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Me and my Rummy

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A short time back, one of the ladies referred to a Rheumy (as we generally

abbreviate) as a Rummy. I was going to reply to that, but let it go.

However, I think I have a Rummy. I don't know if it's him or her, the nurse.

My first dealing with her was when she was subbing for my Rheumy's nurse. I

called to refill my BP meds and she said 'sure, no problem'. Then she never

ordered them!

Now that my original Rheumy has moved on, the only one left is her Rheumy.

Last year, she made a big deal out of my having to do my blood tests on

Thursday because I take my MTX on Sunday, so she changed schedules to

reflect this. Now she has changed her tune, and has me going to the lab

every 4 weeks only on Tuesday! That's because they close the lab Thurs & Fri

and go to another clinic on the other side of town, and she wouldn't be able

to fill meds on time. I called last week to have my MTX refilled, and she

unloaded on me for not doing a lab test on the 4 week schedule instead. She

never got the MTX ordered but had plenty of time to schedule my labs for the

rest of the year!

My creatinine level went up because of a different BP med and stabilized at

1.4 instead of the usual 1.2. She and/or the Rheumy made the decision to cut

off my anti-inflammatories but did nothing to help me after that. I'm

definitely worse off since I started to use this doc. They didn't even raise

my Folic acid when he went up on my MTX, and I didn't know about

complications until someone on this board mentioned a swelling tongue. I

called to find out about it and was told, " oh yeah, that's the reason you

should increase the Folic " . It was obviously an afterthought.

Information I found on Creatinine said that to really find out if it's a

problem with the kidneys, a 24 hour urine test is also required. They

haven't done this, and when I asked about it, the answer was a mumble about

it doesn't have to be done. I get the idea that I didn't have to get off

Clinoril only because of that small increase in Creatinine. Some people have

a 'normal' creatinine level of 1.4-1.5 .

I wish I could switch to another doc but that's the only one I can afford

since the hospital helps me on bills there, and he's the only game in town.

Any words of wisdom, please?

Dennis

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