Re: Fw: Prognosis and post nasal drip from the doctors

[Guest guest]

The day before Mom died I noticed her throat was coated in white. When I showed

the

nurse, she swabbed it and showed me it was pure white saliva. Mom had stopped

swallowing completely by then. I wonder if swabbing it out for your Mom would

be more

or less of a discomfort for her.

>

> In response to the problems Mom has with mucus, the doctors offered this

> explanation which makes perfect sense and also explains why the usual meds

> one takes for those problems don't help her. Drs. Severt and San Luciano

> explained to us that just as the LBD has slowed down all of Mom's other

> autonomic functions, she no longer swallows as often as a normal person. So

> the saliva, mucus, food particles, etc. all build up at the back of her

> throat until there is so much there that she has to spit it up. She feels

> like it is post nasal drip build up and that's what we thought because we

> had no other explanation, but this makes perfect sense including why when

> she does swallow all that she ends up with a queasy stomach. They also

> recommended natural crystallized ginger candy (I found some on Amazon.com)

> to help settle her stomach.

>

> I emailed Dr. San Luciano at 9:00 Tuesday night to thank them for the

> wonderful experience Tuesday morning and to ask about prognosis which I did

> not want to ask about in front of Mom. Her response was in my email box

> when I got up Wednesday morning!! WOW!!! I've put her response about Mom

> below. My Mom was an extremely athletic person all her life and up until

> the LBD hit hard she walked several miles a day, rode her bike several miles

> a day, and swam every day. Even now, with my oldest daughter's help, we get

> her out for a walk of a 1/2 mile to a mile every day. It's a slow walk, but

> still a walk and that is the best way to preserve motor function and to

> prevent pneumonia, blood clots, etc. (Or as I said to my husband, Mom has

> taken such good care of her body that it will long outlive her brain and I

> don't think she ever wanted that.)

>

> Anyway, here is the doctor's response to me about Mom's prognosis:

>

> >>The question about the future is at the same time the most important

> question that most of our patients and relatives would like to have answers

> to, and at the same time, the most difficult for us to answer. Everybody is

> quite different with this condition and it is hard to predict what the

> future will bring. We know from prior experience that the disease will

> progress, leading to further loss of cognitive function, but how fast and

> how much it is really hard to say. We usually look to what has happened in

> the past for a specific patient in order to make assumptions for the future.

> So that the rate of progression that you have observed over the past few

> years is probably what will happen in the next few years. I think that

> considering that her motor function is quite well preserved, she will be

> able to function well for a long time. <<

>

> Gladys

>

>

[Guest guest]

wow! I was telling the doctor that the " mucus " is pure white! That

explains everything! I'll talk to Mom about the swabbing.

Gladys

-- Re: Fw: Prognosis and " post nasal drip " from the

doctors

The day before Mom died I noticed her throat was coated in white. When I

showed the

nurse, she swabbed it and showed me it was pure white saliva. Mom had

stopped

swallowing completely by then. I wonder if swabbing it out for your Mom

would be more

or less of a discomfort for her.

>

> In response to the problems Mom has with mucus, the doctors offered this

> explanation which makes perfect sense and also explains why the usual meds

> one takes for those problems don't help her. Drs. Severt and San Luciano

> explained to us that just as the LBD has slowed down all of Mom's other

> autonomic functions, she no longer swallows as often as a normal person.

So

> the saliva, mucus, food particles, etc. all build up at the back of her

> throat until there is so much there that she has to spit it up. She feels

> like it is post nasal drip build up and that's what we thought because we

> had no other explanation, but this makes perfect sense including why when

> she does swallow all that she ends up with a queasy stomach. They also

> recommended natural crystallized ginger candy (I found some on Amazon.com)

> to help settle her stomach.

>

> I emailed Dr. San Luciano at 9:00 Tuesday night to thank them for the

> wonderful experience Tuesday morning and to ask about prognosis which I

did

> not want to ask about in front of Mom. Her response was in my email box

> when I got up Wednesday morning!! WOW!!! I've put her response about

Mom

> below. My Mom was an extremely athletic person all her life and up until

> the LBD hit hard she walked several miles a day, rode her bike several

miles

> a day, and swam every day. Even now, with my oldest daughter's help, we

get

> her out for a walk of a 1/2 mile to a mile every day. It's a slow walk,

but

> still a walk and that is the best way to preserve motor function and to

> prevent pneumonia, blood clots, etc. (Or as I said to my husband, Mom has

> taken such good care of her body that it will long outlive her brain and I

> don't think she ever wanted that.)

