Re: Another Stupid CSF Leak....Ugh!!

[Guest guest]

hi

yes i have had leaks in the end after 2 repairs i had

a shunt fitted . it redirects the spinal fluid into

your stomach so it stays away from your back

i had my last op on 14 november to have the shunt

fitted ansd am enjoying being home after spending most

of the last 45 months in hospitl . my first op to have

a de-thether was on 3 july 2007

love dawn

--- smith_1268 wrote:

> Hi - Has anyone else had this many problems after an

> untethering??

>

> Recap: Had untethering and laminectomy on Aug.14th

> came home with a

> headache. Finally 2 weeks later after suffering with

> massive headaches

> I had an MRI on Sept.1st and couldn't get up after

> MRI cause of a

> massive headache when I stood up so I was admitted

> and had the " huge "

> leak fixed the next morning. Everything was fine

> until 4 days after I

> was home and I got another " bump " but felt fine had

> little headaches

> here and there. Found out that during the weeks of

> recovery I got high

> blood pressure..which I never had before the

> surgery...it was actually

> very low before. So...I recently had an MRI and I

> still have the

> leak. My daughters neurologist asked me today if I

> have ever been

> diagnosed with a connective tissue disorder???

> I do remember someone in this good mentioning that

> to me before...does

> anyone have any info on it? I have an appt.

> tomorrow (12th) with my NS

> and would like to throw that out at him.

> Thank You!!!

> - S.

>

>

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[Guest guest]

How long did you lay flat after your surgery? Amy just had a retether

released on Monday and her neurosurgeon kept her flat for 5 days (she came

home yesterday). He said prior to the surgery that he might want her flat

for up to 10 days depending on the condition of the dura when he closed.

Bonnie McElroy

(Wife to , the most patient man on the planet, and Mom to (29)

and Amy (18) who was born with VACTERL Assoc. and a tethered spinal cord x

2, is a survivor of 32 surgical procedures, has a latex allergy, neurogenic

bladder (self-caths) and has a Chait cecostomy button for bowel management.

Amy is co-chair of UOAA's Teen Network and is the Children's Miracle Network

Alabama Champion for 2007.)

[Guest guest]

When I had the 1st un-tether when I was 10 they have me up after walking after

24 hours. For this surgery on Aug 14th (now that I am 39) I had to lay flat for

4 days and went home on the 5th day. When I had the leak fixed 2 weeks after

coming home I had to lay flat for 2 1/2 days and then went home on the day I got

up. I couldn't do anything for 8 weeks...I mean nothing. I am now off of

restrictions to see what I can and cannot do with having this leak.

Bonnie wrote: How long did you lay flat

after your surgery? Amy just had a retether

released on Monday and her neurosurgeon kept her flat for 5 days (she came

home yesterday). He said prior to the surgery that he might want her flat

for up to 10 days depending on the condition of the dura when he closed.

Bonnie McElroy

(Wife to , the most patient man on the planet, and Mom to (29)

and Amy (18) who was born with VACTERL Assoc. and a tethered spinal cord x

2, is a survivor of 32 surgical procedures, has a latex allergy, neurogenic

bladder (self-caths) and has a Chait cecostomy button for bowel management.

Amy is co-chair of UOAA's Teen Network and is the Children's Miracle Network

Alabama Champion for 2007.)

Tom's Electric,Inc

- Fax

www.TomsElectric.com

---------------------------------

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