Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Hi Debs: Good to hear from you, but sorry about what you have been going through - AGAIN - will this never stop? You are such a trooper and so strong in spirit to have been able to go through all that you have for so long. Your PCP sounds like a jerk - can you dump him? I am glad that you are back out of the hospital -and send white healing light your way to speed your recovery. Please pass on best wishes to your daughter and her fiance - and, as always, big hugs and prayers are being sent your way, my friend. Kathe in CA --- BadKneesDebs@... wrote: > Hello to all of my dear RA family members. > > Well, I just got home from another hospital > confinement. I have changed > doctors and have some new information. They did a > MRI of my right " no knee " and > saw infectious fluid and the nex day or maybe the > same day (( was pretty much > out of things due to medication) they cultured my > right leg and I have a very > deep bone infection (mrsa) growing in mass > quantities. I also cultured out a > bladder infection. So they put me on 2 IV > antibiotics and then put me in an > isolation room. They also discovered that due to > the various diseases I am > fighting and the medications used to treat them, I > was walking around with a > hemogobin of 5 and virtually no iron in my system. > So more IV's and blood > transfusions. I finally stabilized and was able to > be released home with home nursing > care, IV's and procrit injections twice a week. I > also have to see a > hemotologist to start IV iron infusions asap. The > IV iron cannot be given at home > due to the danger of the infusions and my depleted > condition. The new doctor is > very straight forward and talks to me that way also > because she knows how > much I have been thru and have heard everythng > before. This infection was pretty > evere n it's own right. My temp went up to 102.4 > and a sugar count of over > 400. As always, we had our problems in getting me > admitted because my PCP > REFUSED to treat saying that he would be busy all > week long and that they should > get a hospitalist from my insurance company. Using > this approach was actually > the best thing that could have happened for me. Oh > well !!!!! > > We are very busy right now getting ready for > 's wedding on July 9, > 2005. She has gotten her dress and her two sisters > are ging to be co-maids of > honor and they got their dresses. Don't know where > those babies went to that I > brought home from the hospital!!!!!!! It is going > to be a very small family > affair of about 50 people. There is nothing like > seeing a happy bride to > forget your own problems. > > I am in a lot of pain rght now, some of the redness > has disappeared, but it > is still soooooo painful. Please forgive me for my > frequent absence, but you > know that you are all close to my mind and my heart. > Yikes, this really hurrts > and they are slowly talking about possible > amputation. Just trying to take > one day at a time. > > Gentle, tender angel hugs to each and everyone of > you!!!!!! > > > Debs in FL > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Hi Deb, so glad to see a post from you. I was not glad, however, to read about your continuing problems with your knee. Do you have any idea when they anticipate operating? I am saying lots of prayers to ensure you enjoy 's wedding.Deb, I will be right in the operating room with you in spirit. You have suffered for such a long time and bore it with grace and dignity all along the way and I have good vibes about your future. Hugs June ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.7.10/25 - Release Date: 6/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Haha…I love it Taekwon Do! Can you say U GO GIRL? I have lots to tell you…do you have a microphone on your PC? We can chat there in MSN if you do. Save our fingers J. IF not, that’s ok I can type. IM looking forward to talking again. I to have a busy schedule although I am at home, I need to be working but day care costs, all the stress from school, advocating then there is the family issues. Maybe I should skip the taekwon do to be cheaper and go straight into beating someone up? LOL…just kidding. Ever thought your x may have autism? Probably his problem, untreated. That’s what happened to my X (Devins father) he went untreated to what they believed was bipolar which could have been. I still see he had great potential; very highly IQ’d that never amounted to nothing! Now he is deceased to our surprise, overdose on a prescription drug, Oxycotin. This man had a rare back disease in need of surgery, finaly found someone to operate but the pain was to severe before he made it to the operating table, overdosed on the pain med prescribed. I had friends to say before he passed, due to the hell he put us through, calling all hours, threats, taking me in and out of court, same as you….not because he was the better parent but because he could. My son was a possession not his son that he was hurting by doing this. My son was