Re: Taking husband to doctor's appt

[Guest guest]

In a message dated 6/26/2005 5:33:53 A.M. Eastern Daylight Time, Tracie

writes:

Taking husband to doctor's appt

Tracie ...

I am so sorry to hear you are going through such a rough period. I know you

are a beacon of light on this list -- when you are down and out, it is

noticeable!

I am so glad your husband is going with you to the doc. That will help and

you need an advocate right now. It's important to stand firm and to insist

on getting what you need and you simply don't have the energy for that right

now. Sometimes when you do something drastic -- such as bring your husband,

take pictures of swollen legs, log your pain in a journal, etc., those docs

FINALLY get it and comply. I suspect your husband may be the catalyst to

better meds and pain management for you.

Keep us posted! Send you prayers, some virtual homemade chicken soup, the

softest blanket, and a gentle breeze for relief and peace today!

Love and Prayers,

Beth

~*~*~*~*~*~*~*~*

Read my blog at www.ThinkBigAboutHealing.blogspot.com

~*~*~*~*~*~*~*~*

[Guest guest]

In a message dated 6/26/2005 5:33:53 A.M. Eastern Daylight Time, Tracie

writes:

Taking husband to doctor's appt

Tracie ...

I am so sorry to hear you are going through such a rough period. I know you

are a beacon of light on this list -- when you are down and out, it is

noticeable!

I am so glad your husband is going with you to the doc. That will help and

you need an advocate right now. It's important to stand firm and to insist

on getting what you need and you simply don't have the energy for that right

now. Sometimes when you do something drastic -- such as bring your husband,

take pictures of swollen legs, log your pain in a journal, etc., those docs

FINALLY get it and comply. I suspect your husband may be the catalyst to

better meds and pain management for you.

Keep us posted! Send you prayers, some virtual homemade chicken soup, the

softest blanket, and a gentle breeze for relief and peace today!

Love and Prayers,

Beth

~*~*~*~*~*~*~*~*

Read my blog at www.ThinkBigAboutHealing.blogspot.com

~*~*~*~*~*~*~*~*

[Guest guest]

Beth,

Thank you so much. You are always there for me and I do appreciate

it. Your words helped so much this morning. I had a rough night.

Thanks again and I am glad I am bringing him too!

Gentle hugs to you,

Tracie

>

>

> In a message dated 6/26/2005 5:33:53 A.M. Eastern Daylight Time,

Tracie

> writes:

>

> Taking husband to doctor's appt

>

>

> Tracie ...

>

> I am so sorry to hear you are going through such a rough period.

I know you

> are a beacon of light on this list -- when you are down and out,

it is

> noticeable!

>

> I am so glad your husband is going with you to the doc. That

will help and

> you need an advocate right now. It's important to stand firm and

to insist

> on getting what you need and you simply don't have the energy for

that right

> now. Sometimes when you do something drastic -- such as bring

your husband,

> take pictures of swollen legs, log your pain in a journal, etc.,

those docs

> FINALLY get it and comply. I suspect your husband may be the

catalyst to

> better meds and pain management for you.

>

> Keep us posted! Send you prayers, some virtual homemade chicken

soup, the

> softest blanket, and a gentle breeze for relief and peace today!

>

>

> Love and Prayers,

> Beth

>

> ~*~*~*~*~*~*~*~*

> Read my blog at www.ThinkBigAboutHealing.blogspot.com

>

> ~*~*~*~*~*~*~*~*

>

>

>

[Guest guest]

Beth,

Thank you so much. You are always there for me and I do appreciate

it. Your words helped so much this morning. I had a rough night.

Thanks again and I am glad I am bringing him too!

Gentle hugs to you,

Tracie

>

>

> In a message dated 6/26/2005 5:33:53 A.M. Eastern Daylight Time,

Tracie

> writes:

>

> Taking husband to doctor's appt

>

>

> Tracie ...

>

> I am so sorry to hear you are going through such a rough period.

I know you

> are a beacon of light on this list -- when you are down and out,

it is

> noticeable!

>

> I am so glad your husband is going with you to the doc. That

will help and

> you need an advocate right now. It's important to stand firm and

to insist

> on getting what you need and you simply don't have the energy for

that right

> now. Sometimes when you do something drastic -- such as bring

your husband,

> take pictures of swollen legs, log your pain in a journal, etc.,

those docs

> FINALLY get it and comply. I suspect your husband may be the

catalyst to

> better meds and pain management for you.

