Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Hi Everyone HELP!!! Severe right flank pain has returned today. It came on very suddenly, and is accompanied again by a purple rash, this time on face and chest. I felt perfectly ok, and was washing my car when wham. It was so intense I thought I was going to pass out. Managed to get indoors, where I have been sick, and have a really bad headache now!!! Have taken some Pethidine, the only thing that works for the pain, and it is gradually subsiding, but I feel totally exhausted. I don't want to go down to my GP again, as I am seeing him tomorrow anyway, but wondered if any of you guys could have any clues....as so far tests have revealed zilch. My temperature is normal by the way. Pierre could this be due to my low BP, or is it as I suspect a flare up of the IGAN, this is beginning to follow a familiar pattern, ok for a couple of weeks or even months, then off we go again. Thanks guys and sorry to be posting yet another whine!!! Best wishes to all, particularly Walt for continued well being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 I doubt that is related in any way to low blood pressure , unless whatever it is is causing the low blood pressure. I don't know what it is though. What does your doctor say about that purple rash? That part of it sure does sound like it could be HSP, especially when you add that to the fact that you have IgAN symptoms. But I assume they must have thought of that and dismissed it, as we have discussed before. Severe, *sudden* flank pain is absolutely not characteristic of IgAN. There has to be something else going on, I think. It's the suddeness and severity of it together that are puzzling. If it were me, to get something like that sorted out, especially with sudden pain severe enough to make you almost feel like you will pass out, I would go to Emergency or at least my doctor while I have the symptoms. Keep after them to find out. I suspect the fact that you have IgAN may be a " red herring " at this point, and distracting medics' attention from something else that might be going on. Hope you feel better this morning. Pierre karen@... wrote: > > Hi Everyone > > HELP!!! Severe right flank pain has returned today. It came on > very suddenly, and is accompanied again by a purple rash, this time > on face and chest. I felt perfectly ok, and was washing my car when > wham. It was so intense I thought I was going to pass out. Managed > to get indoors, where I have been sick, and have a really bad > headache now!!! Have taken some Pethidine, the only thing that works > for the pain, and it is gradually subsiding, but I feel totally > exhausted. > > I don't want to go down to my GP again, as I am seeing him tomorrow > anyway, but wondered if any of you guys could have any clues....as so > far tests have revealed zilch. My temperature is normal by the way. > > Pierre could this be due to my low BP, or is it as I suspect a flare > up of the IGAN, this is beginning to follow a familiar pattern, ok > for a couple of weeks or even months, then off we go again. > > Thanks guys and sorry to be posting yet another whine!!! > > Best wishes to all, particularly Walt for continued well being. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Dear All First off thanks Pierre for the message, and the advice, which I have taken up. This is rather interesting and seems bizarre, but I can see the sense in it. Anyway as you know I have degeneration of the spine, and am due to undergo nerve block injections next week. Here is an excerpt from my Pain Management Consultant to my GP:- 'I think this lady has significant signs and symptoms of thoraco lumbar spine, which may be related to spinal origin, but are also secondary to her kidney disease and problems. I have explained how the kidney and the thoraco lumbar spine have a similar nerve supply and that they share the sympathetics and therefore renal pathology can give rise to secondary spasm in the muscular skeletal symptom or even synergise with the primary muscular skeletal problem. So from what if I have understood correctly, it is my back that is giving me the pain, albeit situated in the right kidney area, what they call 'referred pain'. This would certainly explain the suddenness of it all and the fact that it nearly made me pass out. A call to my Nephrologist who is also in 'cahoots' with my PMC, is that he feels that the IGAN certainly won't be helping matters, but would not give me pain as bad as this, one wise head on very knowledgeable shoulders Pierre, fancy being my Neph!!! I pay well LOL!!!!! Anyway that is what I have been advised today. No promises were made that these nerve blocks will kill or cure....but I have been given a reassurance that it would certainly ease matters. My recent '24 urine catch' revealed the usual blood which was microscopic, but