Re: HELP WANTED: Friend who understands...from jane!

[Guest guest]

Hi , I'm jane from Texas. H'mmm. and Jane. Wow, we sound

like the main characters in a first grade reader! Now if we find Bob

and Spot, we're hooked up! Seriously, welcome to the group and

blessings to you. I have been lax in keeping up with the group, mea

culpa, my youngest child just graduated, then left this morning for

Tokyo as a summer missionary so we've been in a whirlwind of " stuff " .

Wow, a Desert Storm vet. I salute you. I have a dear friend who was a

nurse in Vietnam during that war. Yall don't get near enough credit.

Any way, welcome aboard ! We look forward to getting to know you

better.

Jane

> Dear RA Group;

> I probably belong here as well as anywhere else...if you all

will

> have me that is! I have Lupus, OA, Osteopenia, Post Thyroid CA,

> Fibromyalgia, severe sleep apnea, ideopathic sinus tachycardia, and

> of course- Depression! It sounds like a lot when you write it all

> down, but as you all probably know, a lot of this stuff goes

> together, and just makes for one different and difficult life!

> Different from who we used to be, and who we wanted to be.

Difficult

> because it's hard...to give up your career, and vitality, and

> independence in some cases. It's hard to live with chronic pain,

> and " living " the " claim " years: You know- trying to get your due

via

> SS, employer-based insurance, VA comp, etc and constantly having

> to " prove " your disability instead of being able to do

the " healthy "

> thing, and get on with this different and difficult life.

> I was DX was LUPUS in 1994, after years of severe arthralgias,

> a " fetal " demise @ 20 weeks, petechial rashes, and then the big

guns:

> Brain MRI showing multiple lacunar infarcts, and positive lab work-

> once they finally started looking in the right direction. Have had

> Fibromyalgia since 1989- before it was even called " fibro " (it was

> called various forms of 'myositis'). Thyroid Cancer in 1995. Had to

> finally cease and desist my beloved (and much grieved loss of my)

> Nurse/Manager position in 1999, and have been trying to get SS and

VA

> comp since. Actually, been trying to get VA comp since 1991, when I

> got out of the AF Nurse Corps during Operation Desert Storm.

Finally

> after 14 years- I am getting evaluated by the VA MD's (5 different

> appointments, no less!)during the next 3 weeks. So I guess I'm a

> little more depressed and anxious, and possibly cynnical,than usual-

> because I just dont have ANY faith in the VA system doing the right

> thing, and I just can't deal with that.

> Anyway- thats a little bit about me. I look forward to getting

to

> know you all.

[Guest guest]

Hi , I'm jane from Texas. H'mmm. and Jane. Wow, we sound

like the main characters in a first grade reader! Now if we find Bob

and Spot, we're hooked up! Seriously, welcome to the group and

blessings to you. I have been lax in keeping up with the group, mea

culpa, my youngest child just graduated, then left this morning for

Tokyo as a summer missionary so we've been in a whirlwind of " stuff " .

Wow, a Desert Storm vet. I salute you. I have a dear friend who was a

nurse in Vietnam during that war. Yall don't get near enough credit.

Any way, welcome aboard ! We look forward to getting to know you

better.

Jane

> Dear RA Group;

> I probably belong here as well as anywhere else...if you all

will

> have me that is! I have Lupus, OA, Osteopenia, Post Thyroid CA,

> Fibromyalgia, severe sleep apnea, ideopathic sinus tachycardia, and

> of course- Depression! It sounds like a lot when you write it all

> down, but as you all probably know, a lot of this stuff goes

> together, and just makes for one different and difficult life!

> Different from who we used to be, and who we wanted to be.

Difficult

> because it's hard...to give up your career, and vitality, and

> independence in some cases. It's hard to live with chronic pain,

> and " living " the " claim " years: You know- trying to get your due

via

> SS, employer-based insurance, VA comp, etc and constantly having

> to " prove " your disability instead of being able to do

the " healthy "

> thing, and get on with this different and difficult life.

> I was DX was LUPUS in 1994, after years of severe arthralgias,

> a " fetal " demise @ 20 weeks, petechial rashes, and then the big

guns:

> Brain MRI showing multiple lacunar infarcts, and positive lab work-

> once they finally started looking in the right direction. Have had

> Fibromyalgia since 1989- before it was even called " fibro " (it was

> called various forms of 'myositis'). Thyroid Cancer in 1995. Had to

> finally cease and desist my beloved (and much grieved loss of my)

> Nurse/Manager position in 1999, and have been trying to get SS and

VA

> comp since. Actually, been trying to get VA comp since 1991, when I

> got out of the AF Nurse Corps during Operation Desert Storm.

Finally

> after 14 years- I am getting evaluated by the VA MD's (5 different

> appointments, no less!)during the next 3 weeks. So I guess I'm a

> little more depressed and anxious, and possibly cynnical,than usual-

> because I just dont have ANY faith in the VA system doing the right

> thing, and I just can't deal with that.

> Anyway- thats a little bit about me. I look forward to getting

to

> know you all.