>

> Keep us posted! Send you prayers, some virtual homemade chicken

soup, the

> softest blanket, and a gentle breeze for relief and peace today!

>

>

> Love and Prayers,

> Beth

>

> ~*~*~*~*~*~*~*~*

> Read my blog at www.ThinkBigAboutHealing.blogspot.com

>

> ~*~*~*~*~*~*~*~*

>

>

>

[Guest guest]

Tracie,

I'm sorry you're hurting so bad. It's awful that your primary will

neither treat your pain or give you a referral to a pain management

doctor so that you can get help. If everything has to go through your

primary, I guess that means your rheumy can't refer you either. If

this is the case, I'd switch my primary, especially since you don't

like her anyway.

I hope you rheumy is more compassionate and will give you something to

help. I know how difficult it is taking care of kids when you hurt so

bad.

a

On Jun 26, 2005, at 1:39 AM, tracierae143 wrote:

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o(  Trying to get by withuot, but sneaking ibuprofen

> here and there.  My husband has decided to come with me to my rheumy

> appt on the 30th.  I am just to sick and tired to speak up for

> myself, does that make sense to anyone?  I just have lost all my

> fight.  I truly don't care anymore about it.  If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything.  My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough.  Is there any

> specific questions he should ask or she would just fire him or

> what?  It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and then

> will leave anyway.  I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process.  I am taking my

> Humira and that does seem to help the fatigue some, but I still have

> pain but I have only had three shots.  I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it.  I have been on

> it for seven months now and they just did a bone density study to

> see how that is.  I would not be able to function at all without

> it.  My sed rate goes back up through the roof when they try to wean

> me, etc.  Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux. 

>

> I am sorry if I am whining, really I am.  I just have not had the

> energy to even read the posts.  I hope I have not missed any that I

> should have answered.  If I have, please do not take it personally I

> just was not up to it.  I think on this board when people get quiet

> and you don't hear from them for long periods it is because they are

> not doing to well huh? 

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th.  Possibly a

> list of questions would be in order?  I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.  By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med.  I only had two scripts and I did not over take

> them or anything, geez.  It seems like they are paranoid or

> something.  Of course, my sleep is suffering so I am going to have

> to try some of that tea! 

>

> Thanks for listening!

>

> Tracie in Maine

>

>

>

>

>

>

[Guest guest]

Tracie,

I'm sorry you're hurting so bad. It's awful that your primary will

neither treat your pain or give you a referral to a pain management

doctor so that you can get help. If everything has to go through your

primary, I guess that means your rheumy can't refer you either. If

this is the case, I'd switch my primary, especially since you don't

like her anyway.

I hope you rheumy is more compassionate and will give you something to

help. I know how difficult it is taking care of kids when you hurt so

bad.

a

On Jun 26, 2005, at 1:39 AM, tracierae143 wrote:

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o(  Trying to get by withuot, but sneaking ibuprofen

> here and there.  My husband has decided to come with me to my rheumy

> appt on the 30th.  I am just to sick and tired to speak up for

> myself, does that make sense to anyone?  I just have lost all my

> fight.  I truly don't care anymore about it.  If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything.  My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough.  Is there any

> specific questions he should ask or she would just fire him or

> what?  It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and then

> will leave anyway.  I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process.  I am taking my

> Humira and that does seem to help the fatigue some, but I still have

> pain but I have only had three shots.  I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it.  I have been on

> it for seven months now and they just did a bone density study to

> see how that is.  I would not be able to function at all without

> it.  My sed rate goes back up through the roof when they try to wean

> me, etc.  Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux. 

>

> I am sorry if I am whining, really I am.  I just have not had the

> energy to even read the posts.  I hope I have not missed any that I

> should have answered.  If I have, please do not take it personally I

> just was not up to it.  I think on this board when people get quiet

> and you don't hear from them for long periods it is because they are

> not doing to well huh? 

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th.  Possibly a

> list of questions would be in order?  I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.  By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med.  I only had two scripts and I did not over take

> them or anything, geez.  It seems like they are paranoid or

> something.  Of course, my sleep is suffering so I am going to have

> to try some of that tea! 

