Question

[Guest guest]

WOW, just the thought is of this!! I certainly hope there is something like

this, I'll be right there in line with my resume. I've never heard of it

though so I won't be holdin my breath.

Patty

[Guest guest]

Transoral is correct. They went through the mouth to do the

mastoidectomy. (mastoids are the bony prominence behind the ears).

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[Guest guest]

This would be serosal, from serosa which is the outermost coat or serous layer

of a visceral structure that lies in the body cavities of the abdomen or thorax.

Quixote

question

My Groups | nmtc Main Page | Start a new group!

Invasive highly differentiated adenocarcinoma of colon. Tumor extends

through muscular wall to subadjacent fat. Proximal, distal and (s/l)

cirrhosial? margins clear.

I can not document this spelling. Please help with this probably simple

spelling.

Thanks

Kris

PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

[Guest guest]

HOHOSON@... wrote:

> Invasive highly differentiated adenocarcinoma of colon. Tumor extends

> through muscular wall to subadjacent fat. Proximal, distal and (s/l)

> cirrhosial? margins clear.

How about serosal?

Jayni

[Guest guest]

Could it be febrile illness?

Question

> Any ideas on this one....

>

> s/l " Fab-er-all " illness, he does not have evidence of otitis media, his

> lungs sound clear, his strept test is negative, it is probably a viral

> illness.

>

> Thanks.

>

> Bev

>

>

> PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

>

[Guest guest]

Geeze, so much information. I don't feel grown up for all this. I guess I'll know more about it tommorrow when I go to the doctor. I really do hate all of this sometimes. Thanks for everything Pierre.

Pierre L wrote:

Hi . I can't speak for your nephrologist, but from what I understand,focal segmental sclerosis is not the disease, but one of the patterns inthere that has been identified by the pathologist. It is just one feature,and most people who have had IgAN for some time (enough for creatinine to beelevated) will have some degree of glomerular sclerosis, in addition to theglomerulonephritis. The sclerosis is the permanent damage, or scarring.Focal just means only a minority of the glomeruli are affected, andsegmental means that of those glomeruli that are affected, only a certainpart of the glomeruli is affected, not all of it. Some people do have "focalsegmental glomerulosclerosis" as their primary diagnosis, but a biopsy hasto be examined in its entirety, and based on that, since you're in thisgroup, I assume your primary diagnosis was an IgA-type glomerulonephritis,with some secondary glomerulosclerosis (which in your case, just happens tobe focal and segmental). I don't have the stats in front of me, but it's asafe bet that most adults who are diagnosed with IgA nephropathy alreadyhave some glomerulosclerosis by the time they are diagnosed.By the way, strictly-speaking, the pathologist doesn't really make the finaldiagnosis. He or she identifies the patterns in there (the morphology), andreports back to the nephrologist what was found, and what primary kidneydisease is most likely to have caused those patterns. It should normally bethe nephrologist who makes the final diagnosis, based on information, plussome other information from lab work, etc.I think most nephrologists would tell the patient he/she has IgA nephropathy(or IgA glomerulonephritis, or something to that effect), and scarring (orglomerulosclerosis) to 2/3 of the glomeruli -- or something like that. Mostwould just say IgA nephropathy and might not even mention the scarring, ormention it only in passing. Many if not most wouldn't specify the specificmorphology of the scarring, since that's getting pretty technical for theaverage patient who has just found out he or she has IgA nephropathy.It doesn't make that much difference anyway, except that certain"morphological" features seen in the biopsy may help the nephrologist decideif, for example, it's worth trying prednisone. This is getting beyond myunderstanding of this though, but it's the reason we all really can't demanda certain treatment because it worked for Joe or Jane. We just don't knowall the facts that led a nephrologist to try something in any given person,and what's good for Joe or Jane may not necessarily be good for us, sincethe morphology of the disease in the kidneys may not be exactly the same.Pierre Question>> I decided to read my pathology report and I noticed in my diagnosis itstated I also had focal segmental sclerosis. I researched it on the renalpathology site and it seems to be a pretty important piece of info. Whydidn't my neph tell me?>> http://www-medlib.med.utah.edu/WebPath/webpath.html#MENU>> Ugh....if it's not one thing it is another.>> >>>> --------------------------------->

[Guest guest]

Hi . I can't speak for your nephrologist, but from what I understand,

focal segmental sclerosis is not the disease, but one of the patterns in

there that has been identified by the pathologist. It is just one feature,

and most people who have had IgAN for some time (enough for creatinine to be

elevated) will have some degree of glomerular sclerosis, in addition to the

glomerulonephritis. The sclerosis is the permanent damage, or scarring.