>

> Anyway, here is the doctor's response to me about Mom's prognosis:

>

> >>The question about the future is at the same time the most important

> question that most of our patients and relatives would like to have

answers

> to, and at the same time, the most difficult for us to answer. Everybody

is

> quite different with this condition and it is hard to predict what the

> future will bring. We know from prior experience that the disease will

> progress, leading to further loss of cognitive function, but how fast and

> how much it is really hard to say. We usually look to what has happened in

> the past for a specific patient in order to make assumptions for the

future.

> So that the rate of progression that you have observed over the past few

> years is probably what will happen in the next few years. I think that

> considering that her motor function is quite well preserved, she will be

> able to function well for a long time. <<

>

> Gladys

>

>

[Guest guest]

Gladys,

Part of it can be acid reflux possibly too?

" stimtimminss "

Sent by: To

LBDcaregivers@yah LBDcaregivers

oogroups.com cc

Subject

04/10/2008 10:53 Re: Fw: Prognosis

AM and " post nasal drip " from the

doctors

Please respond to

LBDcaregivers@yah

oogroups.com

The day before Mom died I noticed her throat was coated in white. When I

showed the

nurse, she swabbed it and showed me it was pure white saliva. Mom had

stopped

swallowing completely by then. I wonder if swabbing it out for your Mom

would be more

or less of a discomfort for her.

>

> In response to the problems Mom has with mucus, the doctors offered this

> explanation which makes perfect sense and also explains why the usual

meds

> one takes for those problems don't help her. Drs. Severt and San Luciano

> explained to us that just as the LBD has slowed down all of Mom's other

> autonomic functions, she no longer swallows as often as a normal person.

So

> the saliva, mucus, food particles, etc. all build up at the back of her

> throat until there is so much there that she has to spit it up. She

feels

> like it is post nasal drip build up and that's what we thought because we

> had no other explanation, but this makes perfect sense including why when

> she does swallow all that she ends up with a queasy stomach. They also

> recommended natural crystallized ginger candy (I found some on

Amazon.com)

> to help settle her stomach.

>

> I emailed Dr. San Luciano at 9:00 Tuesday night to thank them for the

> wonderful experience Tuesday morning and to ask about prognosis which I

did

> not want to ask about in front of Mom. Her response was in my email box

> when I got up Wednesday morning!! WOW!!! I've put her response about

Mom

> below. My Mom was an extremely athletic person all her life and up until

> the LBD hit hard she walked several miles a day, rode her bike several

miles

> a day, and swam every day. Even now, with my oldest daughter's help, we

get

> her out for a walk of a 1/2 mile to a mile every day. It's a slow walk,

but

> still a walk and that is the best way to preserve motor function and to

> prevent pneumonia, blood clots, etc. (Or as I said to my husband, Mom

has

> taken such good care of her body that it will long outlive her brain and

I

> don't think she ever wanted that.)

>

> Anyway, here is the doctor's response to me about Mom's prognosis:

>

> >>The question about the future is at the same time the most important

> question that most of our patients and relatives would like to have

answers

> to, and at the same time, the most difficult for us to answer. Everybody

is

> quite different with this condition and it is hard to predict what the

> future will bring. We know from prior experience that the disease will

> progress, leading to further loss of cognitive function, but how fast and

> how much it is really hard to say. We usually look to what has happened

in

> the past for a specific patient in order to make assumptions for the

future.

> So that the rate of progression that you have observed over the past few

> years is probably what will happen in the next few years. I think that

> considering that her motor function is quite well preserved, she will be

> able to function well for a long time. <<

>

> Gladys

>

>

[Guest guest]

Also (though I'm sure the nurse and doctor would have known immediately),

make sure it isn't Thrush.

" Gladys Stefany "

<agoramom@...

> To

Sent by: <LBDcaregivers >

LBDcaregivers@yah cc

oogroups.com

Subject

Re: Re: Fw:

04/10/2008 11:09 Prognosis and " post nasal drip "

AM from the doctors

Please respond to

LBDcaregivers@yah

oogroups.com

wow! I was telling the doctor that the " mucus " is pure white! That

explains everything! I'll talk to Mom about the swabbing.

Gladys

-- Re: Fw: Prognosis and " post nasal drip " from the

doctors

The day before Mom died I noticed her throat was coated in white. When I

showed the

nurse, she swabbed it and showed me it was pure white saliva. Mom had

stopped

swallowing completely by then. I wonder if swabbing it out for your Mom

would be more

or less of a discomfort for her.

>

> In response to the problems Mom has with mucus, the doctors offered this

> explanation which makes perfect sense and also explains why the usual

meds

> one takes for those problems don't help her. Drs. Severt and San Luciano

> explained to us that just as the LBD has slowed down all of Mom's other

> autonomic functions, she no longer swallows as often as a normal person.