>

> Thanks for listening!

>

> Tracie in Maine

>

>

>

>

>

>

[Guest guest]

a,

Thank you so much for your support. If it were not for your kind

words and the wonderful people in this group, I don't know what I

would do. I know I need to switch primarys, it is just finding the

right one. I don't want to switch a million times. It is such a

pain. Tawny recommended calling my insurance to see if they

recommend anyone in particular. I may do that just to see who they

say. Thanks again.

Tracie

>

> > Hi everyone,

> >

> > Sorry I have been so bad about writing, not been feeling that

well,

> > no pain meds:o(  Trying to get by withuot, but sneaking

ibuprofen

> > here and there.  My husband has decided to come with me to my

rheumy

> > appt on the 30th.  I am just to sick and tired to speak up for

> > myself, does that make sense to anyone?  I just have lost all

my

> > fight.  I truly don't care anymore about it.  If they don't

want to

> > treat my pain, fine, I will just sit here and suffer, not check

the

> > board, not do anything.  My kids are home for summer vacation

(all

> > three, ages 5, 11, and 14) so that is hard enough.  Is there

any

> > specific questions he should ask or she would just fire him or

> > what?  It is actually my primary care doctor that we don't

like at

> > all, she has no bedside manner and is just out of school and

> > probably is only here in Maine to pay off her student loans and

then

> > will leave anyway.  I just seem to be drifting and not knowing

what

> > to do, kinda stuck in limbo with the whole process.  I am

taking my

> > Humira and that does seem to help the fatigue some, but I still

have

> > pain but I have only had three shots.  I am still on 15 mg a

day of

> > Prednisone and absolutely cannot get by without it.  I have

been on

> > it for seven months now and they just did a bone density study

to

> > see how that is.  I would not be able to function at all

without

> > it.  My sed rate goes back up through the roof when they try

to wean

> > me, etc.  Still on the MTX, but the pills not the shots and

folic

> > acid as well as my Nexium for my esophageal spasms and reflux. 

> >

> > I am sorry if I am whining, really I am.  I just have not had

the

> > energy to even read the posts.  I hope I have not missed any

that I

> > should have answered.  If I have, please do not take it

personally I

> > just was not up to it.  I think on this board when people get

quiet

> > and you don't hear from them for long periods it is because

they are

> > not doing to well huh? 

> >

> > Well, email me if you really want me to get it or post and I

will

> > try to read it ASAP, but before the appt on the 30th. 

Possibly a

> > list of questions would be in order?  I don't understand why I

> > cannot go to a pain management clinic, but with my HMO I cannot

do

> > anything unless my primary care doctor okays it and she says

no.  By

> > the way, I did not have any withdrawal symptoms or anything

coming

> > off the pain med.  I only had two scripts and I did not over

take

> > them or anything, geez.  It seems like they are paranoid or

> > something.  Of course, my sleep is suffering so I am going to

have

> > to try some of that tea! 

> >

> > Thanks for listening!

> >

> > Tracie in Maine

> >

> >

> >

> >

> >

> >

[Guest guest]

a,

Thank you so much for your support. If it were not for your kind

words and the wonderful people in this group, I don't know what I

would do. I know I need to switch primarys, it is just finding the

right one. I don't want to switch a million times. It is such a

pain. Tawny recommended calling my insurance to see if they

recommend anyone in particular. I may do that just to see who they

say. Thanks again.

