Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 There is an end-point nystagmus... Dawn ) wrote: > I can't clearly hear this.... " There is slight nystagmus to the left > with > s/l " endbeat " or " emmbeat " nystagmus on far lateral gaze only. " > > I just can't figure out what this is...Thanks for any help > > lisa > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > ICQ #946141 > AIM = RaeComp > Send me a message from http://ram.ramlink.net/~raecomp > A wolf in sheep's clothing needs professional help > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 I also see up-beat, down-beat and five-beat nystagmus Dawn Dawn Villejoin wrote: > There is an end-point nystagmus... > > Dawn ) > > wrote: > > > I can't clearly hear this.... " There is slight nystagmus to the left > > with > > s/l " endbeat " or " emmbeat " nystagmus on far lateral gaze only. " > > > > I just can't figure out what this is...Thanks for any help > > > > lisa > > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > > ICQ #946141 > > AIM = RaeComp > > Send me a message from http://ram.ramlink.net/~raecomp > > A wolf in sheep's clothing needs professional help > > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > > > > > ----------------------------------------------------------------------- > > > > > > ----------------------------------------------------------------------- > > > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Correction to previous post: I had up-beat and down-beat. Stedman's has upbeat and downbeat. ) Dawn wrote: > I can't clearly hear this.... " There is slight nystagmus to the left > with > s/l " endbeat " or " emmbeat " nystagmus on far lateral gaze only. " > > I just can't figure out what this is...Thanks for any help > > lisa > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > ICQ #946141 > AIM = RaeComp > Send me a message from http://ram.ramlink.net/~raecomp > A wolf in sheep's clothing needs professional help > ¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Ricky had Nystagmus at birth. It appears he has somehow just " grown out of it " . He is six now and the last time I saw his eyes vibrate was approximately one year ago. We did not do any treatments for this so I apologize for not having more information for you. Just three weeks ago, we saw Dr. Steinkuller at TX Children's who noted zero signs of Nystagmus and/or Strabismus. Ricky now wears glasses to correct near-sightedness but that is the extent of his eye-troubles at this time. I hope you find many more useful answers from other parents. mom to Mickey (12) and Ricky (6 mds) ________________________________ To: mosaicds Sent: Tuesday, August 25, 2009 7:43:08 PM Subject: Nystagmus Hi Everyone I got this question from another group that I moderate and was wondering if one of you could answer it. I know several of you have dealt with this. Hi ! My 1 yr old daugther has a eye problem called Nystagmus. Her eyeballs keep on vibrate in order to focus well. Does any parents here come across this problem ? Any treatment can be done ? Thanks, Kristy Colvin IMDSA President ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa. org http://www.mosaicmo ments.today. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 I do not know the answer but I will print it out and ask Isabella vision therapist. She comes on Thursday evening. Sue ________________________________ To: mosaicds Sent: Tuesday, August 25, 2009 9:43:08 PM Subject: Nystagmus Hi Everyone I got this question from another group that I moderate and was wondering if one of you could answer it. I know several of you have dealt with this. Hi ! My 1 yr old daugther has a eye problem called Nystagmus. Her eyeballs keep on vibrate in order to focus well. Does any parents here come across this problem ? Any treatment can be done ? Thanks, Kristy Colvin IMDSA President ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa. org http://www.mosaicmo ments.today. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Thank you ! Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com Subject: Re: Nystagmus To: MosaicDS Date: Tuesday, August 25, 2009, 8:58 PM Ricky had Nystagmus at birth. It appears he has somehow just " grown out of it " . He is six now and the last time I saw his eyes vibrate was approximately one year ago. We did not do any treatments for this so I apologize for not having more information for you. Just three weeks ago, we saw Dr. Steinkuller at TX Children's who noted zero signs of Nystagmus and/or Strabismus. Ricky now wears glasses to correct near-sightedness but that is the extent of his eye-troubles at this time. I hope you find many more useful answers from other parents. mom to Mickey (12) and Ricky (6 mds) ____________ _________ _________ __ From: Kristy Colvin <kristyimdsa (DOT) org> To: mosaicds@yahoogroup s.com Sent: Tuesday, August 25, 2009 7:43:08 PM Subject: Nystagmus Hi Everyone I got this question from another group that I moderate and was wondering if one of you could answer it. I know several of you have dealt with this. Hi ! My 1 yr old daugther has a eye problem called Nystagmus. Her eyeballs keep on vibrate in order to focus well. Does any parents here come across this problem ? Any treatment can be done ? Thanks, Kristy Colvin IMDSA President ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa. org http://www.mosaicmo ments.today. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 I asked Zoe's early interventionist about this today when she came by. (she is with SC school for the deaf and blind). Apparently this is when the eyes flutter to try to focus. It is seen at birth and children with this will turn their heads to the side to be able to focus better. She said it is normally in conjunction with some kind of neurological disorder (in other words, there is usually something else going on - not just nystagmus). There is no treatment and you do not out grow it. Hope this helps. Suzanne > > Hi Everyone > I got this question from another group that I moderate and was wondering if one of you could answer it. I know several of you have dealt with this. > > Hi ! My 1 yr old daugther has a eye problem called Nystagmus. Her > eyeballs keep on vibrate in order to focus well. Does any parents here > come across this problem ? Any treatment can be done ? > > > Thanks, > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa.org > http://www.mosaicmoments.today.com > > > > Quote Link to comment Share on other sites More sharing options...
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