at the age of 3 and 4 during this time. I left him when my son was a baby; I knew I couldn’t live life with a child as the way he wanted to. My friends would say during these awful times, “you would be better off if he were dead” little did they know, that was what would happen. Sadly, he died and I can say it is sad; it was a waste of a human life. A man so intelligent that lead a life of misery probably because he was untreated, misdiagnoised etc. I know it is my duty to see my child through as his parent. I see the road my son will take if I don’t, right in the same path as his real father. It’s very emotional for me and to not be able to get anywhere in my town with the right resources frustrates me to the point it’s driving me mad because I am so determined to help my son not become what his father was. The father I now understand, sadly it’s taken his death for me to better understand but now I know how to help my son. The things were masqued with the father, it wasn’t just bipolar. His mother tells me now, In school when he was a kid the teachers would complain his behaviours, they wanted him tested. She took him to be tested they replied: “there is nothing wrong with him except he is testing on genius levels, he is just to smart” the mother didn’t know any better or maybe she did but I know it was more difficult back in her day to get Autistic dx. Now I have his son to raise alone, I do get angry, frustrated the same as I did when he was alive. I didn’t mean to ramble! Sorry! Deb’s RE: Digest Number 1937 LISA and CHARLOTTE Hey and Charlotte, I am airing my dirty laundry here once again. I feel so desperate into fixing this problem. I cannot fix it. It seems I have no choice in the matter. IM crying as we speak. This has gone as far as he is now telling me he doesn’t care for either one of us. IS this anger and frustration coming out because he can’t fix the autism? How do I cope with this one? Charlotte and , do you mind if we talk on the phone? I think it would be nice to be able to do that. I can call you if you don’t mind giving your number out, I have free long distance. My counselor tells me I need ppl like you two that knows what I am going through and you need me. When I speak to others, they have no idea because they are not there in my house dealing with any of it, they have no idea about what it’s like no matter how I tell them or explain how Autism works and how it doesn’t. Please private email me with number if you choose to do so. HYPERLINK " mailto:bazndeb@... " bazndeb@... Let me know what a good time is. I will post my phone number as well. It is: 1-256-461-8185, Alabama Central time zone. Best time to reach me any day except Thursday. Between the hours of 9AM-3PM Thanks, Deb’s. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 You know Debs - what you've just told us is quite sad. It's a rough ride this autism - but nobody deserves nothing in the way of back up. Think you're right about not getting the diagnosis - i was told about 9 years ago that there was no way was autistic. 6 months ago, a physiologist in the adolescent mental health team did a load of testing and observations and lo - you got it - is on the spectrum. I hope you get all the help you need - you sound like a pretty clued up person. Meanwhile, there's always e-mail - sometimes it does you good to just sit and type! Take care RE: Digest Number 1937 LISA and CHARLOTTEHey and Charlotte,I am airing my dirty laundry here once again. I feel so desperate intofixing this problem. I cannot fix it. It seems I have no choice in thematter. IM crying as we speak. This has gone as far as he is now tellingme he doesn’t care for either one of us. IS this anger and frustrationcoming out because he can’t fix the autism? How do I cope with this one?Charlotte and , do you mind if we talk on the phone? I think itwould be nice to be able to do that. I can call you if you don’t mindgiving your number out, I have free long distance. My counselor tells meI need ppl like you two that knows what I am going through and you needme. When I speak to others, they have no idea because they are not therein my house dealing with any of it, they have no idea about what it’slike no matter how I tell them or explain how Autism works and how itdoesn’t.Please private email me with number if you choose to do so. HYPERLINK"mailto:bazndeb@..."bazndeb@... Let me know what a goodtime is. I will post my phone number as well. It is: 1-256-461-8185, Alabama Central time zone. Best time to reach me anyday except Thursday. Between the hours of 9AM-3PMThanks,Deb’s. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Sigh….”Men”, that’s all I got to say about it. Can you tell IM not having a good day? Re: Debs You know Debs - what you've just told us is quite sad. It's a rough ride this autism - but nobody deserves nothing in the way of back up. Think you're right about not getting the diagnosis - i was told about 9 years ago that there was no way was autistic. 