Tracie

>

> > Hi everyone,

> >

> > Sorry I have been so bad about writing, not been feeling that

well,

> > no pain meds:o(  Trying to get by withuot, but sneaking

ibuprofen

> > here and there.  My husband has decided to come with me to my

rheumy

> > appt on the 30th.  I am just to sick and tired to speak up for

> > myself, does that make sense to anyone?  I just have lost all

my

> > fight.  I truly don't care anymore about it.  If they don't

want to

> > treat my pain, fine, I will just sit here and suffer, not check

the

> > board, not do anything.  My kids are home for summer vacation

(all

> > three, ages 5, 11, and 14) so that is hard enough.  Is there

any

> > specific questions he should ask or she would just fire him or

> > what?  It is actually my primary care doctor that we don't

like at

> > all, she has no bedside manner and is just out of school and

> > probably is only here in Maine to pay off her student loans and

then

> > will leave anyway.  I just seem to be drifting and not knowing

what

> > to do, kinda stuck in limbo with the whole process.  I am

taking my

> > Humira and that does seem to help the fatigue some, but I still

have

> > pain but I have only had three shots.  I am still on 15 mg a

day of

> > Prednisone and absolutely cannot get by without it.  I have

been on

> > it for seven months now and they just did a bone density study

to

> > see how that is.  I would not be able to function at all

without

> > it.  My sed rate goes back up through the roof when they try

to wean

> > me, etc.  Still on the MTX, but the pills not the shots and

folic

> > acid as well as my Nexium for my esophageal spasms and reflux. 

> >

> > I am sorry if I am whining, really I am.  I just have not had

the

> > energy to even read the posts.  I hope I have not missed any

that I

> > should have answered.  If I have, please do not take it

personally I

> > just was not up to it.  I think on this board when people get

quiet

> > and you don't hear from them for long periods it is because

they are

> > not doing to well huh? 

> >

> > Well, email me if you really want me to get it or post and I

will

> > try to read it ASAP, but before the appt on the 30th. 

Possibly a

> > list of questions would be in order?  I don't understand why I

> > cannot go to a pain management clinic, but with my HMO I cannot

do

> > anything unless my primary care doctor okays it and she says

no.  By

> > the way, I did not have any withdrawal symptoms or anything

coming

> > off the pain med.  I only had two scripts and I did not over

take

> > them or anything, geez.  It seems like they are paranoid or

> > something.  Of course, my sleep is suffering so I am going to

have

> > to try some of that tea! 

> >

> > Thanks for listening!

> >

> > Tracie in Maine

> >

> >

> >

> >

> >

> >

[Guest guest]

Tracie:

You are NOT whining. Pain management/control is one of the few

things that most of us have over this disease. The fact that you're not

getting support from your docs with pain meds right now is leaving you

feeling helpless and hopeless. We can't cure the RA or the Sjogren's,

but you can control to a certain degree the amount of control you have

over the pain. Why should you be denied of this? It's just not fair.

My boyfriend came with me to my second Rheumy appointment which

was 4 weeks after my first initial consult. He had stayed at my house

each day during that first month to take care of me, help me to the

bathroom, assist with bathing/self-care and also to watch my kids and

help around the house. I was so sick and the meds were NOT working

yet. I was pretty much bedridden . I was so weak and tired that I didn't

feel as though I could property articulate myself to the Rheumy. My

boyfriend came into the office with me and read off a quick list of things

I could no longer do (self-care, etc.) or what I had been doing that I

wasn't doing before (restricted to bed, in constant pain, etc.). I think it

was good for the Rheumy to hear from someone else who was affected

by my illness. This was no longer just affecting me, but it was

affecting my entire family.

Stress how your quality of life isn't as good without the proper pain-

management. Mention that it doesn't only affect you, but your kids

suffer as well. The pain is affecting you socially, emotionally and

physically.

Please post and let us know how your appointment goes on the 30th.

Pain meds shouldn't be a priviledge, they should be a right to someone

who suffers with a disease that brings on chronic pain. I really wish

there was a little monitor they could clip on our finger (much like the

blood oxygen meter) that could determine how much pain we really are

in. There would be no doubt as to whether or not we are in need of

meds for the pain!

All the best,

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o( Trying to get by withuot, but sneaking ibuprofen

> here and there. My husband has decided to come with me to my

rheumy

> appt on the 30th. I am just to sick and tired to speak up for

> myself, does that make sense to anyone? I just have lost all my

> fight. I truly don't care anymore about it. If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything. My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough. Is there any

> specific questions he should ask or she would just fire him or

> what? It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and then

> will leave anyway. I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process. I am taking my

> Humira and that does seem to help the fatigue some, but I still have

> pain but I have only had three shots. I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it. I have been on

> it for seven months now and they just did a bone density study to

> see how that is. I would not be able to function at all without

> it. My sed rate goes back up through the roof when they try to wean

> me, etc. Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux.

