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Re: here's my curiosity for all...

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a was diagnosed with ADHD about 18 months ago.  She loses focus and her

memory seems to be shot because of it.  She can hop from one activity the next

in a heartbeat.  Her attention span is pretty much non exsistent.  We have her

on medication for it, it helped for a while, but it doesn't seem to be doing the

trick anymore.

 

Tina

Subject: here's my curiosity for all...

To: " mosaicds " <MosaicDS >

Date: Wednesday, April 29, 2009, 5:57 PM

I would like to ask if anyone know/has/direct me into the way for knowledge

of Autism, and ADHD. I'm currently learning some more about the two.. And

was also wondering if anyone could educate me more....

How's everyone's week thus far, I've been a bit busy I'll admit.

I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

--

Casey T Morton.

" work on today, so tomorrow can be better "

http://www.imdsa. org/

http://mosaicmoment s.today.com/

http://mirrormyster ies.today. com/

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:Hi Tina,

Have you tried Occupational Therapy.  Isabella can also jump from one thing to

another quicker than anything I have ever seen.  I was told she has sensory

issues. If she grabs something she should not have, by the time I take it off of

her she already has something else in her hand.  We can go on like that for 5

minutes until I finally catch her..  My OT said so many kids are diagnosed with

ADD and ADHD and now they are finding out that is not what they have they are

really sensory seekers.  If she is a sensory seeker that could be why the

medications are not working. 

Sue

________________________________

To: MosaicDS

Sent: Wednesday, April 29, 2009 8:58:17 PM

Subject: Re: here's my curiosity for all...

a was diagnosed with ADHD about 18 months ago.  She loses focus and her

memory seems to be shot because of it.  She can hop from one activity the next

in a heartbeat.  Her attention span is pretty much non exsistent.  We have her

on medication for it, it helped for a while, but it doesn't seem to be doing the

trick anymore.

 

Tina

From: casey morton <ctmramgmail (DOT) com>

Subject: here's my curiosity for all...

To: " mosaicds " <MosaicDS@yahoogroup s.com>

Date: Wednesday, April 29, 2009, 5:57 PM

I would like to ask if anyone know/has/direct me into the way for knowledge

of Autism, and ADHD. I'm currently learning some more about the two.. And

was also wondering if anyone could educate me more....

How's everyone's week thus far, I've been a bit busy I'll admit.

I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

--

Casey T Morton.

" work on today, so tomorrow can be better "

http://www.imdsa. org/

http://mosaicmoment s.today.com/

http://mirrormyster ies.today. com/

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Casey -

For knowedge about Autism - I would go to the Autism Speaks web site.

http://www.autismspeaks.org/ - I would not go to CAN - Cure Autism Now - as

I don't believe it is something that can or should be cured. I think

there are things that a person with Autism can learn to perform better in a

Non-Autistic society but I don't think that it needs to be cured - there is

nothing WRONG with an austistic person, they are just different. Just like

there is nothing WRONG with a person who has MDS they are just different.

http://kidshealth.org/kid/health_problems/brain/autism.html# - is another

site that explains it well.

Darlene - Mom to (12) and (10)

>

>

> I would like to ask if anyone know/has/direct me into the way for knowledge

> of Autism, and ADHD. I'm currently learning some more about the two.. And

> was also wondering if anyone could educate me more....

>

> How's everyone's week thus far, I've been a bit busy I'll admit.

> I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

>

> --

> Casey T Morton.

> " work on today, so tomorrow can be better "

> http://www.imdsa.org/

> http://mosaicmoments.today.com/

> http://mirrormysteries.today.com/

>

>

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Actually, Darlene, there is a movement that is claiming that autism can be

cured. Jennie McCarthy claims her son was cured. People " are " recovering from

autism.

Here is a reliable link:

http://autism.com/treatable/index.htm

>

> >

> >

> > I would like to ask if anyone know/has/direct me into the way for knowledge

> > of Autism, and ADHD. I'm currently learning some more about the two.. And

> > was also wondering if anyone could educate me more....

> >

> > How's everyone's week thus far, I've been a bit busy I'll admit.

> > I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

> >

> > --

> > Casey T Morton.

