Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Hi Everyone! We have a new family joining us today! Here is what Teri had to say.... My name is Theresa (Teri) Grubb. I am married and we had twins girls in Dec 2008 that were diagnosed with Mosaic Dow Syndrome. Emma and Grace are 5 1/2 months old. They were born at 32 wks because I had several Preclampsia and was hospitalized til they took them via emergency c-section. They spent 6 wks in the Nicu and it was during their stay that one of the doctors had suspicions about Grace. They ran tests on both girls because they are twins and diagnosed them both with 20% Mosaic Down Syndrome. I am interested in talking to other families that have children with MDS and can give me insight as to what to expect as they grow or just offer support. We have a good support network with our family and friends, but would like some help from other families with this too. Thank you Teri Grubb Welcome to our family Teri! I am so glad you have joined us! Congratulations on your new baby girls! You have come to the right place for support and I know we have lots of families in your state as well. We will get you connected with them right away. We also have several twins here so we can help you in that area as well! I look forward to getting to know you and your family! Please feel free to ask any questions you have here. We will all be very happy to share our experiences. Kristy-Mom to Arron 27, 24, Tim (MDS) 23 TODAY!!!, Stevan 22, and Garrett 13 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Quote Link to comment Share on other sites More sharing options...
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