>

> I am sorry if I am whining, really I am. I just have not had the

> energy to even read the posts. I hope I have not missed any that I

> should have answered. If I have, please do not take it personally I

> just was not up to it. I think on this board when people get quiet

> and you don't hear from them for long periods it is because they are

> not doing to well huh?

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th. Possibly a

> list of questions would be in order? I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.

By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med. I only had two scripts and I did not over take

> them or anything, geez. It seems like they are paranoid or

> something. Of course, my sleep is suffering so I am going to have

> to try some of that tea!

>

> Thanks for listening!

>

> Tracie in Maine

[Guest guest]

Tracie:

You are NOT whining. Pain management/control is one of the few

things that most of us have over this disease. The fact that you're not

getting support from your docs with pain meds right now is leaving you

feeling helpless and hopeless. We can't cure the RA or the Sjogren's,

but you can control to a certain degree the amount of control you have

over the pain. Why should you be denied of this? It's just not fair.

My boyfriend came with me to my second Rheumy appointment which

was 4 weeks after my first initial consult. He had stayed at my house

each day during that first month to take care of me, help me to the

bathroom, assist with bathing/self-care and also to watch my kids and

help around the house. I was so sick and the meds were NOT working

yet. I was pretty much bedridden . I was so weak and tired that I didn't

feel as though I could property articulate myself to the Rheumy. My

boyfriend came into the office with me and read off a quick list of things

I could no longer do (self-care, etc.) or what I had been doing that I

wasn't doing before (restricted to bed, in constant pain, etc.). I think it

was good for the Rheumy to hear from someone else who was affected

by my illness. This was no longer just affecting me, but it was

affecting my entire family.

Stress how your quality of life isn't as good without the proper pain-

management. Mention that it doesn't only affect you, but your kids

suffer as well. The pain is affecting you socially, emotionally and

physically.

Please post and let us know how your appointment goes on the 30th.

Pain meds shouldn't be a priviledge, they should be a right to someone

who suffers with a disease that brings on chronic pain. I really wish

there was a little monitor they could clip on our finger (much like the

blood oxygen meter) that could determine how much pain we really are

in. There would be no doubt as to whether or not we are in need of

meds for the pain!

All the best,

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o( Trying to get by withuot, but sneaking ibuprofen

> here and there. My husband has decided to come with me to my

rheumy

> appt on the 30th. I am just to sick and tired to speak up for

> myself, does that make sense to anyone? I just have lost all my

> fight. I truly don't care anymore about it. If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything. My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough. Is there any

> specific questions he should ask or she would just fire him or

> what? It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and then

> will leave anyway. I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process. I am taking my

> Humira and that does seem to help the fatigue some, but I still have

> pain but I have only had three shots. I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it. I have been on

> it for seven months now and they just did a bone density study to

> see how that is. I would not be able to function at all without

> it. My sed rate goes back up through the roof when they try to wean

> me, etc. Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux.

>

> I am sorry if I am whining, really I am. I just have not had the

> energy to even read the posts. I hope I have not missed any that I

> should have answered. If I have, please do not take it personally I

> just was not up to it. I think on this board when people get quiet

> and you don't hear from them for long periods it is because they are

> not doing to well huh?

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th. Possibly a

> list of questions would be in order? I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.

By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med. I only had two scripts and I did not over take

> them or anything, geez. It seems like they are paranoid or

> something. Of course, my sleep is suffering so I am going to have

> to try some of that tea!

>

> Thanks for listening!

>

> Tracie in Maine

[Guest guest]

Hi,

Thanks for posting. I really and truly appreciate the support. I

hope that we can get our point across to the doctor. IF not, I am

so getting another rheumy. I have decided to get the new primary

doctor as well even though it is a pain in the butt. I will let you

guys know how it goes on the 30th. Thanks again for the support.

