CONFUSED.....pseudomeningocele

[Guest guest]

Here we are again.... With another pseudomeningocele.

I am wondering how long your NSG waited to repair it.

I am so confused, bcuz when we were with the other NSG

he repaired it right away. The current NSG wants to

wait....

He also said the pseudomeningocele she had last year

did not have a leak. This one, does. I am so confused

by that comment!

Please help!!

Merry Christmas & Happy Healthy New Year!!

Tommi

www.caringbridge.otg/visit/amandapeters

www.caringbridge.org/visit/amandapeters

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

I have another pseudomeningocele also. My NS wants to wait also. The 1st

pseudo was leaking and I was having terrible headaches so it was fixed 2 weeks

after surgery but with this one I can pretty much function normally except I

have some pressure where the pseudo is at (tailbone area) to which causes a lot

of sciatica/leg pain.

- S.

tommi wrote:

Here we are again.... With another pseudomeningocele.

I am wondering how long your NSG waited to repair it.

I am so confused, bcuz when we were with the other NSG

he repaired it right away. The current NSG wants to

wait....

He also said the pseudomeningocele she had last year

did not have a leak. This one, does. I am so confused

by that comment!

Please help!!

Merry Christmas & Happy Healthy New Year!!

Tommi

www.caringbridge.otg/visit/amandapeters

www.caringbridge.org/visit/amandapeters

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

Tom's Electric,Inc

- Fax

www.TomsElectric.com

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I had one of these with my first surgery. They left it

alone and said it might reabsorb by itself. It did

after a week or two.

Tommi, has been through the wringer with this,

hasn't she?? Poor girl.

--- wrote:

> I have another pseudomeningocele also. My NS wants

> to wait also. The 1st pseudo was leaking and I was

> having terrible headaches so it was fixed 2 weeks

> after surgery but with this one I can pretty much

> function normally except I have some pressure where

> the pseudo is at (tailbone area) to which causes a

> lot of sciatica/leg pain.

> - S.

>

> tommi wrote:

> Here we are again.... With another

> pseudomeningocele.

> I am wondering how long your NSG waited to repair

> it.

> I am so confused, bcuz when we were with the other

> NSG

> he repaired it right away. The current NSG wants to

> wait....

>

> He also said the pseudomeningocele she had last year

> did not have a leak. This one, does. I am so

> confused

> by that comment!

> Please help!!

> Merry Christmas & Happy Healthy New Year!!

>

> Tommi

> www.caringbridge.otg/visit/amandapeters

>

> www.caringbridge.org/visit/amandapeters

>

>

__________________________________________________________

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

>

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

>

>

>

>

>

> Tom's Electric,Inc

>

> - Fax

> www.TomsElectric.com

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

Check out my blog: http://princessmatildalovestostamp.blogspot.com

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

Oh no, not again. I will be having my semi-annual MRI next Thursday.

Blessedly it is the head not the mess in my back -- where I know things have

gotten worse again. I am just not up for my annual detethering ;-)

Tell I am so sorry to hear her news.

On the pain clinic front, I got rejected by U of C, but am going to continue

with our favorite Doc, who is only moving to Milwaukee. I live 50 miles

from Milwaukee, 50 miles from Chicago -- so it doesn't matter to me at all

:-)

Who is seeing for a NSG?

I do know, with adults, they often do not operate on pseudomeningoceles

unless they cause problems. In my case they cause the cerebral tonsils to

pull downwards if they leak. I did know a woman who wore a compression

brace in an attempt to keep it from leaking -- LOL, it failed.

> Here we are again.... With another pseudomeningocele.

> I am wondering how long your NSG waited to repair it.

> I am so confused, bcuz when we were with the other NSG

> he repaired it right away. The current NSG wants to

> wait....

>

> He also said the pseudomeningocele she had last year

> did not have a leak. This one, does. I am so confused

> by that comment!

> Please help!!

> Merry Christmas & Happy Healthy New Year!!

>

> Tommi

> www.caringbridge.otg/visit/amandapeters

>

>

> www.caringbridge.org/visit/amandapeters

>

>

> ____________________________________________________________

> " If you don't know where you are going, any road will take you there "

>

> M

[Guest guest]

Hey ,

Well I hope it is not the annual tethering. So, Dhesi

is moving to Milwaukee... Tell him wants to

know if he is moving to the Milwaukee Children's pain

clinic! He will get a kick out of that.

We are still with Frim, but we seem to have hit a

wall. I don't know what to do. I can't just not do

anything and accept that her future only holds pain.

And, not being to sit upright. Hmmmmm So, I am going

to be forced to search elsewhere maybe not for NSG but

for pain services. I am really tired of being a

hamster in the wheel...

Where are you having your MRI?? Is it at U of C??

Chances are we will still be inpatient....oops did I

forget to mention she is inpatient yet again?? We seem

to have hit a wall yet again.... Frim does not know

what to do! She is still not able to sit up... I just

want to screammmmmmmmmmm oh, thanks for listening!

Well, I am hoping the MRI is negative for a messy

back. I know how bad that sucks!

Happy New Year to all of you, tell Karl we said hello!

Love to you all,

Tommi

--- Meiser wrote:

> Oh no, not again. I will be having my semi-annual

> MRI next Thursday.

> Blessedly it is the head not the mess in my back --

> where I know things have

> gotten worse again. I am just not up for my annual

> detethering ;-)

>

> Tell I am so sorry to hear her news.

>

> On the pain clinic front, I got rejected by U of C,

> but am going to continue

> with our favorite Doc, who is only moving to

> Milwaukee. I live 50 miles

> from Milwaukee, 50 miles from Chicago -- so it

> doesn't matter to me at all

> :-)

>

> Who is seeing for a NSG?

>

> I do know, with adults, they often do not operate on

> pseudomeningoceles

> unless they cause problems. In my case they cause

> the cerebral tonsils to

> pull downwards if they leak. I did know a woman who

> wore a compression

> brace in an attempt to keep it from leaking -- LOL,

> it failed.

>

> On Dec 19, 2007 9:19 PM, tommi

> wrote:

>

> > Here we are again.... With another

> pseudomeningocele.

> > I am wondering how long your NSG waited to repair

> it.

> > I am so confused, bcuz when we were with the other

> NSG

> > he repaired it right away. The current NSG wants

> to

> > wait....

> >

> > He also said the pseudomeningocele she had last

> year

> > did not have a leak. This one, does. I am so

> confused

> > by that comment!

> > Please help!!

> > Merry Christmas & Happy Healthy New Year!!

> >

> > Tommi

> > www.caringbridge.otg/visit/amandapeters

> >

> >

> > www.caringbridge.org/visit/amandapeters

> >

> >

> >

>

____________________________________________________________

> > " If you don't know where you are going, any road

> will take you there "

> >

> > M

>

>

> [Non-text portions of this message have been

> removed]

>

>

www.caringbridge.org/visit/amandapeters

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