[Guest guest]

Hey Jane!

Ya I remember that reader. I think it was called " The Sullivan

Reader! " Oh, what memories.....when life was good and pain free, huh!

Thanks for the response, and the salute! It's been a while since I've

been saluted. And now going thru the VA " comp " evals feels like

anything BUT a salute.

Congrats on your daughter's choice to go to Tokyo for mission work.

That's wonderful! You must feel so proud and content. And anxious!

But boy, what a life-experience she will have.

Thanks for the warm welcome!

> > Dear RA Group;

> > I probably belong here as well as anywhere else...if you all

> will

> > have me that is! I have Lupus, OA, Osteopenia, Post Thyroid CA,

> > Fibromyalgia, severe sleep apnea, ideopathic sinus tachycardia,

and

> > of course- Depression! It sounds like a lot when you write it all

> > down, but as you all probably know, a lot of this stuff goes

> > together, and just makes for one different and difficult life!

> > Different from who we used to be, and who we wanted to be.

> Difficult

> > because it's hard...to give up your career, and vitality, and

> > independence in some cases. It's hard to live with chronic pain,

> > and " living " the " claim " years: You know- trying to get your due

> via

> > SS, employer-based insurance, VA comp, etc and constantly having

> > to " prove " your disability instead of being able to do

> the " healthy "

> > thing, and get on with this different and difficult life.

> > I was DX was LUPUS in 1994, after years of severe arthralgias,

> > a " fetal " demise @ 20 weeks, petechial rashes, and then the big

> guns:

> > Brain MRI showing multiple lacunar infarcts, and positive lab

work-

> > once they finally started looking in the right direction. Have

had

> > Fibromyalgia since 1989- before it was even called " fibro " (it

was

> > called various forms of 'myositis'). Thyroid Cancer in 1995. Had

to

> > finally cease and desist my beloved (and much grieved loss of my)

> > Nurse/Manager position in 1999, and have been trying to get SS

and

> VA

> > comp since. Actually, been trying to get VA comp since 1991, when

I

> > got out of the AF Nurse Corps during Operation Desert Storm.

> Finally

> > after 14 years- I am getting evaluated by the VA MD's (5

different

> > appointments, no less!)during the next 3 weeks. So I guess I'm a

> > little more depressed and anxious, and possibly cynnical,than

usual-

>

> > because I just dont have ANY faith in the VA system doing the

right

> > thing, and I just can't deal with that.

> > Anyway- thats a little bit about me. I look forward to

getting

> to

> > know you all.

[Guest guest]

Hey Jane!

Ya I remember that reader. I think it was called " The Sullivan

Reader! " Oh, what memories.....when life was good and pain free, huh!

Thanks for the response, and the salute! It's been a while since I've

been saluted. And now going thru the VA " comp " evals feels like

anything BUT a salute.

Congrats on your daughter's choice to go to Tokyo for mission work.

That's wonderful! You must feel so proud and content. And anxious!

But boy, what a life-experience she will have.

Thanks for the warm welcome!

> > Dear RA Group;

> > I probably belong here as well as anywhere else...if you all

> will

> > have me that is! I have Lupus, OA, Osteopenia, Post Thyroid CA,

> > Fibromyalgia, severe sleep apnea, ideopathic sinus tachycardia,

and

> > of course- Depression! It sounds like a lot when you write it all

> > down, but as you all probably know, a lot of this stuff goes

> > together, and just makes for one different and difficult life!

> > Different from who we used to be, and who we wanted to be.

> Difficult

> > because it's hard...to give up your career, and vitality, and

> > independence in some cases. It's hard to live with chronic pain,

> > and " living " the " claim " years: You know- trying to get your due

> via

> > SS, employer-based insurance, VA comp, etc and constantly having

> > to " prove " your disability instead of being able to do

> the " healthy "

> > thing, and get on with this different and difficult life.

> > I was DX was LUPUS in 1994, after years of severe arthralgias,

> > a " fetal " demise @ 20 weeks, petechial rashes, and then the big

> guns:

> > Brain MRI showing multiple lacunar infarcts, and positive lab

work-

> > once they finally started looking in the right direction. Have

had

> > Fibromyalgia since 1989- before it was even called " fibro " (it

was

> > called various forms of 'myositis'). Thyroid Cancer in 1995. Had

to

> > finally cease and desist my beloved (and much grieved loss of my)

> > Nurse/Manager position in 1999, and have been trying to get SS

and

> VA

> > comp since. Actually, been trying to get VA comp since 1991, when

I

> > got out of the AF Nurse Corps during Operation Desert Storm.

> Finally

> > after 14 years- I am getting evaluated by the VA MD's (5

different

> > appointments, no less!)during the next 3 weeks. So I guess I'm a

> > little more depressed and anxious, and possibly cynnical,than

usual-

>

> > because I just dont have ANY faith in the VA system doing the

right

> > thing, and I just can't deal with that.

> > Anyway- thats a little bit about me. I look forward to

getting

> to

> > know you all.