Tracie

> > Hi everyone,

> >

> > Sorry I have been so bad about writing, not been feeling that

well,

> > no pain meds:o( Trying to get by withuot, but sneaking

ibuprofen

> > here and there. My husband has decided to come with me to my

> rheumy

> > appt on the 30th. I am just to sick and tired to speak up for

> > myself, does that make sense to anyone? I just have lost all my

> > fight. I truly don't care anymore about it. If they don't want

to

> > treat my pain, fine, I will just sit here and suffer, not check

the

> > board, not do anything. My kids are home for summer vacation

(all

> > three, ages 5, 11, and 14) so that is hard enough. Is there any

> > specific questions he should ask or she would just fire him or

> > what? It is actually my primary care doctor that we don't like

at

> > all, she has no bedside manner and is just out of school and

> > probably is only here in Maine to pay off her student loans and

then

> > will leave anyway. I just seem to be drifting and not knowing

what

> > to do, kinda stuck in limbo with the whole process. I am taking

my

> > Humira and that does seem to help the fatigue some, but I still

have

> > pain but I have only had three shots. I am still on 15 mg a day

of

> > Prednisone and absolutely cannot get by without it. I have been

on

> > it for seven months now and they just did a bone density study

to

> > see how that is. I would not be able to function at all without

> > it. My sed rate goes back up through the roof when they try to

wean

> > me, etc. Still on the MTX, but the pills not the shots and

folic

> > acid as well as my Nexium for my esophageal spasms and reflux.

> >

> > I am sorry if I am whining, really I am. I just have not had

the

> > energy to even read the posts. I hope I have not missed any

that I

> > should have answered. If I have, please do not take it

personally I

> > just was not up to it. I think on this board when people get

quiet

> > and you don't hear from them for long periods it is because they

are

> > not doing to well huh?

> >

> > Well, email me if you really want me to get it or post and I

will

> > try to read it ASAP, but before the appt on the 30th. Possibly

a

> > list of questions would be in order? I don't understand why I

> > cannot go to a pain management clinic, but with my HMO I cannot

do

> > anything unless my primary care doctor okays it and she says

no.

> By

> > the way, I did not have any withdrawal symptoms or anything

coming

> > off the pain med. I only had two scripts and I did not over

take

> > them or anything, geez. It seems like they are paranoid or

> > something. Of course, my sleep is suffering so I am going to

have

> > to try some of that tea!

> >

> > Thanks for listening!

> >

> > Tracie in Maine

[Guest guest]

Hi,

Thanks for posting. I really and truly appreciate the support. I

hope that we can get our point across to the doctor. IF not, I am

so getting another rheumy. I have decided to get the new primary

doctor as well even though it is a pain in the butt. I will let you

guys know how it goes on the 30th. Thanks again for the support.

Tracie

> > Hi everyone,

> >

> > Sorry I have been so bad about writing, not been feeling that

well,

> > no pain meds:o( Trying to get by withuot, but sneaking

ibuprofen

> > here and there. My husband has decided to come with me to my

> rheumy

> > appt on the 30th. I am just to sick and tired to speak up for

> > myself, does that make sense to anyone? I just have lost all my

> > fight. I truly don't care anymore about it. If they don't want

to

> > treat my pain, fine, I will just sit here and suffer, not check

the

> > board, not do anything. My kids are home for summer vacation

(all

> > three, ages 5, 11, and 14) so that is hard enough. Is there any

> > specific questions he should ask or she would just fire him or

> > what? It is actually my primary care doctor that we don't like

at

> > all, she has no bedside manner and is just out of school and

> > probably is only here in Maine to pay off her student loans and

then

> > will leave anyway. I just seem to be drifting and not knowing

what

> > to do, kinda stuck in limbo with the whole process. I am taking

my

> > Humira and that does seem to help the fatigue some, but I still

have

> > pain but I have only had three shots. I am still on 15 mg a day

of

> > Prednisone and absolutely cannot get by without it. I have been

on

> > it for seven months now and they just did a bone density study

to

> > see how that is. I would not be able to function at all without

> > it. My sed rate goes back up through the roof when they try to

wean

> > me, etc. Still on the MTX, but the pills not the shots and

folic

> > acid as well as my Nexium for my esophageal spasms and reflux.

> >

> > I am sorry if I am whining, really I am. I just have not had

the

> > energy to even read the posts. I hope I have not missed any

that I

> > should have answered. If I have, please do not take it

personally I

> > just was not up to it. I think on this board when people get

quiet

> > and you don't hear from them for long periods it is because they

are

> > not doing to well huh?

> >

> > Well, email me if you really want me to get it or post and I

will

> > try to read it ASAP, but before the appt on the 30th. Possibly

a

> > list of questions would be in order? I don't understand why I

> > cannot go to a pain management clinic, but with my HMO I cannot

do

> > anything unless my primary care doctor okays it and she says

no.