Focal just means only a minority of the glomeruli are affected, and

segmental means that of those glomeruli that are affected, only a certain

part of the glomeruli is affected, not all of it. Some people do have " focal

segmental glomerulosclerosis " as their primary diagnosis, but a biopsy has

to be examined in its entirety, and based on that, since you're in this

group, I assume your primary diagnosis was an IgA-type glomerulonephritis,

with some secondary glomerulosclerosis (which in your case, just happens to

be focal and segmental). I don't have the stats in front of me, but it's a

safe bet that most adults who are diagnosed with IgA nephropathy already

have some glomerulosclerosis by the time they are diagnosed.

By the way, strictly-speaking, the pathologist doesn't really make the final

diagnosis. He or she identifies the patterns in there (the morphology), and

reports back to the nephrologist what was found, and what primary kidney

disease is most likely to have caused those patterns. It should normally be

the nephrologist who makes the final diagnosis, based on information, plus

some other information from lab work, etc.

I think most nephrologists would tell the patient he/she has IgA nephropathy

(or IgA glomerulonephritis, or something to that effect), and scarring (or

glomerulosclerosis) to 2/3 of the glomeruli -- or something like that. Most

would just say IgA nephropathy and might not even mention the scarring, or

mention it only in passing. Many if not most wouldn't specify the specific

morphology of the scarring, since that's getting pretty technical for the

average patient who has just found out he or she has IgA nephropathy.

It doesn't make that much difference anyway, except that certain

" morphological " features seen in the biopsy may help the nephrologist decide

if, for example, it's worth trying prednisone. This is getting beyond my

understanding of this though, but it's the reason we all really can't demand

a certain treatment because it worked for Joe or Jane. We just don't know

all the facts that led a nephrologist to try something in any given person,

and what's good for Joe or Jane may not necessarily be good for us, since

the morphology of the disease in the kidneys may not be exactly the same.

Pierre

Question

>

> I decided to read my pathology report and I noticed in my diagnosis it

stated I also had focal segmental sclerosis. I researched it on the renal

pathology site and it seems to be a pretty important piece of info. Why

didn't my neph tell me?

>

> http://www-medlib.med.utah.edu/WebPath/webpath.html#MENU

>

> Ugh....if it's not one thing it is another.

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

You're welcome . Good luck with your appointment tomorrow.

Pierre

Re: Question

>

>

> Geeze, so much information. I don't feel grown up for all this. I guess

I'll know more about it tommorrow when I go to the doctor. I really do hate

all of this sometimes. Thanks for everything Pierre.

>

[Guest guest]

I don't think I would entrust a urinary tract matter to a nephrologist : )

Pierre

Question

>

> Well, I am decidedly at my wits end about this and I am hoping that ya'll

can help. For the past 8 months or so (since my last trip to a urologist) I

have had this problem. My problem is that it feels like I have urinary

tract infection. For the most part, I always hurt and it hurts when I use

the bathroom. Especially after I go, I burn for 30 minutes or so. I've

asked my gp and my neph. My gp checks me for a UTI each time but there is

no infection. My neph says, " I guess it could be thick blood formations

from your kidney that are scarping your urethra. " What? Does anyone else

have this problem? Has anyone heard of this? I would greatly appreciate

any information.

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

I had the symptoms of IgAN (blood and protein in urine) about a couple of

years or so before I got married. We've been married 22 years now, and I

have two kids. My daughter is a young adult, in college, my son is still a

late teen in high school. Neither has ever shown any sign of any kidney

disease, or any other immune-type disease. So, yes, you can have children.

