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I'm curious if what I have is flank pain (kidneys) or something else.

I have IGAN, Henloch Schlein Purpura. I've know about it for 3 years

now.

My year 2000 lab results range -

creatine 1.1-1.4 mg/gl

creatine urine 149-160 mg/dl

creatine clearence 111-141 ml/min

24hour urine volume is 1000-2700 ml

blood pressure 115/70

I'm 6,2 200 pounds

Medications-

5mg Lisinopril per day (ACE inhibitor)

Last year I asked my Dr why I have an isolated pain on my left side

below my ribs and just above my left hip. She ordered an ultra sound

of my kidneys. She also lightly hit my kidneys to see if they were

unusually sensitive. Both results were negative. Still the pain

contines and it is more noticable when I sleep on my left side.

Sometimes I wake up in the middle of the night due to the pain.

Sometimes it is a sharp pain when I bend over. And when I ride my

mt bike and hit a large bump in the road or trail I sometimes feel a

sharp pain.

How can I determine if the pain I now have below my ribs and to the

left of spine is flank pain and not something else ? Is the pain

typically more often on one side of the spine or both ? What is the

cause of flank pain ?

thanx

-david

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When did you have your biopsy? Whenever someone says that the pain is on

a particular side, I have to wonder whether it's the side the biopsy was

done on (usually the left), and whether it might not be residual pain from

where the needle tube went through the thick muscle tissue in the flank

(and it doesn't have to be that recent). Even the best nephrologist in

the world can't really say what the source of flank pain is in IgAN patients,

because theoretically, you can't feel glomeruli. It probably has something

to do with some localised swelling of tissues due to mild edema, and it

may be the same pain as the stomach pain that is associated with HSP, except

that it isn't in the stomach. Most commonly, it is a dull ache type of

pain, but other members of this very group have described very different

types of flank pain they experience. We all seem to be different. What

you describe as the location certainly is what I refer to as flank pain.

It's really hard to tell with pains anywhere in the torso, because there

are so many nerves in there all over the place that are all interconnected,

and it's so easy for pain felt in one spot to actually be referred pain

from somewhere else. If you have it, it seems like this is just something

that's on the list of things we just have to put up with.

Pierre

ddeuber@... wrote:

I'm curious if what I have is flank pain (kidneys)

or something else.

I have IGAN, Henloch Schlein Purpura. I've know about it for 3 years

now.

My year 2000 lab results range -

creatine 1.1-1.4 mg/gl

creatine urine 149-160 mg/dl

creatine clearence 111-141 ml/min

24hour urine volume is 1000-2700 ml

blood pressure 115/70

I'm 6,2 200 pounds

Medications-

5mg Lisinopril per day (ACE inhibitor)

Last year I asked my Dr why I have an isolated pain on my left side

below my ribs and just above my left hip. She ordered an ultra

sound

of my kidneys. She also lightly hit my kidneys to see if they were

unusually sensitive. Both results were negative. Still the pain

contines and it is more noticable when I sleep on my left side.

Sometimes I wake up in the middle of the night due to the pain.

Sometimes it is a sharp pain when I bend over. And when I ride

my

mt bike and hit a large bump in the road or trail I sometimes feel

a

sharp pain.

How can I determine if the pain I now have below my ribs and to

the

left of spine is flank pain and not something else ? Is the pain

typically more often on one side of the spine or both ? What is

the

cause of flank pain ?

thanx

-david

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Hi

Flank pain with IGAN sufferers is considered to be a non-event by most

Nephrologist's. However mine says that he sees many patients with IGAN who

complain of it, myself included. It was explained to me that the kidneys

due to the condition, become oversensitive, and if you are feeling slightly

unwell, whether it be a virus or otherwise, can irritate the kidney....but

none of this has be proven to be medically so.

Not exactly a mind blowing explanation, but they really seem to have not

other information for us. Perhaps someone else from the group can explain

this better for you.

Best wishes

what is flank pain ?

I'm curious if what I have is flank pain (kidneys) or something else.