> By

> > the way, I did not have any withdrawal symptoms or anything

coming

> > off the pain med. I only had two scripts and I did not over

take

> > them or anything, geez. It seems like they are paranoid or

> > something. Of course, my sleep is suffering so I am going to

have

> > to try some of that tea!

> >

> > Thanks for listening!

> >

> > Tracie in Maine

[Guest guest]

Dear Tracie,

Ron and I always go to each other's doctor's appointments--that way if

one of us doesn't remember to ask a question, or can't remember

afterward what the doctor said, the other is there. I might even

suggest taking along a small tape recorder so you can both listen later

in a less stressful atmosphere to what the doctors say.

Above all, do NOT give up! You deserve better, you deserve to be

treated adequately for your pain. It took me almost 2 years to find a

doctor who did not laugh at me or make light of my pain, but so far he

has been well worth the wait.

Good luck on the 30th!

Judi>

[Guest guest]

Dear Tracie,

Ron and I always go to each other's doctor's appointments--that way if

one of us doesn't remember to ask a question, or can't remember

afterward what the doctor said, the other is there. I might even

suggest taking along a small tape recorder so you can both listen later

in a less stressful atmosphere to what the doctors say.

Above all, do NOT give up! You deserve better, you deserve to be

treated adequately for your pain. It took me almost 2 years to find a

doctor who did not laugh at me or make light of my pain, but so far he

has been well worth the wait.

Good luck on the 30th!

Judi>

[Guest guest]

Tracie,

Your're welcome Tracie. Our members are a wonderful lifeline. I know

you hate to switch doctors, it's a royal pain. But it is so important

to your health, so it's worth it to find a good one. Maybe you'll get

lucky and find a good one on the first try. I know how awful it is

since I had to find all new doctors due to moving to another state. I

found a great primary, only to have her leave within 6 months when her

husband was transferred. I got lucky with my rheumy, 2nd try and I

found a gem.

a

On Jun 26, 2005, at 7:16 PM, tracierae143 wrote:

> a,

>

> Thank you so much for your support.  If it were not for your kind

> words and the wonderful people in this group, I don't know what I

> would do.  I know I need to switch primarys, it is just finding the

> right one.  I don't want to switch a million times.  It is such a

> pain.  Tawny recommended calling my insurance to see if they

> recommend anyone in particular.  I may do that just to see who they

> say.  Thanks again.

>

> Tracie

[Guest guest]

Tracie,

Your're welcome Tracie. Our members are a wonderful lifeline. I know

you hate to switch doctors, it's a royal pain. But it is so important

to your health, so it's worth it to find a good one. Maybe you'll get

lucky and find a good one on the first try. I know how awful it is

since I had to find all new doctors due to moving to another state. I

found a great primary, only to have her leave within 6 months when her

husband was transferred. I got lucky with my rheumy, 2nd try and I

found a gem.

a

On Jun 26, 2005, at 7:16 PM, tracierae143 wrote:

> a,

>

> Thank you so much for your support.  If it were not for your kind

> words and the wonderful people in this group, I don't know what I

> would do.  I know I need to switch primarys, it is just finding the

> right one.  I don't want to switch a million times.  It is such a

> pain.  Tawny recommended calling my insurance to see if they

> recommend anyone in particular.  I may do that just to see who they

> say.  Thanks again.

>

> Tracie

[Guest guest]

(((Tracie)))

I'm so very sorry that your going through all this. This is neglect

on your doctor's part, and I'm so upset. The stress puts us in a

flare, and then look where the stress is coming from, it just makes

my temper flare. I'm so glad that your hubby is going with you. I

hope that something changes, or I would fire her right there.

With the kids out of school is hard on you, and without meds, I don't

know how your doing it. Your a very strong person, but it can't go

on. You are right, usually when one isn't posting they are not

feeling well. But, the good thing is, we all understand that. It's

so great how we all check on each other, make sure were all right.

Don't ever apologize for whining, we all have our down moments. We

come here for the great support and advice, and feel better.