> > " work on today, so tomorrow can be better "

> > http://www.imdsa.org/

> > http://mosaicmoments.today.com/

> > http://mirrormysteries.today.com/

> >

> >

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-

I don't believe that you can " Cure " Autism just like you can't cure DS - it

is who you are. Yes, you can learn social cues and become more involved but

who you are does not change - when we were growing up - we had kids who were

loaners, who had only one or two good friends and they were fine. They did

not like crowds, that was just who they were and that was fine. They had

one specialty subject and stunk at others. They were shy - Now they have a

name for it, they call it Autistic - I believe those people who claim to

have cured their children, like Jennie McCarthy, are mistaken. Her child

was either misdiagnosed or learned behaviors that overcame his autistic

trait. Just like there are many features of DS that are in the general

population (flat feet, curved pinkies, large gap between toes) there are

many features of Autism that are in the general population and I think

Autism is the latest diagnosis craze as it gets Federal money - everyone

wants that dx. I think it is a dream to CURE autism - just like you can

not cure MDS - you can teach our children to become a productive part of

society (have a job, family) but they will always have MDS.

As a computer programmer, I can tell you that a lot more than a small

percentage of the programmers in my company have a form of Autism. They are

fine - they are really good at what they do - they contribute. Let them be

who they are and teach them how to function in a society where you need to

have some social skills to get a job - not to keep it. Computers don't mind

if you don't make small talk, or dress fashionably.

Darlene -

>

>

> Actually, Darlene, there is a movement that is claiming that autism can be

> cured. Jennie McCarthy claims her son was cured. People " are " recovering

> from autism.

> Here is a reliable link:

> http://autism.com/treatable/index.htm

>

>

>

> >

> > >

> > >

> > > I would like to ask if anyone know/has/direct me into the way for

> knowledge

> > > of Autism, and ADHD. I'm currently learning some more about the two..

> And

> > > was also wondering if anyone could educate me more....

> > >

> > > How's everyone's week thus far, I've been a bit busy I'll admit.

> > > I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

> > >

> > > --

> > > Casey T Morton.

> > > " work on today, so tomorrow can be better "

> > > http://www.imdsa.org/

> > > http://mosaicmoments.today.com/

> > > http://mirrormysteries.today.com/

> > >

> > >

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Yesterday, the news said they found a genetic link to Autism. Something that was

suspected the entire time by most.

Darlene is right on her comments here. You can not " cure " Autism. Either you are

misdiagnosed (this is happening at an extreme rate in America) or with therapy

you can help alleviate the symptoms.

There are many things that can cause " Autistic Tendencies " . It could be diet, it

could be environment or it could be sensory integration disorder. These things

can cause symptoms that look like Autism, but is not true Autism.

Thanks Darlene for your input on this. I think it is important to make sure no

one is confused about Autism since so many of our children do have " Autistic

Tendencies " and since you are a mom of children both with Autism and mDs, you

have a wealth of insight and information!

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA

BUILDING BRIDGES FOR DOWN SYNDROME

RESEARCH & AWARENESS CONFERENCE

>

>

> Actually, Darlene, there is a movement that is claiming that autism can be

> cured. Jennie McCarthy claims her son was cured. People " are " recovering

> from autism.

> Here is a reliable link:

> http://autism. com/treatable/ index.htm

>

>

>

> >

> > >

> > >

> > > I would like to ask if anyone know/has/direct me into the way for

> knowledge

> > > of Autism, and ADHD. I'm currently learning some more about the two..

> And

> > > was also wondering if anyone could educate me more....

> > >

> > > How's everyone's week thus far, I've been a bit busy I'll admit.

> > > I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

> > >

> > > --

> > > Casey T Morton.

> > > " work on today, so tomorrow can be better "

> > > http://www.imdsa. org/

> > > http://mosaicmoment s.today.com/

> > > http://mirrormyster ies.today. com/

> > >

> > >

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I also am am mother who has both a child with autism and a child with MDS. I

totaly agree that autism is not curable. For those people whose children have

recovered I believe that the symptoms were caused by an allergy to food or they

had sencory processing disorder which can have the same symptoms as Autism.

Change of diet has not helped my daughter, sensory diet has helped some, and

there are some supplements that help, but she will Always have autism. my job is

to help her learn to self regulate so she can function in our world. just my two

cents.

Jo Ann Mom to mds And asd

> > >

> > > >

> > > >

> > > > I would like to ask if anyone know/has/direct me into the way for

> > knowledge

> > > > of Autism, and ADHD. I'm currently learning some more about the two..

> > And

> > > > was also wondering if anyone could educate me more....

> > > >

> > > > How's everyone's week thus far, I've been a bit busy I'll admit.

> > > > I CAN'T WAIT FOR THE CONFERENCE, WHAT ABOUT YOU!!

> > > >

> > > > --

> > > > Casey T Morton.

> > > > " work on today, so tomorrow can be better "

> > > > http://www.imdsa.org/

> > > > http://mosaicmoments.today.com/

> > > > http://mirrormysteries.today.com/

> > > >

> > > >

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