To Trudy

[Guest guest]

Hi Trudy,

Thank you for your reply.

We have that in common. I developed the RA 2 years before we

married,

my daughter was already 3, his biological daughter as well and she

was regressing fast at that point. So we went into the marriage

with a lot of extras. However, I have learned

over the years, we can't all have the fairytale marriage. lol I

would

love it if we could go walking as a couple and I have joined spas

over the years, hoping we could exercise as a family but that has

been a no-go. So, I have learned to look elsewhere to try to have a

life outside of marriage and yes there are times when I would like a

response here on the board AND there are times when I just want to

read what everyone else is

talking

about. I just want to be among others who understand and I am still

feeling that out right now. I think there are a few here from a

group

I left before my daughter passed away and my experience was not good

with that group. I am not sure but just by looking at the

signatures,

I think so.

I am a changed persone but still not up for added stress. Losing

someone you love changes you forever. I always felt I was a

compassionate person but I think I have become even more so. You

learn what is important in life real fast. I thought the illness

had

done that but apparently I had some more growing to do spiritually

and

my loss has done that for me. I am not sure why I have had the

experiences I have had and what I have listed is only a fraction. I

try not to focus on them too much at this stage of my life. I try

to

make the negative - a positive somehow, if not by any other way but

to share and educate by my experiences.

You have a story, I have a story, we all do and I would love to hear

them; we are all on this journey of life or we wouldn't be here

sharing our pain of RA and I understand that we

are all trying to do the best we can and sometimes it isn't what

others expect from us but life didn't come with a script. As the

old

saying goes, this isn't a dress rehearsal. It's the real thing.

I always say as long as we are breathing, there is hope. Right?

Love and peace to you,

Ebony

> Ebony,

> Wow you sure have been through a lot as of late, My prayers are

with

you. You were right when you say RA is not marriage friendly. My

hubby

knew before we married and he still has a hard time with it. He just

cant understand no matter how much he wants to. Thats why this group

is so great we all totally understand what each other is going

through.Even tho we may not always post a response to each post (WE

hurt too!!)we still care and understand. I hope you have a great

day.

>

Trudy

>