Please know that we are here for you through good and bad times.

luv ya, Tawny

--- In , " tracierae143 " <tracierae@u...>

wrote:

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o( Trying to get by withuot, but sneaking ibuprofen

> here and there. My husband has decided to come with me to my

rheumy

> appt on the 30th. I am just to sick and tired to speak up for

> myself, does that make sense to anyone? I just have lost all my

> fight. I truly don't care anymore about it. If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything. My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough. Is there any

> specific questions he should ask or she would just fire him or

> what? It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and

then

> will leave anyway. I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process. I am taking my

> Humira and that does seem to help the fatigue some, but I still

have

> pain but I have only had three shots. I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it. I have been on

> it for seven months now and they just did a bone density study to

> see how that is. I would not be able to function at all without

> it. My sed rate goes back up through the roof when they try to

wean

> me, etc. Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux.

>

> I am sorry if I am whining, really I am. I just have not had the

> energy to even read the posts. I hope I have not missed any that I

> should have answered. If I have, please do not take it personally

I

> just was not up to it. I think on this board when people get quiet

> and you don't hear from them for long periods it is because they

are

> not doing to well huh?

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th. Possibly a

> list of questions would be in order? I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.

By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med. I only had two scripts and I did not over take

> them or anything, geez. It seems like they are paranoid or

> something. Of course, my sleep is suffering so I am going to have

> to try some of that tea!

>

> Thanks for listening!

>

> Tracie in Maine

[Guest guest]

(((Tracie)))

I'm so very sorry that your going through all this. This is neglect

on your doctor's part, and I'm so upset. The stress puts us in a

flare, and then look where the stress is coming from, it just makes

my temper flare. I'm so glad that your hubby is going with you. I

hope that something changes, or I would fire her right there.

With the kids out of school is hard on you, and without meds, I don't

know how your doing it. Your a very strong person, but it can't go

on. You are right, usually when one isn't posting they are not

feeling well. But, the good thing is, we all understand that. It's

so great how we all check on each other, make sure were all right.

Don't ever apologize for whining, we all have our down moments. We

come here for the great support and advice, and feel better.

Please know that we are here for you through good and bad times.

luv ya, Tawny

> Hi everyone,

>

> Sorry I have been so bad about writing, not been feeling that well,

> no pain meds:o( Trying to get by withuot, but sneaking ibuprofen

> here and there. My husband has decided to come with me to my

rheumy

> appt on the 30th. I am just to sick and tired to speak up for

> myself, does that make sense to anyone? I just have lost all my

> fight. I truly don't care anymore about it. If they don't want to

> treat my pain, fine, I will just sit here and suffer, not check the

> board, not do anything. My kids are home for summer vacation (all

> three, ages 5, 11, and 14) so that is hard enough. Is there any

> specific questions he should ask or she would just fire him or

> what? It is actually my primary care doctor that we don't like at

> all, she has no bedside manner and is just out of school and

> probably is only here in Maine to pay off her student loans and

then

> will leave anyway. I just seem to be drifting and not knowing what

> to do, kinda stuck in limbo with the whole process. I am taking my

> Humira and that does seem to help the fatigue some, but I still

have

> pain but I have only had three shots. I am still on 15 mg a day of

> Prednisone and absolutely cannot get by without it. I have been on

> it for seven months now and they just did a bone density study to

> see how that is. I would not be able to function at all without

> it. My sed rate goes back up through the roof when they try to

wean

> me, etc. Still on the MTX, but the pills not the shots and folic

> acid as well as my Nexium for my esophageal spasms and reflux.

>

> I am sorry if I am whining, really I am. I just have not had the

> energy to even read the posts. I hope I have not missed any that I

> should have answered. If I have, please do not take it personally

I

> just was not up to it. I think on this board when people get quiet

> and you don't hear from them for long periods it is because they

are

> not doing to well huh?

>

> Well, email me if you really want me to get it or post and I will

> try to read it ASAP, but before the appt on the 30th. Possibly a

> list of questions would be in order? I don't understand why I

> cannot go to a pain management clinic, but with my HMO I cannot do

> anything unless my primary care doctor okays it and she says no.

By

> the way, I did not have any withdrawal symptoms or anything coming

> off the pain med. I only had two scripts and I did not over take

> them or anything, geez. It seems like they are paranoid or

> something. Of course, my sleep is suffering so I am going to have

> to try some of that tea!

>

> Thanks for listening!

>

> Tracie in Maine