no protein in it. Function was estimated at around 85%., so I am happy with that. Also interesting ESR score was 35 which is a test, though non definitive way of detecting inflammation within the body. Normal acceptable levels are 1-9, so something is inflamed. Low BP is being taken up between them all, to decide what or who I should see next. Will keep you all posted, and am glad to say that as sudden as this flared up, it has quickly settled down, leaving me feels slight jaded ( and very PEED OFF!!). I shall try to keep smiling, but on days this like it sure is hard work. Bless you all & keep well. . Re: Severe flank pain Pierre wrote in answer to me: I doubt that is related in any way to low blood pressure , unless whatever it is is causing the low blood pressure. I don't know what it is though. What does your doctor say about that purple rash? That part of it sure does sound like it could be HSP, especially when you add that to the fact that you have IgAN symptoms. But I assume they must have thought of that and dismissed it, as we have discussed before. Severe, *sudden* flank pain is absolutely not characteristic of IgAN. There has to be something else going on, I think. It's the suddeness and severity of it together that are puzzling. If it were me, to get something like that sorted out, especially with sudden pain severe enough to make you almost feel like you will pass out, I would go to Emergency or at least my doctor while I have the symptoms. Keep after them to find out. I suspect the fact that you have IgAN may be a " red herring " at this point, and distracting medics' attention from something else that might be going on. Hope you feel better this morning. Pierre > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 I find that if I do more or eat more than I should, I get some pain - probably not in your league, but I find it doesn't respond to drugs just rest. Can you make a similar correlation? From: karen@... Reply-To: iga-nephropathy To: iga-nephropathy Subject: Severe flank pain Date: Tue, 13 Feb 2001 10:59:27 -0000 Hi Everyone HELP!!! Severe right flank pain has returned today. It came on very suddenly, and is accompanied again by a purple rash, this time on face and chest. I felt perfectly ok, and was washing my car when wham. It was so intense I thought I was going to pass out. Managed to get indoors, where I have been sick, and have a really bad headache now!!! Have taken some Pethidine, the only thing that works for the pain, and it is gradually subsiding, but I feel totally exhausted. I don't want to go down to my GP again, as I am seeing him tomorrow anyway, but wondered if any of you guys could have any clues....as so far tests have revealed zilch. My temperature is normal by the way. Pierre could this be due to my low BP, or is it as I suspect a flare up of the IGAN, this is beginning to follow a familiar pattern, ok for a couple of weeks or even months, then off we go again. Thanks guys and sorry to be posting yet another whine!!! Best wishes to all, particularly Walt for continued well being. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Thanks for the idea , and agreed, if I overdo things, then I do get a more persistant pain. However it seems the medics have a different angle on this, so it is the wait and see game for me again. Whilst writing I forgot to say Pierre, the rash was put down to 'a nervous rash' i.e. my body's way of objecting to the pain!!!! I don't consciously get nervous, perhaps sub-consciously I do. This rash needs further investigation in my opinion, so have requested same. Will keep you all posted. Best wishes Severe flank pain Date: Tue, 13 Feb 2001 10:59:27 -0000 Hi Everyone HELP!!! Severe right flank pain has returned today. It came on very suddenly, and is accompanied again by a purple rash, this time on face and chest. I felt perfectly ok, and was washing my car when wham. It was so intense I thought I was going to pass out. Managed to get indoors, where I have been sick, and have a really bad headache now!!! Have taken some Pethidine, the only thing that works for the pain, and it is gradually subsiding, but I feel totally exhausted. I don't want to go down to my GP again, as I am seeing him tomorrow anyway, but wondered if any of you guys could have any clues....as so far tests have revealed zilch. My temperature is normal by the way. Pierre could this be due to my low BP, or is it as I suspect a flare up of the IGAN, this is beginning to follow a familiar pattern, ok for a couple of weeks or even months, then off we go again. Thanks guys and sorry to be posting yet another whine!!! Best wishes to all, particularly Walt for continued well being. