Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Fredrik, I don't recall where you are but if Omacor is available I would use it instead. You only take four since it is 92% and filtered. There are fewer side effects like, fish burps and body odor. I know this is gross.... Just being honest. It was very hard for me to take the dosage, yes really 12. One study showed a lower dose of omacor was fine. If you can't get Omacor I'd probably start with six. I'd take with food to try and minimize burping. I take my last Omacor dose at bedtime. Please keep an eye on your cholestral/lipid panel. You don't want to trade one problem for another. See message 2541 in the archive. We had a brief conversation on the topic. Good luck! Cyndi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 I only take 3 a day - one with each meal. 180HDA & 120EPA Reply-To: iga-nephropathy To: iga-nephropathy Subject: fishoil? Date: Wed, 20 Jun 2001 10:51:23 -0000 _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. I´ve read on the IgAn foundation´s site about fishoil. They say that for fishoil to have any effect you have to eat 12 capsules a day. I went to a shop that deals with fishoil and they told me that I SHOULD NOT eat that many. My nephrologist tells me it´s okay if I try fishoil for half a year to see if I think it works. Has anybody tried fishoil? How many should I eat? I´m avarege height, and a bit below avarege weight.Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 I started with the 12 per day, but a recent study has said that 6 might work equally well. Right after Pierre posted the study my Neph dropped his recommendation to 6 also. The IgAN Foundation website is not nearly up to date as this group is. We may all have different opinions on possible treatments but the one thing I think we all agree on is blood pressure. You blood pressure is very, very important. My average blood pressure was 125 over 90 and my neph still put me on 5mg of Zestril (an ACE inhibitor). I now run a perfect 120 over 80. Back to the fish oil. I take 2 at my first, third, and fifth meal of the day ( I eat 5-6 small meals a day) and at that level I get no side effects (burping and that kind of stuff). I don't know if it will help in the end, but I'm willing to try anything that's not too radical to keep me in the non-renal failure group. -----Original Message-----From: fredrik folke Sent: Wednesday, June 20, 2001 6:51 AMTo: iga-nephropathy Subject: fishoil? I´ve read on the IgAn foundation´s site about fishoil. They say that for fishoil to have any effect you have to eat 12 capsules a day. I went to a shop that deals with fishoil and they told me that I SHOULD NOT eat that many. My nephrologist tells me it´s okay if I try fishoil for half a year to see if I think it works. Has anybody tried fishoil? How many should I eat? I´m avarege height, and a bit below avarege weight. Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 I think Russ does a good job for someone working full-time. I like his links to other sights. He's like me. There isn't much I won't do to stop his disease. I'm not afraid of long shots. I search all the research sites myself on a regular basis. I don't want the research to be filtered through someone else who may not know important things about me (ie: weight control bring an issue.) Cyn > > > > In fact, you could search the message archive for " fish oil " . It > > > has been > > > > discussed extensively, with all of your questions already > > answered > > > in > > > > detail. > > > > Pierre > > > > > > > > > > > > > > Actually, let me rephrase that. Don't search for fish oil. Just > > type > > > fish in the search box for best results. Search results are listed > > in > > > reverser order, that is, with the newest messages first. I > > guarantee > > > you will find much more up to date info there than on the IgAN > > > Foundation website, and if you take the time to read everything, > > you > > > will know everything that is currently known about fish oil. > > > > > > If you still have questions, let us know. > > > > > > One of these days, I should gather up all those fish oil messages > > in > > > a special archive. > > > > > > Pierre > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 I certainly hope you aren't suggesting that I filter information to support a certain point of view. Pierre > I think Russ does a good job for someone working full-time. I like > his links to other sights. He's like me. There isn't much I won't > do to stop his disease. I'm not afraid of long shots. > > I search all the research sites myself on a regular basis. I don't > want the research to be filtered through someone else who may not > know important things about me (ie: weight control bring an issue.) > > Cyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 ???!!! Of course not! When we both read a study we may have different takes on it. If I read a study of sufficient size and reputable source that told me to stand on my head, or use a hyperbaric chamber to slow/stop the disease I would do it. What is relevent to me may not be relevant to you. I would even consider taking some actions based on anecdotal info. For example I went for accupunture (sp) asap after shingles were diagnosed. I ended my pain with a few days. This site gets it strength from the diversity of views and life experience of its members. Cyndi > > I think Russ does a good job for someone working full-time. I like > > his links to other sights. He's like me. There isn't much I won't > > do to stop his disease. I'm not afraid of long shots. > > > > I search all the research sites myself on a regular basis. I don't > > want the research to be filtered through someone else who may not > > know important things about me (ie: weight control bring an issue.) > > > > Cyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 > Hi fredrik. When you asked about fish oil, I suggested you search the message archive for " fish " . My only intention in doing this was to make you aware of all the reading material that is available about this from past discussions, which you can read at your leisure. To summarise though, the most important thing to know about fish oil is that the oil in question is labelled (fish oil), usually from cold water fish, such as salmon. It is completely different than cod liver oil. Taking cod liver oil in the quantities suggested for fish oil would be toxic. Taking fish oil for IgAN is based on still continuing clinical trials conducted by Dr. Donadio and centered at the Mayo Clinic in the U.S.A. The first report about this was published in the New England Journal of Medicine in 1995. It suggested that there was some delaying of renal failure by taking 12 one gram capsules of fish oil per day. Those capsules contained the essential fatty acids EPA and DHA in the quantities of 180 and 120 respectively. A more recent report from the same organisation suggested that 6 capsules per day might be sufficient. Anyway, this was discussed in more detail within the past two months, so, if you search for " fish " you should find some relevant messages. I would just repost it for you, but I don't have the messages I wrote on my hard drive after I had to reformat it a few weeks ago. In my opinion, if your nephrologist suggests taking fish oil, he or she should tell you exactly which kind, because there are a number of different products on the market now with different and more concentrated amounts of EPA/DHA. The amount of EPA/DHA per day is what counts, not the actual number of gelatin capsules. I am especially not sure what is on the market in European countries. You should also know that there have been conflicting results from different studies with respect to fish oil. Most nephrologists who prescribe it seem to do it on the basis that it may help and it can't hurt. It's not really clear, with the current state of knowledge about it, just how helpful it is. If you have any questions about it, please don't hesitate to ask. You will also find in the message archive many messages with tips and advice on how to take fish oil for minimal side effects (mainly fishy burps). The basic idea is to keep the fish oil in the refrigerator and take it cold, with cold water, before a meal (not after). Some feel that taken this way, the capsules dissolve further down in the digestive tract and thus cause fewer problems. I don't take fish oil myself, so I can't say one way or another whether this works. But many other members of the group do take fish oil. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Cyndi, Sorry I misinterpreted your remarks. Please accept my apologies. No hard feelings, Ok? Pierre > > > I think Russ does a good job for someone working full-time. I > like > > > his links to other sights. He's like me. There isn't much I > won't > > > do to stop his disease. I'm not afraid of long shots. > > > > > > I search all the research sites myself on a regular basis. I > don't > > > want the research to be filtered through someone else who may not > > > know important things about me (ie: weight control bring an > issue.) > > > > > > Cyn > > > Quote Link to comment Share on other sites More sharing options...
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