6 months ago, a physiologist in the adolescent mental health team did a load of testing and observations and lo - you got it - is on the spectrum. I hope you get all the help you need - you sound like a pretty clued up person. Meanwhile, there's always e-mail - sometimes it does you good to just sit and type! Take care RE: Digest Number 1937 LISA and CHARLOTTE Hey and Charlotte, I am airing my dirty laundry here once again. I feel so desperate into fixing this problem. I cannot fix it. It seems I have no choice in the matter. IM crying as we speak. This has gone as far as he is now telling me he doesn’t care for either one of us. IS this anger and frustration coming out because he can’t fix the autism? How do I cope with this one? Charlotte and , do you mind if we talk on the phone? I think it would be nice to be able to do that. I can call you if you don’t mind giving your number out, I have free long distance. My counselor tells me I need ppl like you two that knows what I am going through and you need me. When I speak to others, they have no idea because they are not there in my house dealing with any of it, they have no idea about what it’s like no matter how I tell them or explain how Autism works and how it doesn’t. Please private email me with number if you choose to do so. HYPERLINK " mailto:bazndeb@... " bazndeb@... Let me know what a good time is. I will post my phone number as well. It is: 1-256-461-8185, Alabama Central time zone. Best time to reach me any day except Thursday. Between the hours of 9AM-3PM Thanks, Deb’s. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 "men" - sums it all up!! Live with 3 of them!! Think my daughter and i need some sanity time!! RE: Digest Number 1937 LISA and CHARLOTTEHey and Charlotte,I am airing my dirty laundry here once again. I feel so desperate intofixing this problem. I cannot fix it. It seems I have no choice in thematter. IM crying as we speak. This has gone as far as he is now tellingme he doesn’t care for either one of us. IS this anger and frustrationcoming out because he can’t fix the autism? How do I cope with this one?Charlotte and , do you mind if we talk on the phone? I think itwould be nice to be able to do that. I can call you if you don’t mindgiving your number out, I have free long distance. My counselor tells meI need ppl like you two that knows what I am going through and you needme. When I speak to others, they have no idea because they are not therein my house dealing with any of it, they have no idea about what it’slike no matter how I tell them or explain how Autism works and how itdoesn’t.Please private email me with number if you choose to do so. HYPERLINK"mailto:bazndeb@..."bazndeb@... Let me know what a goodtime is. I will post my phone number as well. It is: 1-256-461-8185, Alabama Central time zone. Best time to reach me anyday except Thursday. Between the hours of 9AM-3PMThanks,Deb’s. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Debs, I'm so sorry that you're sick yet again. You just can't seem to catch a break. I hope that you will soon recover from this and I wish for you some good health for a change. I'm sorry your hubby lost his job. These economic times are really tough. Maybe he will be able to find some work. I am sending lots of hugs and positive thoughts your way. Sue On Oct 12, 2009, at 12:18 PM, BadKneesDebs@... wrote: > I just got out of the hospital two weeks ago and 1 week of in home > IV antibiotics for cellulitis of my left breast.? The breast was > bright red, hot and HUGE.? The joke while I was in the ER was " how > long have you? this was the third time I have had cellulitis on the > left side of my body.? The infectious disease has no clue, just > treats them as they occur. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Sue, Thanks so much for your good wishes. It has been almost a month with no health outbreaks, so so far so good. My husband still hasn't found a job yet, but who can?He is angry and now depression is setting in. It is almost a bigger battle than my health issues are. He is not looking for permanent employment, only contracting. I am putting my faith in God as always. Hope your day is painfree. Gentle, tender, angel hugs........... Debs in FL Re: [ ] Debs Debs, I'm so sorry that you're sick yet again. You just can't seem to catch a break. I hope that you will soon recover from this and I wish for you some good health for a change. I'm sorry your hubby lost his job. These economic times are really tough. Maybe he will be able to find some work. I am sending lots of hugs and positive thoughts your way. Sue On Oct 12, 2009, at 12:18 PM, BadKneesDebs@... wrote: > I just got out of the hospital two weeks ago and 1 week of in home > IV antibiotics for cellulitis of my left breast.? The breast was > bright red, hot and HUGE.? The joke while I was in the ER was " how > long have you? this was the third time I have had cellulitis on the > left side of my body.? The infectious disease has no clue, just > treats them as they occur. Quote Link to comment Share on other sites More sharing options...
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