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Hi Before I was diagnosed with IgAN, I had a very similar episode, but w/out the rash. We were @ the grocery store and I fell on the ground. The pain was also in my right side and VERY severe. I went to the emergency room, they thought it was a kidney stone, but could not find anything. They just gave me morphine for the pain. I do not think it is a coincidence that we and others have this. I hope that you feel better. Robyn --- karen@... wrote: > Hi Everyone > > HELP!!! Severe right flank pain has returned > today. It came on > very suddenly, and is accompanied again by a purple > rash, this time > on face and chest. I felt perfectly ok, and was > washing my car when > wham. It was so intense I thought I was going to > pass out. Managed > to get indoors, where I have been sick, and have a > really bad > headache now!!! Have taken some Pethidine, the only > thing that works > for the pain, and it is gradually subsiding, but I > feel totally > exhausted. > > I don't want to go down to my GP again, as I am > seeing him tomorrow > anyway, but wondered if any of you guys could have > any clues....as so > far tests have revealed zilch. My temperature is > normal by the way. > > Pierre could this be due to my low BP, or is it as I > suspect a flare > up of the IGAN, this is beginning to follow a > familiar pattern, ok > for a couple of weeks or even months, then off we go > again. > > Thanks guys and sorry to be posting yet another > whine!!! > > Best wishes to all, particularly Walt for continued > well being. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Wow. That explanation is quite a mouthful. It's not far-fetched though, I think. I have heard before that most of the organs and other stuff in the abdomen area share the same nerve pathways, and because of it, it's very hard to tell exactly where a pain is coming from, because it might not be felt exactly at its source. A sudden, severe, almost-make-me-faint type of pain such as you described would more likely be of musculoskeletal origin than from anything IgAN could do, I think. I don't understand why you would get a rash with it though. I don't buy that explanation for the rashes. Sounds like maybe you need to see a dermatologist. Malt wrote: > > Dear All > > First off thanks Pierre for the message, and the advice, which I have > taken > up. This is rather interesting and seems bizarre, but I can see the > sense > in it. Anyway as you know I have degeneration of the spine, and am > due to > undergo nerve block injections next week. Here is an excerpt from my > Pain > Management Consultant to my GP:- > > 'I think this lady has significant signs and symptoms of thoraco > lumbar > spine, which may be related to spinal origin, but are also secondary > to her > kidney disease and problems. I have explained how the kidney and the > thoraco lumbar spine have a similar nerve supply and that they share > the > sympathetics and therefore renal pathology can give rise to secondary > spasm > in the muscular skeletal symptom or even synergise with the primary > muscular > skeletal problem. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Robyn Thanks for sharing your experience with me.....mmmmmm puzzling this little mystery isn't it. If and when my medics get to the bottom of it I will of course let you know. Best wishes Re: Severe flank pain Hi Before I was diagnosed with IgAN, I had a very similar episode, but w/out the rash. We were @ the grocery store and I fell on the ground. The pain was also in my right side and VERY severe. I went to the emergency room, they thought it was a kidney stone, but could not find anything. They just gave me morphine for the pain. I do not think it is a coincidence that we and others have this. I hope that you feel better. Robyn --- karen@... wrote: > Hi Everyone > > HELP!!! Severe right flank pain has returned > today. It came on > very suddenly, and is accompanied again by a purple > rash, this time > on face and chest. I felt perfectly ok, and was > washing my car when > wham. It was so intense I thought I was going to > pass out. Managed > to get indoors, where I have been sick, and have a > really bad > headache now!!! Have taken some Pethidine, the only > thing that works > for the pain, and it is gradually subsiding, but I > feel totally > exhausted. > > I don't want to go down to my GP again, as I am > seeing him tomorrow > anyway, but wondered if any of you guys could have > any clues....as so > far tests have revealed zilch. My temperature is > normal by the way. > > Pierre could this be due to my low BP, or is it as I > suspect a flare > up of the IGAN, this is beginning to follow a > familiar pattern, ok > for a couple of weeks or even months, then off we go > again. > > Thanks guys and sorry to be posting yet another > whine!!! > > Best wishes to all, particularly Walt for continued > well being. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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