I have IGAN, Henloch Schlein Purpura. I've know about it for 3 years

now.

My year 2000 lab results range -

creatine 1.1-1.4 mg/gl

creatine urine 149-160 mg/dl

creatine clearence 111-141 ml/min

24hour urine volume is 1000-2700 ml

blood pressure 115/70

I'm 6,2 200 pounds

Medications-

5mg Lisinopril per day (ACE inhibitor)

Last year I asked my Dr why I have an isolated pain on my left side

below my ribs and just above my left hip. She ordered an ultra sound

of my kidneys. She also lightly hit my kidneys to see if they were

unusually sensitive. Both results were negative. Still the pain

contines and it is more noticable when I sleep on my left side.

Sometimes I wake up in the middle of the night due to the pain.

Sometimes it is a sharp pain when I bend over. And when I ride my

mt bike and hit a large bump in the road or trail I sometimes feel a

sharp pain.

How can I determine if the pain I now have below my ribs and to the

left of spine is flank pain and not something else ? Is the pain

typically more often on one side of the spine or both ? What is the

cause of flank pain ?

thanx

-david

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The location of the pain is the side where the biopsy was done . The

biopsy was done March 1999 and the current pain feels exactly like the

soreness I had after the March 1999 biopsy procedure. The Drs never

told me that the biopsy might cause long term residual pain.

Thanx for the info pierre.

-david

>

> > I'm curious if what I have is flank pain (kidneys) or something

else.

> >

> > I have IGAN, Henloch Schlein Purpura. I've know about it for 3

years

> > now.

> >

> > My year 2000 lab results range -

> > creatine 1.1-1.4 mg/gl

> > creatine urine 149-160 mg/dl

> > creatine clearence 111-141 ml/min

> > 24hour urine volume is 1000-2700 ml

> > blood pressure 115/70

> > I'm 6,2 200 pounds

> >

> > Medications-

> > 5mg Lisinopril per day (ACE inhibitor)

> >

> >

> > Last year I asked my Dr why I have an isolated pain on my left

side

> > below my ribs and just above my left hip. She ordered an ultra

sound

> > of my kidneys. She also lightly hit my kidneys to see if they were

> > unusually sensitive. Both results were negative. Still the pain

> > contines and it is more noticable when I sleep on my left side.

> > Sometimes I wake up in the middle of the night due to the pain.

> > Sometimes it is a sharp pain when I bend over. And when I ride my

> > mt bike and hit a large bump in the road or trail I sometimes feel

a

> > sharp pain.

> >

> > How can I determine if the pain I now have below my ribs and to

the

> > left of spine is flank pain and not something else ? Is the pain

> > typically more often on one side of the spine or both ? What is

the

> > cause of flank pain ?

> >

> >

> > thanx

> >

> > -david

> >

> >

> >

> > eGroups Sponsor

> [Click Here!]

> >

> >

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hi all..

regarding the flank pain, my bf suffer from flank pain too...

but he never get the pain before the biopsy is done..

just curious...is it due to the biopsy test that cause the pain??

if so...is it going to be permanent??

jess

> Re: what is flank pain ?

>

> The location of the pain is the side where the biopsy was done . The

> biopsy was done March 1999 and the current pain feels exactly like the

> soreness I had after the March 1999 biopsy procedure. The Drs never

> told me that the biopsy might cause long term residual pain.

>

> Thanx for the info pierre.

>

> -david

>

>

> >

> > > I'm curious if what I have is flank pain (kidneys) or something

> else.

> > >

> > > I have IGAN, Henloch Schlein Purpura. I've know about it for 3

> years

> > > now.