There may be a slight chance that IgAN would be passed on to the next

generation, but, as far as I can tell, it's a pretty small chance. It wasn't

passed on to me, as nobody on either side of my family has ever had any kind

of kidney disease whatsoever.

As to the blood pressure medication affecting the ability to reproduce. No,

it shouldn't at all. The medication is probably an ACE inhibitor, and this

class of drugs is the least likely to cause erectile problems. I wouldn't

worry about it one bit. I can tell you that I spent quite a few years on

various members of that class of drugs, and it never affected me in that way

at all.

Hope that helps.

Pierre

question

> My boyfriend has IGA Nephropathy. We've been together for almost 6

> years and we're thinking about getting married. Yesterday he told me

> that his doctor wants to put him on a blood pressure medication that

> might cause sexual side affects. Will this make it hard to have

> children? If we are blessed with children, what are the chances he

> will pass his disorder on to our kids?

>

>

[Guest guest]

It didn't make it hard for us to have kids. We have 3 and my husband was

diagnosed before any of them were born. My understanding is that there may

be a genetic component to this disease, but I don't know that it's fully

understood yet. Others who follow it more closely and can actually

understand medical terms might be better at answering that question.

The thing to think about before you have kids is how you will deal with it

if he has to have dialysis and/or a transplant. I didn't realize we would be

turned down for insurance until after our 2nd child (and the 3rd was a

woops!). So, we have had to be creative about making sure we can handle it

financially should this happen. If it doesn't happen, then we'll have a

nicer retirement!

question

My boyfriend has IGA Nephropathy. We've been together for almost 6

years and we're thinking about getting married. Yesterday he told me

that his doctor wants to put him on a blood pressure medication that

might cause sexual side affects. Will this make it hard to have

children? If we are blessed with children, what are the chances he

will pass his disorder on to our kids?

[Guest guest]

WELL AS FAR AS I KNOW, IT'S MORE DIFFICULT FOR A WOMAN TO HAVE KIDS

WHEN THEY HAVE IgAN THAN A MAN. YOUR BOYFRIEND SHOULD NOT HAVE ANY

PROBLEMS BUT HE COULD ALWAYS ASK HIS DOCTOR. AS FAR AS PASSING THIS

DISORDER TO A KID THERE IS NO MEDICAL PROOF OF THAT. AND ABOUT THE BP

MEDICATION THERE IS NO CONNECTION TO IT WITH SEXUAL ACTIVITY

SPECIALLY IF HE IS TAKING ACE INHIBITORS(lisinopril, benazepril,

captopril, cilazapril, enalapril, enalaprilat, fosinopril, moexipril,

perindopril, quinapril, ramipril, or trandolapril). BUT IF HE GETS TO

STREES ABOUT THIS DISEASE HE MIGHT HAVE SEXUAL PROBLEMS(the most

powerful killer for sex it's strees).

Jeimy

> My boyfriend has IGA Nephropathy. We've been together for almost 6

> years and we're thinking about getting married. Yesterday he told

me

> that his doctor wants to put him on a blood pressure medication

that

> might cause sexual side affects. Will this make it hard to have

> children? If we are blessed with children, what are the chances he

> will pass his disorder on to our kids?

[Guest guest]

My son now 7 months old is more Ds than Mds. He is saying Mama and Dada is this

a good sign at this age or just the norm, also starting seperation anxiety

already, Eesh!

Thanks,

[Guest guest]

My daughter 16, is mainstreamed for electives like a cooking class,

chorus, keyboarding this year. I believe she is fine in these classes. I think

she models what she sees. She is definitely not as mature as her peers but I

think she is fine around them.

Jeanne

Question

for all the kids that are mainstreamed do you experience imaturity problems with

them... acting amongst their peers at a much younger age then they are?? If so

do you receive services in school for them?? how are these behaviors

approached??

Debbi mom to Kaitee mds (13)

[Guest guest]

My son Jack,9,is about 1 year behind in maturity.  He struggles socially, do

to language skills.  He is mainstreamed but is on an IEP and gets pulled out

of his classes for math, reading and speech.  He also attends a weekly social

skills class which takes place over the lunch hour.  His social skills have

gotten much better this year, but tends to resort to acting silly or becoming

really physical(hugging,wrestling, or talking really silly) when he is unsure of

himself.  He can't control himself sometimes. Usually when this happens, he

just needs some time to himself  to regroup.  This can be challenging when we

are not at home.  Sometimes he'll go sit in the car or he will try to hid. 

