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 I'm not sure anyone in this group has taken Cellcept. If anybody has, let us know if you can. As far as I can tell, most members in this group tend not to have the rapidly progressive type of gn where drugs like Cellcept might be called for. Pierre Cellcept > Has anyone else tried a cycle of Cellcept yet? Did you have any side > effects? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 I did take it. I did a two months cycle to see how it would affect my test results. On April 11 I will see my Neph and post what difference it made. > Re: Cellcept > > > I'm not sure anyone in this group has taken Cellcept. If anybody > has, let us > know if you can. As far as I can tell, most members in this group tend not > to have the rapidly progressive type of gn where drugs like Cellcept might > be called for. > Pierre > > Cellcept > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > effects? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Will, Byron We are using Cellcept for one month, 1g twice a day, without noticeable side effect. This is short term experience. Cellcept is part of a complete treatment with corticoid and ACE. Will, are you getting what you expected from Cellcept? Is it used used as IGAN treatment or post renal transplant? Thanks jean Claude Will Cayo28/03/01 21:05wcayo@... > Byron, > > I am on 1g of Cellcept twice daily. I have been on Cellcept for about six > months and have noticed no side effects. > > Will > > Cellcept > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > effects? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 They put me on it to treat IGAN. It is to early to tell if it is doing the job or not. Will Cellcept > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > effects? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I had done a two month cycle, and I the only side effect was that I became very sensative to the sun. I burned easily and my eyes were very sensative. My neph told me it was all in my head but I checked with a pharmacist and that is a possible side effect. On a side note, do people with IGAN get a lot of sore throats? I always do. I get a sore throat with flu like symtoms about three times a year. -Byron > Cellcept > > > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > effects? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Lucky you! I get flu like symptoms from day to day. Today however is my day off, I have a blood nose instead! Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: RE: Cellcept Date: Tue, 3 Apr 2001 14:29:41 -0400 I had done a two month cycle, and I the only side effect was that I became very sensative to the sun. I burned easily and my eyes were very sensative. My neph told me it was all in my head but I checked with a pharmacist and that is a possible side effect. On a side note, do people with IGAN get a lot of sore throats? I always do. I get a sore throat with flu like symtoms about three times a year. -Byron > Cellcept > > > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > effects? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Hi I too suffer from flu like symptoms a fair bit, not daily like yourself, but every 3-4 weeks or so. I saw an ENT consultant last year, who gave me a full work-up including CT scan of the head. His conclusions were, that the virus I had (which has been bandied about was the cause of my IGAN!), which hospitalised me for 10 days, had damaged my sinus canals, it had also damaged my right inner ear, and I have lost 30% hearing in that ear. Surgery was an option, but came with so many risks, that I chose to pass on it, It also came with no guarantee that it would last. Nowadays I suffer from irritatingly regular nose-bleeds, and sneezing fits. Prior to this I never had any problems in this area. Puzzling isn't it? Regards Cellcept > > > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > effects? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Indeed , indeed! My current symptoms are ususally mild which I think is probably better than being really sick once a month like I was. Even so, on some days I think that if I was in the farming area I'd be standing amoungst the cows and sheep saying " pick me, pick me. " (Has it really only been 6 weeks since the first outbreak?) You probably remember that I don't want to do the steroid thing until I've been 2 months with out any symptoms... And you probably remember my opinion of London... I have thought about seeing an ENT when I get back to Australia (have to be proactive now that I know my new kidney is going to be be a pizza topping). I still think that it's just one big flu that is not going away. Your experiences reinforce just how delicate our bodies really are. It will be interesting to find out more if anyone ever does any serious research. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 LOL , now come on surely a mouth full of ulcers, pus filled nostrils, cant be more favourable than flu!!!! Seriously yes only six weeks, and no sign of abating, horrid stuff. Yes I recall your opinion of London, and cant really blame you for that. As to serious research, if you recall my Neph is doing a study into the fatigue aspect, and to which I volunteered. Shock horror, I was not accepted why? Because my condition is not advanced enough!!!! They obviously want someone so sick, they are bound to be fatigued aren't they. Pretty poor excuse if you ask me, the real reason being my ability to question them, they want someone who will be totally submissive and unquestioning. That rules me out then LOL!!!! Keep well, and promise keep in touch when back in Oz ok. Best wishes RE: Cellcept Indeed , indeed! My current symptoms are ususally mild which I think is probably better than being really sick once a month like I was. Even so, on some days I think that if I was in the farming area I'd be standing amoungst the cows and sheep saying " pick me, pick me. " (Has it really only been 6 weeks since the first outbreak?) You probably remember that I don't want to do the steroid thing until I've been 2 months with out any symptoms... And you probably remember my opinion of London... I have thought about seeing an ENT when I get back to Australia (have to be proactive now that I know my new kidney is going to be be a pizza topping). I still think that it's just one big flu that is not going away. Your experiences reinforce just how delicate our bodies really are. It will be interesting to find out more if anyone ever does any serious research. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 , I can't believe they rejected you for the research! What is it they actually want to know? We are all tired surely that deserves investigation no matter how advanced the situation. Makes me so mad! I had a video conference interview for a job in my company in Oz yesterday (it was awful - I had to be in the office at 0700). Seemed to go well so I have my fingers crossed, but if it doesn't happen I will just quit when the time comes! _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 , has your neph ever admitted that this is connected to IGAN? > Cellcept > > > > > > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > > effects? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 No he hasn't Byron. At first I thought it was something to do with giving up smoking, but neph treats it as co-incidence. I don't think he likes me because I said I wouldn't take the steroids until I could go a couple of months without a cold - he gave me the kind of look that indicated he thought I was mentally incompetant. In his letter to the GP he said that I was resistant to the idea of steroids so he obviously doesn't feel that it is significant. GP understands (I will be sad to leave him behind). Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: RE: Cellcept Date: Wed, 4 Apr 2001 08:49:57 -0400 , has your neph ever admitted that this is connected to IGAN? > Cellcept > > > > > > > > > Has anyone else tried a cycle of Cellcept yet? Did you have any side > > > effects? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.