> > >

> > > My year 2000 lab results range -

> > > creatine 1.1-1.4 mg/gl

> > > creatine urine 149-160 mg/dl

> > > creatine clearence 111-141 ml/min

> > > 24hour urine volume is 1000-2700 ml

> > > blood pressure 115/70

> > > I'm 6,2 200 pounds

> > >

> > > Medications-

> > > 5mg Lisinopril per day (ACE inhibitor)

> > >

> > >

> > > Last year I asked my Dr why I have an isolated pain on my left

> side

> > > below my ribs and just above my left hip. She ordered an ultra

> sound

> > > of my kidneys. She also lightly hit my kidneys to see if they were

> > > unusually sensitive. Both results were negative. Still the pain

> > > contines and it is more noticable when I sleep on my left side.

> > > Sometimes I wake up in the middle of the night due to the pain.

> > > Sometimes it is a sharp pain when I bend over. And when I ride my

> > > mt bike and hit a large bump in the road or trail I sometimes feel

> a

> > > sharp pain.

> > >

> > > How can I determine if the pain I now have below my ribs and to

> the

> > > left of spine is flank pain and not something else ? Is the pain

> > > typically more often on one side of the spine or both ? What is

> the

> > > cause of flank pain ?

> > >

> > >

> > > thanx

> > >

> > > -david

> > >

> > >

> > >

> > > eGroups Sponsor

> > [Click Here!]

> > >

> > >

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Share on other sites

Re: what is flank pain ?

> The location of the pain is the side where the biopsy was done . The

> biopsy was done March 1999 and the current pain feels exactly like the

> soreness I had after the March 1999 biopsy procedure. The Drs never

> told me that the biopsy might cause long term residual pain.

>

> Thanx for the info pierre.

>

> -david

>

You're welcome. They never do tell you that, and they probably never will.

Doctors are very non-committal when it comes to pain that they can't explain

with certainty. You'll probably just have to learn to live with it, because

most pain medications can be nephrotoxic to some extent.

Pierre

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Unfortunately, nobody can answer that question with any certainty.

Sometimes, even just blood pressure medications can cause some pain. This is

why I always say that one shouldn't start more than one medication or

treatment at the same time if it can be avoided. Otherwise, you just can't

know what is causing what.

Pierre

Re: what is flank pain ?

> >

> > The location of the pain is the side where the biopsy was done . The

> > biopsy was done March 1999 and the current pain feels exactly like the

> > soreness I had after the March 1999 biopsy procedure. The Drs never

> > told me that the biopsy might cause long term residual pain.

> >

> > Thanx for the info pierre.

> >

> > -david

> >

> >

> > >

> > > > I'm curious if what I have is flank pain (kidneys) or something

> > else.

> > > >

> > > > I have IGAN, Henloch Schlein Purpura. I've know about it for 3

> > years

> > > > now.

> > > >

> > > > My year 2000 lab results range -

> > > > creatine 1.1-1.4 mg/gl

> > > > creatine urine 149-160 mg/dl

> > > > creatine clearence 111-141 ml/min

> > > > 24hour urine volume is 1000-2700 ml

> > > > blood pressure 115/70

> > > > I'm 6,2 200 pounds

> > > >

> > > > Medications-

> > > > 5mg Lisinopril per day (ACE inhibitor)

> > > >

> > > >

> > > > Last year I asked my Dr why I have an isolated pain on my left

> > side

> > > > below my ribs and just above my left hip. She ordered an ultra

> > sound

> > > > of my kidneys. She also lightly hit my kidneys to see if they were

> > > > unusually sensitive. Both results were negative. Still the pain

> > > > contines and it is more noticable when I sleep on my left side.

> > > > Sometimes I wake up in the middle of the night due to the pain.

> > > > Sometimes it is a sharp pain when I bend over. And when I ride my

> > > > mt bike and hit a large bump in the road or trail I sometimes feel

> > a

> > > > sharp pain.

> > > >

> > > > How can I determine if the pain I now have below my ribs and to

> > the

> > > > left of spine is flank pain and not something else ? Is the pain

> > > > typically more often on one side of the spine or both ? What is

> > the

> > > > cause of flank pain ?

> > > >

> > > >

> > > > thanx

> > > >

> > > > -david

> > > >

> > > >

> > > >

> > > > eGroups Sponsor

> > > [Click Here!]

> > > >

> > > >

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