This behavior has always gone on and we have just tried to see the signs and

take him out of the situation before it increases.  If we are not present,

like at school, there are aids there that remind him of appropriate behavior. 

He usually responds to

that because he doesn't want to be embarassed around his peers. We can tell

he is aware of his actions, but just can't help himself sometimes.  We just

keep working at it.    

Ann Schull

mom to (13) Annika(11) and Jack (9)mds.

 

________________________________

To: MosaicDS

Sent: Sun, May 30, 2010 9:28:46 AM

Subject: Re: Question

 

My daughter 16, is mainstreamed for electives like a cooking class,

chorus, keyboarding this year. I believe she is fine in these classes. I think

she models what she sees. She is definitely not as mature as her peers but I

think she is fine around them.

Jeanne

Question

for all the kids that are mainstreamed do you experience imaturity problems with

them... acting amongst their peers at a much younger age then they are?? If so

do you receive services in school for them?? how are these behaviors

approached??

Debbi mom to Kaitee mds (13)

[Guest guest]

The immaturity comes from their not knowing what they don't know. Proper

communication with peers is not a school subject; our kids struggle with

understanding " mainstreamed " peer behavior. What's so cool is that our kids

are special and have a special way of dealing with all people. Who says

they " have to " adopt peer-level attitudes, stress, and complex emotional

issues? Our kids are doing their best in their own very special, awesome

ways. Our job, as parents, is to see that they reach a good level in daily

living tasks so that they can gain self-esteem by taking care of themselves.

Barb - mom of

Charlie - Age 15

Plymouth, NH

>

>

>

> My daughter 16, is mainstreamed for electives like a cooking

> class, chorus, keyboarding this year. I believe she is fine in these

> classes. I think she models what she sees. She is definitely not as mature

> as her peers but I think she is fine around them.

>

> Jeanne

>

>

> Question

>

> for all the kids that are mainstreamed do you experience imaturity problems

> with them... acting amongst their peers at a much younger age then they

> are?? If so do you receive services in school for them?? how are these

> behaviors approached??

> Debbi mom to Kaitee mds (13)

>

>

[Guest guest]

Lauryn acts very mature for her age, in fact she comes across as the 'mother

hen' to her peers, looking after those who will let her!

>

> >

> >

> >

> > My daughter 16, is mainstreamed for electives like a cooking

> > class, chorus, keyboarding this year. I believe she is fine in these

> > classes. I think she models what she sees. She is definitely not as mature

> > as her peers but I think she is fine around them.

> >

> > Jeanne

> >

> >

> > Question

> >

> > for all the kids that are mainstreamed do you experience imaturity problems

> > with them... acting amongst their peers at a much younger age then they

> > are?? If so do you receive services in school for them?? how are these

> > behaviors approached??

> > Debbi mom to Kaitee mds (13)

> >

> >

[Guest guest]

Barbara,

I wasn't complaining about her immaturity, I am rather use to it and we all just

flow thru the day with Kaitee. However it seems that her behavior problems from

school are stemming from her immaturity level. And with the bully policy in

school , Kaitee is falling victim to policy

She has been inschool suspension way to much and suspended from school.

The reasons are really petty ... but messes with their policy because they

involve other students.

That is the reason I asked , just trying to get a grip on what I should be

looking and working toward for her.

Far as I am concerned Kaitee is who Kaitee is, and I am fine by it .

debbi

The immaturity comes from their not knowing what they don't know.

Proper

> communication with peers is not a school subject; our kids struggle with

> understanding " mainstreamed " peer behavior. What's so cool is that our kids

> are special and have a special way of dealing with all people. Who says

> they " have to " adopt peer-level attitudes, stress, and complex

emotional

> issues? Our kids are doing their best in their own very special,

awesome

> ways. Our job, as parents, is to see that they reach a good level

in daily

> living tasks so that they can gain self-esteem by taking care of

themselves.