So

> the saliva, mucus, food particles, etc. all build up at the back of her

> throat until there is so much there that she has to spit it up. She

feels

> like it is post nasal drip build up and that's what we thought because we

> had no other explanation, but this makes perfect sense including why when

> she does swallow all that she ends up with a queasy stomach. They also

> recommended natural crystallized ginger candy (I found some on

Amazon.com)

> to help settle her stomach.

>

> I emailed Dr. San Luciano at 9:00 Tuesday night to thank them for the

> wonderful experience Tuesday morning and to ask about prognosis which I

did

> not want to ask about in front of Mom. Her response was in my email box

> when I got up Wednesday morning!! WOW!!! I've put her response about

Mom

> below. My Mom was an extremely athletic person all her life and up until

> the LBD hit hard she walked several miles a day, rode her bike several

miles

> a day, and swam every day. Even now, with my oldest daughter's help, we

get

> her out for a walk of a 1/2 mile to a mile every day. It's a slow walk,

but

> still a walk and that is the best way to preserve motor function and to

> prevent pneumonia, blood clots, etc. (Or as I said to my husband, Mom

has

> taken such good care of her body that it will long outlive her brain and

I

> don't think she ever wanted that.)

>

> Anyway, here is the doctor's response to me about Mom's prognosis:

>

> >>The question about the future is at the same time the most important

> question that most of our patients and relatives would like to have

answers

> to, and at the same time, the most difficult for us to answer. Everybody

is

> quite different with this condition and it is hard to predict what the

> future will bring. We know from prior experience that the disease will

> progress, leading to further loss of cognitive function, but how fast and

> how much it is really hard to say. We usually look to what has happened

in

> the past for a specific patient in order to make assumptions for the

future.

> So that the rate of progression that you have observed over the past few

> years is probably what will happen in the next few years. I think that

> considering that her motor function is quite well preserved, she will be

> able to function well for a long time. <<

>

> Gladys

>

>

[Guest guest]

Hi Gladys,

So great to hear that your Mom should be around for a long time.

Mom's (Dads/Husband/Wives,etc.)are precious jewels that you just

don't want to lose!

LBDcaregivers , " Gladys Stefany " wrote:

>

> In response to the problems Mom has with mucus, the doctors offered

this

> explanation which makes perfect sense and also explains why the

usual meds

> one takes for those problems don't help her. Drs. Severt and San

Luciano

> explained to us that just as the LBD has slowed down all of Mom's

other

> autonomic functions, she no longer swallows as often as a normal

person. So

> the saliva, mucus, food particles, etc. all build up at the back of

her

> throat until there is so much there that she has to spit it up.

She feels

> like it is post nasal drip build up and that's what we thought

because we

> had no other explanation, but this makes perfect sense including

why when

> she does swallow all that she ends up with a queasy stomach. They

also

> recommended natural crystallized ginger candy (I found some on

Amazon.com)

> to help settle her stomach.

>

> I emailed Dr. San Luciano at 9:00 Tuesday night to thank them for

the

> wonderful experience Tuesday morning and to ask about prognosis

which I did

> not want to ask about in front of Mom. Her response was in my

email box

> when I got up Wednesday morning!! WOW!!! I've put her response

about Mom

> below. My Mom was an extremely athletic person all her life and up

until

> the LBD hit hard she walked several miles a day, rode her bike

several miles

> a day, and swam every day. Even now, with my oldest daughter's

help, we get

> her out for a walk of a 1/2 mile to a mile every day. It's a slow

walk, but

> still a walk and that is the best way to preserve motor function

and to

> prevent pneumonia, blood clots, etc. (Or as I said to my husband,

Mom has

> taken such good care of her body that it will long outlive her

brain and I

> don't think she ever wanted that.)

>

> Anyway, here is the doctor's response to me about Mom's prognosis:

>

> >>The question about the future is at the same time the most

important

> question that most of our patients and relatives would like to have

answers

> to, and at the same time, the most difficult for us to answer.

Everybody is

> quite different with this condition and it is hard to predict what

the

> future will bring. We know from prior experience that the disease

will

> progress, leading to further loss of cognitive function, but how

fast and

> how much it is really hard to say. We usually look to what has

happened in

> the past for a specific patient in order to make assumptions for

the future.

> So that the rate of progression that you have observed over the

past few

> years is probably what will happen in the next few years. I think

that

> considering that her motor function is quite well preserved, she

will be

> able to function well for a long time. <<

>

> Gladys

>

>